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According to the VICP, complications can occur up to 6 months from the administration of the OPV vaccine, and can cause Vaccine Associated Paralytic Poliomyelitis (VAPP). Patients who have VAPP are commonly diagnosed with Guillain-Barre Syndrome (GBS), then later with Transverse Myelitis. They suddenly become sick, have high fever, and become paralyzed. This is exactly what happened to our daughter. According to the Transverse Myelitis Association (TMA), the OPV vaccine has been under investigation as a possible cause of TM. Since her stay in February 1996, Danielle has been hospitalized several more times for complications associated with the damage TM and the OPV did to her spinal cord. She still remains confined to a wheel chair, and is totally dependent on our help. The TMA web site can be located at:
www.myelitis.org. It is an excellent site for information on TM.
On June 17,1999, the Advisory Commission on Immunization Practices (ACIP) agreed that the OPV vaccine was doing more harm than good, and the OPV vaccine was taken off the market. The ACIP guidelines for the termination of the OPV vaccine can be found at:
www.cdc.gov. The CDC's Web Site.
In July of 1999, Johns Hopkins Hospital in Baltimore Maryland, opened the Transverse Myelopathy Center to study Transverse Myelitis. It is the only research facility of it’s kind in the world. Their web site is:
www.med.jhu.edu/jhtmc/.
I hope you get a chance to see these sites because they are very informative and can answer a lot of the questions that you may have. If we are unable to get assistance from Social Security, we hope to get an extension on the filing deadline for the VICP. We would like to have my daughters case reviewed. I hope this information is what you need to help Danielle."
The following sites have information on TM, The VICP, and the ACIP. It takes a while to read, but knowing the truth about what childhood vaccines can do, it is worth the time.
www.hrsa.gov/bhpr/vicp-- Information on the V.I.C.P.
I will be adding information to this page as it becomes available. Please mail me any information you have that can help us or anyone else associated with TM or the VICP.
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Danielle is our 13 year old little girl that has Transverse Myelitis (TM). She became very sick at 9 months old, and was paralyzed from the neck down. Shortly after that, she was diagnosed with TM. Through intense Physical Therapy and Botox therapy over the last 12 years, she has regained 90% use of her left arm and hand, but only has 70% movement of her right arm and hand. She has no voluntary movement or muscle control from the waist down, but she can move her big toe on her right foot. She isn't able to use leg her leg braces anymore, but we hope she will grow stronger as she grows older. She is now confined to a wheel chair, but has the spirit to change the world.... watch your toes, here she comes !!! If you didn't hear her, then turn up your volume, and reload this page to hear Danielle welcome you by saying,"Hello Friend!"