This is my baby Nicole she is my youngest grandbaby. When Nicole was born she had all the symptoms of Congenital cytomegalovirus known as CMV virus but all the test results came back negitive including the bone marrow test it is suppose to be 99% accurte. Nicoles liver was inlarged, her splien was inlarged she had jaundice real bad. When she turned a year old she started having seizures. Nicole will be 2 the 22nd of June and the Doctors still don't know what is wrong with Nicole. The only medicine she takes is tegertal that is for her seizures .She weighs 17 1/2 pounds she is slowly gaining weight. Nicole can't sit alone,walk,crawl,hold her own bottle. She can say a few words. She says I good ,NanNan if she is real mad, she will yell hey sometimes,and she can say luvs you. She is just now trying to hold things in her hands. She will pick things up now. We had to Shriners in Ky. last month her leg , arm, and hand mussels are still a little tight but are better. It is her neck mussels that are weak we are trying to get them stronger she can hold her head up for a few minutes and thats it . But they are getting stronger. I made her a pole with foam rubber wrapped around it to put under her arms so when I put her on her belly she can't roll over. Now she has to use her neck mussels more. Nicole has to wear these little plastic braces of the day because her feet turn out and I have to put a pillow between her legs of the night. The Doctor now say she also has microcephaly which I know very little about. Her therapist say they have never seen a baby try as hard as she does. I promised Nicole as long as I was able I would never give up trying to find out what is wrong with her. Thanks to the internet and some help from people on the internet I got an application to Shriners I ask her Doctor to get me a refural so I could take Nicole to John Hopkins Nero clinic but I was told today that Nicole ins. will only pay for a Doctor in our state. She has a medcial card from the state she gets SSI but they paid for her to go to Shriners in Ky. so why won't they pay for her to go to John Hopkins Is beyond me. Now I don't know what to do. They made her an appointment to see a Dr in Morgantown on the 1 st of August.1 just feel so helpless now. I promised Nicole that I would do everything I could to find out what is wrong with her but how can I when I can't get her anywhere. Nicole belongs to my daughter Brandy but she stays with me all the time. She has been here so long she won't go home now. The last time she was home she cried and cried I had to go and feed her and everything so Brandy and I just brought her home. She sleeps with me ,eats with me, baths with me she is my Baby Nicole. She has blue eyes and light brown hair that just lays in curls it comes down her neck I have had her bangs cut twice in the last couple of months her hair grows fast like her mommy. Nicole is a very happy baby she laughs all the time. She is such a joy to me. I thank God for my kids all the time. They keep me going. I pray that before I die Nicole can at least walk, bath herself, feed herself, count her own money so no one will cheat her I pray that if God won't heal her for some reason that I don't understand or no then at least let her be able to take care of herself enough to survive. She is so special. I do belive in God and I know he does answer prayers and can and does work miracles I have a couple of them myself. I belive with all my heart that he is going to heal Nicole maybe not while I am on this earth but I belive he will heal her. I don't think he would let me have as much faith as I do that he is going to heal her and not do it I will always belive this because he said ask and ye shall recive so I'm asking and now I just have to wait I guess. If anyone knows any information that will help my Baby Nicole please E mail at conniejean1@msn.com baby Nicole and I thank you. Nicole you are my special one I love you more than life you are my Baby Nicole you are a my sunshine, my baby cole, and my baby girl all in one. If I leave this world before you are grown I hope you will always remember how much I love you. I love you Baby Nicole always and forever...