Loads of Medical Links
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Here you will find a large variety of medical resources for parenting your Special Needs children. You will find Links to dwarfism, diabetes, cancer rare disorders, metabolic diseases, gene replacement therapy, genetics musculoskeletal diseases, and more |
OBTAINING HEALTHCARE
Social Security Online
Did you know if you have a child with certain disabilities
or conditions that's expected to last at minimum of a year
you may be eligible for money benefits and if you qualify
for even $1.00 your child receives State medical insurance
To see a list of qualifying impairments and requirements
Listing of Impairments
Medical Guidelines
Tricare, Military Health System
Military health insurance for dependants further
than 50 miles from a military hospital or clinic
Federal Office of Child Support Enforcement
Do you need help in getting your child support
or asking the other parent to provide insurance
NetLizard's Legal Research Center
Search engine for Fa mily law and medical law
State Children's Health Insurance Program
Federal chip program allows families that don't
qualify under poverty guidelines, to make more
money to keep Medicaid health insurance for kids
Katie Beckett Program
The Katie Beckett Program is a special eligibility
process that allows certain children with long term
disabilities or medical needs Wisconsin health card
Shriner's Children's Hospital
Non-Profit children's hospital for crippled children
There are 22 hospitals that provide medical testing
diagnostics, treatments regardless of ability to pay.
Must meet medical guidelines and board approval
Free Medications
| There is a few pharmaceutical companies that provide Free Medications to people who are unable to afford prescription medications for their health conditions. Each company, has a certain criteria that must be met But you must have a Doctor's orders with all of them |
Affording Care
How To Get Free Medications
How to Apply to Free
Prescription Drug Programs
Pharmaceutical Research
and Manufacturers of America
Connective Tissue,
Bones, & Cartilage
| Connective tissue is made out of a variety of proteins called collagen, proteoglycans, glycoprotein, etc. It holds the body together, giving the body its shape and strength, how tissues the receive its nutrients. Sometimes mutations or errors occur in a gene or a transporter gene that distributes the collagen. collagen Deficiency causes an abnormal development in bones, musculoskeletal system, connective tissue & cartilage. It Effects both long and short bone development of growth plates, bone density, production of synovial fluid (joint lubrication) allowing the joints, tendons, and ligaments to move and glide freely. Skeletal Dysplasia is caused from an abnormal development of bones during fetal development or growth causing short stature, dwarfism, metabolic diseases (MPS, lipidoses), collagen disorders (OI, Marfan) |
Assessment of Abnormal Growth Curve
What is Hereditary Multiple Exostoses(HME)?
Questions answered About Heritable
Disorders of Connective Tissue
Arthrogryposis
from Pediatrics Genetics
and Metabolic Disease
Bones and Soft Tissues
Explains in detail about bones,
tendons, cartilage, & ligaments
What is bone?
FAQ about bone diseases and disorders
Connective Tissue Skeletal
Dysplasias Clinic
Contractures
List of syndromes and disorders with symptoms
joint contractures, flexion contractures, ankle
contractures to help in diagnostic information
Dwarfism Resources
Achondroplasia
Answers to common questions about children
with Achondroplasia: How Does it Affect a Child?
What causes it? Can it be treated and other links
Gene Discovered for Form of dwarfism
How Kids Grow
Serono is committed to bringing the best
treatment options for patients with growth
disorders to provide and financial assistance
Magic Foundation
is a national non-profit organization providing
support and education for growth disorders in
children and related adult disorders, adult GHD
Welcome to Little People of America Online
National Organization for growth related diseases
dwarfism and skeletal dysplasia's, that works with
Medical Specialists, information on dwarfism, Support
What Is a Growth Disorder?
Information explaining in great detail
about diagnosing growth disorders
Spondyloepiphyseal Dysplasia
Excellent links for info on and tips on cars,
clothing, adjustments for the short statured
Pseudohypopthyroidism:
Albright's Syndrome
The Doctor's Lounge: Albright's Syndrome
Human G Protein
Mutations Bourne lab
The Merck Manual of Geriatrics
Sec.8, Ch.58, Disorders
of Mineral Met
WebMD-Pseudo hypoparathyroidism
Orthoguide.com Pseudohypoparathyroidism
Musculoskeletal Disorders
& Information
Page Musculoskeletal Diseases and Disorders
Marfan Syndrome
Related Connective Tissue Conditions
The Williams Syndrome Foundation UK
METABOLIC DISORDERS & INFORMATION
| Metabolic diseases can be from in-born errors during during cell division, or hereditary genes passed through family generations. Most are caused by a deficiency in certain chemical enzymes that are needed to break down certain sugars and fats in your body in order to work correctly. |
Developmental and Metabolic
Neurology at NIH
Developmental and Metabolic
Neurology at NIH
Nutritional and Metabolic Diseases
Society for Inherited
Metabolic Disorders
Digestive & Metabolic Disorders
information, support and other resources
VUMC Health: Metabolic
and Biochemical Diseases
Parents of Galactosemic
Children, In. Home Page
Children's PKU Network
Related Metabolic Disorders
Inborn errors of metabolism:
Organic Acidemia Association
Genetic And Metabolic Disorders
Diagnosis Metabolic disorders
and biochemical genetic tests
List of rare diseases Wikipedia
IOGA (International Organization of
Glutaric Acidemia bringing resources
MUCOPOLYSACCHARIDOSES
| mucopolysaccharidoses is a group of lysosomal disorders that are storage disorders. These disorders are caused when an enzyme that is needed for the breaking down of the sugars and fats in the body is deficient or missing, then causing the incompletely broken down materials to remain stored and accumulate in the cells in the body |
Genetic Resources & Gene Therapy
| Find what new clinical studies are being done for studies offering new experimental drug treatments and therapies for diseases such as different types of cancer; Parkinson's Disease growth disorders, metabolic diseases and more |
Human Genome Project Information
IHGT Links
Gene Therapy Info Resources
Introduction to
Chromosome Abnormalities
Innovation-What Are Genes?
how do they mutate?
DIABETE LINKS
Sugar bugs
They have a support network for
families with diabetic children
Diabetes Dictionary
Children with Diabetes
Diabetes parents and kids
info for teachers
Cancer & Brain Tumors
ABTA's Dictionary for
Brain Tumor Patients
American Brain Tumor Association
Developmental and Metabolic
Neurology at NIH
Lacy Bunny2's bryansong.html
links for parents with children with cancer
Traumatic Brain Injury Glossary of Terms
Traumatic Brain Injury Resource Guide
Teratogens & Pregnancy
| Sometimes birth defects are caused by Teratogens that you are exposed to during pregnancy, Teratogens are considered to like be alcohol, both illegal or prescripton drugs and over the counter medications; infections like strep, chicken pox herpes, rubella; exposure to environmental factors spray of insecticides, lead paint, or just evn changing a cat litter box |
Drugs in Pregnancy and Lactation
Birth Defects, Syndromes,
& Malformations Anomalies
Hand Surgery Links
UW Orthopedics and
Sports Medicine
Electronic Textbook of
Hand Surgery
OrthoGuide.com Orthopedic Search
Engine and Orthopedic Surgery
Trigger Finger
A Patient's Guide
to Trigger Finger
Carpal Tunnel Syndrome
A Patient's Guide to
Carpal Tunnel Syndrome
Hip Articles
has Information Regarding the
Surgery for Hip Replacement
OCCUPATIONAL THERAPY
AOTA-American Occupational
Therapy Association
Occupational Therapy Helping
Children Pty Ltd
X-RAYS & ANATOMY
Bare Bones Radiology
explaining x-ray exams
Easy explained information
about MRI, Cat scans
Human Anatomy
Online-InnerBody.com
Virtual Children's Hospital: Pediatric
Radiology Teaching File
Musculoskeletal disorders
ANESTHESIA
Greater Houston Anesthesiology
tells you everything about anesthesia
Packard Hospital Anesthesia
Dept. Home Page
Anesthesia Net
an interactive website dedicated to helping
the patient who is preparing for surgery
understand the experience of anesthesia.
This one is about:
Submucous Cleft Questions
The Invisible Cleft
What is a Sub-Mucous Cleft?
HOSPITAL DIRECTORY
Children's Health at Doernbecher
Children's hospital located
in Portland, Oregon
The Hospital For Sick Children
Hospital Web USA
Directory of all hospitals in USA
Mayo Clinic & Foundation
for Medical Education and Research
The Murdoch Children's Research Institute
Portland Shriners Children's Hospital
Our Other Medical Pages
You will find links to wish foundations specific
foundation resources, disabilities, medical sites
Special Need home Pages, asthma, ear infections
Tons of Medical Links
For researching info, we have medical search boxes
and links on our page to (Hon, Medline, Med Explorer)
also to online medical journals, health web pages, etc
Medical Search Engines
Here, you will find information and resources
for special education, learning disabilities
speech disorders, and federal disability laws
Special Education Links
Here is a large variety of parent support links
to health message boards, parent-to-parent
match ups, organizations, support groups
Parent Support Links
Please sign our Guestbook and share what
types of information you were looking for
or what type disorders are of your interest
Here is the page I created for my
daughter Ashly, who has Geleophysic
Dysplasia believed to be a different
Metabolic Lysosomal storage disorder
 thank you Ginsmaru |  |  |
I would like to thank Witchway
for this children's site award
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 |  |  |
 | | Jo's World This is where most of the graphics came from |
Poetry l Wav's l Fun Links l Links l Other pages l Kids Links
Medical Links l Medical Links II l Medical Search Engines l Education
Parent Support l Parkinson's Disease l Ashly's Disorder l Ashly's Story
Search Engines l Search Engines II l Directories l Webtools l Software