Hi my name is
Ricky and I
am 17 years old.
My mom and
I are doing this
page to let others know that it is ok to be
different.
I was
diagnosed with Juvenile
Diabetes April 1998.
I would like
for you to take
a few minutes of your time to read about me (and so many other
kids in
the world) who have juvenile diabetes yet no one knows how to
stop this
disease.
THIS IS
HOW MY LIFE WAS
BEFORE I STARTED PUMPING
My day
began at 6:00 every
morning, no sleeping in for mom or me. The first thing I did is
prick my
finger and do a blood sugar test with a meter to check and see if
my blood
sugar level is where my doctor wants them to be for me. I have
breakfast
by 6:15 after 2 shots, then a snack at 9:00, then lunch by 11:00
after
another finger stick, then a snack by 2:00, then dinner by 6:00
after another
finger stick and another shot, then another shot and snack at
8:00 and
then bed by 9, between midnight and 2 a.m. to make sure I am
not to low
during the night mom does another finger stick while I am
asleep if my
numbers weren't right when I went to
bed.
I have to eat at specific times because the insulin is timed to
"peak"
at certain times of the day. My fingers do get sore because I
have to get
it stuck at least 6 times a day (and that is if I bleed the first time
I'm stuck) and that is on a good day. I get shots in my arms,
belly, legs
and bottom. Since diagnosed I have had to have at least 50,000
sharp objects
entered into me weather it be injections or finger sticks and that
isn't
counting extras, like the weeks I was in the different hospitals
because
of prolonged highs or to many lows, that is just shots and finger
sticks
at home. I have even gotten an infection in two of my fingers
where I could
not even use them to pick up a pencil they were swollen and full
of infection.
As you can
see that even though
I do have a daily routine, insulin is not a cure but it is to help
keep
me alive so that I may be like other "healthy" kids my age. If I do
run
and play harder than usual I risk having low blood sugar. This
can cause
a possibility of convulsions which is life threatening and harmful
to my
brain development. I can also get sick from high blood sugar
and that can
cause possibilities of a diabetic coma. Which I have already
experienced
both of these already. Since diagnosis I have had so many
highs and lows
that the doctors don't even know how to fix it or how to handle
it.
When I catch
a cold, illness
or even the normal kids stuff (chicken pox, poison ivy etc.) we
must be
even more careful so I don't end up in the hospital. For even
these can
be dangerous. Even with my added diagnosis of ADHD
(Attention Defisit Hyperactivity
Disorder) if I dont take my medication for it I can get crazy
readings
and then I am on the roller coaster of ups and downs
again.
As I grow up
with this disease
I face the possibility of blindness, kidney failure, nerve damage
or amputation
of my arms or legs and yes even cancers (so no having cancer
isn't better
than this now is it? Although next to it or HIV/AIDS this disease is the next top ones for children) These are just to name a few complications
that may
occur. It is really tough for my family and those that I know for
they
all need to know what to do if I go into shock or get
sick.
Those with
this disease will
continue to live with a daily routine like this unless researchers
can
find a cure. There have been some breakthroughs but nothing
can help me
right now we can just take each day as it comes and keep
going on. They
feel they are on their way to discovering a cure, but it does take
money
to help those that will come behind me with this
disease.
ALL OF US
DREAM OF A CURE
AND BEING "NORMAL KIDS" Ricky has told me time and time
again that God
helps him with this everyday just so he can tell others that it is ok
to
be different and to want the same kind of lives other kids
have.Even though daily he changes his mind on what he wants to be because if he cant get his numbers under control then he cant even get a
drivers permit for the doctors wont sign off on his condition so he can obtain it like normal teens.
STATISTICS
TO ASTOUND -- We
also found that there are more diseases in the USA that get help
of one
type or another from State or Federal moneys that can be
cured, but yet
our children sit by the way side and wait for someone to care
enough to
say "Ok enough is enough lets help them live their lives to".
Today kids
with quite a few diffrent diseases or problems can't get health
care like
"normal" kids. And the worst part is "our" kids can't get life
insurance
until they are "so old" or "you are stable" or "you have lessening
problems"
(these are just a few reasons I personally have heard explained
to me why
I can't get my son life insurance).
SUPPORT
TO LIVE-- Please all
we are asking that all that see this page help us to bring to the
attention
of the State and House of Representatives that moneys are
needed for research
and help for our kids. Lets get real this is not just going away
there
are more and more children with this every day (diagnosed every day is 13,000 children)then there are the ones that are dying
but yet who
is taking notice-- the families that have to love their children then
watch
them fall apart health wise.
IT IS TIME TO
STAND UP AND
FIGHT!
However, we
can not do it
alone we need alot of folks to send emails (or send the email to
me and
we will forward it to them for you), letters, calls and visits to their
chosen Representatives.
Please help
us to help our
kids be like the other kid in class!!!!!
MOMS NOTES