Mood:
Hi Everyone,
Its been a heck of a week. My last post was a hint at the very beginning of what was to come with Sam's vaccine reaction. Thankfully, this ends well, Sam is just slightly worse for the wear...His words are not with him...he has "mommy" and "byah" (Grandma)...He is trying to say other things, though... but he's definitely lost some of his words...there were not too many to begin with...
OK, Sam had lots of seizures and fever. Long story as short as possible for me is that this has cemented my gut feeling that immunizations are not for my boys...I've always delayed vaccines and made sure that the boys were very healthy when they got shots...but no more. If you think that Jonah is not thrilled all the way to the moon that I cancelled his appointment for his flu shot...well...he's pretty happy with me!
As if seeing my baby so sick was not bad enough (it was horrible, he was walking around, bumping into things & looked dopey and seizurey...the ped said it looked like he was walking around in a postictal state (postictal is the state a person is in after having a seizure), which meant that Sam was probably having lots of seizures that we were not seeing...not very comforting. But even after saying that he was having lots of seizures, they sent us home. Another ped in the group said "We" don't concern ourselves with night time seizures... Uh....well "we" do. So, apparently the new standard of care is that not only is it totally OK for a toddler with a seizure disorder (which was controlled before the administration of immunizations) to have a new seizure type (as long as they are at night...its fine!) but its also OK for said toddler to be having "lots" of seizures throughout the day and to be walking around in a perpetual postictal state....Hmmm. Shows what I know. I am disgusted that this vaccine reaction was swept under the rug....A mother frightened at her child acting very much NOT normally, high pitched screaming, aggitation, fever, not sleeping... I was told to "wait and see..." Give us a call on Monday.... Not quite sure what the aftermath of this is going to be. The neurologist (who has a rotten staff), to my knowledge, wasn't even contacted, despite several phone calls. And apparently, his nurse has recieved her M.D. since we last saw them in the office last month. I'm very much not happy with that situation either.
So, I guess my feeling right now is simply relief. Sam is sleeping more normally, he's not screaming so much...he's getting his happy disposition back. We went to see "Happy Feet" yesterday...his first movie...he did great, he loved it. Every time he saw something he liked, he pointed at the screen and yelled "MOMMY!" Then he and Jon took a nap...right there in the theater. I'm very relieved that it wasn't worse, as bad as it was, I do realize how much worse it could have been. It was a long week without sleep & I got screamed at a whole lot...not too big on that. But, assuming that the worst is over, this ends well...and that makes me very happy.