Mood:
surprisedHi All,
How was your weekend?? Ours was a decent one. We got to celebrate Ryan's Birthday with tacos and enchiladas for dinner and a wonderful soccer ball cake. Morgan was tired after eating 1 taco so we put her to bed in the addition room. As we were singing "Happy Birthday" to Ryan, we heard a small voice...it was Morgan joining in! I tell ya', even when we think she is fast asleep, she doesn't miss much!!
Morgan's pain started increasing again, so we have upped her pain meds another 4 times since my last update. Despite the meds being enough to level a horse....Morgan is sleepy, yes, but she manages to wake up and interact when we have new visitors or she needs to accomplish something. I don't know how she does it - I truly don't. Then again, this is how Morgan is. Since the day she was born, she never wanted to miss anything and she was very open in expressing her opinion.
Her body's condition that has brought about the increase in meds has brought about other interventions to address other problems. Yesterday, they started her on oxygen. She fights it when she can, so her air cannula (tube) comes off when she's awake, on when she's asleep. Big breath...the reason why...
With so much tumor in her little body, it looks like the tumor near (on?) her heart is causing the most visible symptoms right now. Her heart seems to be working very hard, but her blood pressure and circulation is not reflecting that. Donna (her hospice nurse), says that there was a big change in Morgan's physical presentation from Friday to Monday...so Morgan's Time could be soon. Now, I hesitate to write that because "soon" has been going on for several weeks now. But looking at her.....I dunno, it could very well be soon.... Donna said though, that having her heart give out is probably the best way to go, considering all the other ways this damn cancer can present the end. This is just so unfair....
Morgan is doing everything she can to get things in order. It is like she is "nesting". She has several things to knock off of it before she'll relax. There are several people that are on that list also. If the spirit moves you to visit or call....please do....chances are, Morgan wants to see you too. She, like always, knows what she wants..and she'll let me know if it is too much. While this isn't an open invitation for everyone to visit/call, if you feel strongly about it..chances are, there is a reason - and that is OK.
Well, so much for a short update. I am still on auto pilot, doing what I need to do. Karl and Ryan seem to be OK with it all..so far. Will update in a day or two.
Thanks for checking in, the support, prayers, and positive energies.
Take care and God Bless,
~Lisa
Posted by super2/missmorgan
at 10:37 AM EST
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