A Heartbreaking Choice
A support group for people who have chosen to terminate pregnancies due to severe fetal health problems. A nonjudgmental place to find support.
To join, please send an e-mail to
with your name and your story. Check http://www.erichad.com/ahc/.
Bereaved Moms Share
Christian support group for mothers who have lost babies to
miscarriage, stillbirth or early infant death (before 1 month of age).
To join, please send an e-mail to
and type (without the quotes) "subscribebereavemomsshare" for single messages or
"subscribebereavemomsshare-digest" for all the day's post in one digest. Check http://members.aol.com/BrvdMomShr/.
Christian Pregnancy Loss Support (CPLS)
This group was formed to provide Christian support to women who have suffered from miscarriage, stillbirth or neonatal death or infertility (whether pregnant or not currently). The group offers spiritual comfort, solace, prayer and emotional support. To join, send a brief bio to mailto:email@example.com. The group has a web page at http://www.geocities.com/Wellesley/2458/.
Loss of All in Multiple Birth (LAMB)
To subscribe to
LAMBS a brief bio needs to be sent to firstname.lastname@example.org. As of right now
there is not a formal web page created for this group.
Miscarriage After Infertility (MAI)
The women on this list, are all suffering from primary infertility (have not given birth to a healthy baby), and have suffered one if not more miscarriages after infertility treatment. By stating infertility treatment, it is meant that the woman/couple has had medical intervention, by using either an OB/GYN specializing in IF, or and RE. These women will have used advanced techniques (including but not limited to) fertility drugs and IUI, as well as IVF, GIFT and ZIFT, DI, DE. Women who achieve pregnancy after subscribing to MAI, are welcome to stay, but are urged to be "silent", with the exception of posting ultrasound updates after the 12 week ultrasound, 20 week ultrasound, and a brief birth announcement (but not complete birth story).
To join, send an e-mail to mailto:email@example.com
In the body of e-mail type: subscribe mai
After submitting this subscription, you will receive a notification, and be prompted to create and introduction/bio. After the listowner(s) approve this, you will be officially subscribed to MAI.
If you have any questions before subscribing, please send contact mailto:MAIAdmin@aol.com.
A listserv for women who have suffered more than once pregnancy loss. Also offers a chat area for live discussion of issues and monthly virtual seminars.
To subscribe, please send e-mail to mailto:firstname.lastname@example.org and put "Send mm application" in the subject line, or fill out the on-line application form at
PAM (Pregnancy After Miscarriage)
This list is now available to support couples either trying to conceive or carrying a baby after any kind of pregnancy loss. Anyone who has been in this situation and wants to offer advice/support is also welcome! This is not the place to post horror
stories -- it should be kept as a warm, fuzzy haven for getting questions answered and sharing concerns.
To subscribe, send e-mail to mailto:email@example.com with no subject line (unless your service requires it, then type subscribe), and in the body of the message type only "subscribe" (without the quotes).
There is also a digested version of the list available, which means you get the same e-mail, only in fewer total messages. In other words, the digest only goes out once per day unless the messages reach a critical size, then it might go in 2 messages. Use the instructions above, only address your e-mail to mailto:firstname.lastname@example.org.
SPALS (Subsequent Pregnancy After Loss Support)
To join, send a blank e-mail to mailto:email@example.comSTAR.ca
In the body of the message, type: subscribe SPALS
At the same time, prepare a short bio, containing only the facts of your situation (living and deceased children, your current status, your location in the form [country / state / city] and the mother's age) and email it to list administrator Sara Grimes at mailto:firstname.lastname@example.org. Here is a sample of what they are looking for:
email@example.com (Sara Grimes)
My first child, Haven Rose lived for 3 days (05-09-95 - 05-12-95), born at 23.5 weeks gestation because of severe preeclampsia and HELLP Syndrome. Currently pregnant -- due 08-22-96. Mom is 33.
[USA / Missouri / Columbia]
D.E.S. Information Page http://www.teleport.com/~skeely/
Diethylstilbestrol info and FAQs . . . for anyone whose loss(es) may be related to exposure. Information on DES listserv.
Early Pregnancy hCG Levels and Ultrasound Findings http://www.advancedfertility.com\/earlypre.htm
Shows good hCG levels in early pregnancy as well as showing pictures
of early ultrasounds. Might be reassuring to those pregnant again.
A Heartbreaking Choice http://www.erichad.com/ahc/
Information and Support for those who faced dealing with "therapeutic terminations." Includes a book list.
Anencephaly Support Foundation http://www.asfhelp.com
Non-profit organization providing information and support to families,
educational and medical communities.
The Bonnie Babes Foundation http://www.bbf.org.au/
Non-profit organization that has been caring for families who have lost babies from miscarriage, stillbirth and prematurity since it was formed in 1994.
The Compassionate Friends http://www.compassionatefriends.org/
The Compassionate Friends is a national nonprofit, self-help support organization which offers friendship and understanding to families who are grieving the death of a child of any age, from any cause
Houston's Aid In Neonatal Death (H.A.N.D.) http://www.hern.org/~hand
H.A.N.D. is a support group for parents whose babies have died any time
from conception through late infancy. It helps parents cope with feelings
of grief and isolation which accompany infant death.
Mothers in Sympathy and Support (MISS) http://pw2.netcom.com/~jcaccia/miss.html
MISS is a grass roots organization dedicated to supporting parents one to one after the death of an infant or young child.
Pen-Parents is an international non-profit support network for bereaved
parents which works with any type of loss and any age child from
miscarriage to the death of an adult child.
SANDS - Stillbirth and Neonatal Death Support (Vic) http://www.sandsvic.org.au/
A support group for parents who experience miscarriage, stillbirth or neonatal death.
SANDS - Stillbirth, Miscarriage and Neonatal Death Support Western Australia (WA)
A self-help support group in Western Australia for parents who experience
miscarriage, stillbirth or neonatal death.
Soc.Support.Pregnancy.Loss Information http://web.co.nz/~katef/sspl/
Includes FAQ on Tips & Suggestions for Coping after Pregnancy Loss and the
soc.support.pregnancy.loss charter. A medical FAQ is in the works.
Sudden Infant Death Syndrome and Other Infant Death (SIDS/OID) Information Web Site http://www.sids-network.org/
Information Home Site. Support, mail list, individuals sharing experiences.
Turner's Syndrome Society, Texas
Providing links and information about Turner's Syndrome.
Definition and Synonyms, FAQ, TSS Societies (National, State,
and Local), Associated Links, Newsgroup discussions, Conference
A Place to Remember http://www.APlaceToRemember.com
Support materials and resources for those who have had a crisis in pregnancy
or the loss of a baby. Includes an area for sharing, a remembrance book and links.
Sells products such as cards, books, gifts and funeral-related items.
A Silent Sorrow: Pregnancy Loss -- Guidance and Support for You and Your Family
by Perry-Lynn Moffitt, Isabelle A. Wilkins, Ingrid Kohn
Support for this often unrecognized loss. Includes information on how men and
women grieve differently, stress management in subsequent pregnancies, etc.
ISBN: 0-440507-13-8, $12.95, Delta (1993)
A Woman Doctor's Guide to Miscarriage: Essential Facts and Up-To-The
Minute Information on Coping With Pregnancy Loss and Trying Again
by Irene Daria, Laurie Abkemeier (Editor), Lynn Friedman
ISBN: 0-7868814-5-3, $9.95, Hyperion (1996)
Coping With Miscarriage: A Simple, Reassuring Guide to Emotional and Physical Healing
by Mimi Luebbermann
Pregnancy councelor writes about emotional and physical stages of miscarriage.
ISBN: 0-7615043-6-2, $14.00, Prima (1996)
Empty Arms: Coping with Miscarriage, Stillbirth and Infant Loss
by Sherokee Ilse
$5.50 U.S., Wintergreen Press
Empty Arms: Emotional Support for Those Who Have Suffered Miscarriage or Stillbirth
by Pam W. Vredevelt
Christian-based emotional support.
ISBN: 0-88070-042-4, Multnomah Press (1984)
How to Prevent Miscarriage and Other Crisis of Pregnancy
by Carol Colman, Stefan Semchyshyn
Information of preventing future losses.
ISBN: 0-0203685-5-0, $9.95, MacMillan General Reference (1990), 242 pages
Miscarriage: A Shattered Dream
by Sherokee Ilse & Linda Hammer Burns
This is what I would consider a short form book of information and support.
It's a fast read, but some people will want more depth.
ISBN: 0-9609456-3-6, $6.50 U.S., Wintergreen Press (1985), 57 pages total
Order through e-mail: WPress@aol.com
Miscarriage: The Facts
(Oxford Medical Publications) 2nd Edition
by Gillian C. L. Lachelin
ISBN: 0-1926261-3-2, $17.95, Oxford Univ Press (1996)
Miscarriage: What Every Woman Needs to Know
by Professor Lesley Regan
Information on causes, process, treatment, chances of successful pregnancy,
miscarriage and infertility.
ISBN: 0-7475-3024-6 , £7.99 U.K., Bloomsbury Publishing PLC (1997) http://www.bloomsbury.com
Miscarriage: Women Sharing from the Heart
by Marie Allen, Ph.D. & Shell Marks, M.S.
Stories of support from many women. A very emotional read, but worth it.
ISBN: 0-471-54834-0, $16.95 U.S., John Wiley & Sons, Inc. (1993), 258 pages total
Motherhood after Miscarriage
by Dr. Kathleen Diamond (Ph.D. biochemistry)
Medical info and support.
ISBN: 1-55850-043-X, $10.95 U.S., Bob Adams, Inc. (1991), 250 pages total
Stories of Miscarriage - Healing with Words
edited by Rachel Faldet and Karen Fitton
Moving writings from both mothers and fathers.
ISBN 1-57749-033-9 Fairview Press, Minneapolis (1997)
Preventing Miscarriage: The Good News
by Jonathan Scher, M.D.
A good look into the medical causes of loss and information on testing and prevention.
ISBN: 0-06-092056-4, $12.00 U.S./$16.75 Can., HarperPerennial (1990), 240 pages total
Surviving Pregnancy Loss: A Complete Sourcebook for Women and Their Families
(revised & updated)
by Rochelle Friedman, MD & Bonnie Gradstein, MPH
An in-depth look at the physical and emotional, with a section on husbands &
other family. Some stories, a good resource list, and great bibliography.
ISBN: 0-806-51758-1 $15.95 U.S., Citadel Press (1996), 302 pages
A Time To Decide, A Time To Heal
Molly Minnock, MSW, Kathleen Delp, ACSW and Mary Ciotti, MD
This is a book for parents who are making difficult decisions about babies they love. It's written by mothers & fathers who have faced the news of a fetal anomaly with grief & courage. Topics include: Making decisions (continuing & interrupting the pregnancy), taking control, medical procedures, couples healing, selective fetal reduction and subsequent pregnancies.
ISBN: 1-878526-39-1 $7.95 plus postage, Pineapple Press
Unspeakable Losses: Understanding the Experience of Pregnancy Loss, Miscarriage, and Abortion
A therapist's look at the loss of a baby -- includes a number of personal stories. Looks at subjects including knowing of an in-utero death before the physical loss takes place, selective reduction, abortion for genetic reasons, loss after infertility, etc.
ISBN: 0-393-04572-2 $23.95 U.S., W.W. Norton (1998), 170 pages