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Trish's Story

Hi, my name is Trish. I have chronic Lyme disease; I was finally diagnosed about two years ago. I got sick about seven years ago with the flu, or so I thought. When my symptoms wouldn't go away and I kept getting sicker, I went to the doctor to find out why I wasn't getting any better. The doctor ran all kinds of tests but they always came back negative -- we were all stumped. The doctor sent me to other doctors and even to specialists to run other tests, but still they couldn't find out what was making me so sick.

Over the course of about five years of this going to doctors and specialists, and tests after tests, and hospital visits, I started to give up. The doctors told me that I was suffering from depression, chronic fatigue, and fibro myalgia. So they prescribed tranquilizers, and muscle relaxers, and told me that I should go see a psychologist for my depression. They told me that my symptoms were all in my head, and that in my state of mind I was making myself sick. Well, needless to say, I never went back to those doctors. Finally after those five years and countless doctors and specialists, I was able to find a doctor who knew immediately what was wrong with me.

This doctor ran the tests for Lyme disease and sure enough, they came back positive. So now here I am with this diagnosis of chronic Lyme disease, and it only took five years and countless doctors and tests. But it only took one doctor who knew about Lyme to figure it out. Unfortunetly, because it took so long to be diagnosed, I now am suffering from severe migraines, dizziness, short term memory loss, and severe fatigue. I'm always tired but I can't sleep. I also suffer from severe nausea, weakness in my arms and legs, bone pain, and muscle and joint pain. I'm always freezing. I have heart problems, and the list goes on.

I just keep wishing that if only they had found out years ago, then I wouldn't be in the shape I'm in. I would still have a life, but now I don't, and I don't know if I ever will again. The doctor can't even give me the treatments that I need because my insurance company won't cover it. So now even though I was finally diagnosed two years ago I'm still not on medication for it. I can only hope that either the doctor can come up with an alternative, or that my insurance company some how decides to listen to the doctor, and gives me my medication.

I don't know what else to do or say at this point except, please don't let this happen to you. Don't take your doctor's word; not if you know in your heart that you're sick. You are your best judge, so listen to what your heart and mind are telling you. Don't take no for an answer, and keep fighting until you find that one doctor who will listen to you. Thank you for letting me tell my story. I just hope that more doctors start to listen to us, and do something about this disease, before it's too late.


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