July's Daily Journal

May's Daily Journal
June's Daily Journal


July 1, 2002
Destiny is eating two sometimes three meals a day. Being home is best feeling ever. There's no place like home. (Just close your eyes and click your heel three time and repeat.) Today we received word from a friend of Destiny's who is a in need of a heart transplant this 12 year old girl Danielle had a stoke and is in the hospital at Stanford. This family has become good friends and I would like to ask all of you to say an extra prayer for this family tonight. Danielle's older sister Jodi had a transplant and only lived 8 years afterwards. My prayers and thoughts go to them tonight. I have a question for all of you. If you were a mom of a serious ill child in need of a transplant and GOD decided it was time for your child to come home Would you donate your childs organs to save the lives of other children or adults? With all of the medicines, surgeries and transfusion Destiny is and has received I will not be able to give that gift of life to a family but strongly wish I could. Enjoy everyday you have with your family life is too short. The words you share with people you talk too could chance a situation and have an impact on the rest of there life.

Tuesday July 2, 2002 Destiny waddles like a duck back and forth here at home I can tell you she is getting really heavy. I got out of the house for a couple of hours today to run around I even treated myself to a haircut YEAH. The little things that make me so happy. I was chatting with someone at the scrapbooking place and mentioned Destiny's situation this lady reminded me that Destiny is here on earth to complete her mission from GOD and has not finished her task. It made me really think of how one's life can change in a blink of an eye and look how fullfilled her life has become in 2 1/2 years. The out reach for such a small soul to deeply touch so many lives. Tomorrow we have doctor appointments will keep you posted.



Wednesday July 3, 2002
Destiny had two doctor's appointments today one with Dr. Jolley she has put on another pound since being released I had to do a dressing change in the office so he could see that I could do it and gave me some advice which is usefull. We talked about the J tube and I will get back to him on my decision and the doctor does not need to see us for three months. Praise God. Then we went to see Dr. Wellmann who has a cold so he wore his mask in the room. The doctor has ordered to have anther PRA test drawn on monday 7/8/02 at this point many decision will come from this test. First - to give us the antibody levels in Destiny's system Two - to tell us if the chemo (cell ceph) is helping Three - how the IVIg infusion have helped Dr. Wellmann is going to talk with Dr. Chin at Stanford to come up with a plan if the levels have not come down what is going to be our next step are we going to try something else, or stop the chemo (cell ceph) and take her off the TNP and Lipids and let her just live a so called normal life. I took a big swallow but I want to share with all of you I have been asking for some sort of plan like this for weeks. I do not want Destiny to suffer in anyway. I want more then anything for my daughter to have a transplant but I know this is God's will and I have come to except that and know that GOD has not given me anything I could not handle. This is a big milestone in all of our lives. There is an answer to my I need a plan from A to Z even if we do something different from what we set out on we have something to work towards. I called KTUU today to ask for a copy of the tape from out interview and CMN telethon the request is being processed and if I do not hear anything at the beginning of next week or do not get a tape I was given a direct line to call.

Friday July 5, 2002
We had a friend from Washington come to visit. Her name is Michelle and I went to high school with her. What a surprise for me. We were able to spend some time together and grammy even took care of Destiny while we went out ot dinner.

Sunday July 7, 2002
Its 12:33 am and Destiny has just urped in my bed twice so I have finished changing my sheets for the second time tonight and she is back to sleep so here I am to let you know how the last couple of days have been. I have sat and picked apart the doctors appointment in the last couple of days. I plan to call the office tomorrow and ask if the doctor when he will be doing an echo, or pacer check or a EKG. It kind of bothers me that we are lowering Destiny's immune system and I had to take her to this appointment and none of these were checked just a quick listen see how she is doing and we were on our way home again. I know the doctor has too much on his plate. I know he is human and puts his pants on the same way every one of you does, but this is my daughters life were talking about. If I don't stand up for her who will? Sorry its just the way I feel today. My nerves are shot tonight I am wide awake. I am thinking I need to go to work at least for a couple of hours a day just to get out and away. Going to the grocery store and Walmart do not count because its like supermarket sweep. I am starting to make homemade bread with so much down time. I have alot of little projects started like scrapbooking, and down loading pictures and printing them, but I will always have that.

Monday July 8, 2002
Today was a test I failed our nurse drew the labs and took them to providence to be sent to Stanford. Around 1pm the lab called to let me know that the blood arrived to late in order to send these out the blood must in the lab at providence before 11am had I been told this I would have asked the nurse to draw them sooner to have there. So now we need to redraw them tomorrown. I asked if I could bring Destiny to the hospital to have the labs redone today and if the lab could do this through her central line, no because we are not nurses in the lab. After hanging up I sat down to cry this is life and death to check these antibodies. I am fighting to save my daughter and everyone at times just takes there time and forgets to mention important information. I just feel like screaming. The last time we drew these labs the lab at the hospital forgot to send them out for four days. Then the doctor tells me he doesn't trust the lab well neiter do I, I even suggested I have a friend who works for Alaska Airlines and will goldstreak them to Stanford. No we have to have providence send them ok I give them a week and a half no more. Destiny is napping right now so I sat down for a few quick minutes. Dr. Bryant stopped at home to check on Destiny and see how things were going. He is glad to see the progress she is making daily. Now how many doctors do you know who will make a house call or a friend call in todays world not many. I am blessed to have so many caring people in our lives.

Tuesday July 9, 2002
Today the nurse took in the second blood sample I knew there was a reason I did not go. Upon arriving at the lab the young girl behind the desk said it was too late it was only 10:30am now mind you she told me it had to be there before 11:00 am. So the nurse asked if they would put the blood in the freeze and the girl told her NO we never freeze blood, so the nurse explained it has been done before but this girl kept saying NO, So the nurse who is just great in a gentle and kind voice asked again if she would accept this blood so the girl said I guess I could call someone to see if we can still take it. Thank GOD the right person answered on the other end. Now I don't know if the blood was actually mailed I will just have faith that it went out. I am telling you Destiny is solid. She is so heavy to be caring up and down our stairs I walk all hunched over. Tomorrow we have our doctor's appointment with Dr. Wellmann, I have called to office to ask about the pacer check, EKG, and echo he does not plan to do them right now. So at first open mouth insert foot I canceled the appointment, then I got my burning ear and called back to reschedule and keep the appointment time. I will go in to ask questions to our plan. Keep you posted. Well put up our tent in our front yard to go and have pinics in but Destiny does not like when the wind blow the tent she goes mommy its scarry so we went to sports authority to but a screen tent so she can see through it I'll let you know.

Wednesday July 10, 2002
Today Destiny weighted in at 30 pounds WOW, she went from just under 22 pounds to 30. No wonder I am complaining when I have to carry her a short distance. Dr. Wellmann and I talked about her weight he is stopping her TNP/Lipids at night. We will still have a nurse twice a day to run the chemo (cell ceph) and give her meds through her IV the doctor would like for her to try and takes all of her meds by mouth but I reminded him that we will be back to square one with cardic failure it won't happen. If someday I have to give them I will to keep her out of the hospital. I want to share a simple Thank you to let all of you know through your email, message board and signing of our guest book you have brough peace into our lives then you will ever know. Thank you for your friendship and support most importantly for the prayers I know in my heart this is how we are getting through day by day. We have appointment with Dr. Wellmann every wednesday for the month of July. This weekend I plan to take a drive to Alyeska or Beluga Point and have a pinic with my parents and Destiny. Auntie Jodie bought Destiny a tinkerbell outfit when she was in the hospital around May 10th, I never put in on her because of her central line in her leg well I put it on her the other day it looked like a stuffed sausage casing ready to burst it was not a pretty picture. Destiny looked at her tummy and said Mommy its tight of course I had to take some pictures before I allowed her to take it off.

Thursday July 11, 2002
Today's story begins with- Ruth getting a phone call from the doctors office. Ruth is sitting on the floor playing with Destiny the music is playing in the background the phone rings Destiny yells I got it, Ruth yells don't touch the phone I got it. Ruth is able to snatch the phone from Destiny just in the nick of time- Hello. I feel like it the comedy show or better yet "The life we live at home but still connected to the hospital" Dr. Wellmann's staff is calling to ask me if I am sitting down before they tell me some news, today I just laughed and said now what. The blood went to Stanford as it was suppose to but it was in the wrong tubes. Image that- oh my gosh it couldn't happen to me. So they would like for the blood to be redrawn AGAIN!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! by now I am thinking the third time is a charm but reality comes in and I get that voice telling me Ruth the antibodies are 95% accept it. I will have the nurse do this in the morning no problem right WRONG. I had the orders faxed to the home nurse since she would be back in the morning. Stayed tuned as Ruth lets you know tomorrows story line.

Friday July 12, 2002
Hi everybody, its me Ruthee. Destiny woke up at 8am ready to start the day and the nurse arrived at 8:01 am perfect timing. The morning meds are all drawn and given with no problems. So now we sit down on the floor to start the labs. The nurse flushes the line then draws back the waste and attaches the syringe to the line to pull back. Destiny's first line is soooooo slow the nurse trys different position and has Destiny put her arms in the air, lay on her side just about everything we both knew what to try so she flushes that one to try the other one. This time the second line was worse for a draw back I give the credit to the nurse for trying as long as she did. We are only able to barely get enough blood for one tube. I said thats it. Stanford will be sent that one tube and if they need more we will try next week. The nurse orders Alteplase which is a cathflo activase to be put in Destiny's lines. So this is delivered tonight I put it in the refrigerator until this weekend to run. I have come to accept the antibodies to where they are and if they come back lower Praise God. I want Destiny to be loved and happy everyday. To watch this adult in a toddlers body is incredible I am given more strenght by being her mother, not just her mother a mother for both my kids. This is the best gift ever given it can not be replaced. I went to Wal-Mart tonight to get some scrapbooking pages I see these moms in the store yelling at there kids and they don't care who is around to hear what they say it takes the will of GOD not to walk up to those moms and say I'd like you to walk in my shoes for 2 hours - you don't know how your life can change. Enjoy what you have this is a gift.

Monday July 15, 2002
I have come to enjoy the peace in our house for the last 5 days for the first time in four months I have no pumps or tubes connected to this baby when she is sleeping at night. I am actually learning to sleep at night we are only waking up once and sometime twice a night now. I never realized how much sleep I was not getting thinking, checking, tossing and turning when alarms went off. THIS IS GREAT!!!!!!!!!!!!!!!Talk about feeling refreshed. Destiny is eating really good each day. She loves her water and will drink like a camel if I don't stop her I even went to Sam's clue and bought a large container of powdered chocolate milk nestlequick. I am trying to make different milk shakes with pedisure in them to help with the calories somedays its yes and other days it either no thank you, or that tastes yucky when she didn't even try it. I went to work today for 2 hours in the morning and 1 1/2 in the evening if felt so go. I had control in the office I feel like I won a million bucks. I think I am going to try at least 2 hours in the morning while I have the nurses here. I can give something back to my employer and to myself not to mention the extra hours on a paycheck. I have paycheck coming to me tomorrow and I feel like its the lottery well it is in my book. Today on the radio station 103.1 did a fund raiser for Make A Wish, we did a pre-recorded interview to help raise money and awarness to what the foundation helps child do. My phone was busy at home with friends calling to make a donation for Destiny I explained to a couple of them the money is not given to her it is to help children like Destiny and make there wishes come true. Their was a time in my life I never gave a second look at Children's Miralce Network, Wish Upon a North Star, or Make A Wish because I thought well it doesn't effect my life. Now I want everybody to know those are just a few areas that help your children when they are sick. My mission now is to set up public notice, what type of assistance you can apply for with an ill child and what is needed. To network with other families websites, books to read any information that has been helpful to me. You can not have to much information when your child is sick. One day I plan to start some type of non profit organization to help families who need transplants to raise funds for extra costs such as one or two months of a mortage payment, given them a gift certicate to help buy groceries, calling cards, how to get in on status.com to create a webpage for there families and friends to know what is going on. I want to start a support group of cardic parents who need to talk to someone who understands it maybe a different story for each mother, a different childs name, and a different part of there heart that is affect but these parents can relate to one another the in and outs of a sick child or a long hospital stay. There are a few children I have met along this road, Kathy and Tim parents of Danielle, Tisha and George parents of Shawn, Teri and Floyd parents of Rachel. If I can help one family in anyway I am doing God's work to help other but it also helps me in many ways.As of last week Dr. Wellmann has 5 heart transplant patients 2 are at Stanford, Destiny is here at home and the other two I don't know about. We need to have a support group here in Anchorage these parents and child have alot in commen. Tonight I am pretty wordy but I need to get it off my mind to let everyone know what my mission is as I work through Destiny's trials. No news from Stanford yet.

Tuesday July 16, 2002
I want to let you know all be careful for what you pray for. Off and on I have prayed and asked GOD when I find my soulmate that please allow him to want to cook, well in the time I have been home I am planning and cooking meals for the family. My favorite was to have breakfast for dinner most night and if I couldn't fix a meal in 20 minutes or less it wasn't worth making. GOD has a great sense of humor I used to ask for desserts first- since desserts spelled backwards is stressed so I thought since I had stress in my life and had dessert first I would be so full I would not have room for anything else on my plate. Can't you see the Lord shake his head and Oh Ruth. I can. Now I am enjoying the stop and smell the roses scene while I was working I was alway going so fast I just barely saw the color of the roses. Now I just the Lord to help me day by day.

Wednesday July 17, 2002
Well I canceled our doctors appointment today. I had errands to run and bills to pay and most of all I just did not want to drive there in the traffic today. So I have rescheduled on Thursday at 1pm. I am very greatful the office staff at Dr. Wellmann's understands me at times. I can be pushy and a pest but you only get one chance.

Thursday July 18, 2002
Destiny weights 28 pounds, she has lost 2 since last week at this time we are not being put back on TPN/Lipids we may have to go back on them to help keep some weight to her actually to maintain. Dr. Wellmann has adjusted the pacemaker as of today it has 12 months give or take a few months I think March of 2003 is when we will look at going to Seattle Children's Hospital to replace the pacer and lead wires to the heart Destiny will go from one wire to two wires connected to the heart. The doctor did an echo today YEAH- now I didn't have to ask him when he will be doing the next one, the readings have not changed. I would like to change the subject for a moment Danielle received her transplant on Sunday night early Monday morning. I did hear that little Shawn had to be medevac to Portland Children's Hospital please keep these children in your prayers at night I will keep you updated when I hear some information. Shawn is scheduled for another open heart surgery tomorrow 7/19/02. OK the million dollars question- the antibodies. We did hear from Stanford after we left our appointment Dr. Scott called us at home. The anitbodies are 100% I do not know the answer to what is making them go up or why they keep going up. I can tell you we plan to admit Destiny one day next week to the hospital for a overnight stay to run another IVIg treatment its been another month already and we are going to continue the chemo for another 2 1/2 weeks to still give her a chance. I am not giving up on Destiny or the doctors at this time. I am taking everything in my life on day at a time. I am willing to try we have nothing to loose. Destiny's spirit is full of life and the light is brighter now then ever. I know this percent sounds good but in order for Stanford to consider a transplant the antibodies need to be at 40%. I would rather take the chance to run the IVIg instead of the odds if she was put on a transplant today and not make it out of surgery. I know the Lord is in charge I know his will. Most important I know he is right beside me every step of the way. Keep your chin up and wipe away the tears, tomorrow is a brand new day to enjoy. I certainly will.

Monday July 22, 2002
I just got off the phone with the doctor's office. We are going to run our morning dose of the cell cep and morning meds and then go to the hospital to run the IVIg. We have started packing an overnight bag but all I have pulled out so far is a pair of PJ's for Destiny. Just the thought of going back for an overnight stay gives me heartburn. I will keep you posted.

Tuesday July 23, 2002
We arrived at the hospital a little after 1pm Destiny had all her morning meds and cell ceph at home we stopped at McDonald's drive through window there was no way I could eat hospital food nor would I even offer Destiny. The pharmacy was notified we were there to start mixing the IVIg. It usually takes over 2 hours to have this mixed, set up and ready to start. However we got started a little later then planned. But it really worked out better by 3pm I put on Judge Judy and Destiny took a nap- yeah Judy is what Destiny will say. Around 5:40pm we started the infusion process at 42ml/hr it took over 6 hours to complete, after the IVIg the nurse gave her evening meds and then started the evening dose of cell ceph just after 3am we were done with running everything but Destiny had been urping and has a little sore bum everytime she farts she wakes up and asks me to change her diaper so I did. I was able to get a couple of hours of sleep but there will be nothing like going home and sleeping in our own bed tomorrow night. I was deeply saddened today to learn that Danielle went home to be witht he Lord I was shattered into a 1000 pieces for her mom and dad. This it the second child to bury after a transplant. I called to check on Shawn in Portland his mom is 7 months pregnant and tired. Shawn is still on his ventilator after his last surgery things are looking a little better. I come to all of you and ask to keep these families in your prayers but it also to say to keep all the little children in your prayers. These families are very dear to us and some of you have heard me mention there names. Todays weight is 12.1 kilos.

Wednesday July 24, 2002
There is no place like home- what all I could say in the car on the way home. What a trooper Destiny was awake and ready to leave her bed around 11am, we left after 1 or 2pm this afternoon. The doctor has decided to put Destiny back on her TNP/Lipids at night to help keep the weight on but to provide her that extra boost of calories she lost 3 1/2 pounds in the last 2 weeks and I don't want to see her yo-yo to have her heart work any hard then it has too. The TNP/Lipids will run for 8 hours at a lower rate then last time. Last time it was running for 10 hours which had been lowered from 12 hours no wonder she was a chunk at 30 pounds. Yesterday at the hospital she was telling her doctor and nurses You can't catch me and would waddle down the hall swinging her arms she thought she was running so fast but she was just able to walk a little faster then her normal speed. What a crack up to see. She was full of herself. At two different times she would be walking down the hall and go into room 316 where we were last time I would say Destiny we are not in this room this time we are in room 313. Oh, ok mom. On the way out our nurse said your kind of heavy when you have to be carried across the hospital. Which is so true. Todays weight is 12.2 kilos. I want to thank all of you for the friendship and the undying need of prayer time you give to us. I can feel your strenght at time when I just can't even open my eyes to move. The power of prayer is nothing that can be touched it can only be shared. Well I am going to go dive into my bed and get some sleep. Nothing like clean sheet when you come home. My love and thanks to God and to all of all of you.

Friday July 26, 2002
Destiny was a very sick little girl last night, I got my shoes on three times to take her to the hospital. At first I thought she had to much company and was overtired, then I wanted her to rest in her bed as much as possible, then I wanted the doctors to have some sleep to be fresh in the morning. Well by the time my morning nurses arrived Destiny was kind of listless after one hour of treatment she just wasn't interested in anyone or anything so I called back to the doctors office and said we are coming in. I was told to take her to the unit which is the PICU. I wanted a direct admit not to have to go throught admitting and the office helped me out with this. I said we would be there in just over an hour after her morning cell ceph and meds. Once the nurses were done I had everything in the car to go put on her PJ bottoms and we were off by now Destiny was just very groggy all I kept thinking was cardic failure so I started to speed down the highway. I was listening to the radio and I was reminded to slow down so I thought if I am in a car wreck how can I tell the doctors and nurses what is wrong with Destiny so I slowed way down well at least to the speed limit. We arrived and I rushed into the unit and they had the bed and monitors all ready just need to be plugged in and the leads placed on Destiny. Dr. Wellmann started her on a bowlus feeding of normal saline and D5W after those finished Destiny had pinked up quite a bit which made me feel much better. She was very dehyrated from the night before. Her heart sounded good no extra fluid in the lungs which made me settle down. Since she was doing so well Dr. Wellmann wanted to move her out of the ICU and onto the floor which made me smile since that is one step closer to going home. I knew it would be a day or two before we went home so we went to room 312. There was another family on this side of the unit so it was peaceful. The night nurse we had was getting pretty mad at our pumps it kept alarming she was ready to throw it out the window, if any of you have ever spent the night or stayed with someone at the hospital you know what that is like. Destiny's weight upon admit is 12.2 kilos or 26.6 pounds.

Saturday July 27, 2002
Destiny sleep sound last night I was even able to go to the coffee court and get something without her waking up and screaming where's mommy. She was woke up around 7:20am for her weight check which was 25.4 my heart just sank how could her weight go down after all the fluids they were running then again I thought and had that feeling in my stomach something is not right. She went back to sleep catching two naps during the day then for dinner she only ate 5 french fries again for the second night in a row. We saw Dr. Wellmann and I asked if she could stay until she had a bowel movement I don't like to see her strain. He was in no hurry to send us home he wanted to check her over what a relief. By the middle of the day around 3pm we needed to moved to yet another room now we were on the other side of the peds floor and we had not been on that side since April. We were moved to room 325 soon after arriving Destiny took another nap when she woke up she was her happy, smiling self. As we would walk down the hall she would you can't catch me. I had ordered Destiny some heart shape balloons and some pink, red and white M&M's we decided to share the candies with the nurses and Destiny was beside herself with balloons. We missed having a birthday party for the papa on friday with our admit I commented to Dr. Wellmann that I did not want to be in the hospital for Destiny's birthday and he agreed we were there for grammy's birthday in May, mine in June, and papa's in July then I said I will trade you we can be in the hospital but we need to be home for Christmas. He said deal. So another itty bitty sleeping spot for the mommy while Destiny hogs the rest of the bed.

Sunday July 28, 2002
Today Destiny slept in we didn't even wake when papa brought breakfast from Burger King in our room, then the nursing supervisor for our home nursing stopped by and she left us a note that we were sleeping so peaceful she dare not wake us I was thankful. Today's weight is 12.2 kilos again we are back to our admit weight which was a huge relief. I let the nurse know I was going to take a shower so she asked someone to come in and sit with Destiny which was no problem until I closed the bathroom door and started the water you would have thought they were asking for her first born child she screamed so loud I could hear her over the water running I did however finish my shower that is my only real timeout in the morning and it seems to be my best prayer time with the Lord. I tune out life and just relax. Dr. Wellmann came by and I said no BM yet but we are ready to go home today so he agreed she was better no oxygen will be needed at home, no new meds he signed the discharge papers and we were ready. Destiny got home had a snack crawled up on the sofa and took a nap. Later that night she ate and drank like it had been months. I have noticed that whenever we are at the hospital she shuts down to eat and drink but I don't blame her. Have you ever had to eat hospital food for a long time? Yuk!!!!!!! Before we left the hospital I did ask Dr.Wellmann that next month we run the IVIg can we stay 4 to 5 days afterwards for precautions not a problem was his answer. Her being sick could have been a reaction to her treatment.

Monday July 29, 2002
Today I snuck out of the house to go to work for a couple of hours which felt so GOOOOOOOD. The fresh air the sunshine. Praise GOD. I actually got a paycheck with 11 hours on it in the last two weeks do you know how good that felt I thought I had won the lottery of 2 million dollars. Upon returning home Destiny has not left my side mommy what are you doing, mommy feed the baby, mommy I help clean too. So by the time she went to bed I ran over to the computer to fill in the last couple of days. By having this web page helps me at night to relax after I type and to keep you all posted. Know you are in my thoughts and prayers. Our next doctor's appointment with Dr. Wellmann is August 1 at 1pm. I have the nursing schedule for the month of August on Mondays, Tuesdays, Wednesday and some Thursday I have the same nurse and I am going to make an effect to go to work 2 1/2 hours to 3 hours a day and have that extra million to pick from. One of our neighbors came by the house the other day he said I noticed you have not taken your boat out this year so I brought you some smoked fish. Yummy reds and kings. Tis the season. With all the sales ads in the paper and on tv for Christmas in July sales I have wanted to start baking why not. I know of a whole bunch of nurses and staff that work on the peds floor 24 hours 7 days a week. Well I will see you when I see you. Good Night

Tuesday July 30, 2002
Destiny had a busy day she went over to see Auntie Cindy and the kids for a couple of hours to visit after talking I asked Destiny are you ready to go home now. YEAH I no sooner got her in the car and halfway down the street she was sound asleep. She didn't even really play with the kids because they were outside she would go to the window and yell hey kids what are you doing. Cindy and I would laugh. Then this evening I ran to Toys R Us and Walmart to grab a few items I was back in 1 1/2 hours she was sound asleep her nurse Karen gave her bath but tonight since I wasn't home and went to work for a couple of hours this morning she tested her lungs while in the tub. Grandma came downstairs to see if Karen needed help with my Penny henny the sky is falling "where's mommy"? I will have to share with all of you being home the last 3 months has really made the bond stronger then even between us but testing the glue and bond needs to go into place. I am not allowed to go 3 feet from her once I return. My minnie me, I clean she cleans, I paint my toenails she needs hers done too. I know I mention this about her following and coping but yet somedays she just wants to disagree with everything so much that when the clouds cover up the sun she will put her hands on her hips and click her tongue in discuss its a crack up. Well on a serious note my car died tonight, I was driving it earlier about 2 hours later I went to go to the store to grab some milk and the car won't start. So I will go have dad pick up a battery tomorrow and start there otherwise I will put her in the shop and pray really hard just as I seem to have everything going smooth I am thrown into left field with no mit. Little does the emeny know I will just turn it all back over to God and he will help me through each day. When Destiny was granted her "Make A Wish" our first request was to have a mini van but the purpose of granting wishes if for the children. I understand the policy but this is why I don't rule the world. If parents or there children were asking for such a wish is to provide dependable, safe transportation it would benefit the child in more ways then one. You never know how much medicine equipment you will have to transport every time your child is sick or once they come home. I think if Anchorage Dodge/Chrysler can donate a pickup truck to the Iditrod every year and it is won by the same guy then why won't they donate to help these families. If I ran the world I would ask for the donation but put in a legal paperwork to say that the parents can not sell or trade the vehicle for 12 years, they can not change the the decals that say Make A Wish, and to have there company name on the van like donated by Anchorage Dodge or Chrysler but for both of letter not to be rude and take up the whole care like a nascar. What a better way to let the public know you support these children. Everybody has been touched by a make a wish in one way or another if not look on line and read some of the stories.I would drive a vehicle like that and be proud to have it. Look at the commericals for BP that person is driving a green, white and yellow bug cool. One day when the sky opens up and I am given a chance to fill my trees of fruit I will ask the Lord if some of my tree can bare all the money I can spend to help others like myself. That why I don't have million because I would be helping everybody else. My sister lives in Rio Vista, California and has made the decision to move back to Alaska to be closer to the family and be able to help when Destiny is in or out of the hospital I feel so blessed to have this chance and enjoy the company of both her and my nephew. I am very greatful to have all of you in our lives as well.

Wednesday July 31, 2002
Well I was able to take the cheap route of fixing my car today I put in a new battery and so far it worked. If that didn't work I was going to change the spark plugs, then the air and fuel filters before I took it the shop. Destiny has a doctor's appointment tomorrow at 1pm. I was given a new purse its a garden bag with lots of pockets its already full of wipes, face masks, bubbles, gum, stickers, you name I have the down size version of a Mary Poppins bag I carry everything in it.



Destiny's Daily Journal
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