You know....just when I think things were looking better...BAM!
This AM I would have wagered a fair amount that Morgan would be home tonight. She was looking pretty good, ate 1/2 a bagel and had no fever for 8+ hours. By mid morning she had spiked another fever, felt terrible and her blood counts crashed. Needless to say, she is still up at DH....but with Dad (I am now home with Ryan). When I left this afternoon, she was getting a red cell transfusion despite a 102.9 degree temp.. Morgan, in her typical Morgan fashion, is presenting whatever is flipping her system out in an atypical presentation of symptoms. There are still many, many questions with few answers.
Many specialists have looked at the MRI of her head and back, but have seen nothing new. While this is absolutely TERRIFIC news, it is confusing as far as trying to problem solve her symptoms. If there was no fever, things would be easier to figure out. I believe that the Dr. is feeling that a lot of her complaints are due to a virus ( maybe a gastrointestinal bug??). With her bone marrow being so compromised ....it may be causing problems with the blood counts as well as exacerbating her back and leg pains in the fight against "the bug". But this is a theory. It doesn't at all explain why she has lost some muscle integrity on one side of her tongue and it raises the question of the effectiveness of the current chemo regiment. Up to today, we really thought the chemo was doing the trick......
Neuroblastoma? Virus? Neuroblastoma? Bug? Who knows? Not me.
On a positive note, her pain is somewhat controlled and they will introduce a new pain med tomorrow that might work even better without the "itchies". As far as scans, we'll see. Everything seems to keep changing. She was supposed to start another round of chemo on Tuesday. Again, this is questionable because we need to figure out what is going on first.
Soooo, that is it for now. it is scary and un-nerving not knowing what is going on, but she is in good hands. Hopefully the answer(s) is around the corner. I'll write more later when we know more. It is now time to catch up on sleep (maybe).
Thanks for the positive energies everyone!!
Take care and God Bless,