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May 2000 Volume 1 Issue 1

Editors: PSpatches, Lymechat, Borrelia s
Graphics: Kneely1010
Assistants: Peggyindenver, LutzDM

Welcome to the first issue of Lyme Matters!

This newsletter will serve two purposes: To provide timely and accurate information regarding Lyme Disease and Lyme related issues, and to serve as a means by which members of the Lyme community can voice their opinions and concerns.

This is the monthly issue. You will receive weekly updates. If you choose not to receive them, there will be a link to unsubscribe on the first issue.

We welcome your comments and we'll do our best to accommodate any suggestions that you may have.

* A personal note of thanks to Carla (CCCooks) for coming up with the name for this newsletter, and to our subscribers for choosing it.


Please note that none of the articles contained within Lyme Matters are the opinions of America On Line, the editors or assistants.

Subscribe to Lyme Matters


Email: PSpatches,


No risk too great
No risk too small
We will take
No risk at all
And, if you have cancer
We must be judgmental
That drug you must have
Is experimental.

Be it thyroid or liver
Or enlarging cyst
We'll write a clause
That is does preexist.
If you protest
Please be good sport
If you hope to collect
You must take us to Court.

We'll search and we'll search
Till we can't search no more
Until we can prove
That you've had it before
So if you get sick
You must rest assured
If I am in charge
You won't be insured.

If you work as a chef
That's a risk we can't take
We all know the danger
Of baking a cake.
But suddenly there is a breeze
A plan endorsed by Harry and Louise
The best of coverage you will know
We'll put you in an HMO.

If you drive a truck
Cut hair or tend bar
To find health insurance
You'll have to go far.
But one small benefit you'll lose
Of course that is the right to choose
That is a tiny price to pay
Your boss, he does it anyway.

Forget any job
Where a worker's been ill
The premiums you'll swallow
Are too big a pill.
One minor clause you may have missed
You cannot see a specialist
Unless of course you'd like to pay
An appointment you can't get today.

Woe be unto you
If you change your employ
A loss of insurance
Will bring you no joy.
We've told the politicians how
To cut the deficit right now
We'll train your doctors how to say
The test you don't need anyway.

If you have asthma
Glaucoma or gout
We'll write up a clause
That will keep you out.
We'll keep you from the surgeon's blade
Our insurance partners we must aid
From the folks who own a piece of the rock
Those fancy new tests we knock.

And if you need an M.R.I.
For that bad pain behind your eye
That is a zone that's still quite gray
So for that test we will not pay.
Now please don't call it rationing
Just because we're profiting
What's good for us, I know you'll say
That must be good for the U.S.A.

One liner! LOL

Psychiatrist to his nurse: "Just say we're very busy. Don't keep saying 'It's a madhouse."


178 Omer Holmes Road
Eva, AL 35621-7300


Some time in the 1980s in Alabama, I was bitten in the back of my head by a tick -- not a little deer tick but a large tick. A week later, I experienced the flu symptoms with the pounding headache so I went to the doctor. He put me on antibiotics for 10 days in case I had Rocky Mountain Spotted Fever.

In 1992, after having an infection of one kind or another each month for a year, I was in a doctor's office in New York and told him my symptoms. He said, "I think you have Lyme Disease" and gave me the name of a well-known Lyme Disease specialist. The first doctor ordered a Lyme test. I went to this specialist who only talked to me and said I didn't have Lyme Disease.

I tried to ask him questions about my symptoms and he repeated that I didn't have Lyme Disease. While still in NY State, I thank my lucky stars that I also went to a chiropractor who had Lyme Disease. I told him what had happened. He was pretty sure I had Lyme Disease and sent me to his doctor.

At this point, I believe I had two negative LD results. This doctor started treatment of two Zithromax and two Suprax a day based on my symptoms. He told me that if it was Lyme Disease, I would feel worse about two weeks into the treatment. Sure enough, I felt worse. Then I got better. I had to be completely symptom free for one month before I could go off the antibiotics. Well, I did all this.

In 6 to 9 months, my symptoms would come back. I would go back on the Zithromax and Suprax and repeat the cycle. This continued until 1995 when I was supposed to have 12 weeks of 1.2 million units of Penicillin shots each week. I got 5 weeks into the treatment and had a reaction so I finished the seven weeks with Zithromax and Suprax. I felt pretty good until 1997 when the symptoms slowly came back.

By the spring of 1998, I knew it was back full force. I started with an infection each month and was treated for the infection. My joints and muscles ached and the pain in my head on the left side was excruciating. My head hurt so bad that I couldn't think.

My local doctor sent me to an infectious disease doctor in September 1998. He tested me for Lyme Disease and it was negative. He told me he was sure I didn't have Babesiosis and didn't need to treat me for it. Then he dismissed me. I was very sick at this point and finally, my local doctor saw me and treated me for another infection.

In November 1998, I was back in NY and made an appointment with my Lyme Disease doctor. By this time, there were new tests and he ordered 5 tests to be sent to a California lab. Their results were that I have B. burgdorferi, Lepto-spiral spirochetes and Babesia. They put me on different antibiotics which caused a bad herxheimer. At this point, I had at least five negative Lyme tests.
Because I couldn't find a local doctor to work with the doctor in New York, I found a doctor who was 700 miles away who also has Lyme Disease.

I have seen him once a month for the last year. Yes, I have been on antibiotics for this past year and I can say I finally feel well. I don't know if it's even possible to be cured but I am so grateful for the help I have gotten. I have also seen a homeopathic doctor and have taken vitamin and mineral supplements this past year. Below were my symptoms. These came back each time I went off the antibiotics.

Swollen glands
Dark circles under eyes
Lost use of right hand in 1992
Muscles and joints ache -- pain moves around body
Big toe hurt like gout
Pain in left side of head at a 90 degree angle from the top of my head
straight in from my ear
Warm areas that moved around my body
Extreme tiredness
Memory loss (short term)
Handwriting changed
Lost my ability to spell
Unable to think or move
Pains on the skin that moved around
Different areas on my skin that hurt to be touched
Left eye feels like it is watering when it's not
Both hands turn inward involuntarily. When I realize they are turned, I straighten them out.

With antibiotic treatment, my Mitral Valve Prolapse, Dysautonomia and Hypoglycemia are better. All of these symptoms have gone away with antibiotic treatment.


Hello everyone! I hope that you are enjoying the warmer weather and looking forward to a beautiful spring. This month we'll be discussing the different types of essential fatty acids (EFA's) which are needed by the body.

In addition, the Herb Corner will be covering the following herbs: chaparral, carrot, slippery elm bark and celery. As always, if you have any questions regarding any of the information contained within this column, please feel free to e-mail me.

Natural Food Supplements

Essential Fatty Acids (EFA's)
EFA's (also referred to as vitamin F) are essential to the body. Essential means that they are not manufactured by the body, and thus, must be obtained through the diet. EFA's provide many important functions in the body including helping to lower both triglyceride and cholesterol levels.

Moreover, EFA's also aid in lowering blood pressure, while helping to prevent the formation of blood clots. They are also useful in treating candidiasis and arthritis. These fatty acids are found in every cell in the human body, are needed for new cell production, and play an important role in the transmission of nerve impulses.

Not only are EFA's necessary for normal brain function, but they also have several other uses including keeping the hair and skin healthy. Hence, they are useful in treating skin conditions such as psoriasis and eczema.

EFA's can be broken down into two categories: omega-3's and omega 6's. Omega-3 EFA's consist of alpha-linolenic and eicosapentaenoic acid, both of which are found in the following: canola oil, flaxseed oil, fish oil, walnut oil, fresh deepwater fish, and some vegetable oils. Omega-6 EFA's consist of the following: linoleic and gamma-linolenic acids. These EFA's are found in the following: legumes, grape seed oil, sesame oil, borage oil, primrose oil, soybean oil, unsaturated vegetable oils, seeds and raw nuts.

It's important to note that heat not only destroys EFA's, but is also responsible for their conversion to free radicals, which have been associated with heart disease as well as cancer. Below, we will be discussing the following EFA's: fish oil, primrose oil, flaxseed oil and grape seed oil.

Fish Oil
An excellent source of omega-3 EFA's, fish oil, can be found in the following foods: sardines, herring, mackeral, and salmon. Each of these foods contains higher levels of omega-3 EFA's then many other types of fish.

While cod liver oil is the most frequently used fish oil, it should not be used as a sole source of omega-3's, as it would have to be consumed in very large amounts, risking an overdose of both vitamins A and D ( both of these vitamins are contained in cod liver oil).

*Caution -- While people suffering from diabetes should consume fish for its omega- 3 content, they should avoid using fish oil supplements because of their high fat content.

Primrose Oil
Primrose oil (also called evening primrose) plays an important role in preventing many different illnesses including high blood pressure, atherosclerosis, heart disease, pms and multiple sclerosis. Moreover, it has also been used to treat cirrhosis of the liver.

Primrose oil is the best food source of gamma-linolenic acid available, and has antiinflammatory properties which are most helpful in relieving the pain and inflammation associated with many illnesses.

Because it aids in the production of estrogen, primrose oil has also been used by women to ease the suffering associated with menopausal symptoms. This supplement is also useful in maintaining healthy skin, and functions as a "stress buster" by easing anxiety.

*Caution -- Women suffering from estrogen related breast cancer should consult with their doctors before using primrose oil, as it plays a role in the production of estrogen.

Flaxseed Oil
This EFA is derived from flaxseeds which are abundant in the B vitamins as well as the minerals magnesium, potassium and zinc. Moreover, flaxseeds are an excellent source of both fiber and protein. Among its many benefits, this supplement is also useful in lowering both triglyceride and blood cholesterol levels.

Flaxseed oil is helpful in relieving the pain and inflammation that are associated with both rheumatism and arthritis.

*Caution -- While there are no warnings regarding this supplement, people using it should be aware that they may have, or may develop an allergy to flaxseed oil. Should you develop a rash or experience any other odd symptoms while using this supplement, discontinue use of it immediately.

Grape Seed Oil
Grape seed oil has many benefits including being rich in linoleic acid. Also of importance is that this supplement is free of cholesterol, sodium and trans-fatty acids. One of the greatest benefits of grape seed oil is that unlike the oils mentioned, this one can be heated to nearly 500 degrees Fahrenheit, without producing free radicals.

This makes it the ideal oil to use when cooking. The best types of grape seed oil should be free of preservatives, and cold pressed.

*Caution -- While there are no warnings regarding this supplement, people using it should be aware that they may have, or may develop an allergy to grape seed oil. Should you develop a rash or experience any other odd symptoms while using this this supplement, discontinue use of it immediately.

The Herb Corner

Chaparral contains a substance known as nordihydroguaiaretic acid (NDGA), a powerful antioxidant, which is useful in preventing the formation of free radicals. Hence, there is some evidence that this herb may be helpful in slowing the aging process, and in preventing the growth of certain types of malignant tumors.

Chaparral is also useful in fighting parasitic infections, and is quite effective in treating urinary tract infections. It is an excellent antiinflammatory, which when used externally, helps to relieve the pain associated with illnesses such as rheumatism and arthritis.

Chaparral also functions as a natural diuretic, to rid the body of excess water. It can be used in either capsule or extract forms. Capsule: Use 1 capsule daily; Extract: Mix from 5 to 20 drops in water, up to 3 times a day.

*Caution -- Chaparral should not be taken internally for extended periods of time, as it may cause damage to the liver.

Carrots are one of the most abundant sources of carotene available. Carotene is a botanical (plant) form of vitamin A, which has numerous health benefits, including helping to lower one's risk for certain types of cancers.

Studies have also found that it may help to lower the high blood cholesterol levels associated with coronary artery disease. Carotene is useful in relieving heartburn and in aiding digestion. It can also be used to relieve diarrhea. It has always been associated with good eye health, because it permits the formation of a substance known as visual purple, which helps to not only strengthen the eyes, but also, allows for better night vision, by reducing night blindness.

Consuming carrot juice is an excellent way of obtaining your optimum daily allowance of carotene. There are a number of commercial preparations available, or if you have a juicer at home, you can simply make your own. Carrot soup can be made by boiling one pound of grated carrots in one cup of water, and then pouring it into a strainer. Of course, the simplest way of obtaining carotene is to munch on a carrot stick.

Please remember that carrots begin to lose their potency as soon as they are picked, so it is important to buy them as fresh as possible.

*Caution -- While there are no warnings regarding this herb, people using it should be aware that they may have, or may develop an allergy to carrot. Should you develop a rash or experience any other odd symptoms while using this herb, discontinue use of it immediately.

Slippery Elm Bark
Also known as red elm or moose elm, slippery elm bark is most helpful in relieving inflammation of the stomach, urinary tract, and bowels. Consequently, it can be useful in easing the pain associated with gastric ulcers.

This herb is also beneficial in treating flu and colds as well as the diarrhea which can accompany them. Because it contains tannins, it also helps aid the body's digestive process. Slippery elm bark lozenge preparations are available commercially. For relief, take from 1 to 3 lozenges daily.

*Caution -- While there are no warnings regarding this herb, people using it should be aware that they may have, or may develop an allergy to slippery elm bark. Should you develop a rash or experience any other odd symptoms while using this herb, discontinue use of it immediately.

This herb contains the vitamins A, C and B - complex, in addtion to the mineral iron. Celery seed extract and celery juice are wonderful natural diuretics which help to not only lower blood pressure, but also promote the flow of urine through the kidneys. This herb also functions as an antispasmodic, which helps to relax the body.

Moreover, it helps to expel gas and thus aids the body's digestive process, in addition to stimulating the appetite. Studies have shown that this herb may also be useful in relieving the joint pain associated with illnesses such as rheumatism.

Take 1 tablespoon of celery juice up to three times daily. Extract: Five to ten drops of celery oil can be mixed in an 8 ounce glass of water and taken twice a day.

*Caution -- Both celery oil and juice can be used to induce menstruation, so women should not use either of them during pregnancy.

***Caution should be taken when using herbal supplements. Many of these while harmless at their recommended dosages, can become dangerous when taken in larger amounts. In addition, some people may have or may develop allergies to an herb that has had no prior reputation for causing allergic reactions. If you feel that you need to increase your daily intake of a particular supplement, please speak with either your physician or someone who is knowledgeable with regard to pharmacognosy (the study of drugs derived from plants).

Until next month!
Jim : )

Please send me your Question

By PSpatches

I thought this appropriate for the first issue.
Why do we say?
In the "LimeLight"
Lighting was one of the chief problems of the early theater.
In the time of Shakespeare, all available devises were crude
and ineffective.
Actors, playwrights, and theatergoers were delighted when
Thomas Drummond devised a new source of light in 1816. A
cylinder of lime was heated to incandescence by a flame and
when placed behind a lens or in front of a reflector, the limelight
probed to be intensely bright.
The brightness made it ideal for use in making a star performer
more visible. As long as one remained in it, audience attention
was riveted.
Competition for a place in the "limelight" soon became intense.
Consequently, it came to label any conspicuous spot - whether
flooded by one of Drummond's lights or not.

By Borrelia, Stephen J. Nostrom R.N.,Founder/Director,Lyme Borrelia Out-Reach Foundation, circa 1987

"The Neuropsychiatric Aspects Of Lyme Borreliosis"
*** "Part one of two parts" ***

The following is based upon thirteen years working with patients with Lyme Borreliosis. At times I will share "my own personal" experiences as a patient. I will also share what other patients have shared with me, those whom I have interviewed, and worked with as a registered nurse, together with "personal notes" I kept on self in a large journal, and input from my wife of thirty years, also a Lyme patient and a "psychiatric nurse" who cared for me in this "Unfolding Drama" called Lyme Disease.

Any and all names used are made up! Please also keep in mind that it is impossible to cover all the bases in a short news letter, however, I can be reached via e-mail with any questions as with any issue I write about, and will assist as best as I am able to.

Since Lyme disease is a multisystemic illness that can affect the central nervous system (CNS), in many patients, a variety of neurological and psychiatric symptoms may be experienced by the patient.

This can and does often become frightening not only to the patient, but also to the extended family, spouse, etc. Why? Because,"changes" in the patients "Affect," translated: A person's emotional response, may indeed "change" from the norm. The patient may all of a sudden begin to cry or laugh for no apparent reason, or begin swearing and in some cases become violent or vulgar, when this was not the case prior to the onset of the disease.


A behavior whose goal is to harm or injure another person or thing including self.

A disorder which is characterized by a fear of being alone in a public place from which escape might be difficult is yet another. That is, the pt. may become home bound and not desire to leave a familiar place such as the home, where they feel safe, non-threatened.

This has to do with the "intensity" of sound or sounds. The Lyme Pt. may say, "why is everyone shouting," I have to get out of here! The gentle sound of rain on the roof, may be so "intensified," to the Lyme pt. that it is no longer a gentle, soothing sound, but a frightening, hurting to the ears sound.

A generalized feeling of fear and apprehension that may or not be connected to any particular event or object, often accompanied by physiological arousal, (heart beats faster, breathing increases, cold sweats, blood pressure changes, faintness, nausea, dizziness, loss of bladder, bowel control) etc....AKA, lets get out of this situation NOW!

"Attitude changes"
A change from the normal pattern of feelings, beliefs, and behaviors toward other people, ideas, or even objects. Ex: A close friend is now the enemy. The child and the teddy bear, ...the teddy is no longer comforting!

The process in which a person infers another's motives and intentions by observing his/her behavior. There may be changes. Ex: A good friend in no longer a friend, but the enemy.

"Behavioral changes"
In simplicity, a change from the normal of what the person was prior to the onset of the disease!

The light intensity of a room, the sun, glare, Ex. the head lights of an on coming car at dusk, or night, etc., AKA "Photophobia" abnormal sensitivity to light, by the eyes! Painful, upsetting, blinding to the patient

While this is a technique for problem solving, The Lyme Pt. may be so overwhelmed in solving a particular matter (often too many at one time, AKA "racing thoughts"), that he/she becomes "manic" and I will get into this when we come to the letter "M" as I am attempting to go in alphabetical order here, OK? Good! Be patient!

"Cognitive dissonance"
This is a state in which individuals feel uncomfortable because they hold two or more thoughts, attitudes, or behaviors that are inconsistent with one another. Ex:I will use self here, in all modesty, Steve you are a nice guy, one heck of a nurse, but I don't know if I like you or not, I'll be glad when you get the "out of here," I believe that I can trust you, but (begins to cry), I'm sorry, did I ever tell you about, etc., etc.

In simplicity, a classification of objects or ideas that distinguish them from others on the basis of some common feature. The L.D. patient may have trouble in this area. Ex: Steve I see you, I know that you are there, I hear you talking to me, I am watching you Steve, and I know why you are here, and (all of a sudden loose reality, orientation, alertness, the "idea" in their confusion.

This is a term used to measure the loss of memory as a result of the passage of time and /or disuse. In simplicity, Short Term Memory Loss! Ex: This is a heparin flush, we flush your picc line at the end of the infusion "always"! The patient may ask why over and over, while you have over and over shared why. I am using this as a simple example to those of us who are on or were on IV infusion!

"Defense Mechanism"
We all use it, as it is a way of reducing anxiety of distorting reality. To the Lyme Disease Patient it may become more pronounced, Ex: "I just had to put my husband in his place, after all, I know what the I am doing, I am in control, (But they may not be fully in control) and patience is the virtue here as in all of the above, together with understanding and since we are on the subject of "Defense Mechanisms", lets pause for a moment and look at what I have shared thus far.

The Lyme Patient is one who is "mis-understood" for the most part, as he/she looks so darn healthy in appearance! In retrospect, so does dementia in a person, until one attempts to strike up a conversation.

In any illness that befalls a loved one, fear and trembling is a part of the norm for all of us. As a believer, "Prayer" was an integral part of me as well as my wife and young son who both watched me from the closeness of their individual hearts and souls, turn into a literal "vegetable" before their eyes for months, to years. It was a long "UNFOLDING JOURNEY, DRAMA"!

In sharing but a mere "Piece" of the Neuropsychiatric presentations of Lyme Borreliosis, it is my desire as well as hope, that those of you reading this part of two, and most likely three or more parts, will begin to understand that this disease is truly an "Unfolding Drama"! Impossible to address all the many ramifications, but suffice to say this in my closure.

There is much more to share, to learn to discern! In unity there is strength! NONE Of us are alone! I wish you peace, Joy, great expectations, as I have been in your shoes, walked your steps, and will continue to for as long as I can assist; be assured of my prayers. I know only what I have seen, and thus share (and most important, pray for me, for I am one of you) Stephen, till next month!

Rules to Live By:

1. Anger is a condition in which the tongue works faster than the mind.
2. You can't change the past, but you can ruin the present by worrying over the future.
3. Love ......and you shall be loved.
4. God always gives His best to those who leave the choice with Him.
5. All people smile in the same language.
6. A hug is a great size fits all. It can be given for any occasion and it's easy to exchange.
7. Everyone needs to be loved...especially when they do not deserve it.
8. The real measure of a person's wealth is what she (or he) has invested in eternity.
9. Laughter is God's sunshine.
10. Everything has beauty but not everyone sees it.
11. It's important for parents to live the same things they teach.
12. If you fill your heart with regrets of yesterday and the worries of tomorrow, you have no today to be thankful for.
14. Happy memories never wear out....relive them as often as you want.
15. Home is the place where we grumble the most, but are often treated the best.
16. People look at outward appearance, but God looks within.
17. The choice you make today will usually affect tomorrow.
18. Take time to laugh for it is the music of the soul.
19. If anyone speaks badly of you, live so none will believe it.
20. Patience is the ability to idle your motor when you feel like stripping your gears.
21. Love is strengthened by working through conflicts together.
22. The best thing parents can do for their children is to love each other.
23. Harsh words break no bones but they do break hearts.
24. To get out of a difficulty, one usually must go through it.
25. We take for granted the things that we should be giving thanks for.
26. Love is the only thing that can be divided without being diminished.
27. Happiness is enhanced by others but does not depend upon others.
28. You are richer today if you have laughed, given or forgiven.
29. For every minute you are angry with someone, you lose 60 seconds of happiness that you can never get back.
30. Do what you can, for who you can, with what you have, and where you are.
31. The best gifts to give:
To your friend - loyalty; To your enemy - forgiveness; To your boss - service; To a child - a good example; To your parents - gratitude and devotion; To your mate - love and faithfulness; To all men and women - charity.
Unknown Author

That's All Folks!
May you have many Angel Hugs
throughout your day!

Reprinted with permission of PRNewswire

Prevent Pest Problems This Season; Pests In and Around Homes Cause Serious Health Problems

WASHINGTON, April 11 /PRNewswire/ -- Sometimes a fly swatter isn't enough. Creeping, crawling, stinging, buzzing, biting and growing their way into public awareness, pests are causing more health and safety problems than ever. Pesticides offer help for the problem with pests.

"Just as antibiotics protect humans from undesirable bacteria and germs, pesticides keep dangerous and damaging pests in check," says Allen James, executive director of RISE (Responsible Industry for a Sound Environment)(R).

RISE is an association of companies that produce and supply pesticides for general consumer use and professional application.

"We advocate the safe and responsible use of pesticide products," James adds.

Pests have recently received a lot of press. Last year mosquitoes caused major health problems in New York City and surrounding suburbs. In September, officials traced an encephalitis outbreak to a mosquito-borne virus never before seen in the Western Hemisphere. Seven people died and 52 others fell ill. Mosquitoes were also the culprits for malaria that struck two boy scouts at a camp on Long Island.

Other pests pose risks to humans as well. A record 18,000 cases of tick-borne Lyme disease were reported in 1998. Fire ants, which can be fatal, sting 60,000 Americans annually. Rats bite more than 45,000 people each year and spread diseases such as Hantavirus, typhus and food poisoning. Cockroach droppings are responsible for asthma, dysentery and digestive track disorders. Children are often the prime victims of pests due to kids' curious nature, smaller size, and still-developing immune systems.

"Pesticides are extremely important in protecting public health. Without pesticides, we would be in a difficult position," said Jerome Goddard, Ph.D., a medical entomologist with the Mississippi Department of Health and professor at The University of Mississippi Medical School.

With the proper use of pesticides, the public is well protected.

"Pesticide products that rid homes, schools, parks and workplaces of unwanted insects, plant diseases and weeds, are extensively tested for health, safety and consumer benefits as are antibiotics and other pharmaceuticals," said James.

Pesticide testing and development takes eight to 10 years per product at a manufacturer's cost of $35 million to $50 million or more. Only one in 20,000 products makes it to the marketplace. Prospective pesticides are tested for harmful effects to adults, children, the unborn, and the environment.

"Consumers do not need to fear being around pesticides when products are being used according to the label," said Goddard.

The only ones that need to worry are the pests.

Source: PRNewswire

Different Opinions On Lyme



Dr. Henry Feder Jr., the University of Connecticut Health Center in Farmington wrote an article for the April 4th issue of Pediatrics outlining two different opinions on how to treat Lyme disease.

He describes a public hearing held in Connecticut in February 1999 concerning a bill the state legislature was considering. The bill would require Connecticut health insurance companies to pay for at least 30 days of IV therapy for children and adults with presumed Lyme disease.

Dr. Feder reported one side of the debate involved community based doctors who believe Lyme disease can be diagnosed without objective findings and without positive serology. Two adult patients with chronic Lyme disease also spoke.

The other side included Dr. Feder and other academic based doctors who feel that most Lyme disease symptoms resolve after initial treatment. He went on to say that until results of an ongoing study are known, IV therapy for patients with chronic disease cannot be recommended. Dr. Feder did acknowledge that traditional medicine has failed chronic Lyme disease patients. He felt the patients who spoke were sincere in their testimony and their belief that their symptoms improved with IV antibiotic therapy. However, he added that until prospective, blinded, controlled studies are completed, prolonged IV antibiotic therapy should not be used.

Nevertheless, the bill mandating insurance coverage of long-term IV antibiotic therapy passed the Connecticut legislature in June 1999. The bill states that objective findings and/or positive Borrelia burgdorferi serology are not required.

Infection With Lyme Disease Spirochete May Linger in Antibiotic-Treated Dogs

WESTPORT, Apr 20 (Reuters Health) - Although experimentally infected dogs showed no viable Borrelia burgdorferi spirochetes more than 360 days after antibiotic treatment, analysis by polymerase chain reaction (PCR) revealed evidence of the organism in single tissue samples, according to findings published in the March issue of the Journal of Infectious Diseases.

Dr. Reinhard K. Straubinger, of Cornell University, Ithaca, New York, and colleagues infected 16 pathogen-free beagles with B. burgdorferi. Starting 120 days after tick exposure, three groups of four dogs were treated with azithromycin, ceftriaxone or doxycycline. The fourth group of four dogs received no treatment and acted as controls.

All dogs became infected and 11 developed acute arthritis 50 to 120 days after exposure. These episodes lasted 3 to 6 days and resolved without treatment. After day 120, one of the treated dogs showed brief episodes of lameness, as did two of the controls.

At 420 days after exposure, two dogs from each group were given oral prednisone for 14 days to determine whether clinical disease could be reactivated even after antibiotic therapy. All treated dogs remained free of clinical disease, while both dogs from the control group developed pain and joint swelling.

Both animals recovered without medical treatment within 7 days. They had high titers of B. burgdorferi–specific antibodies that did not change in response to corticosteroid administration.

At necropsy, single tissues from the antibiotic-treated dogs and multiple tissues from all control animals were positive for B. burgdorferi by PCR.

The researchers, who note that viable spirochetes were not recovered from antibiotic-treated animals, call for further research to determine whether the PCR findings "indicate an ongoing persistent infection in these animals or only the presence of DNA remnants of dead Borrelia."

J Infect Dis 2000;181:1069-1081.


Here is a perfect dessert recipe my grandmother would make for all the holidays! Now I do. I am sure it will become a favorite in your house too!

My Nana's Pie
I call it "Carla's Canoli Pie"

Preheat oven to 350*
1 cup sugar
4 oz. of softened cream cheese
1 lb. Ricotta cheese
2 slightly beaten eggs
1 Tsp. vanilla
1/4 pint (4 oz.) heavy cream
1 Tbls. cornstarch
1/4 cup marachinco cherries (chopped)

Beat sugar with cream cheese and ricotta cheese blend well.
Add beaten eggs and vanilla.
Whip the cream lightly and add the cornstarch.
Fold with the rest of the ingredients.
Pour into ready made 9 inch pie crust.
Sprinkle maraschino cherries on top.
Bake about 45 to 50 minutes until golden.
When cool, sprinkle with confectioners sugar.
Hope you have a great Easter!
If anyone wants to share a recipe to put in the column please do!
Click here.

Interesting Article Available

When a vaccine became available that would eradicate polio, a panicked government rushed it to the public. But did it act too quickly? Early batches of the vaccine were contaminated with a monkey virus that now may be linked to cancer. And New York is one of the areas most at risk.

There is a (quite long) article available if you are interested
in getting an emailed copy email
or click here

Contaminated Vaccines

Wish not so much to live long, as to live well. -- Benjamin Franklin, Poor Richard's Almanack

From Lacey9192

Foundation for the Advancement of Innovative Medicine (FAIM)

The May 2000 issue of "Innovation" has outdone itself with issues regarding Lyme disease. If you are not a member, join! and get your copy. Non-members can call (Toll free) (877) 634-3246 to receive a copy for $3.00 from FAIM. Ask for the Spring 2000 issue of "Innovation." Great article, "The Lyme Tick. Lyme disease patients have two fights on their hands." Monica's column is wonderful! To join, go to:

Twice An Angel

To patients, family members, and friends of Lyme Disease. I wanted to send word to all of you that we have just recently finished a book about my daughter and her struggles with Lyme Disease. The name of this book is "Twice an Angel: Living and Dying with Lyme Disease," the Jenny Umphress story. This book was extremely difficult to do, but it was my daughter's desire.

She wanted some good to come from a bad situation. Her goal was to try to help other Lyme patients from going through what she experienced. Hopefully it helps to educate the medical profession, family, and friends of those suffering with this terrible disease.

This is a terrible disease! Jenny always said, "It's bad enough to have this disease, but to have to prove it all the time is even worse." If you are interested in this book, please let me know.

Send orders to: "Twice an Angel" 112 S. Johnson Street, Ada, Ohio 45810. Check or money orders should be made out to: Good Earth Publishers. For Ohioans, the total cost including bookrate shipping is $15.73, or $16.93 priority mail (includes 6% OH tax). Outside Ohio, the total cost including bookrate shipping is $14.95 or $16.16 priority mail.

Bulk orders will be accepted from Lyme disease support groups, churches, bookstores, etc. E-mail for inquires on bulk costs. Books will be signed upon request. Thank you so much. Susan Umphress 419-634-6596

Review of the Book by Marta

I just wanted to let all know, I ordered this book priority mail and received it in two days. It was wonderful and I highly recommend it to everyone who has LD. You will identify strongly with the problems Jenny and her Mom had in finding good doctors, and the horrible experiences she had with some.

One doctor slapped her across the face telling her to grow up. One heartless OR doctor responded to a nurse who asked "Why are you getting this portacath surgery?" by saying "Don't you know, she has Lyme disease, that's fatal....HA HA HA!" Yes, in Jenny's case, Lyme disease was fatal, but she faced each obstacle with faith in God and always tried to live with her disease, just wanting to be a normal teenager.

Jenny's Mom, Sue is an inspiration, she fought for her daughter at every turn and if awards are ever given out for caregivers, she should win top prize. I cannot find the words to express how touched I was by this book. Please buy it and judge for yourself.

Marta McCoy aka

SKB Vaccine Suit

For anyone interested who have had the Lyme vaccine, or
knows someone who has, please
contact Stephen Sheller, Esq. of Sheller, Ludwig & Badey in Philadelphia

Sheller Ludwig & Badey, P.C.
Click on the Search button,
Type in Lyme disease vaccine.

New Hope Lyme Support Group of Quarryville, Pa

Meets every 1st and 3rd Monday of each month
The New Hope Office
215 West 4th St. suite 107
Quarryville, Pa. 17566
This is a discussion group for persons suffering from Lyme Disease or persons who want to know more about the disease. The support group is open to both men and women. To register call New Hope Community Life Ministry at (717) 786-2802. Please leave you phone number and number attending. There is a $5 per person registration fee payable at the first session. Financial support is available.
Or contact Nadine on line at

Lyme Ribbons

I am making ribbons for the rally in CT. and am willing to make them for NY until we have someone register for that state. Each ribbon is to represent a person suffering with Lyme disease.

The adult ribbons are to be Lime green and 3" wide 18-24" long. With that persons name in the center, state to the left of the first name, and how long they have had Lyme to the right. Anyone who needs a ribbon can email me at Sherylladybug

Note: Sheryl will add your name, state and duration of having Lyme to a ribbon for all who email her. Send your real name, state and duration to Sheryl assures anonymity will be respected.

May is Lyme Disease Awareness Month

*Decorate for Lyme Awareness Month*
The LDF and other support groups across the country
are encouraging the following.

Tie lime green ribbons on your trees, house posts,
mailboxes, car antennas!
You can get the ribbon at any craft store by the roll
or by the yard.


I will no longer be putting in a tips & tricks column as I have started
a separate newsletter for that. I originally started it to cut down
on phone calls from family and friends asking, how do I?
It worked! Don't call me! Subscribe!
If you liked my tips before, you will love the newsletter.
To subscribe click here.

Subscribe to Pat's Tips & Tricks

Gettysburg Times - Local Headline News
Recent Gettysburg rally

Bowen Research for Lyme disease
New test for Lyme

Voice Your Opinion On The Lyme Vaccine

WebMD - Find A Pysician

Treating Lyme Disease

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Nature's Wonders

Rules for being Human

Happy Keester!
A MUST see!!! Get ready to LOL

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