NOTICE We have offically became a chapter now You can find our Chapter web page at https://www.angelfire.com/wv/wvmarfanchapter

This is a support group of the

National Marfan Foundation 382 Main Street, Port Washington,N.Y. 11050 1-800-8-MARFAN

If you need me you can reach me at any of the following. ANGELA BURNS STAR RT.3 BOX 512 MT.NEBO,WV.26679 (304)438-5518 marfns@hotmail.com

In Memory of Kaelen Kasper

In loving memory of a dear friend,Kaelen gave birth to a beautiful baby girl on Wednesday,Oct.8,1997.She also has a loving husband Shawn,and a handsome son.After the blessed event of giving birth Wed.,Kaelen was put in I.C.U. directly after,and on Saturday,Oct.11,1997,she had an aortic dissection.The Doctors gave her emergancy surgery to repair the damage,but unfortunately the damage was to extensive and the stitches kept coming out.She was pronounced dead this morning around 5:00 am,Oct.13,1997.She was loved and will be sorely missed.We pray that God will keep this precious person close to him and the family she left behind as her husband,begins a life of trying to care for their children alone.Please keep their family in your prayers.We give them our deepest sympathy.
Thank you, Angela Burns.

The West Virginia Marfan Support Group has now expanded into a chapter format.Please check out our Chapter Page.WV Marfan Chapter Page

"Please dont take the information on the page as full medical advise ,I am not a medical doctor and any thoughts that someone you know may have the symptoms suggested on this page should consult a physician. Any information needed by your physician is available,please contact me at the address below for a information packet.

Soon we will be adding two new features to the page. These will be "Your marfan stories and Marfan pen pals. If you would like to submit your story about your own experiences with Marfan Syyndrome then send me an E-mail with your story and in the "Subject" box of your E-mail put "STORIES". If you would like your name and E-mail address added to the "Penpals" page , then send your name and address with the word"PENPAL" in the subject box. Also,include a brief description of yourself .If it is possible please try to limit your descriptions to 5 lines.Thank You.

You are number to visit this site.
If you have any questions or comments,please E-MAILme.

This page created by Jim Burns