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February 12, 1989 - February 29, 2008

Obituary Special Thank You Birthday

Visitation Blanket Johnny's Place

23rd Birthday In Memory 2013 25th Birthday

In Memory 2016


My Favorite Web Sites

Rainbows Down Under
Chromosome & Genetic Links
Chromosome 18 Registry & Research
About Alex

Johnny's Baby Pictures More Photos Johnny's Journal

Johnny's Education Birthday Bash Johnny Meets Santa

Inspirational Passages Special Poem Stories, Quotes & More


2004 PICTURES 2006 VISIT TO THE U.S.A. Christmas 2007

Trisomy 18 ~ Edward's Syndrome

"Trisomy 18 (Edwards Syndrome) is a genetic disorder that occurs when an extra copy of the chromosome is present in the 18th chromosomal pairing. This is the second most common form of genetic disorder in humans. The statistics claim that between 1 in 2000 and 1 in 7000 embryos are Trisomy 18. Like Trisomy 21, mental retardation is an inevitable result of this extra chromosome, however the majority of these children die within a very short time after birth. A higher risk of the baby dying whilst still in the uterus is also a factor. Very few Trisomy 18 children live beyond one year. Edwards Syndrome is normally characterised by low set ears, deformed fingers, narrow nose and a receding jaw as well as congenital heart disease."

My name is Colleen. I am Johnny's mom and I have created this site for special needs children and to share information with parents familiar with Johnny's genetic disorder. Johnny is a remarkable boy and, even though I was told he had a 10% chance of reaching his first birthday, he is now 19 years old!

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