Having undergone every kind of
test they had, I was diagnosed with PARANEOPLASTIC
We came home not knowing much more than when we went there,
and my new family Dr.who admitted he knew nothing about this, sent me
to Cox Hospital in Springfield for
evaluation and therapy. A neurologist there told me I
had damaged spinal cord cells.
He also ordered PLASMAPHERISIS, which is a process where
the plasma is removed from your blood and new plasma
put in. Similar to dialysis. This was unsuccesful.
I found out after seeing Dr. Darnell in NYC that
my own antibodies which had
kept the cancer so small and from spreading, were
attacting the only similar protine in my body which
is in the spinal cord. By this time my body had lost
all feeling from about the waist down.
I still recieve out patient physical therapy, and
have maintained my flexability and some strength
in my legs, which is not enough to stand up yet,
but I am still hopeful. Medical Science is progressing
in the field of neurological disorders, and who knows,
it may be in my time. I Hope.After numerous
Hospitals and Doctors, I am confined to a wheelchair. I
lost my business, and my husband is unable to work due
to having to care for me.
This has been a MENTAL, PHYSICAL and FINANCIAL
struggle for both, my husband, and I.
Dr. Darnell of Rockefeller University still maintains contact with me, and I
still send him blood samples upon request.
This page will not be finished until I'm on my feet again. Meanwhile, the following two
scenes are me and this disease,
I'M THE RABBIT
After being in a wheelchair for seven years now, I have learned a lot of lessons
"THE HARD WAY" This is being written for the benefit of the person who may have an
unexpected devastating illness occur, and to outline ways to get help without depleting
your entire retirement funds, which happens all too frequently.
I speak from having experienced just that. Now that it is too late to recoup funds, I find
that I am part of a large group of retired people who have,
"FALLEN BETWEEN THE CRACKS" We have spent
all of our savings on Doctors and Hospitals,
who may or may not know what to do for your particular ailment. They do however know how to
collect medicare, and dispense expensive drugs. The first qestion is often, "Who is paying for this?"
If you have Medicare or Medicade with a supplement coverage, they are anxious to take you.
This does not however, assure you of quality care.
The best thing I have discovered thusfar is the PCD support group. I will send you their
email address upon request. THROUGH THEM YOU CAN LEARN OF THE MANY SERVICES AVAILABLE
TO YOU DEPENDING ON WHAT STATE YOU LIVE IN AND MOST OF THEM ARE
AT NO COST TO YOU. THIS IS ONE THING YOU USUALLY LEARN TOO LATE. I DID.
Any one in the support group will be able to help with some answers as a rule. One thing for sure, WE'VE BEEN THERE, DONE THAT.