The Forgotten Grief: NEWS & CONFERENCES

Footprints can aid in creating memories which help in the grieving processTwenty five years ago, when I began as a researcher in this field, I scoured the literature and news back to the turn of the century and found there were only 60-70 significant articles, and very little research. Over that time due to the hard work and concern of many, care for parents is now found in most hospitals or communities, and is available internationally through programs such as SHARE and HAND. Over 40,000 families each year in this country alone experience the loss of an infant around the time of birth, and the devastating grief which if unsupported can lead to many disguised emotional problems later, often presenting themselves in an unknown aetiology. Below find current News and Conference Listings regarding Perinatal Bereavement. .

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New Study May Help Reduce Stillbirth

April 26, 2007

New Study May aid in Understanding Stillbirth

"That $15 million safe-sleeping campaign is credited with a 90 per cent fall in the number of cot deaths over the past two decades. But while SIDS deaths have declined, and while the survival rate of babies in the first 28 days of life has been vastly improved, there has been no fall in stillbirths – the loss of an unborn after 20 weeks."

Heart Monitor Device Reducing Stillbirth?

Monday April 16, 2007- The Guardian

Fetal Heart Monitor Reducing Risk

Sarah Boseley, health editor
A portable foetal heart monitor which has been developed for pregnant women could help to cut the number of stillbirths in Britain, according to the charity that funded the research.

Stillbirth Rates Which Won't Change

StaffNurse.com, UK - Apr 26, 2007

Stubborn Stillbirth Rates Confound Experts

"About one in 200 pregnancies ends in a stillbirth and the numbers have stayed the same since the early 1990s. The Confidential Enquiry into Maternal and Child Health reports there were 3,600 stilbirths in 2005 and nearly 1,200 occurred just before women were due to give birth. Another 2,300 babies died in the first four weeks of life. The report says that more than half of stillbirths were classified as unexplained. "

Other Links:

Stillbirth Rates Stay Same
Rates Not Declining

Placenta Test May Predict Stillbirth

May 2007

Test Predicts Outcome of Pregnancy

"Researchers at Mount Sinai Hospital in Toronto have developed a non-invasive test to predict the likelihood of serious complications due to placental damage in women with high-risk pregnancies. This includes women who are hypertensive, diabetic or obese."

National Review of Medicine

Obesity May Increase Risk of Stillbirth

May 1, 2007

Pakistan: Does Obesity Increase Risk?

"The study of more than 24,000 Danish women found that, compared with normal-weight women, those who were obese before pregnancy had twice the risk of stillbirth and to have a baby die within a month, according to findings published in the British Journal of Gynecology."

Missing Angels Act-Gov Bill Richardson Ignores Pleas

PHOENIX, May 4 /PRNewswire-USNewswire

News Release: Governor Ignores pleas Regarding Missing Angels Act"The MISSing Angels Bill helps provide much-needed comfort, dignity, and documentation to women and their families experiencing the death of a baby just prior to or during birth. All states, including New Mexico, require the family to pay for funeral expenses, and a death certificate/report is issued after a stillbirth. Yet, some states refuse to offer women the choice of a birth certificate. It offers an option to women who give birth to loved and wanted babies who die unexpectedly to choose a birth certificate. "I would assume that the last thing a presidential candidate would want to do is knowingly wound thousands of grieving mothers after their baby's death," said Daryl Logullo, Legislative Liaison for the MISS Foundation."

TV Stillbirth Stunt Deemed Cruel

May 04, 2007 05:32pm

Stillbirth Stunt: BB Apology

Exclusive by Marcus Casey-

CourierMail.com.au

TV Show requires a cruel action , showing insensitivity to bereaved mother's needs.

Thanks to Alexandra’s House, no family need grieve alone The founder, who once shunned sick babies, discovered her calling after a niece died.

Alexandra House: No Need to Grieve AloneBy LEE HILL KAVANAUGH
The Kansas City Star

April 16, 2007

This article describes the gap in medical care for terminally ill babies.
Lewis watched as Alex struggled to breathe. For hours she rocked Alex in her arms late at night, weeping because “I couldn’t buy her anything, or feed her anything. … All I could do was love her.” Kansascity.com

Hospice Aids Parents of Stillborns

Hospices help shared grief THROUGH HOSPICE PROGRAMS, PARENTS GET HELP IN COPING WITH AN INFANT'S DEATH

By Karen Augé-Denver Post Staff Writer
04/09/2007

"there are support systems like the University of Colorado's Fetal Concerns program to help these parents cope. These hospice programs help parents deal with grief and create care plans and even rituals for seriously ill babies. They work with parents on practical issues, such as memorial services, and spiritual and psychological counseling. There are about 40 perinatal hospice programs across the country, according to Amy Kuebelbeck, co-founder of a website for parents, perinatalhospice.org."

Couple Learns From Tragedy

March 28,2007

Couple finds that something positive can come of tragedy
Maria Smith- Cumberland Times-News

Couple married 9 years form "Jenna's Team" for March of Dimes in memory of their stillborn child.

Controversy About Stillbirth Death

Revelations About Stillbirth Death

March 11, 2007

Melbourne Hospital handles the death of stillborn Saoirse as a death, with a coroner's report. Controversy surrounds the choice. "It is also an unprecedented challenge by the court for the State Government to overhaul existing laws. But for Saoirse's parents, Karyn and Andrew Kennedy, it is overdue recognition. "This validates Saoirse's life in the eyes of the Victorian law and means the world to us," Mrs Kennedy said." TheAge.com.au

More Baby Deaths Questioned

Doctor involved in deaths Speaks Out

Taking time to Share Volunteers bring comfort with gowns and blankets for young lives cut short

March 11, 2007
A Ministry to Parents of Stillborns

Volunteers from SHARE give time and talents in sewing ministries of remembrance for stillborn infants.-Story

December 10th,2006

COMPASSIONATE FRIENDS CANDLE LIGHTING DAY

Candle Lighting Remembrance For the Holidays

On December 10th, Compassionate Friends invites the lighting of a candle to commemorate loved ones who have died, including children and infants. A variety of services nationwide will be held , as well as private commemorations. Join with them in remembering your child in this tender remembrance during the holidays, the most difficult time of the year for many.

December 3,2006

Silent Hearts, Big Voices

Silent hearts, big voices: A service for those touched by the loss of a child By BRENDA WEBER/The Evening News
SAULT STE. MARIE

A Memorial Service for the holidays is held by Silent Hearts for family members of those experiencing a Perinatal death.


October 22,2006

Hundreds Walk in Suffern to Remember Babies

By ALICE GOMSTYN THE JOURNAL NEWS

300 people attended Good Samaritan Hospital's 18th annual Walk to Remember , including an 80 year old mother, remembering a loss from 1947. (Original publication: October 22, 2006)


October 19,2006

Northshore Hospital Infant Loss Program Supports "Never Forget" Memorial Day Walk

Never Forgotten
Remembering Infants Lost To Miscarriage
By April Jimenez 10/19/2006 1:45 pm

The Long Island community celebrates a day of Remembrance for families experiencing Perinatal Loss on October 29,2006. Speeches, memorials and interview with bereaved parents


October 15,2006

Bereaved Parents Seek Support for Loss

By Melissa Rennie Times Herald-Record

Sullivan Couple works to find resources to begin a support group for parents who experience Perinatal Death: recordonline.com


October 14,2006

Welcome to Participants Attending "Winds of Change: Whispers of Hope"

in Chicago at the National Conference.

15th National Perinatal Bereavement Conference
Winds of Change; Whispers of Hope

Current:2006:The 15th National Perinatal Bereavement Conference

October 12-15, 2006---Chicago, Illinois--- Kathie Kobler, RN, BS -Chair, 15th National Perinatal Bereavement Conference npbc2006@aol.com

August 17th, 2006-A "Belated" Update

Red tape denies baby Sonja her brief life

MEDICAL REPORTER
Saturday, July 22, 2006

globeandmail.com

Complex medical policies and procedures affect the handling of a perinatal death.

Last Rights: Utah law requiring use of funeral director takes away choices at death

by Alan Choate
July 16th,2006

Daily Herald

Utah laws regarding disposition and transportation of bodies make choices and life even more difficult for mourners: case studies including a family experiencing a stillbirth.

Pre-term births are up but fewer newborns die

Fri Jul 14, 2006 1:08 PM

Statistics from the National Institute of Medicine on the survival of pre-term babies, based upon better care and other factors.

Team approach to Care of Perinatal Bereavement

By BILL GLEN
WCR Staff Writer
Edmonton
August 16th, 2006

Catholic Grey Nuns describe a team approach to Perinatal Bereavement

Persistent Auditory Hallucinations That Are Unresponsive to Treatment...

Am J Psychiatry (subscription) - USA
June 30,2006

Some babies in Ontario unregistered Report blames fee for skewed stats If no birth record, then no death record

May 30, 2006. 05:47 AM
ELAINE CAREY
HEALTH REPORTER

Article details the concern over 'unregistered' babies in Canada

"About 200 newborns a year are unregistered and if they die, their deaths also go unrecorded, says the Canadian Perinatal Surveillance System, a pediatric group that falls under the Public Health Agency of Canada"

State lawmakers weigh recognition of stillborn births Some see links to abortion issue

Press & Sun Bulletin:By CARA MATTHEWS Albany Bureau
May 21,2006

Controversies in law such as the issuing of Birth Certificates to Stillborns are discussed in light of differing agendas of parents and lawmakers

Psychiatry and Post-partum depression

Psychiatric Times - Irvine,CA,USA
May 19,2006

Perinatal Bereavement and mourning discussed in the context of Post-partum depression in general


April 17th, 2006

Now I Lay Me Down to Sleep Portraits remember youngest lives lost BY KELLI LACKETT KelliLackett@coloradoan.com

Classic professional photographer finds depth of healing in non-clinical photographs.

Mother Turns Grief Into Inspiration

One Mother's fight to find meaning in the Loss of a Child

Calling All Angels-news report

CALLING ALL ANGELS The stillbirth of a baby is a devastating occurrence. When are we going to find out why it happens? And when will we start talking about it? Suzanne Pullen Sunday, March 5, 2006

Fatherhood and Mourning

1-2-06

A new look at fathers mourning Stillbirth and neonatal death in subsequent pregnancies.

Upper Chesapeake Health offers Perinatal Group

1-2-06

New on local Parent Group Development

15th National Perinatal Bereavement Conference
Winds of Change; Whispers of Hope

Current:2006:The 15th National Perinatal Bereavement Conference

October 12-15, 2006
Chicago, Illinois

Kathie Kobler, RN, BS
Chair, 15th National Perinatal Bereavement Conference npbc2006@aol.com

Age and Race affect Stillbirth Rates

December 13, 2005

New Research from NY suggests Age and Race correlations with stillbirth rates.

First Listing of Fetal Death as a Homocide

January 1, 2006

Grand Rapids Press: Assault on pregnant mother, leading to death of the infant counted a homocide.

Pathologist Wants new Diagnostic Rank in Stillbirth

January 1, 2006

A British pathologist is suggesting that in addition to autopsy results, medicine would benefit from a 'ReCoDe' ranking, standing for Relevant Condition at the time of Death, noting the degree of in-utero development.

Canadian Tribe notes Three fold Preponderance of Male Stillbirths .

December 31,2006

A Canadian community examines the reasons affecting the preponderance of males dying at birth.

LEGISLATIVE ACTION: THE MISSING ANGELS BILL IN FLORIDA

"Important legislation now being considered in Florida about "Certificate of Birth Resulting In Stillbirth," known as the "Florida MISSing Angels Bill?"A dad,Daryl Logullo, at http://www.MissingKate.org,772-633-0972- who lost his daughter in May, at 35 weeks, is leading this effort in Florida.

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© 1981, 2004 Elizabeth Kirkley Best PhD

Title taken from "The Forgotten Grief" published in American Journal of Orthopsychiatry, 1982.