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Submit Prayer Requests for sick, chronic, critical, and terminal children. You may follow the praying hands to submit a webpage of a child that is in need of our prayers, or go to the message forum to submit prayers on the board for children that do not have webpages. WebTV and Lower Browsers, please use this link to submit prayer requests for children. Thanks and God Bless. |
Childhood Brain Tumor Foundation
20312 Watkins Meadow Drive
Germantown, MD 20876
(301) 515-2900
http://www.monumental.com/cbtf/
Heightens public awareness of
childhood brain tumors, funds clinical as well as basic scientific
research, enhances efforts to develop safer and more effective
therapies, and serves as an advocate for children disabled by this
disease.
Children's Brain Tumor Foundation
274 Madison Avenue Suite 1301
New York, NY 10016
(212) 448-9494
FAX: (212) 448-1022
http://www.cbtf.org
CBTF raises funds for research
programs and medical personnel training, hosts monthly parent
support meetings in New York City; provides free resource guide
for parents of children with brain and spinal cord tumors.
Pediatric Brain Tumor Foundation
of the United States
315 Ridgefield Court
Asheville, NC 28806
(800) 253-6530 * (828) 665-6891
e-mail: Ride4Kd@IBM.NET
http://www.ride4kids.org
The sole funder of the brain tumor registry, PBTF promotes
awareness of brain tumors so increased funding for laboratory
research will be available.
Blood and Marrow Transplant
(BMT) Newsletter
2900 Skokie Valley Road
Highland Park,IL 60035
888-597-7674
847-433-3313
e-mail: help@bmtnews.org
http://www.bmtnews.org
Candelighters Childhood Cancer Foundation
7910 Woodmont Avenue, Suite 460
Bethesda, MD 20814
(800) 366-2223
(301) 657-8401
e-mail: info@candlelighters.com
http://www.candlelighters.org
Children's Hospice International
2202 Mt. Vernon Ave. Suite 3-C
Alexandria, VA 22301
(800) 242-4453 * (703) 684-0330
e-mail: chiorg@aol.com
http://www.chionline.org
Cure for Lymphoma Foundation
215 Lexington Avenue
New York, New York 10016-6023
(212) 213-9595 * FAX: (212) 213-1987
e-mail: InfoCFL@aol.com
http://www.cfl.org
Leukemia Society of America
(CNS Lymphoma)
600 Third Avenue
New York, NY 10016
(800) 955-4LSA * (212) 573-8484
FAX: (212) 856-9686
e-mail: infocenter@leukemia.org
http://www.leukemia.org
Lymphoma Research Foundation
of America
8800 Venice Blvd. Suite 207
Los Angeles, CA 90034
(310) 204-7040 * FAX: (310) 204-7043
e-mail: lrfa@aol.com
http://www.lymphoma.org
National Bone Marrow Transplant Link
29209 Northwestern Highway # 624
Southfield, MI 48034
(800) 546-5268
(810) 932-8483
FAX: (810) 932-8483
National Cancer Institute
Building 31, Room 10A24
Bethesda, MD 20892
Cancer Information Service and
Physician Data Query
1-800-4CANCER
http://cis.nci.nih.gov
Neuroblastoma Children's Cancer Society
P.O. Box 957672
Hoffman Estates, IL 60195
(800) 532-5162
(847) 490-4240 * FAX: (847) 490-0705
http://www.granitewebworks.com/nccs.htm
American Society for Deaf Children
814 Thayer Avenue
Silver Spring, MD 20910
(800) 942-2732
e-mail: ASDCl@aol.com
American Speech-Language-Hearing Association
10801 Rockville Pike
Rockville, MD 20852
(800) 638-8255 * FAX: (301) 897-7348
http://www.asha.org
Brain Injury Association, Inc.
105 North Alfred Street
Alexandria, VA 22314
(703) 236-6000 FAX: (703) 236-6001
e-mail: biahelp@biausa.org
http://www.biausa.org
Cushing's Support and Research Foundation
(Cushing's Syndrome)
65 East India Row, #22B
Boston,MA 02110-3389
(617) 723-3674
http://world.std.com/~CSRF
The Diabetes Insipidus Foundation, Inc.
c/o Marion and Joe Arminger
4533 Ridge Drive
Baltimore, MD 21229
(410) 247-3953
e-mail: diabetesinsipidus@maxinter.net
http://diabetesinsipidus.maxinter.net
Epilepsy Foundation of America
4351 Garden City Drive
Landover, MD 20785-2267
(800) 332-1000 * FAX: (301) 577-4941
http://www.epilepsyfoundation.org
Hydrocephalus Association
870 Market Street, Suite 955
San Francisco, CA 94102
(415) 732-7040
Operates listserv HYCEPH-L
http://www.HydroAssoc.org
e-mail: hydroassoc@aol.com
Hydrocephalus Foundation, Inc.
910 Rear Broadway
Saugus, MA 01906
(617) 942-1161
FAX: (617) 231-5250
http://www.hydrocephalus.org
Let's Face It
(Facial difference)
Box 29972
Bellingham, WA 98228-1972
(360) 676-7325
e-mail: letsfaceit@faceit.org
http://www.faceit.org/~letsfaceit/
50 page resource list published annually;
available
for cost of postage.
International Radiosurgery
Support Association
P.O. Box 60950
Harrisburg, PA 17106-0950
(717) 671-1701 * FAX: (717) 671-1703
e-mail: intouch@irsa.org
http://www.irsa.org
Hydrocephalus Research Foundation
1670 Green Oak Circle
Lawrenceville, GA 30243
(770) 995-9570
FAX: (770) 995-8982
National Aphasia Association
156 Fifth Avenue, Suite 707
New York, NY 10010
(800) 922-4622 * FAX: (212) 989-7777
e-mail: klein@aphasia.org
http://www.aphasia.org
National Ataxia Foundation
2600 Fernbrook Lane, Suite 119
Minneapolis, MN 55447
(612) 553-0020 * FAX: (612) 553-0167
e-mail: naf@mr.net
http://www.ataxia.org
National Association for
Parents of the Visually Impaired
P.O. Box 317
Watertown, MA 02272-0317
(800) 562-6265 * FAX: (617) 972-7444
National Center for Learning Disabilities, Inc.
381 Park Avenue South, Suite 1420
New York, NY 10016
(888) 575-7373 * (212) 545-7510
http://www.ncld.org
National Chronic Pain Outreach
Association, Inc. (NCPOA)
P.O. Box 274
Millboro, VA 24460
(540) 997-5004 * FAX: (540) 997-1305
email: NCPOA1@aol.com
National Family Caregivers Association
9621 East Bexhill Drive
Kensington, MD 20895-3104
(800) 896-3650 * FAX: (301) 942-2302
e-mail: info@nfcacares.org
http://www.caregiver.com
National Institute on Deafness and
Other Communication Disorders
National Institutes of Health
Building 31, Room 3C35
Bethesda, MD 20892-2320
(800) 241-1044 FAX: (301) 907-8830
e-mail: nidcd@aerie.com
http://www.nih.gov/nidcd
National Library Service for the Blind
and Physically Handicapped
1291 Taylor Street NW
Washington, DC 20542
(202) 707-5100 FAX: (202) 707-0712
e-mail: NLS@loc.gov
http://lcweb.loc.gov/nls
National Neurofibromatosis Foundation
95 Pine Street, 16th Floor
New York, NY 10005
(800) 323-7938 * (212) 344-6633
FAX: (212) 747-0004
e-mail: nnff@aol.com
http://www.nf.org
National Organization for Rare Disorders, Inc.
(NORD)
P.O. Box 8923
New Fairfield, CT 06812-8923
Telephone: (203) 746-6518
Toll-Free (800) 999-6673
Fax: (203) 746-6481
e-mail: orphan@rarediseases.org
http://rarediseases.org
National Rehabilitation
Information Center
1010 Wayne Avenue, Suite 800
Silver Spring, MD 20910
(800) 346-2742 * (301) 562-2400
http://www.naric.com
National Tuberous Sclerosis Association
8181 Professional Place Suite 110
Landover, MD 20785-2226
(800) 225-6872 * (301) 459-9888
e-mail: ntsa@ntsa.org
http://www.ntsa.org
Neurofibromatosis, Inc.
8855 Annapolis Rd. Suite 110
Lamham, MD 20706-2924
(800) 942-6825 * (301) 577-8984
FAX: (301) 577-0016
e-mail: NFINC@gnn.com
http://www.nfinc.org
Neuropathy Association
(Peripheral neuropathy)
P.O. Box 2055, Lennox Hill Station
New York, NY 10021
(800) 247-6968 * FAX: (212) 692-0668
e-mail: info@neuropathy.org
http://www.neuropathy.org
NIH Neurological Institute (NINDS)
National Institutes of Health
Building 31, Room 8A16
Bethesda, MD 20892-2540
(800) 352-9424
(301) 496-5751
http://www.ninds.nih.gov
NIH Office of Rare Diseases
National Institutes of Health
31 Center Drive, MSC 2082
Room 1B03
Bethesda, MD 20892-2082
(301) 402-4336 * FAX (301) 402-0420
e-mail: sg18b@nih.gov
http://rarediseases.info.nih.gov/ord/
Pseudotumor Cerebri Society
750 East Adams Street
Syracuse, NY 13210
(315) 464-3937
e-mail: mtanay@aol.com
St. Jude Children's Research Hospital - Memphis, TN
http://www.stjude.org/brain
Southeastern Brain Tumor Foundation
http://groups.accessatlanta.com/sbtf
Southwest Oncology Group (SWOG)
maintains a website listing their
clinical trials.
http://www.oo.saci.org/brain3.html
University of Chicago
Department of Neurology
http://ucneurology.uchicago.edu/index.html
Kid's Home
(NCI's home page for Children with cancer)
http://wwwicic.nci.nih.gov/occdocs/KidsHome.html
PDQ (Physician's Data Query) - is a database produced by the National
Cancer Institute.
http://cancernet.nci.nih.gov/trials
Jim Kenzig's site - Information on Brain Stem Tumors
http://www.zoner.net/zoned/index.cfm
Johns Hopkins Radiosurgery
http://www.med.jhu.edu/radiosurgery
Epilepsy Foundation of America
http://www.efa.org
Hydrocephalus Association
http://neurosurgery.mgh.harvard.edu/ha/
Childhood Cancer Group(CCG) - A listing of CCG protocols is available
at this National Childhood Cancer Foundation website.
http://www.nccf.org/nccf/ccg_who.htm
Dana BrainWeb: Great Sites for Information on Brain Diseases and
Disorders
http://www.dana.org/brainweb
CANSEARCH: A GUIDE TO CANCER RESOURCES - A Guide to Cancer Resources on the Internet, courtesy of
the National Coalition for Cancer Survivorship
http://www.access.digex.net/~mkragen/cansearch.html
Cedars-Sinai Hospital Neurosurgical Institute - A neurosurgical center for brain tumors
http://www.csmc.edu/nsi/
Cancerlinks - Searching the web for information
http://www.cancerlinks.org
Cancer News on the Net -
A comprehensive online cancer guide
http://www.cancernews.com
Cancer Hope Network is a not-for-profit organization that provides free and confidential
one-on-one support to cancer patients and their families
http://www.cancerhopenetwork.org
People sharing a common interest in an illness or another subject can communicate with one another using a list
serv, a simple way to use the Internet. Participants send e-mail to a
special address which forwards the message to all group members. The
"discussion" does not occur live but develops from a series of topic-oriented
messages sent and received over a period of time. You will receive several
e-mail messages daily as long as you subscribe to the list. Three such groups
are described below:
BRAINTMR is a forum to discuss topics related to all types of brain tumors,
whether benign or malignant.
To subscribe, send a message from your e-mail account to:
listserv@mitvma.mit.edu
The text of your message should read:
subscribe BRAINTMR <your name>
Example: subscribe BRAINTMR Jane Doe
EPILEPSY-L is an e-mail based support group for people with seizure disorders. Complete information
is available at the Epilepsy List web page
http://home.ease.lsoft.com/Archives/Epilepsy-L.html.
HYCEPH-L is an information and support forum for hydrocephalus.
To subscribe, send e-mail to:
listserv@vm.utcc.utoronto.ca
Text: subscribe HYCEPH-L <your name>
Other Listserv mailing lists include
DISABILITIES, CANCER-L, the Hem-Onc listserv (includes CNS Lymphoma),
HOSPIC-L and bmt-talk; some of these are described in
detail in the NCCS CANSEARCH guide mentioned above; many can be accessed
through ONCOLINK's Automated E-mail Discussion Group Subscriber.
