I first read Catherine Maurice's "Let Me Hear Your Voice,"
What I have tried to do on this page is to include some information and links that may help you understand what other families and researchers are doing to "recover" autistic spectrum children. I don't know why some children do not recover, but I do know that there are too many children being diagnosed and even one child that is not recovered is one too many. As parents, all we can do is to help our children to do the best they can with what they have.
I know that I may not be able to "recover" my child totally, but I will fight the damage that has been to my son as long as I have a breath in my body. For me "recovery" is a multifaceted ideal. We "recover" Andrew from new things every week. He might be playing inappropriately with the musical flute/recorder (taking the top off and on). We work with him on how to play with it appropriately and that is a small problem we have "recovered." We take him out and expose him to different sounds, lights, and activities so that we can help him to get used to dealing with things that might bother his senses (was real hard at first with people staring and making comments about his behavior but he has improved so much. We try not to do too much in a routine way so that he can get used to change (this has been hard but he is doing well with it). We are not trying to make him into a robot or to torture him. We are basically trying to help him prepare for the world that he will be exposed to.
In the end he will hopefully have reached his greatest potential and be the happiest and most successful that he can be. No matter what, we will love him and appreciate him like no other.
encourage you to find a good doctor, preferably someone with knowledge of the DAN
(Defeat Autism Now) protocol. Have them run tests on your child to check for
things you would feel comfortable with such as: fragileX, amino acids, metals,
intestinal permeability, candida, yeast, mercury
toxicity, food allergies, viruses, vitamin & mineral deficiences, and
such. Most, if not all, of our kids have medical/biological problems that need
to be addressed; read a great
paper about medical/biological problems in our children. Check out what the Pfeiffer
Treatment Center has to say about Metallothinonein (MT) and Autism
(supposedly affects 99% of our ASD kids). I would also suggest that you order
the DAN protocol for yourself. While you are trying to heal your child's
immune system and gut, start with the therapy that will help catch them up
developmentally ( ABA, Speech, VB, OT, PT, Supplements, etc..). Check out
my BioMedical Page for more information and links.
LINKS FOR RELATED RECOVERY SITES
for Recovery from Autism/PDD/Hyperlexia
(a mail group)
join other groups are create your own at
Comprehensive Guide to Managing Autism by Willis S. Langford
International Autism Research Center
Than Words - The Hanen Program for Parents of
List of Recovered Children
parent of a toddler with autism
A chance to be
There is Hope
Cost of Autism (Hamilton, Ontario)
therapy... (Seattle, WA)
Support for Bradley Murphy
Intervention... (Torrance, California)
Virginian-Pilot and The Ledger-Star, Norfolk, VA
triumph in treating autism (Australia)
http://groups.yahoo.com/group/enzymesandautism/files/Enzyme Success Stories and Not-So-Success Stories/
New York State
Department of Health Clinical Practice Guideline
Learning Center includes ABA curriculum,
analysis at Athabasca University
Great Ideas for
FEAT has a
collection of teaching programs on-line
teachs recognition of emotions and facial expressions
Academic Learning System
Books to read (These are the first positive ones that I read):
Unraveling the Mystery of Autism and Pervasive Developmental Disorder: A Mother's Story of Research and Recovery. a must read book by Karyn Seroussi, Bernard Rimland Ph. D. (Hardcover - February 2000) that has a lot of resources.
Let Me Hear Your Voice.The reader may also be helped by reading a book written by a mother of 2 recovered autistic children: Maurice, Catherine. Alfred A. Knopf, publisher, New York: 1993.
Autism : Giving Parents Reasons for Hope and Guidance for Help.
I would like to share a good thing that happened today. I was with my son at the pediatrician's office for a follow up from the ER. Last week he tested positive for the Flu, RSV, and a double ear infection. While we were in the children's waiting room a boy came up to my son and stood before him. Inside I started to cringe because I know how these things play out. Child comes and invites him to play or asks him a question and my child ignores them, babbles back a Toy Story line, or walks away.
The boy then asked my son, "What's your name?"
My son looks him in the eyes and says, "Andrew."
As I am picking myself off the floor my son then says, "What's your name?" Oh my god, this is like those dreams that I have all of the time about how he can talk-but not really.
The other boy answers, "BJ."
My son says, "Hi BJ."
I am looking around at the parents in the room with chills running up and down my body knowing they must know what a miracle this is. Is my heart still beating, am I in heaven? I guess they don't see it. Their kids have been doing this for years with no effort.
The boy says, "Come on Andrew letís play in the house." They go into the playhouse and start pretend cooking and then taking turns knocking on the door and saying "Who is it," and "Come in." I move over to where the house is and look through one of the cracks near the window shutters (so I can watch them). Normally I am watching to make sure he is not knocking someone down or being made fun of, or losing it because he is overloaded-not today. I watched him continue to play in the house as 3 other boys gravitated to them one-by-one. The doctor came out and asked the boys if they could be a little bit quieter but to keep playing, she just couldn't hear the patient very good on the other side of the wall. Andrew stopped, turned to the doctor and said, "Okay." She stopped and stared at him among the other boys. She looked at me in shock and said "Hello Ms.Madore." I knew she understood the joy I was feeling. I was so proud that my son was being reprimanded for being "a boy."
I wish it could always be like that. What a feeling to be almost normal, not having to excuse him and explain about autism or carry him away during a horrible tantrum. We flew below the radar today. We went undetected. I can replay that scene in my head over and over and hold on to that feeling through some of the harder times, as they always come too often. Today I am feeling strong. I felt a flash of success. I can say "Go ahead Autism, make my day!"
MADORE FAMILY'S AUTISM RESOURCE SITE: