Mood:  sad

Hi everyone,

Everything changes, and it seems to be changing CONSTANTLY! When you read the following, remember that everything does indeed seem to be doing just that, back and forth and up and down......nothing seems to be what it really is.

I am writing tonight's update from room 7 here at DHMC's PICU (pediatric intensive care unit). It has been a very long, hectic day....but all seems to be calm right now. Morgan is sleeping. She woke up early this AM with a very different demeanor. By 10 am or so, she had a small seizure. After another brain MRI and blood work, it was determined that some of her electrolytes were WAY low and it was becoming too complicated to treat on the main floor. The MRI? It showed nothing within the brain itself...but more neuroblastoma had developed on the inside of the skull...possibly putting pressure on some nerves. It was highly recommended that we bring her down to the PICU to see if they could bring up the electrolyte levels safely w/o doing further damage.

We are walking a very fine line right now. This all seems very surreal. Karl, in his attempt to do something, called family and everyone came up. The Dr. says that it could be dicey because her system is fragile while, in the same breath, said that she might possibly be able to go up to the main floor in a day or 2. Me? I am totally focused on Morgan in the "here and now".
.
We'll see how it goes. As fate would have it...Karl and Ryan were staying at David's House anyway, so they were able to be here all day. Right now, Karl and I are staying in Morgan's room while Ryan and his grandmother stay at David's House. Ryan even got his own circle of support when a couple of his friends arrived. What a wonderful gift!

Hopefully, it will be a good night. Thanks for the prayers and support everyone.

Take care and God Bless,
~Lisa