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Bill Beaton's Tumor-Be-Gone Blog
Sunday, 3 June 2007
William John Beaton
My father and best friend died today at 3:15 pm. The funeral will be on Saturday morning, near his home on Singer Island.

I'm sorry if looking at your computer screen is the way that you have to learn of his death.

Bill Beaton was a great man and will be missed terribly by his friends and family.

Posted by Etonella at 6:04 PM EDT
Updated: Sunday, 3 June 2007 6:12 PM EDT
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Friday, 1 June 2007
Down Hill
Mood:  sad
Dad is really out of it. Alex has booked a flight home from Iraq and will be here Monday night. For the first time, we are only focusing on making Dad as comfortable as possible. The only thing we can hope for now is a miracle. Science and medicine have failed us.

Dad is hardly on any medication right now. We may give him some morphine soon... just to make sure that he is not in any pain.

In all honesty, I was hoping that this website would be different from the other ones that I found. The sites I found were all about people that ended up dying from Glioblastoma. When I was researching this horrible disease, I thought that I could start the first site that documented the complete process of getting diagnosed all the way to a complete remission. I wanted Dad to be a success story so badly... and tell the world about it!

I thought that maybe Dad could perform public speaking engagements so he could tell people (in his cool stereophonic voice) about how he beat the odds.
But, maybe it's just time to say goodbye.

Dad told me recently that he's not afraid of death, but that he still has a lot left to learn. That made me feel better for some reason. I think that if Dad could read what I've written here today he would say 'Is this goin' somewhere?'

Bill Beaton really is the greatest. Truly one of a kind. He always wants to get to the point and not waste time. Go Go Go. Stick to a plan, never miss a good opportunity to keep your mouth shut, and keep moving. See everything. Try everything.

Alex and I are notorious for wasting time. Dad calls it "playing grab-ass". He says that Alex and I are a very competitive grab-ass team. Geez, I love that freakin' guy. The reason I'm telling you this is because, knowing Bill Beaton, he wants to get the show on the road and quit playing grab-ass... and I don't blame him.

Posted by Etonella at 3:53 PM EDT
Updated: Friday, 1 June 2007 4:51 PM EDT
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Wednesday, 30 May 2007
Sad news...
The Doctors have agreed to stop treating Dad because his condition has deteriorated so much. Kathi asked one of the Doctors if they were asking us to give up and the Doctor said "No".

Kathi asked how it wouldn't be considered giving up if we weren't allowed to get any more treatments. The Doctor said that if Dad gets better, then they can treat the tumor.

Is that some BS, or what? How can he get better if the tumor is growing?

Basically, we don't know what to do right now. Dad is in really rough shape.

Posted by Etonella at 6:29 PM EDT
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Thursday, 24 May 2007
Update
Dad has been pretty unresponsive lately. However, his doctor said that the platelets and white blood cells are in the perfect range and the red blood cells should be improving soon.

Dad will get some more time to recover before we try to beat him up again with another treatment. We have a new doctor (Neurooncologist) working with us from Cedars. He will help us get the doses correct and work with our local oncologist on this next, cutting edge, treatment.

Posted by Etonella at 5:21 PM EDT
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Friday, 18 May 2007
Sunday is Bill Beaton's Birthday!
He will have his loving wife, some local friends, and all of his kids with him this weekend... as well as his Grandson!

Have a great weekend.

Posted by Etonella at 2:11 PM EDT
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Wednesday, 16 May 2007
Talking again...
Kathi wrote me an email this morning. This is part of what she wrote:

"...your dad is saying whole sentences AND I can understand every word! Last night I was holding him and I said that I wish there was more I could do to help him. He said "You're doing as much if not more that is humanly possible to do". He also said "I wonder where this is going?" I replied "Your treatment?". And he said "Yes". Wow!!! I couldn't believe my ears!!! This morning he said "We should call -----", but I couldn't understand the name. Something like Mard__. That was it. I'll continue to talk to him during the day and let you know what he has to say. "

Posted by Etonella at 10:12 AM EDT
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Monday, 14 May 2007
Blah
Dad has been sleeping a lot... and that is not good. It is very difficult for him to open his eyes or speak. Not sure what to do.

We are still waiting on additional feedback from Cedars and we don't want to rush Dad into a new treatment because he is still pretty run down from the last 2 weeks. He doesn't seem to be in any pain, just lethargic.

Alex will be down this weekend for dad's 59th birthday. If you'll recall, we spent last years' birthday in the ICU at Palm Beach Gardens M.C.

Hopefully, we'll be at home this year and Dad will have a good day.

Posted by Etonella at 4:31 PM EDT
Updated: Monday, 14 May 2007 5:46 PM EDT
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Friday, 11 May 2007
Going home... again.
Kathi will take Dad home today. They are totally tired of being in the hospital. Dad is doing much better and Cedars Sinai has offered us two new treatment plans to choose from.

1. Tarceva and accutane or
2. Tarceva and nexavar

Posted by Etonella at 10:28 AM EDT
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Tuesday, 8 May 2007
Stable
Dad's temperature was 105 this morning. He is stable now and will be transfered out of the ER pretty soon. He's a tough son of a gun. I don't know how anyone could pull out of so many tail spins. He is not out of the woods yet, but he is doing better.

Posted by Etonella at 3:17 PM EDT
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Dad's back in the hospital
Mood:  blue
Not even one day went by. Dad's temperature has sky-rocketed. The ambulance is at the house now. This stinks.

Posted by Etonella at 9:07 AM EDT
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