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Treatment As the outcome of the diagnosis of progeria is inevitable, it is understandable that there are going to be difficulties accepting the reality and all involved will have questions. The majority of all doctors are not familiar with this rare disease and medical treatment is extremely limited. One of the most common treatments is the administration of low-dose aspirin in a desperate attempt to delay the onset of atherosclerosis and the appropriate drugs to deal with the pain caused by progressive arthrosis. This is basically all there is in the ways of treatment and there is no cure. There is only one other treatment that I have found. Some say that “a smile is the best medicine,” so there are things that are of help in this way. Due to the rarity of this disease, the cases are few and far apart. It is this that sparked the funding of the Sunshine Foundation in the United States in 1981 ('To grant dreams and wishes to chronic and terminally ill children') which was organized a meeting of two children with progeria. The children, Meg (USA) and Francy (South-Africa) were the first of many of these get-togethers which now occur annually for the children and their families. In theses meeting they share their experiences and develop bonds that last in the week long, event filled get-togethers. There are also other support groups (later mentioned with other organizations in the research section). |
