Mary provided perinatal hospice services for me and my family and she helped us advocate on behalf of our unborn child.
(631)666-6873x203
website:www.hospicecarenetwork.org/support.html
Contact your local hospice–hopefully they will provide perinatal hospice services.
2. Sacred Heart Roman Catholic Church–N. Merrick, NY.
Sister Patricia Turley, CSJ and Reverend Thomas G. Gallagher were extremely supportive and compassionate.
(516)379-1356 x19 (Sister Pat)
website:www.hearttoheartparish.org
3. Potter’s Syndrome online support group: http://www.potterssyndrome.org
This is an online support group where parents who have lost babies to Potter’s Syndrome or are pregnant with a Potter’s baby share stories and receive support.
4. Grace Anne Nugent website: www.graceannenugent.netfirms.com
The beautiful story of my friend, Chris Nugent and her family. Her daughter Grace was diagnosed with a fatal genetic condition in utero.
5. Guardian Angel Perinatal Support Group (GAPS):
Martha Weiss, LPN and founder of GAPS was a tremendous help to me after Jonathan’s death. GAPS is sponsored by the Office of Laity and Family within the Catholic Diocese of Rockville Centre. It is a registered SHARE Group of the National Share Office located in St. Charles, Missouri.
(516)249-8589
email: martyk9@optonline.net
6. Letters to Gabriel by Mary Garver Santorum:
The story of a family’s journey with their son who had a fatal kidney condition.
7. Waiting with Gabriel by Amy Kuebelbeck:
The story of a family’s journey with a difficult
pregnancy and the difficult decisions they made.
8. Misty by Carol Gift Page:
The story of a family’s journey with their daughter, Misty, who was diagnosed with Trisomy 18.
