Thursday March 5th, 1998
It's been over 3 months since I last added something new to this site.
Last time I wrote it was Wednesday December 3rd. The following day we went to a routine check-up with Jamettiz, and at Friday morning her doctor called and said something about her lung x-rays didn't look good, so we went back to the hospital with her.
The kidney tumour (Wilm's tumour) they had removed in the beginning of September had come back at her lungs, so they started up chemotherapy for her. It has been a lot of other things to do so this site of mine have been put aside a little bit.
On the Links-page (below) is a link to her site, but that one hasn't been updated for quite some time either.
She's really been making progress! The 24th of January (when she was 10 months and 1 day old) she took her first real step without holding on to anyone or anything. After that she's continued practising walking, and she can take some steps between things (boxes where we store her toys and a table, for instance) without holding on and without falling.
When it comes to food she isn't making progress. She's still eating the baby-food jars intended for children from 4 and 5 months age and up. She hasn't got any teeth yet.
Though the treatment is a bit tough I'm pleased to tell you she hasn't lost any weight permanently. She was on the tube for a while (2 days or something, before she ripped it out of her nose), and after that she's been eating OK. Not good, but OK. She gets some nutrition-stuff that I mix with her gruel. It can be used for tube feeding or as gruel, and we use it in her gruel. Usually she gets a little bit more than half the bottle of nutrition and the rest with corn gruel. We also add some energy powder called MaxiJul. She usually eats gruel for breakfast, baby food purées for lunch, and then gruel 2 or 3 times more. The only thing she drinks from a bottle is gruel, not water or fruit- or berry-drinks, them she wants by spoon.
She's happy and babbling most of the time, and she loves when somebody chases her.
So all in all we lead an OK life despite the cancer. Her chances of getting cured are good, we might even be done with the chemotherapy before June. Then of course it will be all the check-ups for 4 or 5 years, and hopefully she'll get no relapses, but there are no guaranties.
When it comes to things that aren't about Jamettiz most of them are very fine.
I'll probably get to meet a friend of mine that I've never met before, but "only" have corresponded with for 3 years or something. He might come to Sweden and visit us this summer, at least I hope so.
I've got to go and get myself something to eat now.
I'll try to update this site a little bit more often.
