While Morgan vegges on the couch watching "ELF" and the guys are downstairs challenging each other on a new Play Station 3 game...I thought I would take a few minutes and type a quick update (so much for quick..I am proofing this hours later!).
Leave it to Santa to remember that he was late last year....so he came early (a couple days ago) and left his loot for "good little girls and boys". Morgan was very dismayed, at first, because "it just isn't right" that he came early. Ryan however, convinced Morgan that the lateness and earliness of this and last year evens everything out. Morgan's response was that it was OK, maybe, as long as we didn't open the other presents until the 25th - the REAL Christmas!! Despite how she is feeling, she continues to keep us straight as far as how things should go!
Santa was good to both kids. Morgan got her American Doll Bed and Ryan got a true-blue backpack. The presents of today were well received also (even though they are not all open yet). In between, we have been really low key with friends and family stopping by. Morgan really wanted to go to my folks house for Christmas Eve, but we hung out here since she was exhausted. She is soooo very happy to be home. This happiness, in itself, is a wonderful gift for me!
It is hard, sometimes, to realize how sick Morgan is because the pain meds are doing what they need to do. Other times, we certainly know where she is at. I feel as though we are walking a tight rope....there seems to be a fine balance between meds, rest, food, indulging the spirit, etc. So far, things have been OK....we are still walking on it....albeit precariously so. I am very grateful that Morgan got her wish of having the family together for Christmas. This is what she truly wanted above all.
Last night, when I was putting her to bed - she said that she couldn't go to bed yet because there was one more thing she wanted to do. My favorite part of Christmas is Christmas Eve, sitting in front of the tree, taking in all the quietness, peacefulness and enjoying the meaning/wonderment of the season. She wanted the two of us to do the same last night. This was another amazing gift. Just watching her, snuggling with her...brought about a huge amount of Joy...for both of us.
The kindnesses, gifts and thoughtfulness of so many people, during this Christmas season, has been very uplifting. Thank you to each and every one of you - it has made all the difference in keeping us sane. Another amazing gift was a short story my sister, River, wrote for us. River got the opportunity to read it to Morgan yesterday afternoon. After letting it sink in a little...Morgan said that she really enjoyed it. Right now however, Morgan wants to keep it to herself. I'm pretty sure it will be shared with others soon.
Sooo, tomorrow is Tuesday...when all the Drs and nurses resume their normal schedule. And, why is this relevant?? 3 days ago, I was afraid that the holidays would be wrecked without constant, "degreed" medical support for Morgan. Tuesday felt so very far away. But here we are on the other side, for the time being, living and enjoying yet another miracle of celebration.
Thanks for checking in and Happy Holidays.
Take care and God Bless,