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September 2000 Volume 1 Issue 5
Monthly Issue

Editors: PSpatches, Lymechat, Borrelias
Graphics: Kneely813
Assistants: LutzDM, ROWDEEGPSY, CCCooks, LymeDiva, Seacastle2

Welcome to our new assistant, John,
A special mention to all our readers who submit items to this newsletter.
Thank you all!


Welcome to Lyme Matters!

This newsletter will serve two purposes: To provide timely and accurate information regarding Lyme Disease and Lyme related issues, and to serve as a means by which members of the Lyme community can voice their opinions and concerns.

The past monthly issues of Lyme Matters are on this Web site.

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Please note that none of the articles contained within Lyme Matters are the opinions of America On Line, the editors or assistants.

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Submitted by:
Thanks Carol!

"Priest's Collar"

A priest was walking along the school corridor
near the preschool wing when a group a little
ones were trotting by on the way to the cafeteria.
One little lad of about three or four stopped and
looked at him in his clerical clothes and asked,
"Why do you dress funny?"

He told him that he was a priest and that this is
the uniform priests wear. Then the boy pointed
to the priest's little plastic collar insert and asked,
"Does it hurt? Do you have a Boo-boo?"

The priest was perplexed till he realized that to
him the collar insert looked like a Band-Aid. So
the priest took it out to show him. On the back
of the collar there were raised letters giving the
name of the manufacturer. The little guy felt the
letters, and the priest asked, "Do you know what
those words say?"

"Yes, I do," said the lad who was not old enough
to read. Peering intently at the letters he said,
"It says, 'Kills ticks and fleas up to six months!'"

Submitted by:

I am 23 years old and I have chronic Lyme Disease. I was misdiagnosed 7 different times before a Neurologist finally diagnosed me correctly. However, by that time the disease had progressed so badly that I was on IV antibiotics for 7 months. I had to take my insurance company to court in order to make them pay for my treatment. The Neurologist that treated me misdiagnosed again a certain strain, I have two (2) different strains of Lyme disease. One strain reacts to Doxycycline and the other to Amoxicillan. As of the end of July I will again be on IV antibiotics.

I have never been in remission. I have been in constant pain for one (1) 1/2 years, every moment every second. I have every symptom that you could possibly have with Lyme disease. I have severe neurological problems, and because I was misdiagnosed so many different times, the general consensus from the "so called experts" (who tell me I don't know to every single question that I have about Lyme disease) is that I have encephalopathy. I was a semester away from obtaining my Ph.D. in Clinical Psychology when I became sick.

Now I can hardly walk, I have crippling arthritis in my knees, the bottom of my feet hurt, my elbows, fingers, and wrists. I have excruciating headaches that radiate from the base of my skull all the way up to the top of my head and down to my ear. I take Darvocet to try and ease the pain. I have what the "so called experts call" Lyme Fog.

I have no short term memory and I sometimes feel as if I am going insane. I feel like everything is surreal and that I am not actually there. I have had every kind of scan you can have; i.e., a SPECT Scan, CAT scan, MRI etc. It feels as if you cannot concentrate and that I am about 2 seconds behind everyone. I take Ativan for the panic attacks associated with that. But nothing helps.

I feel like I am trapped in my head when I get that foggy feeling. I have chest pains and my heart skips constantly, although the "so called experts" tell me that my heart is fine. I FEEL AS IF I AM FULL OF POISON AND NO MATTER HOW MANY DR.S I GO TO, I FEEL AS IF NO ONE IS LISTENING TO WHAT I HAVE TO SAY. As far as I am concerned, any Dr. that tells me "I don't know" to every single question I have about Lyme Disease, is the novice and I am the expert since I live with this disease every day!!!

I now have to travel to New York, actually Long Island, to see a Dr. whom is supposed the leading Lyme specialist in the United States. If he cannot help me I do not know what I will do.

I suffer from extreme depression, insomnia, panic attacks, anxiety attacks, edema in my legs and hands, severe, excruciating headaches (I also have trigeminal neuralgia), seizures from the Herxheimer reaction, chest pains, Lyme fog, encephalapathy, arthritis, chronic fatigue to the point where I feel as if I am going to pass out, dizziness in my brain, which makes me perspire and feel as if I am going to black out, and ringing in my ears which sounds more like a whooshing sound. IN ESSENCE I AM FALLING APART AND NO ONE SEEMS TO CARE.

I have 5 different Dr.'s supposedly working on my "medical team." Internists, Psychiatrists, Neurologists, etc., and they have not given me back my life yet.

I worked as a litigation paralegal before I became ill and was almost finished with my Ph.D. in Clinical Psychology (a life long dream for me) when I became ill. EVERYTHING WAS TAKEN FROM ME BECAUSE OF THIS DISEASE. I HAVE LOST CONTACT WITH ALL MY FRIENDS, MY CAREER IS GONE, AND I AM HOUSEBOUND DUE TO THE EXTREME SYMPTOMS I SUFFER FROM EVERY DAY...

My illness has affected my family too, including my 10 year old nephew who is afraid that I am going to die. There are times when I feel as if I am going to die. I vacillate between rage and severe depression. I do not deserve this, and I want my life back. Everyone around me has gone on about there business, everyone must work and for the most part I am left alone with my pain to suffer by myself.


I have no idea how I contracted Lyme disease. I do NOT swim, sunbathe, hike, garden, mow the lawn, camp etc. I went from my house to my car to my office and back. I am not an outdoor person. I feel TOTALLY OUT OF CONTROL; I HAVE ABSOLUTELY NO CONTROL OVER MY LIFE NOW. EVERY DAY IS LIKE RUSSIAN ROULETTE - WHAT TORTUOUS PAIN WILL IT BE TODAY..

This is absolutely pathetic and sad that in the year 2000 in the United States I have been allowed to become this sick....






GOD BLESS TO EVERYONE WHO HAS LYME DISEASE....YOU WILL NEED IT......................................


Lisa Ireland


Hello everyone! I hope that this past summer has been enjoyable for you, and that you are all looking forward to a pleasant fall season. Over this last week there have been several news broadcasts in the New York area, regarding contaminated bottled water. This has gotten me to thinking about just how important water is to us in our daily lives, so, I have decided to dedicate this month's column to addressing many of the different aspects of water.

We'll be covering the following ones: water's importance to the body; tap water; the different types of bottled waters; the controversy over fluoridation in drinking water; how to make sure that your water is safe to drink; how to improve the quality of tap water. Should you have any questions please feel free to E-mail me.

Water's Importance to the Human Body

Water has several critical functions in the body. Not only is it responsible for carrying nutrients throughout the body, but it's also involved in the following bodily processes: absorption, excretion, circulation and digestion. Moreover, water helps to normalize the body's temperature and is also involved in the removal of bodily waste. Consequently, it is of paramount importance that the water which is lost through perspiration and urination be replaced quickly, so that waste removal is not inhibited.

Moreover this is necessary to prevent the body from becoming dehydrated. Water is also quite helpful in cushioning the joints, which makes consuming it prior to vigorous exercise extremely important.

Research has shown that one should drink between eight and ten (eight) ounce glasses of water daily to gain the most benefits from it. Further emphasizing the importance of water, is that while people can live for several weeks without food, they can only exist for a short time (less then a week) without water.

Tap Water (Hard and Soft Water -- Which Is Better?)

The water that we get from our kitchen or bathroom faucets is referred to as tap water. There are two common ways to obtain tap water:

1. From surface water which runs off from streams, rivers, lakes, creeks and ponds, and is then kept in reservoirs

2. Rain water which has filtered through the ground and is extracted by use of a well

The water which comes from your tap can be classified as either hard or soft water. Hard water contains higher concentrations of two minerals: calcium and magnesium. While these two minerals are usually considered to be good for the body, the way in which the body absorbs them from hard water may actually have the opposite effect, making them harmful instead. Naturally soft water is well absorbed by the body, however, artificially softened water (hard water which has been softened by removing calcium and magnesium) has a tendency to dissolve the linings of pipes.

As they slowly dissolve, the metals from which they are manufactured can leach into drinking water causing it to become quite toxic. Obviously, naturally occurring soft water is safest to use as it tends to not suffer from this problem. However, all types of tap water can be susceptible to impurities including toxins from radon, fluorine, arsenic, copper, iron and lead (just to mention a few). There are also chemicals which are added to public water supplies to kill bacteria and maintain pH (parts of Hydrogen), which can also be harmful.

Consequently, it is wise to use some type of water filtration system to remove these toxins. For information on the types of water filtration systems available, see the section on "How Can I Improve the Quality of My Tap Water?"

Bottled Waters

In addition to tap water, there are several different types of bottled waters which are available. These waters can be classified in the following ways (keep in mind that these classifications may overlap with certain types of bottled waters):

1. From the source from which they come (some come from natural springs while others come from public water supplies, etc.)

2 From their mineral content

3. From the treatment that they have undergone (some waters are steam -- distilled while others are deionized, etc.)

Bottled waters include:

Natural Spring Water -- Natural spring water is unprocessed water which naturally rises from underground reservoirs to the earth's surface. The addition of the word natural on the bottle's label only means that the water's mineral content has not been changed in any way. However, please keep in mind that because there is no legal definition of the word spring, as it applies to natural spring bottled water, that some of the water which is advertised as natural spring water may not actually come from a spring, but rather another source. Also note that some of these waters may be artificially carbonated and flavored.

Steam Distilled Water
-- This type of water is created through a process by which water is vaporized by boiling it. This process frees the steam of contaminants such as viruses, bacteria and harmful chemicals.
Once this process has taken place, the steam is then condensed to become distilled water. One of the benefits of this type of water over the others mentioned is that it can remove inorganic minerals from the body.

Sparkling Water
-- Sparkling water is water that contains carbonation. It is important to make the distinction between naturally sparkling water, which gets its carbonation from the same source as the water, and carbonated natural water, which gets its carbonation from a source other then the one which supplied the water (i.e., artificial carbonation).

Deionized Water
-- Deionized water (also known as demineralized water) is water which has had its molecules neutralized by either adding electrons to it or removing them from it. The purpose of doing this is to remove heavy metals such as cadmium, lead, radium and barium. Moreover, magnesium and calcium are also removed by this process.

Mineral Water
-- Mineral water is defined as a natural spring water which must contain minerals and flow freely from its source. This means that this type of water may not be forced out of the ground, and that it must be bottled at its source, rather then elsewhere. Most mineral waters are also naturally carbonated. Please keep in mind that taking excessive amounts of mineral water may lead to toxicity, in those who already have an abundance of certain minerals in their bodies.

Should Fluoride be added to drinking water?

The use of fluoride in public drinking water has been a source of controversy for decades. While there is no definitive proof that this chemical helps to make teeth and bones stronger, there is plenty of evidence that fluorine (a very toxic substance from which fluoride is derived) adversely affects the body's immune system. Moreover, extensive use of fluoride has been linked to illnesses ranging from Down syndrome and cancer, to osteoporosis and osteomalacia.

One of the problems is that the salts used in the fluoridation process of this country's water supply (sodium fluoride and fluorosalic acid) are very toxic. Why they are used to fluoridate our water supply rather then the natural form of fluoride (calcium fluoride) remains a mystery. Fluoride is also one of the most available elements on this planet, and as such, can be found in many foods including meats and vegetables, essentially all water based packaged food products, and of course, most toothpaste's.

It is for this reason that much of the U.S. population may all ready have dangerously high levels of fluoride in their bodies. There are filters which are capable of removing most of the fluoride found in water today. To learn more about them see the section on "How Can I Improve the Quality of My Tap Water?"

Is My Water Safe to Drink?

Most of us must at one time or another wonder about how safe our public drinking water supplies are. Today this topic is more important then ever, as this healthy national economy has experienced a boon in new housing starts not seen in many years. This extensive new construction has lead to a renewed concern over the possible contamination of public water tables. This in turn has also caused concern over the basic guidelines set forth by the EPA (Environmental Protection Agency), which maintain that tap water is safe provided that it contains a low level of bacteria and a pH of anywhere from 6.5 to 8.

However, neither the EPA, nor most state or local health departments usually test for toxic substances in public water supplies. For this reason it would be prudent to have one's water tested by an organization which is better informed in this area. One such organization is The Water Quality Association, located in Lisle, Illinois. You can learn more about them at the following Web site: Water Quality Association

How Can I Improve the Quality of My Tap Water?

Perhaps you've had your tap water tested only to find that it has many contaminants. Should you spring for a water filtration system, or are there other ways for you to purify your water? Actually, the simplest and least expensive way to purify your water is to boil it, which can be useful in killing many different strains of bacteria and parasites. However, this method is not without its drawbacks. First off, it is time consuming, as one needs to spend the time that it takes to bring the water to a boil, plus another five or so minutes to actually boil it.

Moreover, boiling the water can cause a concentration of any lead which is present, which can lead to further toxicity. Leaving the water to sit in an uncovered pitcher for a time (usually a few hours) can help to improve its taste though, as this allows the chlorinated smell to dissipate.

Should you decide that the above method is not only too time consuming, but also not quite effective enough, you may want to consider one of the three man-made ways of filtering your water. These types of filters are:

1. The absorbent type -- uses carbon to absorb contaminants.

2. The Ion-exchange resins type (specifically designed to remove the heavy metals from water).

3. The microfiltration type (these systems are designed to run water through very small filters to remove impurities).

For some help in choosing a water filter for your specific needs you may access the following Web site:

Lowe's -- How To Choose a Water Filter

*** Remember that even the best filters will not filter out every contaminant. However, purchasing
one that carries an NSF (National Sanitation Foundation) rating will give you the best protection available.

Until next month!
Jim : )

Submit your Questions


This month's saying "Bitter Pill to Swallow"

Any unpleasant news may be called a bitter pill to swallow.
Figuratively applied to a wide range of situations, the
expression was once painfully literal.
For centuries, a physician's pellet for use in sickness has been
known as a pill. Honey and spices were about all that doctors had
with which to try to mask disagreeable components. Bark of a New
World tree, the cinchona, was effective in fighting malaria. But the
quinine it contains is extremely bitter. Widely employed in the era
before medications were coated, cinchona pellets caused any
disagreeable thing to be termed a bitter pill to swallow.
(Gosh, they should have tried Biaxin! LOL)

By: Borrelia,
Stephen J. Nostrom R.N., Founder/Director, Lyme Borrelia Out-Reach Foundation, circa 1987

Hello all! Where has the summer gone? It seems like yesterday that the farmers out our way were planting their potatoes and other assorted crops. Now, as I write, the harvest has begun. The pumpkins are turning bright yellow and orange, as fall is upon us!

Since fall has been officially announced, be aware that the months of September, October and November, at least in our neck of the woods, here in Eastern Long Island, are also "tick season!" As long as the temperature is 40'F or above, ticks are active and continue to do their walking, so "Protect and Check self as well as your children!"

"Bit's and Pieces"

Thanks to all of you who have provided suggestions on topics that interest you. If there is a "particular" subject matter you would like for me to address, please feel free to let me know and I will do my best in answering, but understand that in a newsletter, just so much can be written.


Many of you have questions regarding medications you are on, or new ones being prescribed by your physician. For example one person wrote: "My doctor has me on two different antibiotics and assorted other medications, Why?" The answer to this sort of question can only be answered by the tending Physician.

It is not at all uncommon to be on more than one antibiotic and the reasons vary, for example: Some families of abx (antibiotic) are used to tx (treat) certain diseases. Lyme patients get "other" infections be they bacterial, viral, etc., as a result, a second group of abx may be called for.

The manner in which certain abx work differ. Some are "broad-spectrum," that is they may eliminate a variety of disease, others are bactericidal, which means they kill the offending organism, while others are bacteristatic, which means, they "prevent" the continued growth of an organism. So as not to second guess any physician, the infection the Lyme patient has may be more than one.

We are witnessing a variety of other infections in the Lyme patient known as CO-infections. These same infections may have come from the same tick that infected you with Lyme, such as Babesiosis Microti, Ehrlichiosis H.G.E. and or M.E. as well as viral infections.

When a particular disease becomes entrenched, dual abx tx may be called for. When disease becomes chronic, there is the potential for the immune system to become overtaxed and what are called "opportunistic infections" may come into play.

Upper respiratory and or urinary tract infections of various "causes" may present in the Lyme patient and thus have to be treated depending upon the origin of the infection, causative agent involved. Other medications may also be introduced so as to "assist" the medication to work better such as get into the cell, change what is called the pH. Etc.

At times even "other" medications may be prescribed; one that comes to mind is "Elavil" or amitriptyline. While this is an antidepressant, it is often prescribed to patients who are "Not" depressed clinically. It has been shown that this same medication has assisted many with pain control, thus allowing them to get on with their activities of daily living, without and or with less pain, as well as assist in sleeping patterns. That is, allowing for better sleep and thus having more energy, improved eating habits etc.

It is important to understand that what may work and or assist another, may "not" do the same for you. The reasons vary, as some metabolize certain abx more readily than others. Some may have adverse reactions to certain abx, for example: many whom are allergic to penicillin, may also be allergic to the cephalosporin drugs. In a nut shell, and I cannot stress this enough, "communicate" with the tending Physician and don't leave the office until you are given an answer you understand!

Utilize the Pharmacist as he/she may assist in your understanding of the medication you are being prescribed. Take all your medication prescribed, at the times indicated. If you miss a dose, do not double up on the next dose. Abstain from alcohol in any given form. If the medication is causing a problem, call the physician as something else may possibly be used that may be less harsh on the stomach. Never break/crush the capsule, tablet or add the contents to such things as apple sauce "without" checking first with the doctor! Some medications are designed to be absorbed in the stomach, while others in the intestine, some are acidic while others alkaline and mixing them with something like apple sauce may negate the medication, So "ALWAYS" check with the Physician...

In closing, please provide any suggestions as to topics you might desire to learn about.

Until next month.....My best, Steve Nostrom

Questions, Comments for Steve



Heavens Very Special Child

A meeting was held quite far from earth
"It's time again for another birth"
Said the angels of the Lord above
"This special child will need much love"

Her progress may seem very slow
She will be loved more than many might ever know
And she will require much extra care
From all the folks she meets, down there

She may not laugh, or run or play
Her thoughts may seem quite far away
In many ways she won't adapt
And she will be known as handicapped

Other kids will tease her so
For they will never really know
That even tho she may never be able to count
That does not make "her" no account

She might not be able to tell time
But we will be sure, she enjoys a rhyme
Her heart will be as pure as driven snow
Others will be in "awe" as they watch her grow

So let's be careful where she is sent
We want her life to be Happy & Content
Please Lord, find the parents who
Will do this special job for you

They might not realize, right away
The leading role they are asked to play
But with this special child from up above
Comes Stronger Faith and Richer Love

And soon they'll know the PRIVILEGE given
In caring for this GIFT...... sent from heaven
Their precious child so meek and mild

© 2000 Joynheart
Please do not reprint without permission.

Poetry by Joynheart

Printed with permission from UAB Media Relations

Researchers Deliver Genes to Spinal Cord

August 28, 2000

Researchers at the University of Alabama at Birmingham (UAB) have developed a modified poliovirus, incapable of transmitting the disease, to deliver genes specifically to motor neurons in the spinal cord. “The technology may provide a new approach to treating spinal cord injuries and neurological diseases,” according to lead investigator Casey D. Morrow, Ph.D., professor of microbiology at UAB. Details of the study will be published in the September issue of “Nature Biotechnology.”

“This is the first time that a poliovirus-based delivery system, called a replicon, has been used to target motor neurons,” says Morrow. Motor neurons are the cells within the spinal cord that are responsible for movement and are the natural targets for poliovirus. “We have modified the virus by deleting the genes necessary for it to cause polio, while leaving intact its ability to target motor neurons. This gives us a vehicle for delivering potentially beneficial genes directly to the spinal cord.”

In the first phase of the study, researchers added a green fluorescent protein to the modified poliovirus to test its effect. “It showed that we could safely deliver the protein directly to the motor neurons and that the motor neurons would express the effects of the protein for a short period of time without causing damage,” says Morrow. “The system seems to mimic very closely how neurological proteins are expressed in nature -- for a short period of time in a localized area.”

In the second phase, researchers modified the poliovirus using Tumor Necrosis Factor (TNF), a protein known to have a myriad of effects on the central nervous system, and tested it in spinal cords of mice. “The TNF was expressed and biologically active, as evidenced by the effects on the motor neurons and surrounding cells,” says Morrow. “That is important. It demonstrates that we may be able to use the system to deliver beneficial genes, such as nerve growth factor, to repair or restore damaged motor neurons.”

In ongoing studies, researchers are now using the system to test whether it can be used to repair damaged motor neurons. “With spinal cord injury, impact and initial swelling result in damage to motor neurons,” says Morrow. “The delivery system could be used at this point to deliver protein molecules that would suppress swelling or allow an anti-inflammatory response. The other potential is that the system may be used to deliver molecules that would support neuron re-growth.”

The research is a collaborative effort between UAB and Replicon Technologies Inc., a Birmingham-based biotechnology company that is commercializing the technology developed in Morrow’s laboratory. “UAB has provided an excellent environment for the development and application of this novel approach,” says Morrow. “The research team represents many different disciplines that all bring important expertise to the table.”

Other investigators involved in the study are Andrea Bledsoe, UAB graduate student with the department of microbiology; Cheryl Jackson, UAB research assistant with the department of physiological optics; and Sylvia McPherson, UAB research core facility, assistant director with the Center for AIDS Research.

Submitted by:

Cardiac concerns and Lyme disease

1993 Physicians World Communication Group

"Lyme disease should be considered as a potential etiology (cause) for any cardiac abnormality when the patient lives in an endemic area and evidence of another pathogenetic cause is lacking. Evaluation of such patients should include serology studies and further tests as necessary to make a definitive diagnosis of Lyme carditis. Antibiotic treatment follows recommended guidelines."

Source: Lyme Times, Number 10 Publication of Lyme Disease resource Center pg. 33

Original article: Stanek, G. Klein, J, et al.: Borrelia burgdorferi as an Etiologic agent in Chronic Heart failure.

Scandanavian J. of Infectious Disease--Suppl. 77: 85-87, 1991

"Cardiac manifestations of Lyme borreliosis have been described by Steere and others as transient and self-limited. In 1990 Dr. Stanek and colleagues presented a case of isolation of Borrelia burgdorferi from the myocardium of a patient with long standing cardiomyopathy who also had high serum IgG antibodies to Bb (N Eng J Med 1990;322:249-252). The current study was designed to examine an association or even an etiologic role for Bb in this chronic and persistent heart disorder.

"The sera of 72 patients suffering from chronic heart failure due to dilated cardiomyopathy were tested by ELISA for antibodies to Bb. 55 patients with coronary heart disease and 61 healthy blood donors served as controls. 26.4% of the study group were seropositive for antibodies to Bb. Virus serology excluded viral causes of heart disease, and syphilis serology excluded the possibility of serological cross-reactivity. Of the control groups, 12.7 % of patients with coronary heart disease and 8.2 % of the healthy blood donors had IgG antibodies to B. burgdorferi.

"The authors conclude that Bb infection should be considered in the differential diagnosis and etiology of dilated cardiomyopathy."

Gerald Stanek , MD
Hygiene Institute of the University of Vienna
Kinderspitalgasse 15
A-1085 Wien, Austria


Title:[The cardiac and neurological manifestations of Lyme borreliosis in
congenital first-degree AV block] Authors: Stille-Siegener M, Eiffert H, Vonhof
Source: Dtsch Med Wochenschr 1996 Oct 18;121(42):1292-6
Organization: Abteilung fur Kardiologie, Medizinische Klinik sowie
Hygiene-Institut, Universitat Gottingen.

HISTORY AND CLINICAL FINDINGS: A 19-year-old youth was hospitalized because of sudden onset of incomplete lid closure and drooping mouth on the left. He regularly walked through fields and woods; three weeks before admission he had noted swelling and reddening on his neck, which he thought was due to an insect bite. When 9 years old a functional heart murmur and 1 degree AV block (P-R interval 0.25s) had been found. Physical examination showed peripheral facial paresis and a 2/6 systolic murmur over the aortic area. INVESTIGATIONS: As Borreliosis (Lyme disease) was suspected, relevant laboratory tests were performed. These revealed specific IgM antibodies against Borrelia burgdorferi. Polymerase chain reaction demonstrated B. burgdorferi-specific DNA in cerebrospinal fluid and urine. The ECG showed 1 degree AV block (P-R interval 0.28s).

TREATMENT AND COURSE: Ceftriaxone was administered at once (4g, followed by 2g daily intravenously for 14 days). The P-R interval increased to maximally 0.31 s and transient incomplete right bundle branch block developed on the second day. Long-term ECG monitoring also revealed ventricular arrhythmia's (Lown IVb), but they gradually disappeared. The neurological signs regressed completely within five days of the start of treatment, while the P-R interval had returned to its initial value of 0.25 s 3 months later.

CONCLUSION: The case makes clear that an ECG should be recorded in borreliosis even in the absence of cardiac symptoms. Hospitalization with long-term monitoring becomes necessary if it is abnormal.


Authors: Vegsundv, Nordeide, jenum,Reikvam
Title: Cardiac Manifestations of Borrelia burgdorferi Infection
Source: Tidsskr Nor Laegeforen 1993 Sept. 30;113(23):2911-2


Lyme borreliosis, caused by the tick-borne spirochete Borrelia burgdorferi, has been found to cause a variety of clinical syndromes including cardiomyopathy, dermatopathy, neuropathy, and arthropathy. Lyme carditis was originally described as a mild self-limited carditis, primarily involving the conduction system. However, recent reports suggest that cardiac involvement may be more serious than previously suspected, and may cause heart failure and probably congestive cardiomyopathy.


Authors: Klein, Stanek, Bittner, Horvat, Holzinger, Glogar
Title: Lyme borreliosis as a cause of myocarditis and heart muscle disease
Source: Eur Heart J 1991 Aug;12 Suppl D:73-5


Lyme borreliosis is a multisystem disorder that may cause self-limiting or chronic diseases of the skin, the nervous system, the joints, heart and other organs. The etiological agent is the recently discovered Borrelia burgdorferi. In 1980, cardiac manifestations of LB were first described, including acute conduction disorders, atrioventricular block, transient left ventricular dysfunction and even cardiomegaly.

Pathohistological examination showed spirochetes in cases of acute myopericarditis. Recently, we were able to cultivate Borrelia burgdorferi from the myocardium of a patient with long-standing dilated
cardiomyopathy. In this study, we have examined 54 consecutive patients suffering from chronic heart failure for antibodies to Borrelia burgdorferi. On Elisa 32.7% were clearly seropositive. The endomyocardial biopsy of another patient also revealed spirochetes in the myocardium by a modified Steiner's silver stain technique. These findings give further evidence that LB is associated with chronic heart muscle disease.


Authors: Vorob'eva, Volegova, Burylovl, Tkachenko, Koz'minykh, Altpova
Title: The clinical picture and course of the nonerythematous form of
ixodid tick-borne borreliosis
Source: Med Parazitol 1995 July-Sep;(3):12-5


The territory of the Perm region is highly endemic in Ixodes (B. garnii and B. afzeli)-borne borreliosis. The clinical manifestations of ERYTHEMA-LESS Ixodes-borne borreliosis were studied in the 1991-1994 epidemiological seasons. A total of 54 patients were examined in the acute stage of infection and 4-6 months later. There were common symptoms of damage to the central nervous system in early infection and pronounced signs of damage to the central and peripheral nervous systems in the late period which was characterized by cardiovascular diseases as disturbances of automatism functions, conduction, diffuse and local muscle changes.


Authors: Lesniak, Lirman, Antiufev
Title: Heart disorders in Lyme disease
Source: Klin Med 1994;72(1):45-7


The paper presents literature data on clinical manifestations, instrumental diagnosis and pathohistological changes in Lyme carditis. Three cases were analyzed. The emphasis is placed on the necessity of three differential diagnosis with Lyme disease is all cases of unclear myocarditis and cardiac arrhythmia, especially in the territories endemic for tick-borne diseases.


source: Clinical Manifestations of Lyme Disease in the United States
Connecticut Medicine June 1989; Volume 53, No.6 pg. 327-330
Trock,M.D.,Craft,M.D., Rahn,M.D.

"Cardiac Manifestations"

"Lyme carditis .......may be the initial manifestation of Lyme disease. Fluctuating degrees of atrioventricular block, including first degree heart block and Mobitz type 1 block, including first degree heart block and Mobitz type 1 block, are the most common features of carditis, but may progress to complete heart block requiring a temporary pacemaker. The cardiac conduction abnormalities of Lyme disease are usually brief, lasting days to weeks and generally do not require permanent cardiac pacing. However, one recently described patient had residual Mobitz Type 1 block 16 months after removal of a temporary pacemaker for Lyme carditis.

"Less common cardiac manifestations have included arrhythmia's (supraventricular tachycardia and premature ventricular contractions) and myopericarditis with transient cardiomegaly and left ventricular dysfunction. This latter problem may be mistaken for acute rheumatic fever when cetaceous and joint manifestations are also present. EKG changes in such patients may include diffuse T-wave flattening or inversion, rarely ST segment depression. The diagnosis of Lyme disease should be considered in all cases of unexplained heart block, because it is treatable with antibiotics."


"......First, we have electrophysiologicaly documented the diffuse nature of the conduction system involvement that can occur in the disease...."

Lyme Carditis - Electrophysiologic and Histopathologic Study
The American Journal of Medicine; Nov. 1986 vol. 81 pg. 923-927
Reznick,D.O., et al (From the Section of Cardiology, Department of
Internal Medicine, and the of Pathology, Chicago College of Oteopathic
Medicine, Chicago, Illinois...)

"....Lyme disease, . The cardiac abnormalities that may result from this disease have been reviewed by Steere et al . The most common cardiac manifestation is a conduction system disturbance with varying degrees of atrioventricular block. Myocarditis has been described on clinical grounds, supported by electrocardiographic changes and radionuclide ventriculographic evidence of mild left ventricular dysfunction. We report herein a case of Lyme disease with biopsy proved myocarditis and possible spirochete identification within the cardiac biopsy specimen. The diffuse nature of the conduction system abnormality, which was the principal feature in this case, was documented electrophysiologically.

................Our case demonstrates several important features of Lyme carditis not previouslyreported.
....First, we have electrophysiologicaly documented the diffuse nature of the conduction system involvement that can occur in the disease..........Our experience suggests that patients with Lyme carditis who exhibit any conduction abnormality require hospitalization and close electrocardiographic monitoring. The rapid progression from 2:1 atrioventricular block to complete heart block with subsidiary pacemaker failure in our patient underscores the need to consider early temporary pacemaker therapy in patients with Lyme carditis, even when the initial conduction abnormality may appear benign........"


Authors: Hammers-Berggren S, Griondahl A, Karlsson M, von Arbin M,
Carlsson A., Stiernstedt G

Title: Screening for neuroborreliosis in patients with stroke

Source: Stroke 1993 Sept;24(9):1393-6

Abstract: Background and Purpose: Borrelia burgdorfei, the etiologic agent of Lyme disease, can cause different neurological manifestations. We studied the prevalence of Lyme neuroborreliosis in patients with stroke.
.......Conclusions: We conclude that Lyme neuroborreliosis may imitate stroke, but screening for antibodies against B burgdorferi seems to be of little value and may be replaced by a CAREFUL medical history.

Neurology 43(12): 2705-2707 (Dec 1991)
Stroke Due to Lyme Disease
Reik L. Jr.
Department of Neurology, University of Conn. Health Center, Farmington

A 56 year old Connecticut woman suffered multiple strokes 18 months after antibiotic treatment for early Lyme disease with facial palsy. Pleocytosis, intrathecal synthesis of anti-Borrelia burgdorferi antibody, and the response to antibiotic treatment substantiated the diagnosis of neuroborreliosis. This is the first report of stroke caused by Lyme disease acquired in North America.


This is my very own recipe.....:) I created it about 7 years ago. I get requests for it all the time and it's very versatile. I love to put it on endive, sometime I top it with caviar! It is good for dipping any veggie. Also great with chips, I make pita chips to serve with it. Also great with some fresh bread! Have it anyway you want! Just make it and enjoy :)

How to roast garlic:

Slice tops of head of garlic, drizzle with olive oil and wrap in foil. Bake at 325 degrees for about 45 minutes till golden brown. You can do this in advance. When cool, just squeeze out the garlic! :)

4 heads (not cloves) of roasted garlic
1 can of cannellini beans (White Kidney Beans)
a small handful of you herb of choice:
basil, cilantro, parsley...
I use cilantro :)
a dash of Hot sauce
salt and pepper to taste
1 Tsp. cumin
2 Tbls.. olive oil
3 Tsp. fresh lemon juice
Put everything in food processor and blend till smooth.....

Well, another great treat to enjoy! Top with a sprinkle of paprika and drizzle with olive oil,
garnish with a sprig of parsley!
Picture perfect!

Ciao Carla ....

If anyone wants to share a recipe to put in the column please do!
Click here.

Lyme Chatters Reminder
The Daytime Chat is scheduled for
Wednesday, September 20th

3:00 PM Est.
2:00 PM Central
12:00 PM Pacific
Click here to enter the room >> Private Room Lyme Disease

All are welcome! Hope to see you!

The Lyme Borrelia Out-Reach Foundation

The Lyme Borrelia Out-Reach Foundation, Inc. begun in 1987 by Stephen J. Nostrom R.N.C. has fallen upon some difficult times. Your help is needed so as to keep this organization up and running. Since 1987, this nonprofit, federally tax exempt out-reach has reached some 150-200 million people World-Wide, with accurate, updated, state of the arts information regarding Lyme Borreliosis and other tick borne pathogens.

Nostrom, has produced a one hour television series, entitled, "Lyme Borrelia Out-Reach" for the past nine years. Physicians, clinicians, members of the scientific community, attorneys, investigative reporters, Lyme patients, advocates, writers/authors, together with news paper reporters, and political leaders have been some of his guests.

No one has ever been paid, some have been lodged, fed etc. No one in the organization has ever taken a salary, nor will they. All monies go directly into the work set before us. Over the past thirteen years these activities have come with a great cost financially and otherwise. The out-reach, needs financial support as they are approaching six figures in debt. If you can and are willing to assist, please make out any donations to the following address: Lyme Borrelia Out-Reach Foundation, Attention Stephen J. Nostrom, P.O. Box 496, Mattituck, NY 11952.

No donation is too small, every little bit helps. Thank You! Stephen

Please visit Lyme Borrelia Out-Reach Foundation Website



It's time for the Lyme Disease Network Fundraiser

The nonprofit Lyme Disease Network,, operates entirely on individual donations and is responsible for the LymeNet series of services available on the Internet since 1994. It is absolutely necessary that we support them so they'll be able to continue educating the public and medical community about the prevention and treatment of Lyme.

Our daughter, Lori, has Lyme Disease that went undiagnosed since she was a little girl. She was finally PROPERLY diagnosed at age 26 but by then it was too late. Read her story at the following URL:

In 1996, we searched the Internet for answers to the horrible fears we were facing about Lori's terrible illness. We were so terrified. We thank God we found the Lyme Disease Network. The wonderful work they do is a great source of comfort especially to the newly afflicted, misdiagnosed and misguided patients who have so many unanswered questions.

We hope with all our hearts that you can join us this year at the 5th Annual Bachmann Bash Fundraiser where there will be great music, dancing, a delicious Italian buffet, raffles and much more. The fundraiser is always a fun evening, so bring your friends along. We guarantee you'll have a wonderful time!

We have a couple of favors to ask of you.

1. We hope you can come to the fundraiser but, if that is impossible, please send in a donation. Just print out the form. All the necessary information is included.

LymeNet - LymeNet Bash Fundraiser 2000

2. You can help in another way. Print out extra forms and give them to people you know. Your neighbors, relatives, coworkers and businesses in your towns. Ask them to either come to the fundraiser or make a donation.

3. Finally, please send the URL to all your online buddies with a personal note about either coming to the fundraiser or donating. You'd be surprised how well this networking has helped the cause. Last year because of people sending out this letter to those in their email address books, we were so surprised and touched to receive a check from a woman in France. The internet has brought so many of us together.

Thanks so much for taking the time to help. Lori had a baby seven months ago and she and our "grandchild" are doing fine right now. We thank God every single day for this miracle. Sadly, there are so many people who are extremely sick and debilitated. We've GOT TO HELP educate the public and the medical community about Lyme Disease.

We have to stick's the only way we can make our voices be heard. HELP US!
Thanks so very much!
Angela and Lou Bachmann


Lyme group forming in Rhode Island
First, organizational meeting set
Date: Wednesday, September 13, 2000
Place: Warwick Central Public Library, 600 Sandy Lane,
Warwick, Rhode Island, 02886, (401) 739-5440
Time: 7 to 9 p.m.
All are welcome
Contact: Janet Cooper, 401-423-0685,


The Lyme Disease Association of New Jersey, Inc. is now the Lyme Disease Association, Inc. We are sponsoring our second medical conference (Bard was first). We need your help.

Please print out the flyer for our conference entitled Lyme and Other Tick-borne Diseases: Focus on Children & Adolescents and distribute across the country to health care professionals since 9 CME category 1 credits will be offered to physicians and health care providers. The general public is also invited to attend.

We have speakers who are some of the most knowledgeable in the country and perhaps the world on these topics. We were also fortunate to obtain Arno Karlen, author of recently published Biography of a Germ as the opening speaker. If you haven't read the national reviews, he writes the book from the perspective of the Borrelia bacteria. Of course, we will be doing some mailings, but the best approach is a personal approach from you. Please disseminate rapidly and widely! Thank you for your help. Pat Smith, President, Lyme Disease Association, Inc.

Please download the flyer attachment.
(If you have a problem reading and printing the attached flyer,
please email me,
I may need to convert it for your system.


Birthday Club!

If you'd like your upcoming birthday announced, let us know.
You don't have to tell us your age! LOL
My Birthday is

Happy Birthday!
From the staff of Lyme Matters to you!

Sept. 20th..........LiLitaliaG
Sept. 21.........CSLyme.....Connie
Sept. 23.........SuBratcher......Susan

September 20, 2000

To: Assignment Editor

From: Joseph Tomaso, NYS Paramedic, NREMT-P, Connecticut State Paramedic
Re: Denise Chapman - Press Conference

Please be advised that on Wednesday, September 20, 2000 at (12:00pm) Twelve o'clock noon. Denise Chapman, a former EMT with FDNY will be holding a press conference in front of City Hall. Denise Chapman, was infected with Lyme disease while employed by FDNY as an EMT in the ambulance division, she now has chronic late stage Lyme which causes her severe pain, and has rendered it extremely painful and hard to do the things each and every one of us do on a daily basis and take for granted such as walking. The City has repeatedly tried to hide the fact that she was infected and has prolonged her getting proper medical care which has resulted in her present status. This is not the first time that the City has done this to a public servant.

Last year Tracey Allen Lee another FDNY EMT died from AIDS which she contracted on the job. The City refused to help Tracey or her family until after Tracy passed away. Denise Chapman put her life on the line to help the ill and the injured of NYC. For her efforts of making this world a better place, she has contracted a disease which has destroyed her life. The City who employed her has turned their back on her just as they did Tracey Allen Lee. Denise will be publicly asking for Mayor Guiliani to get involved and help her get the medical treatment that she needs. Denise Chapman even at this point in her life is also trying to help others.

She is also expected to ask the Mayor to make sure what happened to her doesn't happen to anyone else. She is asking FDNY and the City to take responsibility for their actions. We ask that you send someone to witness this brave young woman who is fighting for her life and the lives of others on September 20th at noon. Denise even as sick as she is, will be present at this event and will personally ask the mayor for his intervention. The event will take place at City Hall; directly across from 250 Broadway promptly at noon. We hope to see you there.

For Further Information Please feel free to contact:
Joseph Tomaso
Denise Chapman @


Candidiasis Syndrome

Don't Stop

The Room: The Window

Queen Size

Words Do Touch The Heart

A Strange Language

Dumb Laws in New York

Helpful Tips to Make Life Simpler

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