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February 3 2000 update
February 3 2000
Hi;
I went to see Josh Tuesday, and found the nurses putting him in his wheelchair. I took him out into the corridor and the charge nurse told me that they were going to "plug" Josh's tracheotomy for about an hour and see how he would do breathing through his nose and mouth. He did great!! His oxygen level stayed up where it should be. I overheard the charge nurse talking to one of the other nurses and she said she thought that they could leave the "plug" in for 8 hours. The Dr. will be in today for the meeting, and he is the one to OK doing that. I will be asking him what he thinks.

The physical therapist came by and we rolled Josh up to the gym for his therapy. Steve, the therapist, gave Josh 3 different balls 1 at a time to hold. He gave Josh a small football first, and Josh just let it fall through his legs. The same thing happened when he was given a large "nurf" ball. The last ball Josh was given was a basketball, and he must have recognized the texture, because he held his hand on it in his lap for the remainder of my stay. (About 2 hours.)

Josh was forever playing basketball before the accident. Nights, days, and in the snow and cold wind he was out there with whoever he could round up, or by himself. So him holding onto the basketball made me feel good.

One other thing that made my day. Steve, (the therapist) told me that the day before he had asked Josh to say something while he (Steve) covered the tracheotomy hole with his finger. Josh did make a sound. So while Josh had the plug in I asked him to say "Hi Dad" and he made a sound for me too. He cannot speak words because the tracheotomy tube is between his vocal cords, but apparently there is enough room for Josh to force a little air past them and make a sound. The really big thing was that he seemed to do it when asked to. Josh wouldn't repeat it for Steve or for me, but it sure did sound great to hear a sound after over a month of nothing but that machine breathing for him.

We have a meeting today at 2:00 with the doctor, the nurses, and the therapists who comprise the Team that takes care of Josh. They are going to tell us what they expect Josh to do in the future and what they will be doing to Josh to achieve those goals. This is going to be a hard meeting to get through, I think...