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February 2001 Volume 2 Issue 2
Monthly Issue

Editors: PSpatches, Lymechat, Borrelia s
Graphics: Kneely813
Assistants: LutzDM,CCCooks,ROWDEEGPSY



Welcome to Lyme Matters!

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By LymeDiva@aol.com


The doctor handed her overweight patient a bottle of pills.
"Don't take these pills," she said. "Spill them on the floor
three times a day and pick them up one by one."

***********
Although he was a qualified meteorologist, Hopkins ran up a
terrible record of forecasting for the TV news program. He
became something of a local joke when a newspaper began
keeping a record of his predictions and showed that he'd been
wrong almost three hundred times in a single year. That kind
of notoriety was enough to get him fired.
He moved to another part of the country and applied for
a similar job. One blank on the job application called for
the reason for leaving his previous position.
Hopkins wrote, "The climate didn't agree with me."




Submitted by: SCHULTZ6269

I was diagnosed with Lyme in the fall of 1997. I had no bull's eye rash or anything else. I had a raised growth on my leg where I was bitten by a mosquito, but thought nothing of it. I felt sick and achy for about six to eight months-and after many doctors visits, decided to contact 1-800-tick bite.

I found a wonderful doctor who determined that I had Lyme and started me on an aggressive antibiotic treatment. She determined that my infection came from the mosquito bite. I also develop a benign cancerous tumor in my leg at the point of infection. I also have rheumatoid arthritis from this horrible illness. I just want people to know that you can become infected with Lyme from a mosquito. I am only twenty-eight years old and I am facing a lifetime of dealing with this awful disease.

Thank God I have an extremely compassionate and understanding boyfriend who has on many occasions had to take care of me, carrying me up and down stairs and so on.Thank You for letting me tell my story.



Sincerely,

Simmi D Oppenheimer
New Jersey









By Lymechat@aol.com


Herbs and Antibiotic Resistance


A good February to everyone! As promised, this month we'll begin discussing herbs which contain antibiotic properties, and are thus good for treating a variety of bacterial infections. They can be useful as an adjunct to the synthetic antibiotics (man made) prescribed by doctors in the treatment of these types of infections. In certain respects they may be superior to their synthetic counterparts, as they are not as toxic. Moreover, they don't appear to cause the mutations of bacterium which are often seen with chronic use of synthetic antibiotics, which can eventually render these antibiotics useless.

Before we discuss these herbs, it is important to have a basic understanding as to how
and why bacterium become resistant to synthetic antibiotics. The why part of this process is simple to answer. In the middle of the twentieth century, the first synthetic antibiotics used by physicians were so successful in killing off dangerous strains of bacterium, that the prominent notion in the medical community at the time, was that the use of these antibiotics could very well signal the end of most bacteriologically caused illnesses.

However, they could not have been more mistaken. What they failed to recognize was that these single celled organisms were able to communicate in an intelligent way, sharing all types of important information. Bacteria are made up of different chemicals. They are a life-form whose main goal (much like that of humans) is to survive and reproduce. Consequently, when attempts are made to destroy them, they too fight back in an effort to survive. This takes us to how they do so, which is more complex.

Bacterium respond to assaults of even the largest doses of the most potent synthetic antibiotics, using metabolic changes to counter the effects of these antibiotics. This ability to mutate enables them to not only survive these assaults, but to in the process become even more virulent then they started out; which in turn enables them to cause even more serious diseases. Also disturbing, is the ability of different types of bacteria to communicate with eachother, sharing important information including that of antibiotic resistance.

Scientists have found that when two different types of bacteria meet, they move alongside eachother so that they can exchange information. What takes place during this meeting is very complex, but the end result is that a resistant bacteria appears to share all of the information that it has including that of antibiotic resistance, with the nonresistant strain of bacteria. Once this takes place, the nonresistant strain has now developed resistance to all of the types of antibiotics that the first bacteria had developed resistance to, without ever having been exposed to the antibiotics themselves. This bacteria can now pass this information on to other nonresistant strains, enabling them to also become resistant
to antibiotics. Imagine what could happen if every strain of nonresistant bacteria in the human body suddenly became resistant to antibiotics! Perish the thought!

Of equal concern is that this method of communication seems to now be taking place between types of bacteria that have never in the past been known to communicate with eachother, including aerobic and nonaerobic bacterium, as well as the gram negative and gram positive strains. Research has also shown that bacteria contain bacteriophages (bacterial viruses), which also hold information on antibiotic resistance, which they pass on to other bacteria.

Bacterium seem to be sending us a clear message, that they have figured out how to break down and mutate against the simple compounds which make up the synthetic antibiotics that have been used for decades to kill them, and moreover, that they will continue to evolve and flourish as long as these antibiotics are used. This is not to say that synthetic antibiotics don't have any value in the treatment of illnesses. They of course do, and have saved countless lives since their inception. However, the medical community's indiscriminant use of them in the treatment of illnesses that did not require antibiotics, has enabled bacterium to evolve faster then they normally would have (allowing them to develop resistance to these antibiotics faster then they would have been able to).

Consider that they are able to multiply at a rate roughly 500,000 times faster then humans, and one does not have to be a "rocket scientist" to see that bacterium have the upper hand on us when it comes down to who gets to evolve faster. This is where medicinal plants appear to have a significant advantage over synthetic antibiotics. Plants are made up of very complex compounds, unlike their synthetic counterparts, which usually consist of one chemical constituent.

For example, while penicillin contains just one chemical constituent (penicillin), the herb garlic contains nearly sixty different constituents, including many sulfur compounds, as well as seventeen different amino acids. It is this complexity which appears to give those herbs which contain antibiotic properties, a distinct advantage over synthetic antibiotics when it comes to killing bacterial infections. This complexity appears to prevent bacterium from mutating to more virulent strains, as they find themselves unable to breakdown and hence learn how to evade and defend against these more complex substances.

Once again, this is not to say that synthetic antibiotics do not have a place in treating bacterial infections, but they should be used only in serious situations where they are truly necessary.

This brings us to our discussion of those herbs which contain antibiotic properties. Over the next several issues of Natural Alternatives, we'll be discussing many of these herbs. In this month's Herb Corner we'll be covering the following ones: artemisia and cryptolepsis.




The Herb Corner


Artemisia
There are three different species of this herb: artemisia vulgaris, artemisia annua and artemisia absinthium. The first of these species is the mildest of the three, and probably not very useful in the treatment of antibiotic resistant infections. However, the latter two species have been extremely effective at treating many different types of infections including antibiotic resistant malaria. These herbs have the following benefits: antibacterial, antimalarial antifungal, immunomodulator, anthelmintic, anti-inflammatory, diaphoretic, antihepatoxic, euphoriant, antiamoebic, antipyretic, gastric stimulant, choleretic, bitter tonic, smooth muscle relaxant.
All species of artemisia can be used in the following forms:


Taken Internally

Tea-- 1 - 2 ounces of the herb steeped in boiling water

Tincture -- Fresh plant 1:2 ratio with 95 percent alcohol -- you can use between 10 - 30 drops as many
as four times a day to treat an infection.

Capsules -- Between 1 - 5 capsules up to four times per day

Tincture -- make a tincture from the dried root -- 1:5 ratio with 60 percent alcohol -- use between 10 - 30 drops per day.


Used Externally only

Essential oil -- This can be used in a diffuser to kill airborne bacteria -- do NOT take internally as it is
very toxic.


*Caution -- This herb contains a toxic narcotic substance known as thujone, which when used
extensively, has been tied to central nervous system damage. Consequently, it should not be used for extended periods of time unless you are under the care of a homeopathic doctor. Moreover, women
whom are pregnant should not use any of the species of artemisia.



Cryptolepsis
Cryptolepsis is a shrub from the Asclepiadacea family. It has been used for hundreds of years
in the treatment of many serious illnesses. It has the following benefits: antiparasitic, antimalarial, antibacterial, antifungal. Human clinical trials have shown cryptolepsis to be very effective in the
treatment of malaria. In fact, one of these trials showed this herb to clear malarial symptoms in
a shorter time then its synthetic counterpart, chloroquine, and without the side-effects associated
with that medication.


Taken Internally

Tea -- mix a teaspoon of cryptolepsis with 5 ounces of boiling water -- can be taken up to twice a day

Tincture -- Make a 1:5 ratio mixture in 60 percent alcohol -- use between 20 - 40 drops up to four times
a day.

Capsule -- Take up to 3 capsules twice a day. Up to 20 capsules can be taken for acute conditions provided
that you are under a homeopathic doctor's care.


Used Externally

Crush herb into a fine powder. It can be applied to an external bacterial or fungal infection. Apply
up to four times per day.


*Caution -- While there are no warnings regarding this herb, people using it should be aware that they may have, or may develop an allergy to cryptolepsis. Should you develop a rash or experience any other odd symptoms while using this herb, discontinue use of it immediately.




***Caution should be taken when using herbal supplements. Many of these while harmless at their recommended dosages, can become dangerous when taken in larger amounts. In addition, some people may have or may develop allergies to an herb that has had no prior reputation for causing allergic reactions. If you feel that you need to increase your daily intake of a particular supplement, please speak with either your physician or someone who is knowledgeable with regard to pharmacognosy (the study of drugs derived from plants).



Until next month!
Jim : )

Submit your Questions






Trivia
By PSpatches@aol.com


This month's phrase "Go to Pot"


A person, a business, or a community can "go to pot" very rapidly.
No person or enterprise is immune from danger of taking a downward
course named from household customs of long ago.

English squires of the 15th century ate much more meat than do
most modern people. Beef was favored, but mutton and pork were also
consumed in large quantities. After the best pieces were cut off a roasted
joint, the remnant was likely to be used in making stew. This meant that
it went into the pot along with potatoes, onions and other vegetables.

Degeneration of all sorts came to be designated as "going to pot" -
the description of the downward journey of a once splendid roast.


Lyme makes us "go to pot"!






By Borrelia s@aol.com
Stephen J. Nostrom R.N.,Founder/Director,Lyme Borrelia Out-Reach Foundation, circa 1987



Well, hello everyone, and thank you for the many responses to last months topic, "Alcohol use and the Lyme patient." In this months column, I will discuss as per your requests the following, Caffeine. Please "keep in mind" past news letters, especially last months on alcohol to better understand how caffeine may affect the Lyme patient. That is, the various organ systems, and why you may choose to remove this from your menu.

"Caffeine Use And The Lyme Patient"

Caffeine like alcohol is a drug! Caffeine, an ingredient in coffee, tea, and numerous carbonated soft drinks, is perhaps the most widely used and abused drug. It is popular due to its stimulating action upon the CNS, or Central Nervous System.
Caffeine is also an ingredient in some OTC (over the counter) headache remedies, cold medications, appetite suppressants, and stimulants. A related drug, theobromine, is found in cocoa and chocolate. Caffeine is related chemically to the bronchodilator drugs aminophylline and theophylline.
The major pharmacologic importance is that it can cause an anxiety disorder called caffeinism, like we need more anxiety in our lives eh?
This drug is readily absorbed from the GI tract, and partially metabolized in the liver and excreted in the urine.
Pharmacologic Effects upon our organ systems:
Caffeine, like theophylline, stimulates the CNS and heart and relaxes smooth muscle in blood vessels and the bronchi. Vasodilation and cardiac stimulation increase renal (kidney) blood flow, which may be seen to increase urine output. Its a diuretic, causing "diuresis." Gastric acid secretion is also increased. In high doses, respiration is increased. The appetite is decreased, and blood glucose increases, it also causes a certain euphoria.

Side Effects, Adverse Reactions, and Contraindications

Caffeine as shared earlier overstimulates the CNS and sympathetic nervous systems. Common central signs, familiar to many of us include jitteriness, restlessness, nervousness, excitement, and insomnia. Flushed face, palpitations, and diuresis are common autonomic side effects. Some persons may show signs of considerable stimulation with daily doses as low as 250 mg. per day (two or three cups of brewed coffee). If a person who has not developed a caffeine tolerance ingests about 1 g in a day, such CNS effects as periods of inexhaustibility, psychomotor agitation, rambling thoughts and speech, tinnitus, and hallucinations may occur.
Peripheral effects include muscle twitching, tachypnea or respiratory distress, severe nausea, and vomiting, and a variety of cardiac problems ranging from palpitations to arrhythmias.
Gastrointestinal distress can occur because caffeine irritates the gastric mucosa (lining) directly and stimulates more acid secretion.

Those of us with Lyme Disease need to make "changes" in our activities of daily living. If our body is crying out for rest, the introduction of a stimulant is not the way to go. Many of us have experienced heart palpitations, arrhythmias, PVC's, and the introduction of caffeine can only worsen matters. Many of us have become dehydrated, caffeine can only do us more harm. Excess sugars, fast foods, have become a way of life for many of us, however we can and must make changes in our life styles and eating habits.
If we are having trouble sleeping, have night mares/terrors, experience racing thoughts, mood swings, irritability, poly urination, headaches, ringing in the ears, blood pressure changes, glucose (sugar) changes, too much-too little, liver enzyme abnormalities, cholesterol changes, lipid changes in our labs, being tense, then...........we may want to seriously think about avoiding caffeine in our diet and drinks and see for ourselves if changes do present themselves for the better in our "Unfolding Drama" called Lyme Borreliosis.
Well that's it for this month. Keep the questions coming and I will do my best to assist. For those of you new to this column, copies of other volumes are available and I recommend them to better understand just what Lyme Borreliosis can do to our bodies. This news letter is a continuous source of information, that is, it builds each month and while I attempt to refrain from using "words" that are not common to the lay person, sometimes, due to lack of space a word here and there may be used that has been explained in detail in past news letters. Chin up....Stephen

Email Steve, click here
I Have A Question or Suggestion Steve







By: Joynheart@aol.com


Gee, Isn't this Computer Neat


Isn't it funny, just how we met

Your face, I haven't seen on the Internet

I have seen, the best in you

I know all others, see it too

For you have a heart, of pure gold

It's very valuable, I am told

Through our friendship, I have come to see

You share of yourself, just like me

A gift that is given, from the heart

Is of great value, from the start

Not like an antique, that takes time to get old

Before it's value has grown, and it gets sold

So I want to tell you, how much you mean to me

Even tho your face, I may never see

I thank God, for the friend he has given

You make my day, and life worth living

For God chose you, and me to meet

Gee Isn't This Computer Neat

© Joynheart






Update from Dr. B



Now the latest---

The NY Office of Professional Medical Conduct (OPMC) seems to be out of
control. They are reviewing nine of my charts now, as most of you know.
During the hearing, they called for two more charts. Last month they
called for four more charts. Today, they called for another!!!
The OPMC does serve a necessary function, but because of the
unrestricted and anonymous way they accept complaints, the OPMC system
can be utilized by anyone to cause harm to any physician.
Some examples of this-The latest chart of mine that was requested is of
one of my strongest supporters, who would never complain to the state
about the care I rendered. Yet this person is totally powerless in that
his/her medical record will be taken and read by God-knows-who without
this person's permission. There is currently no legal way that
confidential records can be kept from the state.
There is evidence that insurance company MDs have filed complaints
against Lyme literate MDs.
There is evidence that members of the OPMC have tried to get patients to
file complaints against LLMDs on their behalf.
The only way to change this system is to have the state legislature
change the policies and procedures of the OPMC. Right now there is
pressure to require that a patient must give permission to the state
before their records can be taken. If this became policy, then patients
with legitimate complaints could file complaints and would be happy to
have their chart reviewed. On the other hand, if illegitimate complaints
are filed, such as with my latest chart concerning a satisfied patient,
then that patient can block the process and also maintain privacy. After
all, the patient owns the information in the medical record, and should
have the right to control it.
So here's the plan-
We must all contact as many NY State legislators as possible, and as
quickly as possible, and ask them to support reforms of the OPMC that
would prevent it from being misused. You can cite my examples above, or
better still, come up with your own. Also, after a short period of time,
if you do not get a direct reply, write again and CALL to ask why your
letters were not responded to.
My hearing on Feb. 14 was postponed to the following Wednesday, Feb. 21.
I will be in touch then to update everyone on the latest developments.
Remember, the most important thing is your health. Do not allow your ability to receive proper health care cut short by insurance company MDs or bureaucrats. Power to you all.
JJB.............!

This is the video clip of Dr. B's Dateline show. It takes a while
to download, well worth taking a look.

World Wide Web

http://www.socialeyes.net/photopage/Sections/Videos/01-01-27-Burrascano.mpg

If you don't have the latest Windows Media Player7 to
play the above clip, you can download it free here.
Microsoft Windows Update

http://windowsupdate.microsoft.com/



~~~~~~~~~~~~~
Remembering Beverly, Country Girl


Submitted by: lymeinformation@home.com (Brite)


Last year many of us lost a very close friend to death due to Lyme disease. What I might feel is more painful for some of us, is not. There is no measure of the loss of a friend, mentor and patient advocate of Lyme victims as well as survivors. Beverly Stanton, "Country Girl" was all of these things and more.

The Mgh Lyme Chat room was renamed by John Lester in memory of Beverly Stanton for all the work she did there and people she helped. We teased her about "opening and closing down Lyme Chat" on a daily basis. Dr. Lester, (Harvard, Mgh), organized and attended a 2 day memorial service via the internet for family and friends. Bev's sister Trish was there to meet Bev's "internet Lyme family" for the first time. This was the first internet funeral I had ever been asked to attend, and as anyone would hope, the last. I even dressed for it. Once logged in, I couldn't seem to leave. I suppose it was the fist time the internet became virtual reality for me.

PSpatches who authors Lyme Matters newsletter and Pat's Tips & Tricks (for internet help), built a memorial site in Bev's honor a year ago. Even to this day it is open for those who want to stop by, to visit or read remarks left by others. Some are about Beverly and others, some are about the daily struggles we all feel from time to time. Some are in frustration, pain or alienation that this disease can bring. I visited today and that is why I am writing.

You are invited, when you get a chance, to stop and visit for a minute at the memorial site of Beverly Stanton, Lyme victim, age 53. Read some entries and remember how blessed we are to be a part of a group of people who I know to be loving, compassionate and with an attitude of gratitude. I have no doubt it will renew your spirit. Share in the guest book if you choose to.

I suppose this seems a strange message today being Valentine's Day, the "day of love." But love, support and encouragement is what life is about when all else seems to have been taken away. It has kept me willing to persevere beyond all obstacles placed in front of me thus far. I know sometimes we want to give up; remembering how Beverly touched the lives of many challenges me to remain busy and available, positive and strong.

Thank You,
Brite

Beverly

http://lymebev.homestead.com/bevlyme.html


Lyme Awareness, Inc.
P O Box 20107
Bowling Green, KY 42102-6107




By CCCooks@aol.com


German Chocolate Chip Cake


This is a great cake for any occasion.
And it is so easy to make and everyone will be sweet on you for making it!
You do need a bundt pan to make it.
It is also great to serve just a little bit warm with vanilla ice cream
:) :) Enjoy

Preheat oven to 325*

1 Duncan Hines Yellow Cake Mix 4 eggs
I pkg. Vanilla pudding (instant) 1/2 cup oil
1/2 cup water 1 Bag of chocolate chips
1 German chocolate bar for baking.

Mix cake mix, pudding, oil, water & eggs. Fold in bag of chips and shave the German chocolate into the batter. Pour into bundt pan.
Bake for 1 hour and 15 minutes at 325*.
I like to dust the chips with a little bit of the dry cake mix so they don't sink to the bottom. This cake taste like the best chocolate chip cookie you have ever had.....:):)



If anyone wants to share a recipe to put in the column please do!
Click here.
Recipe





Submitted by: joebur@jersey.net


Please note, we will continue to have our Lyme Talk using FireTalk software.
Visit our site for details.
Lyme Disease Audio Netwk

http://www.lymediseaseaudio.com


OUR REGULAR SCHEDULE:
**** Lyme Talk, Wednesdays
8 PM Eastern, 7 PM Central, 6 PM Mountain, 5 PM Pacific
and
**** Lyme Talk, Saturdays
8 PM Eastern, 7 PM Central, 6 PM Mountain, 5 PM Pacific


*******************


Dr. Shoemaker's New Book On Lyme Disease



THE BOOK THAT GIVES YOU THE WHOLE STORY


·
HOW DOES LYME DISEASE CREATE NEUROTOXINS?
· HOW DOES CHOLESTYRAMINE REMOVE NEUROTOXINS?
· WHAT IS THE VISUAL CONTRAST TEST.. HOW DOES IT WORK?
· ACTOS IS NEW- IS IT SAFE.. WHAT DOES IT DO.. WILL IT HELP YOU?
· RELATED DISEASES- CHRONIC FATIGUE, AND MANY MORE
· WHY FIBROMYALGIA IS NOT A DIAGNOSIS

THE BOOK IS DESPERATION MEDICINE, WRITTEN BY DR. RITCHIE SHOEMAKER MD.
IT INCLUDES AN EXPLANATION OF THE MEDICAL SCIENCE, THE SOCIAL IMPACT
OF LD, THE DIFFICULTIES WITH THE MEDICAL PROFESSION, LACK OF
UNDERSTANDING BY THE INSURERS, AND PROBLEMS WITH GOVERNMENT.

PRESENTS CASE HISTORIES WHEREIN THE USE OF CHOLESTYRAMINE HAS RESULTED
IN DRAMATIC IMPROVEMENTS FOR LD AS WELL AS SICK BUILDING SYNDROME,
CHRONIC FATIGUE, AND A NUMBER OF OTHER RELATED NEUROTOXIN ILLNESSES.

READING THIS BOOK REQUIRES SOME UNDERSTANDING OF LYME DISEASE,.
(MOST LD VICTIMS HAVE THIS, OFTEN MORE THAN SOME OF THE DOCTORS
THEY CONSULT!). COVERED ARE THE HISTORY OF THE CHOLESTYRAMINE
USE, EARLY TEST PANELS, CURRENT ACCEPTANCE, COMBINATION WITH ACTOS,
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THE AUTHOR, WHO HIMSELF HAS HAD SEVERAL BOUTS OF LD, HAS PRESENTED
TECHNICAL PAPERS TO VARIOUS SCIENTIFIC SOCIETIES, AND WILL BE DISCUSSING
NEUROTOXINS AT THE UPCOMING ILADS CONFERENCE THAT SHOULD RESULT IN
FURTHER UNDERSTANDING OF THE TREATMENTS.
THE AUTHOR, RECENTLY AWARDED "MARYLAND'S FAMILY DOCTOR OF THE YEAR,"
IS IN PRACTICE IN MD.

COPIES OF THE NEW BOOK ARE AVAILABLE FOR $14.95 + $5.95 FOR SHIPPING AND
CAN BE OBTAINED AS FOLLOWS:

ON LINE, AT www.chronicneurotoxins.com
BY PHONE 410 957 1550
BY MAIL Dr. R. C. Shoemaker MD
1604 Market St., Pocomoke City, MD

Make check for $20.90 payable to "Desperation Medicine"



~~~~~~~~~~~~


Chat for Kids with Lyme
(All welcome)
Carla, LadyLymeChatter, is hosting a chat for kids
of all ages and parents too.
The chats are held on Monday evenings at 6:30 PM Eastern.
The chats are well supervised and are held in a private room.
Private Room Lyme Disease

Or Keyword: aol://2719:2-2-Lyme%20Disease
To join Carla's email reminder list, click below.

Kids Lyme Chat

LadyLymeChatter@aol.com



Lyme Chatters Reminder
The Daytime Chat is scheduled for
Wednesday, February 21st
Join us!

....at....
3:00 PM Est.
2:00 PM Central
12:00 PM Pacific
Click here to enter the room >> Private Room Lyme Disease

Hope to Ö¿Ö
you!


~~~~~~~~~~~~

Birthday Club!




If you'd like your upcoming birthday announced, let us know.
You don't have to tell us your age! LOL
My Birthday is



~~~~~~~~~~~~~~


Submitted by: joebur@jersey.net

A Lyme Disease Seminar is going to be held on March 14th from 7:30 - 9:30 pm at the Garnet Valley High School located at 552 Smith Bridge Road, Glen Mills, Pennsylvania 19342.

The featured speaker will be Dr. Anthony Lionetti.

For details on this exciting event, please call Tony DiLeva at
(610) 656-2543.


~~~~~~~~~~~~~



Submitted by: ellenlu@webtv.net

As many of you know, NYS has become the primary battleground for Lyme
patients in their fight for appropriate medical care.   The Office of
Professional Medical Conduct [OPMC] of the NYS Department of Health, by
prosecuting two of our most important Lyme doctors - Dr. Burrascano and
Dr. Horowitz,  could  create an atmosphere in which it will be
impossible for Lyme patients throughout the country to get effective
medical care.

MARCH 27th, LOBBY DAY IN ALBANY - FAIM and  many NYS Lyme disease
activists are organizing a day for New Yorkers to meet with legislators
and the press to call for:
1) an investigation by the legislature of the OPMC's bias against
physicians who are willing to treat Lyme disease patients aggressively.
2) a change in the laws governing the workings of the OPMC which
would insure due process for all physicians charged in the future.

WE URGE ALL NEW YORKERS TO ATTEND.    The activities on that day for
New Yorkers will be two fold:
1) FAIM has arranged for a room in the legislative office building for
legislators, legislative aides, media and a small group of Lyme patients and
friends
and family  to attend a teach-in about Lyme disease.
2) Monica Miller will be making appointments for the other Lyme patients
and friends and family to meet with state legislators in their Albany
offices to urge both the investigation of OPMC bias and OPMC reform.

THE FIRST STEP is for all who plan to attend to contact:
Joan Green at JGreen1471@aol.com

A head count will better enable us to make plans for transportation
(probably best to charter a bus).  Also, we can then arrange for a
time when Monica Miller and Lyme patients experienced in lobbying can
meet with any of  us interested in preparation for how to deal with
the legislators.

Since this is a day to lobby the New York State legislature, this
specific item is only for New York State residents. I know that all New
Yorkers for whom it is physically possible to get there will be there.
Please don't forget to enlist friends and family. We promised we would
not go away!!!!
Thanks,
Ellen Lubarsky
Joan Green


Addendum


Hi folks,
Now that the main announcement of Lobby Day is out, I wanted to get to
you to answer some questions.

1) Lobby Day participation is limited to New Yorkers at the
recommendation of advisors in the state legislature. Lyme patients
across the country have been responsible for the successful letter
writing campaigns that have made the NYS legislators aware of the issue
of the harassment of LLMD's. The best advice we have now is that for
the New York State legislators to act they will need to see that this is
an issue that is important to their constituents.

I completely understand that this misses the fact that what happens in
NYS affects Lyme patients throughout the country. However, we have to
think strategically and follow the advice of those who are in a position
to know.

2) There will be some representation from other states in the form of a
very carefully organized silent vigil. We will want two people from
each state to be present near (but not in) the area where New Yorkers
are lobbying. There will be more information posted on this later.
Because of the limitation to two people from a state, many will still be
disappointed about not being able to participate directly. This
disappointment is very understandable, but it can't be helped because we
MUST do what will be effective politically.

3) At this moment, the most urgent help needed from people across the
country is to stay on the phone and or e/mail and fund raise for Dr. H's
Legal Defense Fund. Please do not wait for the big events like the
auction. Call or write to everyone you know and ask, as Jeannine
suggests, that they send you your birthday gift early in the form of a
contribution to the Legal Defense Fund. Please do not minimize the
importance of this. It is the most important work needed right now.

I debated whether to put this in this post or not, but here goes..... I
hope that we can become adept enough at fund raising that we not only
can raise enough for defense funds, but we can go on to hire a political
organizer and a publicist to keep the issue of LLMD harassment so much
before the public that we can win the fight once and for all. No
grassroots POLITICAL movement has ever really succeeded without the help
of a professional staff. Even if it was possible to do so, we are just
too damned sick to do it. I am racing with time to try to get the
above action points into motion because I know I do not have much
reserve to continue organizing. Limited energy is an issue with all our
Lyme activists.

I wish we had the funds now. We could call the Gay Men's Health Crisis
and ask them to recommend an experienced AIDS organizer/publicist who
could probably hit the ground running on the issue of LLMD harassment
with very little prep time needed.

So, my point is do not underestimate the importance/urgency of fund
raising. If we collect enough to insure that our doctors have
adequate representation (the most important thing by far), we could
then turn our attention to hiring the political organizers/publicists
we need so that we do not have to spend the rest of our lives on the
defensive in one battle after another.

Please make your checks out to the Horowitz Legal Defense Fund and mail
to:
Horowitz Defense Fund
c/o Monica Miller
PO Box 410
Kinderhook, NY 12106
Thanks,
Ellen




By

PSpatches@aol.com



Lyme Matters Ribbon
http://www.goodnet.com/~ee72478/enable/medication.htm
Right click on the ribbon to save it.


The following links are sites to apply for medication
assistance.

Accessing Free Medication - The Patient's Advocate

http://www.themedicineprogram.com/



Free and Low Cost Prescription Drugs

http://www.institute-dc.org/prescrip.htm

NeedyMeds.com: The Place to Learn About Pharmaceutical Manufacturer's Dr

http://www.needymeds.com/

MHCR - Medication Assistance Programs

http://www.mhcr.com/medicin.html

Assistance at The Medicine Program "Free Prescription Medicine Is Availa

http://www.themedicineprogram.com/info.html

Medicine Program - Medication Information Form

http://www.themedicineprogram.com/form.html

U.S.MEDICATION ACCESS PROGRMS

http://www.goodnet.com/~ee72478/enable/medication.htm


<( : ) More Links ( : )>

Soy alert! Thanks Joe!
Weston A. Price Foundation

http://www.westonaprice.org/soy_alert.htm


The Trail Where They Cried
http://freehomepages.com/slklceskn6/tears3.html

The Father's Love Letter

http://www.fathersloveletter.com/fllpreviewlarge.html

Morning Symphony

http://www.ishaah.com/Symphony.htm

Guinness World Records - Home

http://www.guinnessworldrecords.com/home.asp


This is the cutest! Thanks Carla!
The Internet's Cutest Kids!

http://www.funnygreetings.com/cutekids.htm









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The information provided in this newsletter, accompanying articles, and links to other related Web sites is provided as a courtesy to our readers, and all material is intended for information, communication, and education purposes only, and is in no manner an endorsement, recommendation or approval of anyone, any product, or treatments in issues of "Lyme Matters." The information presented is not to be considered complete, nor does it contain all medical information that may be relevant, and therefore, is not intended as a substitute for seeking medical treatment and appropriate care. Please consult your doctor or medical advisor before making any treatment changes.






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Comments

The Lyme Quilt Page
!Award Winner!


This announcement is an ongoing project and will always be on
this newsletter for the newcomers.

Lyme Quilt Page

Read the stories here to get an idea of how to compose your own.
Click here to submit a story. If you have questions click the link also.
Jim will be happy to help you.

Submit YOUR Story



Life with a Twist of Lyme
My Home Page
http://angelfire.com/ny/lymedisease/index.html


Jim's Lyme Disease LINKS Page

https://www.angelfire.com/ny2/lymedout/index.html

Lots of info on Lyme

Regards,
Your friends & hosts,

Pat & Jim


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