September 2000 Volume 1 Issue 5
Editors: PSpatches, Lymechat, Borrelias
Assistants: LutzDM, ROWDEEGPSY, CCCooks, LymeDiva, Seacastle2
Welcome to our new assistant, John, Seacastle2@aol.com.
A special mention to all our readers who submit items to this newsletter.
Thank you all!
Welcome to Lyme Matters!
This newsletter will serve two purposes: To provide timely and accurate information regarding Lyme Disease and Lyme related issues, and to serve as a means by which members of the Lyme community can voice their opinions and concerns.
The past monthly issues of Lyme Matters are on this Web site.
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I am 23 years old and I have chronic Lyme Disease. I was misdiagnosed 7 different times before a Neurologist finally diagnosed me correctly. However, by that time the disease had progressed so badly that I was on IV antibiotics for 7 months. I had to take my insurance company to court in order to make them pay for my treatment. The Neurologist that treated me misdiagnosed again a certain strain, I have two (2) different strains of Lyme disease. One strain reacts to Doxycycline and the other to Amoxicillan. As of the end of July I will again be on IV antibiotics.
I have never been in remission. I have been in constant pain for one (1) 1/2 years, every moment every second. I have every symptom that you could possibly have with Lyme disease. I have severe neurological problems, and because I was misdiagnosed so many different times, the general consensus from the "so called experts" (who tell me I don't know to every single question that I have about Lyme disease) is that I have encephalopathy. I was a semester away from obtaining my Ph.D. in Clinical Psychology when I became sick.
Now I can hardly walk, I have crippling arthritis in my knees, the bottom of my feet hurt, my elbows, fingers, and wrists. I have excruciating headaches that radiate from the base of my skull all the way up to the top of my head and down to my ear. I take Darvocet to try and ease the pain. I have what the "so called experts call" Lyme Fog.
I have no short term memory and I sometimes feel as if I am going insane. I feel like everything is surreal and that I am not actually there. I have had every kind of scan you can have; i.e., a SPECT Scan, CAT scan, MRI etc. It feels as if you cannot concentrate and that I am about 2 seconds behind everyone. I take Ativan for the panic attacks associated with that. But nothing helps.
I feel like I am trapped in my head when I get that foggy feeling. I have chest pains and my heart skips constantly, although the "so called experts" tell me that my heart is fine. I FEEL AS IF I AM FULL OF POISON AND NO MATTER HOW MANY DR.S I GO TO, I FEEL AS IF NO ONE IS LISTENING TO WHAT I HAVE TO SAY. As far as I am concerned, any Dr. that tells me "I don't know" to every single question I have about Lyme Disease, is the novice and I am the expert since I live with this disease every day!!!
I now have to travel to New York, actually Long Island, to see a Dr. whom is supposed the leading Lyme specialist in the United States. If he cannot help me I do not know what I will do.
I suffer from extreme depression, insomnia, panic attacks, anxiety attacks, edema in my legs and hands, severe, excruciating headaches (I also have trigeminal neuralgia), seizures from the Herxheimer reaction, chest pains, Lyme fog, encephalapathy, arthritis, chronic fatigue to the point where I feel as if I am going to pass out, dizziness in my brain, which makes me perspire and feel as if I am going to black out, and ringing in my ears which sounds more like a whooshing sound. IN ESSENCE I AM FALLING APART AND NO ONE SEEMS TO CARE.
I have 5 different Dr.'s supposedly working on my "medical team." Internists, Psychiatrists, Neurologists, etc., and they have not given me back my life yet.
I worked as a litigation paralegal before I became ill and was almost finished with my Ph.D. in Clinical Psychology (a life long dream for me) when I became ill. EVERYTHING WAS TAKEN FROM ME BECAUSE OF THIS DISEASE. I HAVE LOST CONTACT WITH ALL MY FRIENDS, MY CAREER IS GONE, AND I AM HOUSEBOUND DUE TO THE EXTREME SYMPTOMS I SUFFER FROM EVERY DAY...
My illness has affected my family too, including my 10 year old nephew who is afraid that I am going to die. There are times when I feel as if I am going to die. I vacillate between rage and severe depression. I do not deserve this, and I want my life back. Everyone around me has gone on about there business, everyone must work and for the most part I am left alone with my pain to suffer by myself.
THIS ILLNESS HAS TAKEN EVERYTHING AWAY FROM ME....
I have no idea how I contracted Lyme disease. I do NOT swim, sunbathe, hike, garden, mow the lawn, camp etc. I went from my house to my car to my office and back. I am not an outdoor person. I feel TOTALLY OUT OF CONTROL; I HAVE ABSOLUTELY NO CONTROL OVER MY LIFE NOW. EVERY DAY IS LIKE RUSSIAN ROULETTE - WHAT TORTUOUS PAIN WILL IT BE TODAY..
This is absolutely pathetic and sad that in the year 2000 in the United States I have been allowed to become this sick....
NOTICE TO EVERYONE - NO MONIES HAVE BEEN APPROPRIATED TO RESEARCH INTO THIS DISEASE TO TRY AND FIND A CURE OR A BETTER TREATMENT METHOD...
SO WHAT HOPE DOES THAT LEAVE ME ?
I SUFFER EVERY DAY, EVERY HOUR, EVERY MOMENT, EVERY SECOND IN PAIN..............................
PAIN SO SEVERE THAT MOST PEOPLE WOULD NEVER BE ABLE TO TOLERATE IT.........................
PAIN SO SEVERE THAT I NO LONGER CAN TOLERATE IT AFTER 1 AND 1/2 YEARS..............
GOD BLESS TO EVERYONE WHO HAS LYME DISEASE....YOU WILL NEED IT......................................
Hello everyone! I hope that this past summer has been enjoyable for you, and that you are all looking forward to a pleasant fall season. Over this last week there have been several news broadcasts in the New York area, regarding contaminated bottled water. This has gotten me to thinking about just how important water is to us in our daily lives, so, I have decided to dedicate this month's column to addressing many of the different aspects of water.
We'll be covering the following ones: water's importance to the body; tap water; the different types of bottled waters; the controversy over fluoridation in drinking water; how to make sure that your water is safe to drink; how to improve the quality of tap water. Should you have any questions please feel free to E-mail me.
Until next month!
Jim : )
Submit your Questions
Hello all! Where has the summer gone? It seems like yesterday that the farmers out our way were planting their potatoes and other assorted crops. Now, as I write, the harvest has begun. The pumpkins are turning bright yellow and orange, as fall is upon us!
Since fall has been officially announced, be aware that the months of September, October and November, at least in our neck of the woods, here in Eastern Long Island, are also "tick season!" As long as the temperature is 40'F or above, ticks are active and continue to do their walking, so "Protect and Check self as well as your children!"
Until next month.....My best, Steve Nostrom
Questions, Comments for Steve
Researchers at the University of Alabama at Birmingham (UAB) have developed a modified poliovirus, incapable of transmitting the disease, to deliver genes specifically to motor neurons in the spinal cord. “The technology may provide a new approach to treating spinal cord injuries and neurological diseases,” according to lead investigator Casey D. Morrow, Ph.D., professor of microbiology at UAB. Details of the study will be published in the September issue of “Nature Biotechnology.”
“This is the first time that a poliovirus-based delivery system, called a replicon, has been used to target motor neurons,” says Morrow. Motor neurons are the cells within the spinal cord that are responsible for movement and are the natural targets for poliovirus. “We have modified the virus by deleting the genes necessary for it to cause polio, while leaving intact its ability to target motor neurons. This gives us a vehicle for delivering potentially beneficial genes directly to the spinal cord.”
In the first phase of the study, researchers added a green fluorescent protein to the modified poliovirus to test its effect. “It showed that we could safely deliver the protein directly to the motor neurons and that the motor neurons would express the effects of the protein for a short period of time without causing damage,” says Morrow. “The system seems to mimic very closely how neurological proteins are expressed in nature -- for a short period of time in a localized area.”
In the second phase, researchers modified the poliovirus using Tumor Necrosis Factor (TNF), a protein known to have a myriad of effects on the central nervous system, and tested it in spinal cords of mice. “The TNF was expressed and biologically active, as evidenced by the effects on the motor neurons and surrounding cells,” says Morrow. “That is important. It demonstrates that we may be able to use the system to deliver beneficial genes, such as nerve growth factor, to repair or restore damaged motor neurons.”
In ongoing studies, researchers are now using the system to test whether it can be used to repair damaged motor neurons. “With spinal cord injury, impact and initial swelling result in damage to motor neurons,” says Morrow. “The delivery system could be used at this point to deliver protein molecules that would suppress swelling or allow an anti-inflammatory response. The other potential is that the system may be used to deliver molecules that would support neuron re-growth.”
The research is a collaborative effort between UAB and Replicon Technologies Inc., a Birmingham-based biotechnology company that is commercializing the technology developed in Morrow’s laboratory. “UAB has provided an excellent environment for the development and application of this novel approach,” says Morrow. “The research team represents many different disciplines that all bring important expertise to the table.”
Other investigators involved in the study are Andrea Bledsoe, UAB graduate student with the department of microbiology; Cheryl Jackson, UAB research assistant with the department of physiological optics; and Sylvia McPherson, UAB research core facility, assistant director with the Center for AIDS Research.
"Lyme disease should be considered as a potential etiology (cause) for any cardiac abnormality when the patient lives in an endemic area and evidence of another pathogenetic cause is lacking. Evaluation of such patients should include serology studies and further tests as necessary to make a definitive diagnosis of Lyme carditis. Antibiotic treatment follows recommended guidelines."
Source: Lyme Times, Number 10 Publication of Lyme Disease resource Center pg. 33
Original article: Stanek, G. Klein, J, et al.: Borrelia burgdorferi as an Etiologic agent in Chronic Heart failure.
Scandanavian J. of Infectious Disease--Suppl. 77: 85-87, 1991
"Cardiac manifestations of Lyme borreliosis have been described by Steere and others as transient and self-limited. In 1990 Dr. Stanek and colleagues presented a case of isolation of Borrelia burgdorferi from the myocardium of a patient with long standing cardiomyopathy who also had high serum IgG antibodies to Bb (N Eng J Med 1990;322:249-252). The current study was designed to examine an association or even an etiologic role for Bb in this chronic and persistent heart disorder.
"The sera of 72 patients suffering from chronic heart failure due to dilated cardiomyopathy were tested by ELISA for antibodies to Bb. 55 patients with coronary heart disease and 61 healthy blood donors served as controls. 26.4% of the study group were seropositive for antibodies to Bb. Virus serology excluded viral causes of heart disease, and syphilis serology excluded the possibility of serological cross-reactivity. Of the control groups, 12.7 % of patients with coronary heart disease and 8.2 % of the healthy blood donors had IgG antibodies to B. burgdorferi.
"The authors conclude that Bb infection should be considered in the differential diagnosis and etiology of dilated cardiomyopathy."
Gerald Stanek , MD
Hygiene Institute of the University of Vienna
A-1085 Wien, Austria
Title:[The cardiac and neurological manifestations of Lyme borreliosis in
congenital first-degree AV block] Authors: Stille-Siegener M, Eiffert H, Vonhof
Source: Dtsch Med Wochenschr 1996 Oct 18;121(42):1292-6
Organization: Abteilung fur Kardiologie, Medizinische Klinik sowie
Hygiene-Institut, Universitat Gottingen.
HISTORY AND CLINICAL FINDINGS: A 19-year-old youth was hospitalized because of sudden onset of incomplete lid closure and drooping mouth on the left. He regularly walked through fields and woods; three weeks before admission he had noted swelling and reddening on his neck, which he thought was due to an insect bite. When 9 years old a functional heart murmur and 1 degree AV block (P-R interval 0.25s) had been found. Physical examination showed peripheral facial paresis and a 2/6 systolic murmur over the aortic area. INVESTIGATIONS: As Borreliosis (Lyme disease) was suspected, relevant laboratory tests were performed. These revealed specific IgM antibodies against Borrelia burgdorferi. Polymerase chain reaction demonstrated B. burgdorferi-specific DNA in cerebrospinal fluid and urine. The ECG showed 1 degree AV block (P-R interval 0.28s).
TREATMENT AND COURSE: Ceftriaxone was administered at once (4g, followed by 2g daily intravenously for 14 days). The P-R interval increased to maximally 0.31 s and transient incomplete right bundle branch block developed on the second day. Long-term ECG monitoring also revealed ventricular arrhythmia's (Lown IVb), but they gradually disappeared. The neurological signs regressed completely within five days of the start of treatment, while the P-R interval had returned to its initial value of 0.25 s 3 months later.
CONCLUSION: The case makes clear that an ECG should be recorded in borreliosis even in the absence of cardiac symptoms. Hospitalization with long-term monitoring becomes necessary if it is abnormal.
Authors: Vegsundv, Nordeide, jenum,Reikvam
Title: Cardiac Manifestations of Borrelia burgdorferi Infection
Source: Tidsskr Nor Laegeforen 1993 Sept. 30;113(23):2911-2
Lyme borreliosis, caused by the tick-borne spirochete Borrelia burgdorferi, has been found to cause a variety of clinical syndromes including cardiomyopathy, dermatopathy, neuropathy, and arthropathy. Lyme carditis was originally described as a mild self-limited carditis, primarily involving the conduction system. However, recent reports suggest that cardiac involvement may be more serious than previously suspected, and may cause heart failure and probably congestive cardiomyopathy.
Authors: Klein, Stanek, Bittner, Horvat, Holzinger, Glogar
Title: Lyme borreliosis as a cause of myocarditis and heart muscle disease
Source: Eur Heart J 1991 Aug;12 Suppl D:73-5
Lyme borreliosis is a multisystem disorder that may cause self-limiting or chronic diseases of the skin, the nervous system, the joints, heart and other organs. The etiological agent is the recently discovered Borrelia burgdorferi. In 1980, cardiac manifestations of LB were first described, including acute conduction disorders, atrioventricular block, transient left ventricular dysfunction and even cardiomegaly.
Pathohistological examination showed spirochetes in cases of acute myopericarditis. Recently, we were able to cultivate Borrelia burgdorferi from the myocardium of a patient with long-standing dilated
cardiomyopathy. In this study, we have examined 54 consecutive patients suffering from chronic heart failure for antibodies to Borrelia burgdorferi. On Elisa 32.7% were clearly seropositive. The endomyocardial biopsy of another patient also revealed spirochetes in the myocardium by a modified Steiner's silver stain technique. These findings give further evidence that LB is associated with chronic heart muscle disease.
Authors: Vorob'eva, Volegova, Burylovl, Tkachenko, Koz'minykh, Altpova
Title: The clinical picture and course of the nonerythematous form of
ixodid tick-borne borreliosis
Source: Med Parazitol 1995 July-Sep;(3):12-5
The territory of the Perm region is highly endemic in Ixodes (B. garnii and B. afzeli)-borne borreliosis. The clinical manifestations of ERYTHEMA-LESS Ixodes-borne borreliosis were studied in the 1991-1994 epidemiological seasons. A total of 54 patients were examined in the acute stage of infection and 4-6 months later. There were common symptoms of damage to the central nervous system in early infection and pronounced signs of damage to the central and peripheral nervous systems in the late period which was characterized by cardiovascular diseases as disturbances of automatism functions, conduction, diffuse and local muscle changes.
Authors: Lesniak, Lirman, Antiufev
Title: Heart disorders in Lyme disease
Source: Klin Med 1994;72(1):45-7
The paper presents literature data on clinical manifestations, instrumental diagnosis and pathohistological changes in Lyme carditis. Three cases were analyzed. The emphasis is placed on the necessity of three differential diagnosis with Lyme disease is all cases of unclear myocarditis and cardiac arrhythmia, especially in the territories endemic for tick-borne diseases.
source: Clinical Manifestations of Lyme Disease in the United States
Connecticut Medicine June 1989; Volume 53, No.6 pg. 327-330
"Lyme carditis .......may be the initial manifestation of Lyme disease. Fluctuating degrees of atrioventricular block, including first degree heart block and Mobitz type 1 block, including first degree heart block and Mobitz type 1 block, are the most common features of carditis, but may progress to complete heart block requiring a temporary pacemaker. The cardiac conduction abnormalities of Lyme disease are usually brief, lasting days to weeks and generally do not require permanent cardiac pacing. However, one recently described patient had residual Mobitz Type 1 block 16 months after removal of a temporary pacemaker for Lyme carditis.
"Less common cardiac manifestations have included arrhythmia's (supraventricular tachycardia and premature ventricular contractions) and myopericarditis with transient cardiomegaly and left ventricular dysfunction. This latter problem may be mistaken for acute rheumatic fever when cetaceous and joint manifestations are also present. EKG changes in such patients may include diffuse T-wave flattening or inversion, rarely ST segment depression. The diagnosis of Lyme disease should be considered in all cases of unexplained heart block, because it is treatable with antibiotics."
"......First, we have electrophysiologicaly documented the diffuse nature of the conduction system involvement that can occur in the disease...."
Lyme Carditis - Electrophysiologic and Histopathologic Study
The American Journal of Medicine; Nov. 1986 vol. 81 pg. 923-927
Reznick,D.O., et al (From the Section of Cardiology, Department of
Internal Medicine, and the of Pathology, Chicago College of Oteopathic
Medicine, Chicago, Illinois...)
"....Lyme disease, . The cardiac abnormalities that may result from this disease have been reviewed by Steere et al . The most common cardiac manifestation is a conduction system disturbance with varying degrees of atrioventricular block. Myocarditis has been described on clinical grounds, supported by electrocardiographic changes and radionuclide ventriculographic evidence of mild left ventricular dysfunction. We report herein a case of Lyme disease with biopsy proved myocarditis and possible
spirochete identification within the cardiac biopsy specimen. The diffuse nature of the conduction system abnormality, which was the principal feature in this case, was documented electrophysiologically.
................Our case demonstrates several important features of Lyme carditis not previouslyreported.
....First, we have electrophysiologicaly documented the diffuse nature of the conduction system involvement that can occur in the disease..........Our experience suggests that patients with Lyme carditis who exhibit any conduction abnormality require hospitalization and close electrocardiographic monitoring. The rapid progression from 2:1 atrioventricular block to complete heart block with subsidiary pacemaker failure in our patient underscores the need to consider early temporary pacemaker therapy in patients with Lyme carditis, even when the initial conduction abnormality may appear benign........"
Authors: Hammers-Berggren S, Griondahl A, Karlsson M, von Arbin M,
Carlsson A., Stiernstedt G
Title: Screening for neuroborreliosis in patients with stroke
Source: Stroke 1993 Sept;24(9):1393-6
Abstract: Background and Purpose: Borrelia burgdorfei, the etiologic agent of Lyme disease, can cause different neurological manifestations. We studied the prevalence of Lyme neuroborreliosis in patients with stroke.
.......Conclusions: We conclude that Lyme neuroborreliosis may imitate stroke, but screening for antibodies against B burgdorferi seems to be of little value and may be replaced by a CAREFUL medical history.
Neurology 43(12): 2705-2707 (Dec 1991)
Stroke Due to Lyme Disease
Reik L. Jr.
Department of Neurology, University of Conn. Health Center, Farmington
A 56 year old Connecticut woman suffered multiple strokes 18 months after antibiotic treatment for early Lyme disease with facial palsy. Pleocytosis, intrathecal synthesis of anti-Borrelia burgdorferi antibody,
and the response to antibiotic treatment substantiated the diagnosis of neuroborreliosis. This is the first report of stroke caused by Lyme disease acquired in North America.
This is my very own recipe.....:) I created it about 7 years ago. I get requests for it all the time and it's very versatile. I love to put it on endive, sometime I top it with caviar! It is good for dipping any veggie. Also great with chips, I make pita chips to serve with it. Also great with some fresh bread! Have it anyway you want! Just make it and enjoy :)
How to roast garlic:
Slice tops of head of garlic, drizzle with olive oil and wrap in foil. Bake at 325 degrees for about 45 minutes till golden brown. You can do this in advance. When cool, just squeeze out the garlic! :)
4 heads (not cloves) of roasted garlic
1 can of cannellini beans (White Kidney Beans)
a small handful of you herb of choice:
basil, cilantro, parsley...
I use cilantro :)
a dash of Hot sauce
salt and pepper to taste
1 Tsp. cumin
2 Tbls.. olive oil
3 Tsp. fresh lemon juice
Put everything in food processor and blend till smooth.....
Well, another great treat to enjoy! Top with a sprinkle of paprika and drizzle with olive oil,
garnish with a sprig of parsley!
Ciao Carla ....
If anyone wants to share a recipe to put in the column please do!
The Lyme Borrelia Out-Reach Foundation, Inc. begun in 1987 by Stephen J. Nostrom R.N.C. has fallen upon some difficult times. Your help is needed so as to keep this organization up and running. Since 1987, this nonprofit, federally tax exempt out-reach has reached some 150-200 million people World-Wide, with accurate, updated, state of the arts information regarding Lyme Borreliosis and other tick borne pathogens.
Nostrom, has produced a one hour television series, entitled, "Lyme Borrelia Out-Reach" for the past nine years. Physicians, clinicians, members of the scientific community, attorneys, investigative reporters, Lyme patients, advocates, writers/authors, together with news paper reporters, and political leaders have been some of his guests.
No one has ever been paid, some have been lodged, fed etc. No one in the organization has ever taken a salary, nor will they. All monies go directly into the work set before us. Over the past thirteen years these activities have come with a great cost financially and otherwise. The out-reach, needs financial support as they are approaching six figures in debt. If you can and are willing to assist, please make out any donations to the following address: Lyme Borrelia Out-Reach Foundation, Attention Stephen J. Nostrom, P.O. Box 496, Mattituck, NY 11952.
No donation is too small, every little bit helps. Thank You! Stephen ____________________________ The nonprofit Lyme Disease Network, http://www.lymenet.org, operates entirely on individual donations and is responsible for the LymeNet series of services available on the Internet since 1994. It is absolutely necessary that we support them so they'll be able to continue educating the public and medical community about the prevention and treatment of Lyme. Our daughter, Lori, has Lyme Disease that went undiagnosed since she was a little girl. She was finally PROPERLY diagnosed at age 26 but by then it was too late. Read her story at the following URL: https://www.angelfire.com/nj/lorib In 1996, we searched the Internet for answers to the horrible fears we were facing about Lori's terrible illness. We were so terrified. We thank God we found the Lyme Disease Network. The wonderful work they do is a great source of comfort especially to the newly afflicted, misdiagnosed and misguided patients who have so many unanswered questions. We hope with all our hearts that you can join us this year at the 5th Annual Bachmann Bash Fundraiser where there will be great music, dancing, a delicious Italian buffet, raffles and much more. The fundraiser is always a fun evening, so bring your friends along. We guarantee you'll have a wonderful time! 1. We hope you can come to the fundraiser but, if that is impossible, please send in a donation. Just print out the form. All the necessary information is included. LymeNet - LymeNet Bash Fundraiser 2000
Please visit Lyme Borrelia Out-Reach Foundation Website
LYME BORRELIA OUT-REACH FOUNDATION, INC.
It's time for the Lyme Disease Network Fundraiser
"THE 5TH ANNUAL BACHMANN BASH"
We have a couple of favors to ask of you.
The nonprofit Lyme Disease Network, http://www.lymenet.org, operates entirely on individual donations and is responsible for the LymeNet series of services available on the Internet since 1994. It is absolutely necessary that we support them so they'll be able to continue educating the public and medical community about the prevention and treatment of Lyme.
Our daughter, Lori, has Lyme Disease that went undiagnosed since she was a little girl. She was finally PROPERLY diagnosed at age 26 but by then it was too late. Read her story at the following URL: https://www.angelfire.com/nj/lorib
In 1996, we searched the Internet for answers to the horrible fears we were facing about Lori's terrible illness. We were so terrified. We thank God we found the Lyme Disease Network. The wonderful work they do is a great source of comfort especially to the newly afflicted, misdiagnosed and misguided patients who have so many unanswered questions.
We hope with all our hearts that you can join us this year at the 5th Annual Bachmann Bash Fundraiser where there will be great music, dancing, a delicious Italian buffet, raffles and much more. The fundraiser is always a fun evening, so bring your friends along. We guarantee you'll have a wonderful time!
1. We hope you can come to the fundraiser but, if that is impossible, please send in a donation. Just print out the form. All the necessary information is included.
LymeNet - LymeNet Bash Fundraiser 2000
2. You can help in another way. Print out extra forms and give them to people you know. Your neighbors, relatives, coworkers and businesses in your towns. Ask them to either come to the fundraiser or make a donation.
3. Finally, please send the URL to all your online buddies with a personal note about either coming to the fundraiser or donating. You'd be surprised how well this networking has helped the cause. Last year because of people sending out this letter to those in their email address books, we were so surprised and touched to receive a check from a woman in France. The internet has brought so many of us together.
Thanks so much for taking the time to help. Lori had a baby seven months ago and she and our "grandchild" are doing fine right now. We thank God every single day for this miracle. Sadly, there are so many people who are extremely sick and debilitated. We've GOT TO HELP educate the public and the medical community about Lyme Disease.
We have to stick together...it's the only way we can make our voices be heard. HELP US!
Thanks so very much!
Angela and Lou Bachmann
Lyme group forming in Rhode Island
First, organizational meeting set
Date: Wednesday, September 13, 2000
Place: Warwick Central Public Library, 600 Sandy Lane,
Warwick, Rhode Island, 02886, (401) 739-5440
Time: 7 to 9 p.m.
All are welcome
Contact: Janet Cooper, 401-423-0685, email@example.com
The Lyme Disease Association of New Jersey, Inc. is now the Lyme Disease Association, Inc. We are sponsoring our second medical conference (Bard was first). We need your help.
Please print out the flyer for our conference entitled Lyme and Other Tick-borne Diseases: Focus on Children & Adolescents and distribute across the country to health care professionals since 9 CME category 1 credits will be offered to physicians and health care providers. The general public is also invited to attend.
We have speakers who are some of the most knowledgeable in the country and perhaps the world on these topics. We were also fortunate to obtain Arno Karlen, author of recently published Biography of a Germ as the opening speaker. If you haven't read the national reviews, he writes the book from the perspective of the Borrelia bacteria. Of course, we will be doing some mailings, but the best approach is a personal approach from you. Please disseminate rapidly and widely! Thank you for your help. Pat Smith, President, Lyme Disease Association, Inc.
Please download the flyer attachment. ____________________________
(If you have a problem reading and printing the attached flyer,
please email me, PSpatches@aol.com)
I may need to convert it for your system.
If you'd like your upcoming birthday announced, let us know.
You don't have to tell us your age! LOL
My Birthday is
From the staff of Lyme Matters to you!
Please be advised that on Wednesday, September 20, 2000 at (12:00pm) Twelve o'clock noon. Denise Chapman, a former EMT with FDNY will be holding a press conference in front of City Hall. Denise Chapman, was infected with Lyme disease while employed by FDNY as an EMT in the ambulance division, she now has chronic late stage Lyme which causes her severe pain, and has rendered it extremely painful and hard to do the things each and every one of us do on a daily basis and take for granted such as walking. The City has repeatedly tried to hide the fact that she was infected and has prolonged her getting proper medical care which has resulted in her present status. This is not the first time that the City has done this to a public servant.
Last year Tracey Allen Lee another FDNY EMT died from AIDS which she contracted on the job. The City refused to help Tracey or her family until after Tracy passed away. Denise Chapman put her life on the line to help the ill and the injured of NYC. For her efforts of making this world a better place, she has contracted a disease which has destroyed her life. The City who employed her has turned their back on her just as they did Tracey Allen Lee. Denise will be publicly asking for Mayor Guiliani to get involved and help her get the medical treatment that she needs. Denise Chapman even at this point in her life is also trying to help others.
She is also expected to ask the Mayor to make sure what happened to her doesn't happen to anyone else. She is asking FDNY and the City to take responsibility for their actions. We ask that you send someone to witness this brave young woman who is fighting for her life and the lives of others on September 20th at noon. Denise even as sick as she is, will be present at this event and will personally ask the mayor for his intervention. The event will take place at City Hall; directly across from 250 Broadway promptly at noon. We hope to see you there.
For Further Information Please feel free to contact:
Denise Chapman @ Chappy427@aol.com