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WELCOME TO MY LUPIE WORLD



blueline

WELCOME HOME FRIENDS

I am so happy that you stopped by for a visit!!!!!

Here is a cold glass of tea and I have a hammock hanging up under my palm tree waiting for you to climb in, rest and surf around my pages

Thanks for stopping by and enjoy my site!!

Love & Lupie Hugs,
quill and ink

blueline


TEARS OF THE INTERNET


Listen carefully, Can you hear it?
It is a soft sound, so muted it is barely noticeable.
At times it even seems to fade away
in the distance-- far, far away.
Until you think it was never there....
But then you hear again,
whisper soft and gentle.
It sometimes takes a while
to figure out just what it is.
To even admit that you hear it.


Bring your ear closer to the computer.
Just a Little closer,still Now you hear it
Now you know it is there.
And you know what it is.
Finally you recognize it.
There simply is no denying the realization.
It is the Sound of people Crying.


The Internet is generally thought of as
a place where people gather for fun,
for information, sometimes just to talk.
Yes, it certainly is that.
People spend hours just getting lost
in its seductive maze
There are wonderous sights to see,
mountains of information to be had
and to be found,
But it is also a place of heartbreak,
a refuge for those souls who daily pour
their hearts out over the keyboard
and onto the screen


There is a lot of human tragedy
to be found among the laughter the jokes,
the shopping, and the games.
One might have to search a bit,
but it is there. Unfortunately, it is there.
,BR>
I know it is there because I have found it.
Kindred souls like myself,
who daily must wake up each morning,
and find out that the dream is not real after all.
What Dream? The dream that our pains
have magically disappeared in the night;
that our bodies produced a miracle while we slept.
A miracle that would astound the medical community
and give us back the lives we have lost.


The Idea that maybe we can enjoy one day,
one hour, one minute without the burning,
the gnawing, the stabbing.
Just one day without having to concentrate
on health issues.......
Whre does the pain come from?
Various sources; some unknown.
From shattered bones, from torn nerves,
from deep within our worn and tired bodies.


The pain also comes from our minds;
from knowing that all we have endured-
the tests, the operations, the medications
that alter our minds and our wills-
have come to naught. hearing again and again
the Doctors saying that there nothing more they can do:
that maybe if we traveled 500 miles to see
doctor so and so that perhaps he has the answer.
And deep within, we know that he doesn't.
We know that no one can help us find peace.
No One but Ourselves....


That is what has brought us
together in the first place.
This common bond of pain that we share.
The heartbreaking stories
which tear at the soul, of lives shattered,
marriages destroyed, hopes dashed, pain endured.
We live our ups and downs on the message boards,
chat rooms, mailing lists
of that wonderful invention known as the Internet.
A haven, a place we can go to console each other,
celebrate our victories and
help each other endure our defeats.
A place to find understanding in a world
which does not understand us at all.


How did we find each other?
For each, it is a different story.
Most find their way by accident,
by stumbling across a message posted
in desperation on a part of the Internet
that other people never even know exists.
Suddenly, there is recognition.
Suddenly, there is hope.


Someone understands; someone knows,
And not just one person. MANY....
We hug each other, we cry, we laugh.
We share our deepest thoughts with
people who may live athousand miles away
and whom we may never, ever meet
Faceless strangers who go by strange, cyperspace names.
But it doesn't matter.
Our minds and hearts connect, and that is enough.


Lives have been saved on the Internet.
Those in the depths of despair
have written their sorry message
across the screen tears running down
their faces as the words take form
and carry the cry of desperation across cyberspace.
And someone always answers.
Always.


We are there for each other,
and always will be.
We may not have the answers;
we don't even know what the questions are.
But for a short time,
we can ease one type of pain;
the pain of thinking that
someone is all alone.


So as others play cyber games,
cyber flirt, even go cyber shopping
in cyber malls, we are here
holding each others hands
and trying to make it through
another pain filled,
Disease stricken unending day.


Think of us here, sometimes,
if you will And if you ever feel
the need to join our ranks,
don't be afraid.
We will be here to welcome you.
We are the Tears on the Internet!!!

~~Author:Sherry Messick~~





blueline



This is what my Lupie World has on it's pages.....


A Personal Message From Me To You
I hope you read this and enjoy. It is about why I have done this website about lupus, our campaign to raise awareness to lupus and info on if you would like to join us in raiseing awareness.

blueline



My Personal Story
It was not easy to write but it was something that I needed to do so I could start my personal healing process. I hope you enjoy reading it.

blueline



Poems Written By Some Great Lupie Friends
Here you will find an index of some great poems pages and inspiriational pages.

blueline



My Friends Web Pages And Personal Stories
I think everyone should have a web page! When I wrote my first web page about my life with lupus something almost magical happened. I honestly felt that I had a 1000 lbs. lifted off my shoulders. It wasn't easy to write and I cried an ocean of tears but once it was on the net I felt like I had let my secret out and I could allow the healing process to begin.

You will also be able to read personal stories about people just like you and I. I am going to compile these stories into a new storybook so I can send out to the TV Talk Shows, Newspapers and anyone else that I have been writing letters to. Please write your story down and mail it to me, strength comes in numbers and we need as many stories as we can to bring awareness. This is my latest letter that's out.

blueline



blueline



Lupus Forums
Here is where you will find myself and many of my friends posting messages to each other about all aspects of Lupus. Posting a simple word of kindness can mean the world to someone who is down. We Lupies share a wealth of information and pass this information on to our different Dr.'s.

blueline



Everything You Ever Wanted To Know About Lupus
Ok that is a little tongue in cheek however if you can't find the answer to your question on these links then you haven't read them thoroughly, As that Cajun cook from Louisiana says......I GUARANTEE IT!!!!!!!! LOL.......


blueline

Living With A Chronic Illness
I have found thougths and ideas about living with any chronic disease. It is a challenge to try to live healthy and productive when you are facing illness.

blueline



Related Diseases Links
We all know that Lupus LOVES company so here are some links for you to research when your Dr. tells you that you have something else!

blueline



Joint Protection
Prolonged use of Prednisone can make our joints and bones brittle so here are some tips to remember to help protect them.

blueline



Bladder Problems
This is some valuable information to discuss with your Dr.

blueline



Hospital And Physician Information
You have the RIGHT to ask questions and get answers from your hospital and physicians. This is a guide of some questions and information you should know.

blueline



Understanding Side Effects of Medications
Here are some questions to ask and information to be aware of before you start a new medication

blueline



Medication Information and Links
Want to research your medication? These are some links to do that and some information about commonly used meds. in the treatment of Lupus.

blueline



Chemo Drugs
Chemo Drugs that are used in the treatment of Lupus.

blueline



Postmenopausal Information
I was recently told by my OBGYN that I have started Menopause. I find it amazing how many women with Lupus have had hysterectomy's at a very young age!

blueline



Exercise
Even when you are bedridden or have severe Arthrtis you can still benefit from exercise.

blueline



Helpful Hints For Living With Lupus And FM
Paraffin Baths, Cold Fingers and Toes

blueline



Aromatherapy, Scents, Baths And Massages
This is a page to print out and keep!!!! It will make you feel soooo good :). You may wish to include your spouse wink,wink LOL.....

blueline




Letters I Have Written
Here are a few of the letters that I have written. Some of them have been published. My body may be broken but my mind isn't and writing letters is one thing that I can do to Promote and Support Lupus Awareness.

blueline



Latest Lupus News
These are the latest press releases from the Lupus Foundation Of America.

blueline





Misc. News Releases
A Potpourri Of Different Lupus Related News Articles

blueline



Spiritual And Emotional Healing
Daily food for your mind, heart and soul.

blueline



Books, T-shirts And Buttons

blueline



Memorial Pages
Special Pages For Our Special Lupie Angels

blueline



Awards I Have Given For Acts Of Kindness To Lupies
This page is dedicated to anyone who does an act of kindness by helping someone who has Lupus. We are in this fight together and I just want to acknowledge those who have done something special.

blueline



Awareness Rings And Awards I have Been Given

blueline



Free Stuff By Mail
I don't have any idea who compiled this list but my hat's off to them!!

blueline



Inspirational Pages
I get all these wonderful inspirational websites sent to me and it never fails if I go to look for one I can't find it. So I thought I would keep a page of the best ones to share. They are wonderful to read especially if you are feeling a little down.

blueline



Cool Websites
Just some neat websites that I have come across on the web!

blueline


Rattle Those Funny Bones!!!
They say laughter is the best medicine so I'll try and dish up a healthy dose for you.

blueline



If you learn one thing in my almost 2,000 pages on my webpage, I hope it is that this may be a rough rode at times for you but you CAN make it because YOU ARE A HERO.....



There's a hero

If you look inside your heart

You don't have to be afraid

Of what you are

There's an answer

If you reach inside your soul

And the sorrow that you know

Will melt away



And then a hero comes along

With the strength to carry on

And you cast you fears aside

And you know you can survive

So when you feel like hope is gone

Look inside you and be strong

And you'll finally see the truth

THAT A HERO LIES IN YOU



It's a long road

When you face thise world alone

No one reaches out a hand

For you to hold

You can find love

If you search within yourself

And the emptiness you felt

Will disappear



And then a hero comes along

With the strength to carry on

And you cast you fears aside

And you know you can survive

So when you feel like hope is gone

Look inside you and be strong

And you'll finally see the truth

THAT A HERO LIES IN YOU



Lord knows

Dreams are hard to follow

But don't let anyone

Tear them away

Hold on

There will be a tomorrow

In Time

You'll find the way



And then a hero comes along

With the strength to carry on

And you cast you fears aside

And you know you can survive

So when you feel like hope is gone

Look inside you and be strong

And you'll finally see the truth

THAT A HERO LIES IN YOU



Hero by Mariah Carey is also the background music that is being played on this page.



blueline



THANK YOU FOR TAKING THE TIME TO VISIT MY HOMEPAGE. SADLY I HAVE HAD TO REMOVE MY GUESTBOOK BECAUSE CHELSEA KEEPS REPEATEDLY ANONYMOUSLY FLAMING ME WTH LIES DUE TO JEALOUSY ON HER PART.
br> BRAVENET GUESTBOOK RECORDS THE ISP TRACKING NUMBER ON EVERY POST AND DISPITE MINE AND THEIR EFFORTS TO REPORT HER TO HER PROVIDER FOR ABUSE AND FLAMING, FIDNET DID NOT DO ANYTHING TO STOP HER. I HAVE SPENT ALMOST 4 YEARS AND HUNDREDS OF HOURS BUILDING THIS WEBSITE TO HELP MY FELLOW LUPUS SUFFERERS LEARN ABOUT OUR DISEASE, ESPECIALLY NEWLY DX'D PEOPLE, TO ALLOW THE HATEFUL LIES TO CONTINUE TO BE POSTED IN MY GUESTBOOK.



I AM NO LONGER ONLINE AND AVAILABLE TO HELP ANYONE ANYMORE BECAUSE OF THE STRESS I ENDURED BY ALL OF THIS. I HEARTFULLY APOLOGIZE TO MY MANY, MANY FRIENDS WHO I MISS DEEPLY AND I KNOW MOST OF YOU UNDERSTAND AND KNOW THE TRUTH. I HOLD MY HEAD HIGH BECAUSE I HAVE DONE NOTHING WRONG.






burning 
candle

This Candle Burns Bright For Our Sweet Lupie Angels...........

blueline

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