All summer feeling tired and more so until I just couldn't stand up one day, fell down -- did not pass out, just couldn't move my muscles. From there to the hospital for two weeks and on major rocephin. I have a different doctor and different hospital this year and they think I need 4-5 weeks of this stuff. My MRI showed spots (Lyme) and I've had several neurologic things happening, but finally this week they've abated and I feel better.
I've had a lot of trouble finding words, and sometimes in the beginning couldn't process what someone was saying, or what I was looking at. I would also wake up with violent shakes in my head or body parts and couldn't stop my hands shaking, for instance. Very tired, dizzy, racing heart and just about everything everyone else says everyone gets etc. I was told this could come back any time the rest of my life and I've also been told it can be totally cured.
Also, before they came to the conclusion that it had to be Lyme, I also got a lot of skeptical treatment from some hospital personnel. Because my heart monitor and echocardiogram came back normal etc. A little bit of mixed messages. So, I'll just wait and see. And,I'm grateful for the rocephin.
For over a year now I've been declared Lyme free. I went back to work last year after 4 months off and after 5 weeks of Rocephin. It took me all year to regain my normal level of organization at home (2-3 months to get it together at work).
But, I've gone from taking an hour to count out my pills 3 times a day, to zipping around with my usual old speed and energy. I feel so alive and so LUCKY. I hope indeed it's gone. As I write this update (1/8/01) my very conscientious doctor is waiting for another titer test just to be sure. (I still get Lymey shakes when I sleep if I've been overtired--or after I've been flying in an airplane. I still don't get the full benefit after exercise.)
The Lyme Disease Quilt Page
Please click on the mailbox to send me your comments
Lyme Quilt main page
Lyme Disease related links
Copyright ©1998-2001 The Lyme Disease Quilt Page