[A]
Androgen Insensitivity Assoc.Support Group of Australia
Alagille Syndrome Support Group
Albino Support Group 
Alliance of Genetic Support Group, U.S.A.
Angelman Syndrome Assoc. Inc.
Alzheimer’s Assoc of Aust Inc.
A.P.I.A. (Aust.Primary Immune Deficiencies Assoc.)
Assoc. for Children With a Disability, Vic.
Assoc. for the Welfare of Child Health (AWCH)
AUSSIE FOLKS
Aust. Arthrogryposis Group (TAAG) Inc.
Aust. CHARGE Association
Aust. Crohn’s & Colitis Assoc.
Aust. Huntington’s Disease Association (Qld) Inc.
Aust. Huntington’s Disease Assoc. (NSW) Inc. 
Aust. Speak East Assoc.
Australasian Tuberous Sclerosis Society Inc.
Aust. Leukodystrophy Support Group
Aust. Society for Ectodermal Dysplasia
Autistic Assoc. of NSW
[B]
Batten’s Disease Support & Research Foundation
Beckwith-Weidemann Syndrome Support Group
[C]
Cardiomyopathy Assoc of Aust. Inc
Centacare Early Intervention.
Charcot Marie-Tooth Assoc. of Aust Inc.
Charcot Marie-Tooth Disease, USA
CONTACT A FAMILY U.K.
Coorinda Family Support Group
Cleft Pals, The Cleft Palate & Lip Society
Coeliac Society of NSW Inc.
Congenital Adrenal Hyperplasia Support Group
Cornelia de Lange Syndrome Support Group 
Cri du Chat Syndrome Support group of Australia
CVS Support Group (WA)
Cystic Fibrosis Assoc of Qld Ltd.
Cystic Fibrosis Assoc. of Vic
Cystic Fibrosis Assoc of ACT
Cystic Fibrosis Foundation, North Ryde.
[D]
DIAL (Qld)
Donor Conception Support Group
D.E.B.R.A.
Depressive & Manic Depressive Assoc.
[E]
Early Education Clinic, North Sydney
Ehlers-Danlos Syndrome Support Group
Exceptional Parent (USA)
[F]
Fabry’s Support Group Inc.(Vic)
Family Advocacy
Family Planning Assoc. 
FAP Register (NSW Cancer Council)
Fragile X Assoc of Australia
Friedreich Ataxia Assoc of NSW
[G]
Gaucher Assoc. of Australia
Genzyme Australia Pty. Ltd.
Genetic Interest Group (GIG)
[H]
Haemochromatosis Information Service & Support Group NSW
Haemophilia Foundation NSW
Hereditary Haemorrhagic Telangiectasia
Hereditary Fructose Intolerance
Hunter Orthopaedia School
Huntingtons Disease Assoc. (NSW)
Huntingtons Disease Assoc. (QLD)
[I]
IDEAS Onc.
[K]
Klinefelter Syndrome Support Group
Kurrajong Early Intervention
[L]
Leukodystrophy Foundation (USA)
Leighs Disease Support Group
Lowe’s Syndrome Assoc. Inc.(USA)
Lysosomal Storage Disorders
[M]
Maternity Alliance
M.P.S. Society
Marfan Syndrome Support Assoc. NSW
Meniere’s (NSW) Support Group
Motor Neurone Disease Assoc. of NSW Inc.
Multiple Epiphyseal Dysplasia Assoc.
Muscular Dystrophy Assoc of NSW 
Muscular Dystrophy Assoc (NZ) Inc.
[N]
NALAG
National Council of Intellectual Disability
Neurofibromatosis Assoc.
Noonan Syndrome Support Group
NSW Genetics Education Program
NSW Cancer Council
[O]
Osteopetrosis  Support Group
Osteogenesis Imperfecta of Aust.
[P]
Parents Bereavement Support Group
Parent to Parent (NZ)
Pen-Parents of Aust. (ACT)
PKU Assoc of  NSW
Psoriasis Society
Pseudoxanthoma Elasticum Support Group
Prader-Willi Syndrome Assoc
Pyruvate dehydrogenase deficiency.
[R]
Rare Chromosomes Disorders Support Group
Retinitis Pigmentosa Society of NSW Inc.
Rett Syndrome Assoc. of Aust.
Royal Blind Society of  NSW
R.T.M.D.C. (U.K.)
[S]
SAFDA
SANDS
Short Statured People of Aust (NSW)
Short Statured People  of Aust (Vic)
Short Statured People of Aust. (SA)
Spinal Muscular Atrophy
Schizophrenia Fellowship NZ
Smith Magenis Syndrome Support Group Inc.
Spastic Society of Victoria
Spina Bifida Assoc. of NSW
Spina Bifida Assoc. of  WA Inc.
Society of Ectodermal Dysplasia
SOFT Australia
Southern Child Care Support Program
Sotos Syndrome Support Group
[T]
The Northcott Society
Thalassaemia Society of  NSW
Turner Syndrome Assoc of Aust. Ltd. (QLD)
Turner Syndrome Assoc. of Aust. Ltd. (NSW)
[U]
Uncontrolled Epilepsy Support Assoc (Vic)
United Leukodystrophy Foundation (USA)
[V]
Velo-Cardio-Facial Syndrome Foundation of Australia.
[W]
Wellington Huntington’s Disease Assoc.(Inc.) (NZ)
Wolf-Hirschhorn 4p- Syndrome Support Group
Williams Syndrome Association