Pulmonary Hypertension Association
Other support links
The National Organization
Information of being an organ donor
Reference desk
PH Central
Located in Pittsburgh, the PHA support group serves Southwestern PA, West Vrginia and the Ohio area. Our meetings are held at Gentiva Pharmaceutical in Wexford, PA. just 15 minutes north of downtown Pittsburgh and quarterly at UPMC. For futher information contact Sharren Yamron at ,sher@sgi.net, for meeting times and topics. Come meet us at this years AWARENESS WEEK at UPMC. We will be at UPMC on September 16-18 on the 11th floor. Come see the people behind the orgaization up front. We will have new things for you to see and information for you to keep. See you there from 11:00 AM till 1:00 PM. Look forward to seeing you there. For more info just contact Sharren. Meeting are both informative and supportive.
AWARENESS WEEK 2000- September 16-24th.
We are the local support group of a nationwide organization that supports people, both patients and medical staff with information on pulmonary hypertension. Pulmonary hypertension is a rare lung disorder in which the pressure in the pulmonary artery (the blood vessel that leads from the heart to the lungs) rises above normal levels and may become life threatening. Symptoms of pulmonary hypertension include shortness of breath with minimal exertion, fatigue, dizzy spells and fainting. When pulmonary hypertension occurs in the absence of a known cause, it is refered to as primary pulmonary hypertension (PPH). PPH is extremely rare, occuring in about two persons per million population.
Pulmonary hypertension is frequently misdiagnosed and has often progressed to late stage by the time it is accurately diagnosed. PH is historically chronic and incurable with an unpredictable survival rate that has not been encouraging to patients, their families or physicians. However, treatment is available. Recent data indicate that the length of survival is improving, with some patients able to manage the disorder for 15 to 20 years or longer. Questions to Sharren Yamron at sher@sgi.net Thank you
