"THE SINGLE BEST BOOK I'VE READ that honestly and fully describes the CFIDS experience." -- Joan S. Livingston, About.com reviews
"ONE OF THE VERY BEST BOOKS ON THE TOPIC and a must-read for people with CFS, their friends and family, and the public. " -- National Fibromyalgia Association
"A BOLD, ARTICULATE REBUTTAL to the many myths, criticisms, and skepticism surrounding this disease." -- Journal of Pain & Palliative Care Pharmacotherapy
"A collection of unique narratives, poems, and essays THAT PORTRAY CFIDS WITH A LEVEL OF INTIMACY AND COMPLEXITY that has been overlooked in most accounts in the media and medicine." -- Sex Roles: A Journal of Research
"A UNIQUELY COMPELLING AND ABSOLUTELY GENUINE insight into the lives of people who struggle with this debilitating disease." --ImmuneSupport.com More Reviews
CFIDS/ME Awareness Day is May 12th!
Read 2003 CFIDS Awareness Day Letter.
Read 2002 CFIDS Awareness Day Letter.
Read 2001 CFIDS Awareness Day Letter.
In the 1980's, a strange emerging epidemic baffled doctors in Incline Village, Nevada. Dismissed by the media as the "Yuppie Flu," Chronic Fatigue Immune Dysfunction Syndrome (CFIDS) turned out to be neither a faddish disease of the wealthy nor a passing trend, but rather a growing worldwide epidemic of devastating proportions.
In the voices of a South African journalist, a former marathon runner, a young girl, a cancer patient neglected by the system because of disdain for her chronic illness, a theologian relearning the art of spiritual empathy, and many others - the people who share their courageous stories in the anthology Stricken: Voices from the Hidden Epidemic of Chronic Fatigue Syndrome defy cultural stereotypes and explore the complex social and political dynamics of this hidden epidemic.
Stricken confronts fascinating CFIDS issues such as the Kevorkian suicides of CFIDS patients, accusations against parents of CFIDS children of Munchausen Syndrome by Proxy, Gulf War Syndrome, the role of storytelling in a memory-impaired patient movement, and the feasibility of mass activism in a disabled population.
With perspectives from Pulitzer-prize nominated writer Susan Griffin, bestselling health writer Gary Null, beloved feminist activist Joan Nestle, and award-winning poet and essayist Floyd Skloot, Stricken is an eloquent testament to the heroism, defiance, and diversity of the Chronic Fatigue Syndrome community.