Here you will find a large variety of medical resources for parenting your Special Needs children. You will find Links to dwarfism, diabetes, cancer rare disorders, metabolic diseases gene replacement therapy, genetics musculoskeletal diseases, and more
OBTAINING HEALTHCARE
Social Security Online Did you know if you have a child with certain disabilities or conditions that's expected to last at minimum of a year you may be eligible for money benefits and if you qualify for even $1.00 your child receives State medical insurance To see a list of qualifying impairments and requirements Listing of ImpairmentsMedical Guidelines
Tricare, Military Health System Military health insurance for dependents further than 50 miles from a military hospital or clinic
State Children's Health Insurance Program Federal chip program allows families that don't qualify under poverty guidelines, to make more money to keep Medicaid health insurance for kids
Katie Beckett Program The Katie Beckett Program is a special eligibility process that allows certain children with long term disabilities or medical needs Wisconsin health card
Shriner's Children's Hospital Non-Profit children's hospital for crippled children There are 22 hospitals that provide medical testing diagnostics, treatments regardless of ability to pay. Must meet medical guidelines and board approval
FREE MEDICATIONS
There is a few pharmaceutical companies that provide Free Medications to people who are unable to afford prescription medications for their health conditions. Each company, has a certain criteria that must be met But you must have a Doctor's orders with all of them
Connective tissue is made out of a variety of proteins called collagen, proteoglycans, glycoprotein, etc. It holds the body together, giving the body its shape and strength, how tissues the receive its nutrients. Sometimes mutations or errors occur in a gene or a transporter gene that distributes the collagen. collagen Deficiency causes an abnormal development in bones, musculoskeletal system, connective tissue & cartilage. It Effects both long and short bone development of growth plates, bone density, production of synovial fluid (joint lubrication) allowing the joints, tendons, and ligaments to move and glide freely. Skeletal Dysplasia is caused from an abnormal development of bones during fetal development or growth causing short stature, dwarfism, metabolic diseases (MPS, lipidoses), collagen disorders (OI, Marfan)
Arthrogryposis from Pediatrics Genetics and Metabolic Disease
Bones and Soft Tissues A site explaining all about bones, tendons, cartilage, & ligaments. Good information
What is bone? A site providing information & answers on the FAQ about bone diseases and disorders
Contractures List of syndromes and disorders with symptoms joint contractures, flexion contractures, ankle contractures to help in diagnostic information
The Elastic Fiber Home Page information about the connective tissue structure known as the elastic fiber and the genes involved
Growth Plate This site has illustrations to explain information on the growth plate. It include its relationships to the growing bone,growth plate anatomy & more.
Metabolic diseases can occur from results inborn errors during during cell division, or a hereditary gene passed through family generations. Most are caused by deficiency in certain chemical enzymes that are needed to help break down certain sugars & and fats that your body needs in order to work right So when your body is not able to break down these sugars and fats, they accumulate and store the unbiogradeable left over enzymes inside your cells, and damages healthy ones
mucopolysaccharidoses is a group of lysosomal disorders that are storage disorders. These disorders are caused when an enzyme that is needed for the breaking down of the sugars and fats in the body is deficient or missing, then causing the incompletely broken down materials to remain stored and accumulate in the cells in the body
Find what new clinical studies are being done for studies offering new experimental drug treatments and therapies for diseases such as different types of cancer; Parkinson's Disease growth disorders, metabolic diseases and more
Sometimes birth defects are caused by Teratogens that you are exposed to during pregnancy, Teratogens are considered to like be alcohol, both illegal or prescripton drugs and over the counter medications; infections like strep, chicken pox herpes, rubella; exposure to environmental factors spray of insecticides, lead paint, or just evn changing a cat litter box
Cedars Sinai Health System The Cedars-Sinai Health System offers you a variety of services, from regular health care to transplantation, joint replacement & repair
Children's Health at Doernbecher Children's hospital located in Portland, Oregon It's apart of OHSU (Oregon Health Science Univ treats cancer, genetics, & orthopaedic surgery
Children's Hospital, Richmond, Virginia Children's Hospital in Richmond, Virginia is a private nonprofit hospital that serves children from birth through the age of 21 for diagnosis and treatment of various medical conditions
The Hospital For Sick Children The Hospital for Sick Children meets the basic health needs of children who live in the City of Toronto. health care, research, and teaching.
Hospital Web USA This is a directory of all the hospitals in USA It's a very useful resource if you need special medical treatment and you need to locate who is providing or specializes in treatment needed
Mayo Clinic & Foundation for Medical Education and Research Mayo Foundation is a charitable, not-for-profit organization based in Rochester, Minnesota. Its mission is to provide the best care to everyone every day through clinic, education & research
The Murdoch Children's Research Institute Murdoch Childrens Research Institute is a non profit organization based at the Royal Children's Hospital supported by government and donors
Portland Shriners Children's Hospital Non-Profit children's hospital for crippled children that provides medical testing, diagnostics, treatment regardless of the ability to pay. (Must meet guideline)
Emory MedWeb: Main Page Emory University is responsible for patient care, education of health professionals, on research treatment, & prevention of disease
Our Other Medical Pages
You will find links to wish foundations specific foundation resources, disabilities, medical sites Special Need home Pages, asthma, ear infections Tons of Medical Links
For researching info, we have medical search boxes and links on our page to (Hon, Medline, Med Explorer) also to online medical journals, health web pages, etc Medical Search Engines
Here, you will find information and resources for special education, learning disabilities speech disorders, and federal disability laws Special Education Links
Here is a large variety of parent support links to health message boards, parent-to-parent match ups, organizations, support groups Parent Support Links
This Page provides a large variety of resources for those who have Dwarfism, skeletal Dysplasia conditions and disorders that result in dwarfism Short Stature and Dwarfism Resources
