If you have a link that you would like to have added please contact me and let me know what the address is.
NATIONAL MARFAN FOUNDATION - The NMF is a nonprofit organization that is tax exempt that helps to get timely
information about Marfan Syndrome.
JANET NAVIA'S HOME PAGE - She has a lot of helpful resources.
Brian Humble's "Humble Hands" This is a great page on Marfans check it out.