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General Special Needs Links | Rare Diseases and Condition Links | More General Links


Submit Prayer Requests for sick, chronic, critical, and terminal children. You may follow the praying hands to submit a webpage of a child that is in need of our prayers, or go to the message forum to submit prayers on the board for children that do not have webpages. WebTV and Lower Browsers, please use this link to submit prayer requests for children. Thanks and God Bless.

Forgotten Kids Angels of our Hearts Sawyer's Family
Special Child Magazine Give A Terminally
Ill Child A Smile
Cerebral Palsey Network
Help With Special Needs Children Links To Learning Disabilities
Mental Health Disorders Shriners Children With Cancer
Disability Resources Parents Helping Parents Advocacy Groups
POSK Disabilities
Med Help International Genetic
Drug List
When Chronic Illness
Goes To School
Developmental Delay
Assistive Technology
In Spec Ed
Playground Equipment
Ammino Supplementation
For Downs
Check with your Dr. first!
Behavioural Problems Mackay
* Great Links! *
Esmerel's Links NICHY
Gives disability sources
For each state
Special Needs Resources
Of Florida
Will Power's Autism Homepage S.O.F.T.
Support Organization For
Trisomy 18, 13,
and Related Disorders
CDF=> Sign Them Up
Children's Defense Org's
Help with insuring your children
Special Child's Bulletin Board
Shreela's Chromosome Disorder Page
Concentrates on the 19th Chromosome
Prayer support site
for familes and their children
with special needs
Welcome to our Journey
with Spina Bifida
fetal valproate syndrome
* MUMS *
* Matches Parents Of Children *
* With RARE Disorders *
Diagnosis Match
The place to find a child similar to yours

There are numerous rare diseases and genetic links on Shilo's links page
Attention Deficit
Hyperactivity Disorder
Medical Reference Library ADD/ADHD Newsletter 
Taking Control Through Knowledge Children and Adults with ADD Resources on ADD
The Doctor Is In

General Special Needs Links | Rare Diseases and Condition Links | More General Links
* More Links * morelinks.shtml
Childhood Brain Tumor Foundation
20312 Watkins Meadow Drive
Germantown, MD 20876
(301) 515-2900
Heightens public awareness of childhood brain tumors, funds clinical as well as basic scientific research, enhances efforts to develop safer and more effective therapies, and serves as an advocate for children disabled by this disease.
Children's Brain Tumor Foundation
274 Madison Avenue Suite 1301
New York, NY 10016
(212) 448-9494
FAX: (212) 448-1022
CBTF raises funds for research programs and medical personnel training, hosts monthly parent support meetings in New York City; provides free resource guide for parents of children with brain and spinal cord tumors.
Pediatric Brain Tumor Foundation
of the United States

315 Ridgefield Court
Asheville, NC 28806
(800) 253-6530 * (828) 665-6891
e-mail: Ride4Kd@IBM.NET
The sole funder of the brain tumor registry, PBTF promotes awareness of brain tumors so increased funding for laboratory research will be available.
Blood and Marrow Transplant
(BMT) Newsletter

2900 Skokie Valley Road
Highland Park,IL 60035
Candelighters Childhood Cancer Foundation
7910 Woodmont Avenue, Suite 460
Bethesda, MD 20814
(800) 366-2223
(301) 657-8401
Children's Hospice International
2202 Mt. Vernon Ave. Suite 3-C
Alexandria, VA 22301
(800) 242-4453 * (703) 684-0330
Cure for Lymphoma Foundation
215 Lexington Avenue
New York, New York 10016-6023
(212) 213-9595 * FAX: (212) 213-1987
Leukemia Society of America
(CNS Lymphoma)

600 Third Avenue
New York, NY 10016
(800) 955-4LSA * (212) 573-8484
FAX: (212) 856-9686
Lymphoma Research Foundation
of America

8800 Venice Blvd. Suite 207
Los Angeles, CA 90034
(310) 204-7040 * FAX: (310) 204-7043
National Bone Marrow Transplant Link
29209 Northwestern Highway # 624
Southfield, MI 48034
(800) 546-5268
(810) 932-8483
FAX: (810) 932-8483
National Cancer Institute
Building 31, Room 10A24
Bethesda, MD 20892
Cancer Information Service and Physician Data Query
Neuroblastoma Children's Cancer Society
P.O. Box 957672
Hoffman Estates, IL 60195
(800) 532-5162
(847) 490-4240 * FAX: (847) 490-0705
American Society for Deaf Children
814 Thayer Avenue
Silver Spring, MD 20910
(800) 942-2732
American Speech-Language-Hearing Association
10801 Rockville Pike
Rockville, MD 20852
(800) 638-8255 * FAX: (301) 897-7348
Brain Injury Association, Inc.
105 North Alfred Street
Alexandria, VA 22314
(703) 236-6000 FAX: (703) 236-6001
Cushing's Support and Research Foundation
(Cushing's Syndrome)

65 East India Row, #22B
Boston,MA 02110-3389
(617) 723-3674
The Diabetes Insipidus Foundation, Inc.
c/o Marion and Joe Arminger
4533 Ridge Drive
Baltimore, MD 21229
(410) 247-3953
Epilepsy Foundation of America
4351 Garden City Drive
Landover, MD 20785-2267
(800) 332-1000 * FAX: (301) 577-4941
Hydrocephalus Association
870 Market Street, Suite 955
San Francisco, CA 94102
(415) 732-7040
Operates listserv HYCEPH-L
Hydrocephalus Foundation, Inc.
910 Rear Broadway
Saugus, MA 01906
(617) 942-1161
FAX: (617) 231-5250
Let's Face It
(Facial difference)

Box 29972
Bellingham, WA 98228-1972
(360) 676-7325
50 page resource list published annually;
available for cost of postage.
International Radiosurgery
Support Association

P.O. Box 60950
Harrisburg, PA 17106-0950
(717) 671-1701 * FAX: (717) 671-1703
Hydrocephalus Research Foundation
1670 Green Oak Circle
Lawrenceville, GA 30243
(770) 995-9570
FAX: (770) 995-8982
National Aphasia Association
156 Fifth Avenue, Suite 707
New York, NY 10010
(800) 922-4622 * FAX: (212) 989-7777
National Ataxia Foundation
2600 Fernbrook Lane, Suite 119
Minneapolis, MN 55447
(612) 553-0020 * FAX: (612) 553-0167
National Association for
Parents of the Visually Impaired

P.O. Box 317
Watertown, MA 02272-0317
(800) 562-6265 * FAX: (617) 972-7444
National Center for Learning Disabilities, Inc.
381 Park Avenue South, Suite 1420
New York, NY 10016
(888) 575-7373 * (212) 545-7510
National Chronic Pain Outreach
Association, Inc. (NCPOA)

P.O. Box 274
Millboro, VA 24460
(540) 997-5004 * FAX: (540) 997-1305
National Family Caregivers Association
9621 East Bexhill Drive
Kensington, MD 20895-3104
(800) 896-3650 * FAX: (301) 942-2302
National Institute on Deafness and
Other Communication Disorders

National Institutes of Health
Building 31, Room 3C35
Bethesda, MD 20892-2320
(800) 241-1044 FAX: (301) 907-8830
National Library Service for the Blind
and Physically Handicapped

1291 Taylor Street NW
Washington, DC 20542
(202) 707-5100 FAX: (202) 707-0712
National Neurofibromatosis Foundation
95 Pine Street, 16th Floor
New York, NY 10005
(800) 323-7938 * (212) 344-6633
FAX: (212) 747-0004
National Organization for Rare Disorders, Inc.

P.O. Box 8923
New Fairfield, CT 06812-8923
Telephone: (203) 746-6518
Toll-Free (800) 999-6673
Fax: (203) 746-6481
National Rehabilitation
Information Center

1010 Wayne Avenue, Suite 800
Silver Spring, MD 20910
(800) 346-2742 * (301) 562-2400
National Tuberous Sclerosis Association
8181 Professional Place Suite 110
Landover, MD 20785-2226
(800) 225-6872 * (301) 459-9888
Neurofibromatosis, Inc.
8855 Annapolis Rd. Suite 110
Lamham, MD 20706-2924
(800) 942-6825 * (301) 577-8984
FAX: (301) 577-0016
Neuropathy Association
(Peripheral neuropathy)

P.O. Box 2055, Lennox Hill Station
New York, NY 10021
(800) 247-6968 * FAX: (212) 692-0668
NIH Neurological Institute (NINDS)
National Institutes of Health
Building 31, Room 8A16
Bethesda, MD 20892-2540
(800) 352-9424
(301) 496-5751
NIH Office of Rare Diseases
National Institutes of Health
31 Center Drive, MSC 2082
Room 1B03
Bethesda, MD 20892-2082
(301) 402-4336 * FAX (301) 402-0420
Pseudotumor Cerebri Society
750 East Adams Street
Syracuse, NY 13210
(315) 464-3937
St. Jude Children's Research Hospital - Memphis, TN
Southeastern Brain Tumor Foundation
Southwest Oncology Group (SWOG)
maintains a website listing their clinical trials.
University of Chicago
Department of Neurology
Kid's Home
(NCI's home page for Children with cancer)
PDQ (Physician's Data Query) - is a database produced by the National Cancer Institute.
Jim Kenzig's site - Information on Brain Stem Tumors
Johns Hopkins Radiosurgery
Epilepsy Foundation of America
Hydrocephalus Association
Childhood Cancer Group(CCG) - A listing of CCG protocols is available at this National Childhood Cancer Foundation website.
Dana BrainWeb: Great Sites for Information on Brain Diseases and Disorders
CANSEARCH: A GUIDE TO CANCER RESOURCES - A Guide to Cancer Resources on the Internet, courtesy of the National Coalition for Cancer Survivorship
Cedars-Sinai Hospital Neurosurgical Institute - A neurosurgical center for brain tumors
Cancerlinks - Searching the web for information
Cancer News on the Net - A comprehensive online cancer guide
Cancer Hope Network is a not-for-profit organization that provides free and confidential one-on-one support to cancer patients and their families

List Servs (e-mail lists):

People sharing a common interest in an illness or another subject can communicate with one another using a list serv, a simple way to use the Internet. Participants send e-mail to a special address which forwards the message to all group members. The "discussion" does not occur live but develops from a series of topic-oriented messages sent and received over a period of time. You will receive several e-mail messages daily as long as you subscribe to the list. Three such groups are described below:

BRAINTMR is a forum to discuss topics related to all types of brain tumors, whether benign or malignant.

To subscribe, send a message from your e-mail account to:

The text of your message should read:
subscribe BRAINTMR <your name>
Example: subscribe BRAINTMR Jane Doe

EPILEPSY-L is an e-mail based support group for people with seizure disorders. Complete information is available at the Epilepsy List web page

HYCEPH-L is an information and support forum for hydrocephalus.

To subscribe, send e-mail to:

Text: subscribe HYCEPH-L <your name>

Other Listserv mailing lists include DISABILITIES, CANCER-L, the Hem-Onc listserv (includes CNS Lymphoma), HOSPIC-L and bmt-talk; some of these are described in detail in the NCCS CANSEARCH guide mentioned above; many can be accessed through ONCOLINK's Automated E-mail Discussion Group Subscriber.

General Special Needs Links | Rare Diseases and Condition Links | More General Links

My permission is given to use this page
as a link for any Special Needs Page

This is an animated Image of DNA

This is what controls how our bodies form

If something happens to it and it mutates

Then our bodies might suffer because of it. The Chromosome SiteRing

This site owned by
Shows the previous site

in the Chromosome SiteRing Lists all sites in the 

Chromosome SiteRing Will select a random site

from the Chromosome SiteRing Join the Chromosome SiteRing

Copy the image to your hard drive

(WebTV'er's can transload it)

Then copy and paste the code shown

below to your page Shows the next  site in the

Chromosome SiteRing

The image of the DNA in the Chromosome SiteRing and also
the background used on this page were kindly provided by:
Doug Lundberg's Genetic Engineering Site


* My Other Pages *
| Children Of Heaven |
| Joseph ~ Child of Heaven |
| William ~ Child of Heaven |
| Memorial To My
Grandmother Evelyn |
| Grieving Parents Support Page |
| Light A Candle For Your Child |
| Hide N Seek With Angels |
| My Children Are In
The Other Room |
| Organ Donation |
| Parents of Special Needs Children |
| Amanda the Panda Provides Support
To Grieving Children