|Signed on:||Monday, March 12, 2001 at 6:36 AM|
|Comments: I had a molar pregnancy in April 1999 and was given the all clear in October 2000 to try again for another pregnancy with the least possible risks of it happening again. I have been to the doctors today and had a new pregnancy confirmed, I am very nervous and have asked to be scanned as soon as possible to eliminate a further molar....Has anybody else had a successful pregnancy after a molar?|
|Signed on:||Monday, March 12, 2001 at 8:40 AM|
|Comments: Well I am unsure as to what a molar pregnancy is but I searched under Anencephalic and this is what It brought up, by reading the entries it has helped me cope a little better with my situation, a year ago tomorrow I gave birth to my son "ANGEL" at 18 weeks knowing inside that it was the best thing to do knowing that he wouldnít live long an hour at the most, It been hard the past couple of weeks wondering who may have looked like and his accomplishments in the 1st year. by reading some of the stories on this site its has helped me to know there are women out the feeling the same things I feel and coping with them moving on and having successful pregnancies. I have recently decided to try again as they gave us a 98% chance of having a healthy pregnancy next time around. My fingers are crossed and praying for the best. Please feel free to e-mail me. I wish all of you luck in your future endeavors.
To my son in heaven above: "MOMMY LOVES YOU ANGEL" HAPPY BIRTHDAY!!! 3/13/01
|Signed on:||Monday, March 12, 2001 at 6:59 PM|
|Comments: Hello.. Just wanted to let you know that I know what you went through and I wish you the best of luck... As I just had a D&C done (Mar 1st 01) since I had a molar pregnancy that went into the muscle.|
|Signed on:||Tuesday, March 13, 2001 at 2:45 AM|
|Comments: Dear Kendra, Today I learned my niece just had a D&C because of a molar pregnancy, which I had never even heard of; so I was so glad I found your website. Reading your personal story has been very informative. It must have taken enormous courage to tell your story, but your selflessness will help many. I'm sure Nina is very proud of you! Can't you just hear her bragging: "that's MY mom".
Ginny in Md.
|Signed on:||Tuesday, March 13, 2001 at 2:07 PM|
|Comments: I was advised I had a molar pregnancy at 9 weeks, thinking I was going for my 12 week scan, to be told there was no baby there, just some nasty cells.|
|Signed on:||Wednesday, March 14, 2001 at 2:13 PM|
|Comments: Today I found out that an ex-coworker's wife miscarried. She had a molar pregnancy--and they too have to wait awhile before trying again. I had no idea how serious a molar pregnancy could be. I don't know what it is to go thru a molar pregnancy but I do know what it is to lose a child, all the thoughts and aspirations suddenly gone. In Jan. 1998 I miscarried after 7wks gestation, (we had just married, Nov. 1997) and I had to have a D&C done. My husband and I were devastated. We were scared about going thru this again and so we waited until Jan. 2000 to try again. Jan.(nothing happened), February (a big ?--there was a positive indication but 2days later I bled and my doctor said I miscarried)--again heartbroken, my husband & I decided to leave it to God. My doctor suggested we do the ovulation test and plan our pregnancy before further testing. And so we did, March (tested--OK), April(tested--OK), May--we decided to go for it, the right days came and we went for it. June came around and expecting to get my period, (it never came), we waited another week and took the BIG TEST and WOW--a strong pink line almost automatically appeared, you could just imagine our faces. Well, to end this long wonderful story, my doctor confirmed our pregnancy and our due date was January 29, 2000. On January 28, 2000 at 1:54 am--our beautiful little Bianka Marcela was born. So I guess the lesson is God will always be there if you strongly believe and never give up. Never give up Kendra--your other little girl is waiting for you.|
|Signed on:||Saturday, March 17, 2001 at 9:38 AM|
|Comments: Just to let you know that your are in my thoughts and prayers. You must be real strong to fight the way you did for your life and the rest of your family. God works in mysterious ways.|
|Signed on:||Sunday, March 18, 2001 at 7:40 AM|
|Signed on:||Friday, March 23, 2001 at 8:52 AM|
|Comments: I had a molar pregnancy when I was 20. I didn't know much about it then. I was angry because no one could ever tell me why? Or give me the answers I wanted to hear. I was pregnant when I was younger and miscarried. I was pregnancy twice after that and miscarried as well. I am now 27 and no successful pregnancies. I have had a lot of test ran, and even had a laparoscopy. Everything seems fine, no reason why I couldn't have a healthy pregnancy. I haven't been actively trying but not using any protection and still haven't come out pregnant. I wish the doctor would say yes, you can have children. But he can't. I just have to wait and see. My last pregnancy was March 96 and miscarried April '96.|
|Signed on:||Friday, March 23, 2001 at 9:22 AM|
|Comments: Page has been a wealth of information. I found out approximately two weeks ago on a Sunday that I was pregnant by taking a home pregnancy test, had another test at the doctors office on Monday which was also positive and took yet another home pregnancy test on Wednesday morning to confirm yet again a positive result. By Wednesday evening I began to have severe cramping and bleeding. An ultrasound was performed on me on Thursday and I was told following that that I was not pregnant and what they suspected was the reason for the positive pregnancy test was a partial mole. I underwent a D & E on Friday morning. The results from the D & E were sent out for review by a pathologist. On Tuesday I learned the results that it was indeed a partial mole. I am now undergoing the weekly blood tests to monitor my HCG levels. Before my surgery, my HCG level was 64,232 and following my first blood test after the surgery it was down to 2,588. I'm waiting now for my follow-up appointment with the doctor to see how long I'll be having blood tests done and when my husband and I can begin trying again. My body has seemed to heal physically from this, but emotionally, I still seem like I could sit and cry most of the day thinking why me and what happened to cause this. Thank goodness I have a good husband who is trying to help me as much as he can.|
|Signed on:||Friday, March 23, 2001 at 1:19 PM|
|Comments: We just lost our daughter, Taylor Jean, this December (12/5/00), at 19 weeks, due to a molar pregnancy. She also had triploidy. I am still being tested once a month for cancer. So far so good. We miss her terribly and I understand what you have been through, even though I haven't read your story yet. I will say a special prayer for Nina and Taylor Jean, they may meet and play together until we can join them.|
|Signed on:||Friday, March 23, 2001 at 2:37 PM|
|Signed on:||Saturday, March 24, 2001 at 12:58 PM|
|Comments: Thank you for writing your story. It helped me come to terms with my molar pregnancy and all that I might have to endure. Your story helped me not feel so alone and isolated. I realize that there is an end in sight may it be sooner or later and that I CAN get through this!:-) I had a D&C on Thursday March 22 @1PM.Now everything is beginning to heal, body and spirit. Once again THANK YOU! GOOD LUCK and enjoy your new son, someday I will be there again as well I hope. Sincerely, Gillian|
|Signed on:||Saturday, March 24, 2001 at 7:49 PM|
|Comments: lookin for info on molar pregnancies|
|Signed on:||Sunday, March 25, 2001 at 7:23 AM|
|Comments: Thank you for your story. My thoughts and prayers go out to you and your family.|
|Signed on:||Sunday, March 25, 2001 at 10:27 AM|
|Signed on:||Sunday, March 25, 2001 at 2:37 PM|
|Signed on:||Monday, March 26, 2001 at 9:44 AM|
|Comments: great site|
|Signed on:||Monday, March 26, 2001 at 3:00 PM|
|Comments: Thank you for writing your web page it has given me a lot more aspect about this subject; after seven months I am starting to understand better of what has happened to me. Thank you.|
|Name:||Dana A. Duehring|
|Signed on:||Thursday, March 29, 2001 at 11:52 AM|
|Comments: Sorry to hear of your loss.|
|Signed on:||Friday, March 30, 2001 at 8:12 AM|
|Comments: Hello. Today myself and my husband found out we have lost our baby. It may have been a molar pregnancy. We must have further tests to confirm. Please write and help me through this.|
|Signed on:||Friday, March 30, 2001 at 9:44 AM|
|Comments: Iím so sorry that is sooo sad|
|Signed on:||Saturday, March 31, 2001 at 1:33 PM|
|Comments: You are an angel, thanks a million for this info|
|Signed on:||Sunday, April 1, 2001 at 2:01 PM|
|Comments: My daughter was only sixteen when she had a molar pregnancy, she had all the symptoms of being pregnant but was told after an ultrasound that there was nothing there. She had all the symptoms of severe morning sickness and these persisted. She was at the doctors because of this, and she started to hemorrhage severely, the ambulance was called and a D & C was performed. Before she had the D & C she was in Emergency and went a horrid grey color and started to stiffen all over, she couldn't even talk. (This is when I thought I was going to lose my baby.) Her HCG levels were at 250,000. We couldn't understand why she had been left for some months with nothing being done to help her, until we found out that the original ultrasound had not even been reported on. This first D&C was performed just two days before New Years in 1999. Catherine had all her blood tests and they continually dropped in levels, but she was still continually bleeding. She became anemic and was this time given another D&C and three units of blood. As you can imagine for one so young this has had an awful effect on her mental stability. Catherine is almost eighteen now and still mourns the child she could have had. She is still having her blood tests and will do so until the end of 2001. We have all been so scared of the cancer that could take her still. We pray for anyone else that has to go through this nightmare and we pray that they return to good health and have a wonderful life and many children.|
|Signed on:||Sunday, April 1, 2001 at 7:02 PM|
|Comments: I am so devastated by having a molar pregnancy. I was diagnosed at 9 weeks and on March 21, 2001 I had a d&c. My doctor did not know that I had a molar pregnancy until the pathology report was received back. When I first went to her office my levels were 30,000 but they have last dropped to 1,000 but I am still not out of the clear. This experience is so very upsetting to me because I do not know what is happening to me. What have I done in my young life to deserve this monstrosity? I am so petrified that I might get cancer that I can not function on a day to day basis. I just want to quit my job and sink into a black hole. I have always been a strong person but this has broken me down to a weakling. I just want to know why this happened. I am glad that you had the strength and the courage to find this website because heaven knows there is not much info on this topic. I am going to visit a oncologist and a herbologist to help me. I wish everyone who has experienced this molar pregnancy the best.|
|Signed on:||Monday, April 2, 2001 at 2:23 PM|
|Comments: Iím sorry to hear that wish you lots of joy and luck|
|Signed on:||Wednesday, April 4, 2001 at 9:22 PM|
|Comments: Thanks for putting your story on this site. I am a CM, CPM, practicing in Utah. I have a dear Friend that has gone through this experience in the last year. The heartache she has felt is tremendous. I am going to let her know about your site. My heart goes out to you! May God Bless you! Melody|
|Name:||Mitchell & Kristi Sirlin|
|Signed on:||Friday, April 6, 2001 at 6:24 AM|
|Comments: Hi there. To make a long story short, we had a molar pregnancy just over a year ago. My wife is pregnant again, about 9 weeks. We went to the doctor this past Monday and her uterus feels enlarged again. We are very nervous. We have a sonogram later this morning... wish us luck. M n K Sirlin|
|Signed on:||Saturday, April 7, 2001 at 11:48 AM|
|Comments: This past November, 2000 I was pregnant with my 10th pregnancy. I have had 2 daughters, but lost their multiples as well. On our 12th week check up there was no heartbeat. Ultrasounds confirmed our child died on Christmas Eve, as I was opening gifts for it. My husband was to go to San Francisco in two days so we were offered an immediate D&C. I'd never had one and needed to give birth to this one, to finally let go, I guess. A month later I started bleeding for 5 weeks. We found out I never had the baby. I had to have the D&C I begged God not to make me endure. Three days later my uterus more than doubled and I had another D&C. In recovery my doctor said something about molar pregnancy, cancer, no pregnancies for at least a year, and weekly blood tests, those HCG's that had always told me my babies were dying again and again. My HCG was 4,000. No one ever told me pregnancies would give me cancer! My husband says, "Just as long as you are ok" (meaning cancer free). How do I get him to understand that if I can never produce another healthy child that I will never be ok again?! For some reason the cancer part doesn't scare me as much as infertility does. Go figure. No one understands how it feels to have so many children die inside of me. Why can't I be happy with these beautiful girls? Why more? Why breathe? Why God?
I will pray for all of us on this book, and those who read it looking for answers. God be with us all.
|Signed on:||Tuesday, April 10, 2001 at 10:39 AM|
|Comments: I just had a partial molar pregnancy. I am very sad. But your story has been very informative. Thank you. Virginia|
|Signed on:||Wednesday, April 11, 2001 at 5:54 PM|
|Comments: I had a miscarriage sat (march 31 2001). I just found out that I had a molar pregnancy, and that I could get cancer. I haven't gone for my first appointment to check my HCG yet, I'm really nervous. The thought of having cancer scares me so much. If you have any advice, I would really love to hear it.|
|Signed on:||Thursday, April 12, 2001 at 10:29 AM|
|Signed on:||Thursday, April 12, 2001 at 2:14 PM|
|Comments: My daughter who is 18 just was diagnosed as having a molar pregnancy after having a miscarriage last week and I want to learn more.|
|Signed on:||Thursday, April 12, 2001 at 8:48 PM|
|Comments: I found out that I was pregnant on Dec. 30, 2000. When I went for what should have been my 11 week checkup, my doctor discovered that I showed only a 7 week pregnancy and no heartbeat. I went in for a D&C the next morning. It was determined 3 weeks later that I had had a partial molar pregnancy. As if the heartbreak of having a miscarriage wasn't hard enough, now I was told that I had to wait months before we could try again and my health could be at risk. My husband and I were inconsolable and completely devastated. When I went for my first blood test 8 weeks ago we were pleased to find that my HCG levels were at 95. Since then it has dropped to 19 (it was 20.4 last week). The waiting is agonizing and I cry nearly every day thinking why me. I just keep hoping and praying that my levels get to 0 soon and I also pray that I'll be able to have a healthy normal pregnancy one day. Thank you for listening and I would love to hear advice from anyone else who has experienced a partial molar pregnancy.|
|Signed on:||Thursday, April 12, 2001 at 11:53 PM|
|Comments: Thank you for your story. I too had molar pregnancy, had the D&C, tumors grew back and had to have chemo. The doctors were telling me the chemo was shrinking the tumor(s) and they should be the size of a golf ball but I knew differently. I felt like I was 4 months pregnant but they said it was just that my uterus was swollen etc. To make a long story short, the chemo started damaging my liver and we were at a crossroads, whether to start a stronger chemo or have a hysterectomy. We went with the hysterectomy, and while the doctors were operating they found the tumor had grown to the size of a football. Its now year later and my HCG counts have dropped to 1 now. I'm still going for blood work every 3 months waiting for the 1 to go to 0. I pray that I am in the .0001 percentile and that this does not happen to anyone else. If anyone has a similar story and their counts haven't dropped to 0, I would be interested in hearing from them. Thanks.|
|Signed on:||Friday, April 13, 2001 at 12:07 PM|
|Comments: I enjoyed your web page. I to just got the results of a molar pregnancy. I have never heard of this before and your web page helped me understand that I am not alone in my thoughts. Thank you for your honesty and your time that you put into this web site. Debbie and Allan Smith|
|Signed on:||Sunday, April 15, 2001 at 5:45 PM|
|Comments: I just had a D&C April 13 2001 because my u/s was suspicious of a molar pregnancy. I am still waiting for my pathology report, so I don't know at this point if I had a miscarriage or a molar pregnancy. I am scared. It's hard to deal with the loss of my baby, but to deal with the possibilities of this being something more is very frightening. Thanks for sharing your story; at least I'm not alone. There isn't much info out there. Thanks again, Colette|
|Signed on:||Monday, April 16, 2001 at 11:57 AM|
|Comments: I just found out that the D&C after my full molar pregnancy was not successful. On with the methotrexate! I have had wonderful doctors and staff who have answered every question to the full extent. I was sent to an oncologist as soon as the molar pregnancy was diagnosed, and I have felt very safe in his hands. Thank the Lord that I have 2 healthy children at home; if this had happened with the first on, I don't think I could have stood it. Thank you for all the information you offer here on this site. It helped me feel more confident as I went through my testing.|
|Signed on:||Wednesday, April 18, 2001 at 2:30 PM|
|Signed on:||Wednesday, April 18, 2001 at 8:31 PM|
|Comments: My daughter, Kelly, has just been diagnosed with molar pregnancy. I don't know yet if it is a "partial or not". I live in Oregon and she is in New York with no spouse. The boyfriend took off. She miscarried at 8 weeks.|
|Signed on:||Thursday, April 19, 2001 at 2:01 PM|
|Comments: WOW!!! to finally have found some great info about this!!! I had a Molar Pregnancy about 2 years ago and just now finding enough information on it!! Wasn't a terribly sad time for me as I already have 3 boys (and had just had numerous x-rays and was in the state of mind we were having a deformed baby) , but after the ultrasound and the d&c and blood taken for 2 months...got the all clear!...very scary for somebody/anybody to go through!...I never even heard of any such thing as this...UNTIL it happened to me!!! I hope you all find great peace and for you trying to get pregnant again. BEST OF LUCK!!|
|Signed on:||Thursday, April 19, 2001 at 8:42 PM|
|Comments: I feel empty inside. And no one can understand why? I pray to God every single minute of my life to help me have a family. Iím 27 years old, had a molar pregnancy. Levels below 3 15 days after, 1.67 1 month after. Hoping for 0 three months after the operation.
Congratulations on your strength and beautiful family. I will think of a name for my tiny baby lost in January 2001.
|Signed on:||Friday, April 20, 2001 at 11:12 AM|
|Comments: Thank you for your site.|
|Signed on:||Friday, April 20, 2001 at 6:21 PM|
|Comments: God Bless you, for all you have gone through. My continuous thoughts and prayers are with you and your Angel, Little Nina. Allison|
|Signed on:||Saturday, April 21, 2001 at 1:37 PM|
|Comments: I looked it up because my daughter has had a molar pregnancy. She will be going into the hospital to have a D&C Monday next week. This is really scary because she has always been healthy. Now it feels as if she could be gone from this earth. They did not know it until she was in her 4th month, because she was on some birth control that stops a woman's period. Is it too late?|
|Signed on:||Saturday, April 21, 2001 at 2:19 PM|
|Signed on:||Sunday, April 22, 2001 at 12:29 AM|
|Comments: It has been a little over a month since I found out I had a complete molar pregnancy. This would have been our second child. My husband and I were very excited and had already started telling our other child about the "baby" in mommy's tummy. We were also happy because my best friend was pregnant also. We had a lot of plans. When they couldn't hear the heartbeat at my appointment they suggested that it could just be too early. So I made an appointment for the next week. They had a hard time this time also, so they sent me to another office to see if they could hear it. Then they did a sonogram. Finally they said that I had to go to another hospital and get a different kind of sonogram. As I laid there on the table, my mind started to race. After the sonogram, the doctor on call called me and told me that I had a complete molar pregnancy and that I would have to have a D&C. I melted. I couldn't breathe. When we came home that night, I pulled this site up to get more information. It gave me so much information; it helped me not to feel like a freak, the story was so similar to mine. My husband was frustrated that maybe I was reading information that would scare me. I was scared. I still am. We prayed and prayed that the "diagnosis" would change before the surgery on Tuesday. I was so frustrated in a selfish way that now I was in that group of women that have a hard time getting pregnant, that I would be paranoid the next time I got pregnant (if I do), then I would see young girls that would be pregnant who should be enjoying their teen age lives instead of having a baby. I know it is selfish. My husband and I are wonderful parents.... I feel so empty; I find my self thinking that I am still pregnant. God has given me so much strength. I know he has a plan for me. I had my first blood test, my hcg level was at 400, supposedly that is good. Thank you for letting me "talk" about this. You start to feel like you are getting on people's nerves. They wonder why you haven't gotten over it yet "since it wasn't really a baby". I appreciate all these stories. It is such a comfort. I will pray for you all.|
|Name:||Fred & Violet Liberatore|
|Signed on:||Sunday, April 22, 2001 at 5:00 PM|
|Comments: I just returned back to work today from a very sad and long weekend, my wife and I on Friday went for our first 12week check up only to find out that there was no heartbeat? We were casually told from an ultrasound that baby is dead and that devastated us as we are newly weds and this is the second time this has happened as we just experienced a miscarriage a few month prior, how do I look at this in a positive way? Only good that has come out of this is that my wife is of good health and the diagnosis looks like a partial molar and the doctor was happy with the surgery, in my point of view and my wifeís we do feel that it has drawn us closer together as soul mates, but why should it take an experience like this. I feel like God owes me but I know he is teaching me I can forgive and love and serve all beings. Thank you for allowing us to express our inner selves. With love, Fred & Violet|
|Signed on:||Monday, April 23, 2001 at 12:48 PM|
|Comments: What a time you have had! I am a labor & delivery nurse as well as an OB case manager for an insurance company & I often search the web for info on problems that come up with pregnant women in my caseload. Your site was one I found through a search engine & what a GREAT job you've done!! Such good info & links as well as your own feelings about what happened. Too often, health care providers forget how patients feel when dealing with a pregnancy loss- no matter how nurses & doctors may feel; a molar pregnancy IS a loss of a pregnancy for the family involved. Congratulations & kudos to you for your willingness to share your experiences with others!|
|Signed on:||Monday, April 23, 2001 at 1:00 PM|
|Comments: I'm awaiting the results of a battery of blood tests/ultrasound readings to determine the status of my pregnancy. No embryo has been visible on either ultrasound and, by the testimonies of other women with this experience, it sounds as if I may have a molar pregnancy. I can only continue to pray as I wait. ZTC|
|Signed on:||Monday, April 23, 2001 at 1:36 PM|
|Comments: I'm really sorry about your little girl, I'm very glad that you took the time to create this page for your little girl. I am truly sorry for your loss. Amanda|
|Signed on:||Monday, April 23, 2001 at 3:08 PM|
|Comments: I had a complete molar pregnancy in December 1999. My HCG levels went down. I waited my full year. Everything looked good. I and my husband were ready to try again. 3 months after we started trying I was told I was pregnant. We were so happy. Then it happened all over again. They told me I miscarried. I had a D & C on April9th. Now they are saying the tissue is suspicious and they believe it may be another Molar. I haven't found our for sure yet, but the doctor does not seem hopeful.
Thanks for the site. I'm glad to know I'm not the only one feeling this way. Malia
|Signed on:||Tuesday, April 24, 2001 at 7:48 AM|
|Signed on:||Thursday, April 26, 2001 at 10:30 AM|
|Comments: I am so glad that you made this website. It has helped me out a lot to understand what my friend is going through.|
|Signed on:||Friday, April 27, 2001 at 12:43 PM|
|Comments: Thank you very much for sharing your story. I just returned from the doctor who thinks my pregnancy may be a molar pregnancy. Because the HCG Levels kept going up like a viable pregnancy I was devastated during the ultrasound when they couldn't find the baby. Although this is still not over (they are running another HCG Test and I have another ultrasound next week), after doing some research, including your website, I am becoming more accepting of my pregnancy's fate. Thanks again for sharing your story and I wish the best for you including any future pregnancies you have.|
|Signed on:||Friday, April 27, 2001 at 3:17 PM|
|Comments: PLEASE WRITE ME IF YOU KNOW WHAT CAUSES THESE MOLAR PREGNANCIES.|
|Signed on:||Friday, April 27, 2001 at 8:07 PM|
|Comments: Hi. My name is Eileen Riston, my daughter Korri Porter has had 3 pregnancies all ending in miscarriage. I'm almost positive at least one was a molar pregnancy, they told her no baby formed the first time. This last time they told her that something was there but not exactly what. I'm very confused and extremely worried about her physical and emotional well being. I'm also very anxious for my first grandchild. I'm 45 years old, Korri is 21. Any information you can give to us would be greatly appreciated. Your story is sad but it is wonderful that you've shared this with other women who might be having this same problem. Thank you for your concern and best wishes with future pregnancies I didn't finish the whole story, but I did see that you have a second son. May God bless you and yours and thanks again. Eileen Riston|
|Signed on:||Sunday, April 29, 2001 at 7:36 AM|
|Comments: Just found out my sister in law has been diagnosed with molar pregnancy. She will have a D & C on Monday. Your story has really helped me understand what has happened to her. I am truly grateful for having found this web site. You are a strong woman, Thank you for your story! God Bless you!|
|Signed on:||Sunday, April 29, 2001 at 7:49 PM|
|Comments: My name is Yessenia and reading your story made me understand that we are not alone. Ito had a molar pregnancy at the age of sixteen. I was five months pregnant when this happened to Paul and I. I have got to say that it was one of the hardest things our lord put us threw but it's something that we cannot change. Though we all wish we could rewind the past and fix what goes wrong for us but we can't. It was so hard for me to understand what had happened I had never heard of a molar pregnancy. And it had never occurred to me that it would happen to me. But it was something that god wanted for me and I have learned to accept it. Now a year and a half later I'm pregnant again and we are both very excited. Though in my heart I know that Paul I will be able to have kids there will always be one missing.|
|Signed on:||Monday, April 30, 2001 at 2:19 PM|
|Comments: Kendra, I miscarried Saturday, April 28, 2001 from a molar pregnancy. After having two full term uncomplicated live births I thought I knew all I needed to know about pregnancy. After the diagnosis I realized I had a lot to learn. I came to your web site and found your beautiful insight and good information. Thanks for doing the homework.
"And, we know that all things work together for good to those who love God, to those who are the called according to His purpose."
Romans 8:28 (NKJV)
|Signed on:||Monday, April 30, 2001 at 5:19 PM|
|Comments: Very powerful story and it touched me. I am currently attending nursing school and I was very interested in many different kinds of things to learn on pregnancy. I also am working at an ob-gyn office. Just wanted you to know how powerful your story was......|
|Home Web Site:||http://babyangelshawn.homestead.com/index.html|
|Signed on:||Monday, April 30, 2001 at 10:24 PM|
|Comments: First let me say how sorry I am that you have had to endure so much. It is hard enough to loss a child but to go through fighting your own battle to save your own life must be that much more overwhelming. You are a strong lady and I admire you.
You have done an great job in explaining Molar pregnancy and I feel I have learned something I never would have otherwise. I also lost a son, he was 32 weeks gestation and survived only a few minutes. He had a disease called ARPKD (Polycystic Kidney Disease) one I had never heard of. When I went on the internet I was like you, there wasn't a lot out there to find on the subject and it took lost of work but now I have found many things and I dedicate a special page just for ARPKD so maybe I can help others.
Well I just wanted to tell you how sorry I am and may God Bless you and keep you safe.
|Signed on:||Tuesday, May 1, 2001 at 1:10 PM|
|Comments: I really appreciated reading your experiences on the website. I found out April 24th, at my 14th week Dr's appt, that I miscarried. I went in for a D&C on the 25th and found out today that it was a partial molar pregnancy. This is my second miscarriage in 6 months. I don't know the cause of the first but by doctor ordered additional tests for this one. I'm 31 years old and we just started trying to start a family last fall. We conceived very quickly in both cases but it led to false hopes with both resulting in miscarriages. I will begin the HCG monitoring and hope that the cells do not come back. It has been a very emotional time, but it's comforting to know that we're not alone and there is hope. Thank you for the time and effort you put into this website and telling your painful story. God bless you and your family.|
|Signed on:||Tuesday, May 1, 2001 at 2:47 PM|
|Comments: My son and daughter-in-law have been told this afternoon that she has a molar pregnancy and I am just trying to figure out what it is. She didn't really understand what the doctor was telling her.|
|Signed on:||Wednesday, May 2, 2001 at 4:09 PM|
|Comments: Thank you for sharing your stories with me. I found out just this morning that I have a partial molar pregnancy, so of course here I am scouring the Internet looking for information. This site is so helpful and is helping me to understand what is going on inside my little body. I am scheduled for a D and C in 2 days. My husband and I are so disappointed, as this is our first pregnancy. We have high hopes for a child and know that it will happen.|
|Signed on:||Wednesday, May 2, 2001 at 4:42 PM|
|Comments: I was also diagnosed with a molar pregnancy. I had a D&C in January, I was 2months and my stomach was really big. I now have also been taking HCG test since 1/01 every week. It is now less than three. My boyfriend and I want so bad to conceive again, I can't help but to think about my little Hawaiian baby. My heart goes out to all the mother's and father's who experienced the trauma and confusion of this diagnosis. God Bless all our little children "to be" in Heaven. I hope and pray the find a way to prevent this from happening.|
|Signed on:||Thursday, May 3, 2001 at 10:06 AM|
|Comments: I had a molar of pregnancy at the age of 22 and I am 27 yrs old I would love to have a baby but I am scared. You are not alone.|
|Signed on:||Thursday May 3, 2001 at 5:01 PM|
|Comments: I had a molar pregnancy found at 16 weeks gestation after an abnormal triple screen test. I also had triploidy. I went for the ultra sound and the baby was formed but had severe brain and heart defects but its heart was still beating. Seeing the baby and watching the heart beat was the hardest part. I had a D&E two days later, April 13, 2001. At surgery by HcG level was 60,000 and following surgery it has gone down to 158. I am hopeful to be in the clear. I have a two year little boy who I thank god for even more for then before. We hope to get pregnant after a year of monitoring. Thanks for the website.|
|Signed on:||Friday, May 4, 2001 at 10:03 AM|
|Comments: Thank you so much for this wonderful site. I have been married for 6 years and we finally decided we were ready to start a family. At my 8 week appointment, I was sent home after an abnormal ultrasound. (my doctor was not in the office). I was told to come back the next day. I was then casually told that not only was there no embryo, but I was at risk for cancer. What a low blow.
I had a D & C the following week and results came back negative. Since then, my levels have gone to 0 and stayed for the past 6 weeks.
It is nice to have somewhere to go and share my story. A lot of my friends and family still don't know how to talk to me about my experience.
It was a horrible experience, but I look forward to trying again!
|Signed on:||Friday, May 4, 2001 at 12:00 PM|
|Comments: I'm 35 year old woman that 8weeks ago found out that I was pregnant for the first time in my life. No it wasn't planned but I considered it a wonderful thing anyway, at 6weeks they said there was a possibility that it was molar, I had no idea what a molar was and I didn't want to know so I waited for the next ultrasound and they said that it confirmed that it was molar so just this Tuesday I had my D&C not a fun thing to go from being pregnant to nothing.
I have found more information on the web than the doctors were able to give me I know its a rare thing, but shouldn't there be some ready information out there for people like myself a pamphlet or something that a doctor can give you with more information on it that what I was given.
Understand that I like my doctor a great deal I just feel we need to give them tools to make things easier on their patients. Thank you for listening I really needed a place to let it out of my system. Jenn
|Signed on:||Saturday, May 5, 2001 at 12:54 PM|
|Comments: Your website touched me so much. I just lost my baby to either a blighted ovum or a molar pregnancy (we're still waiting for the results). I'm so devastated. What hurts worst is that I feel so alone in my grief. My husband, who works in the medical field, hasn't grieved with me or shown any real sense of loss. I'm thankful for our four year old daughter. Without her, I know I wouldn't be able to continue. And I'm certain I would leave him too. Thank you for your supportive site.|
|Signed on:||Sunday, May 6, 2001 at 3:22 PM|
|Comments: I had a D&C this week (April 2001). I was told the day before that my doctor believed I had a molar pregnancy. I had never heard of this and was not sure what to expect. This site has taught me a lot. I feel your pain. This was my 3rd pregnancy; the first 2 were wonderful and healthy. My husband and I would love to have more children but right now I am concerned for my health. The thoughts of cancer make me ache all over. I have faith in my Lord that this was His plan and I am in His care in the days ahead. Psalm 147:3 states, "He heals the brokenhearted and binds up their wounds." I have peace in Him. Constance|
|Signed on:||Monday, May 7, 2001 at 10:49 AM|
|Comments: Thank you so much your site made me understand so much more I had a miscarriage last month I was six weeks along with my first child. after the miscarriage i had a D&C I went to the doctors a week later and he told me he thought I had a Molar Pregnancy I have been scared out of my mind because all I really understood was that for the last month I have had my blood drawn every. I am 22 years old and want more then anything to have children but now I am so scared to even think about that. Thank you so much for sharing your story.|
|E-mail address:||Bill Casecjestincase@aol.com|
|Signed on:||Tuesday, May 8, 2001 at 8:33 PM|
|Comments: My fiancť and I found out that she has a molar pregnancy and it is very confusing and disappointing. We want to have a family very badly and hope that we can soon. I just pray to the Lord that he will help us through this all.|
|Signed on:||Wednesday, May 9, 2001 at 11:52 AM|
|Comments: Dear Kendra, Thank you for your wonderful website. My daughter in law told me this morning that she has to undergo chemo because her HCG won't go down after 2 D&C's for a molar pregnancy. I feel so sorry for her and am scared but your story gave me hope and I will tell her about it. How are you now? Did you manage to fall pregnant again? I think about all the young women, you included, you suffer from such an awful thing. God bless|
|Signed on:||Wednesday, May 9, 2001 at 12:29 PM|
|Comments: I lost my second baby and had a D and C on 4/27. My first loss (1st pregnancy) was 1/29. I just found out it was a partial molar pregnancy. I have not been able to find any encouraging information. My doctor hasn't given us much information at all. I had Thyroid Cancer in 1996 and am scared to death. The idea of not knowing if I will have cancer for up to a year is so frightening. I was happy to read that there is only a 5% chance after a partial molar. I have not been able to find that kind of information anywhere. I admire your strength and thank you for the willingness to share your story. I have panic/anxiety disorder on top of all this and your story has helped calm me down. I can't ell you how valuable that is to someone like me. My HCG level was 1647 today (12 days after D and C) and I was freaking out because I had read so many postings of people whose levels were down to 500 or less at this point. Your story really helped. Thank you so much. Linda|
|Signed on:||Thursday, May 10, 2001 at 5:09 AM|
|E-mail address:||VICTSAWY1@YAHOO .COM|
|Signed on:||Friday, May 11, 2001 at 1:26 PM|
|Signed on:||Saturday, May 12, 2001 at 6:59 PM|
|Comments: It has been seven years since my molar pregnancy. My heart goes out to anyone who has had to experience this. Just have faith, listen to your doctor, and make yourself well. Don't give up. God Bless|
|Signed on:||Monday, May 14, 2001 at 6:05 AM|
|Comments: Hello Kendra. My name is Stefanie McGrew. I'm 23 yrs old and I too suffered through a molar pregnancy in (November) 1999. I had never even heard of it until it happened to me. It's the most difficult thing I've ever been through. I hope its something I'll never experience again. It was my first pregnancy. My husband and I have since decided to wait a few years before trying again. I want to thank you for this website. It's encouraging to hear from women who have gone through it. I wish you the best of luck. God Bless.|
|Signed on:||Monday, May 14, 2001 at 10:47 AM|
|Comments: Thank You|
|Signed on:||Monday, May 14, 2001 at 4:27 PM|
|Comments: I've had two molar pregnancies within a year how long should I wait to try again???|
|Signed on:||Tuesday, May 15, 2001 at 2:04 AM|
|Comments: I FEEL YOU KENDRA, IN MAY 2000 I HAD A MOLAR PREGNANCY, THERE'S NOT MUCH MORE TO SAY. ALL I CAN SAY IS I FEEL YOU, AS I READ YOUR STORY ALL THOSE FEELINGS OF A YEAR AGO CAME FLOODING BACK.
THANKS I DO NOT FEEL ALONE ANYMORE
SINCERELY, ANNETTE HALL-TAYLOR
|Signed on:||Tuesday, May 15, 2001 at 6:39 AM|
|Signed on:||Tuesday, May 15, 2001 at 11:53 AM|
|E-mail address:||VICTSAWY1@YAHOO .COM|
|Signed on:||Tuesday, May 15, 2001 at 12:07 PM|
|Comments: I had a molar pregnancy in 1994, I never knew any thing like that existed, I was devastated and thought it was the end of the world I was been told not to get pregnant for at least a year, immediately after a year I got pregnant again and at about three months I went for check up again and I couldnít believe again I had another molar pregnancy. I didn't want to believe I went to another doctor sure it was confirmed I had the same problem. I could write a whole book on this. Luckily for me I never develop any cancer. My doctor advise me to have tubal ligation done I wasn't ready for and I just decided to be extremely careful. For the next two years I was living my life and have given all dream of having a child. Then in 1998 I missed my period, I was scared to death, the next day I went to my local clinic, they confirm that I was indeed pregnant. I couldn't sleep that night I was worried honestly I cried because I didn't want to go through another D. & C surgery. The next thing was for me to have the courage to go to my doctor for an ultra sound to be done. My husband at this time didn't known what words to say to me any way he was so sensitive and cooperative. After a day I find the courage to go to my doctor at Hackensack, Medical Hospital. You can imagine the wait and when I enter the room for the doctor to examine. By that time my doctor had already known my condition and history. I wasn't relax at all for the physical examination. My heart was bounding I could say 100 miles an hour, My doctor kept telling to relax and when he laid the telescope on my stomach he kind of had an expressing on his face I jump done the table out of fear and kept asking what was wrong. He asked me to be calm and lay down, I manage to get on top of the table again and the doctor proceeded and put the telescope on my stomach for any baby's heart beat and after a pause the doctor said there is a baby in you and the baby has a strong heart beat. Honestly friends I couldn't control myself I was hugging the doctor and the nurse and I was crying so hard. It was unbelievable after two molar pregnancies I was going to have a baby. It is a very long process and many stories to tell but I can not share all at this time, but after nine months I deliver my baby girl who is now 2yrs 6 months I give all the glory to God and I know it is for a reason I had to go through all my pain. I share the pain for every woman who has to through this ordeal but I pray that any one in this situation or who might have gone through themselves in this situation would find the faith and courage to believe and trust God that he has a plan that we may not be able to comprehend. My daughter is a blessing to me and I dedicate her life to God.|
|Signed on:||Tuesday, May 15, 2001 at 6:04 PM|
|Comments: Hello, I have been reading over my medical records and noticed that I had a complete molar pregnancy which I was never told about. Never had any blood work done or anything. Your situation is sad and I am sorry for your lose. I am still trying to conceive after trying for 17 years. My prayers are with you.|
|Signed on:||Tuesday, May 15, 2001 at 7:05 PM|
|Comments: Iím very sorry for what happened to you. I just had a d&c done 2 wks ago. I thought it was the worst thing that could happen to me being only 18 and trying to deal with this on top of everything. I just found out yesterday that I had a molar pregnancy. Iím not sure what the levels are but I start going to the lab next week. I feel really bad for you. I know how hard it is. I think the hard part for me has already passed by losing my baby. Thanks for the info and I wish you the best of luck with the next one.|
|Signed on:||Wednesday, May 16, 2001 at 7:00 AM|
|Comments: I am going through the whole complete molar ordeal I found out I was pregnant on March 18th 2001 from day one I had slight bleeding the doctor kept pushing it off saying it's part of the "growing" process eventually a month or so later she sent me for a sonogram on April 25th they couldn't see a baby although it was only a sonogram tech she was not my doctor the next day they called me and said I was having a molar pregnancy and the next day I would have to go into the hospital for a suction D&C I was hysterical. Everything I read online only scared me I am only 22 and my family is not local it was just me and my husband. The next morning I arrived at the hospital to find out they would be putting me asleep for the process!! (I am very scared of going to sleep) I told him I would not he agreed to do a spinal but if there were complication he would put me to sleep he said because of the mole I might start bleeding causing him to do a hysterectomy (keep in mind I am 22!) with one miscarriage now a molar and no kids. Then he mentioned CANCER!!! When they brought me into the prep room I asked my husband to call my mother and let her know and to start praying for me!!! The surgery was a success I was awake and recovered quickly (I STILL HAVE MY UTERUS!!) Now to the hCG levels.
Day of surgery 48,000
Next week 1,200
Doctor couldn't believe the drop!!
This past week 119
That's were I stand now he doesn't anticipate any problems.
Moral of the story try to stay positive and PRAY!!!! I know that is what is keeping me going!! If you have any questions for me Please Feel Free to email me.. And Kendra, thank you so much for your story I will keep you and your family in my prayers.
|Signed on:||Wednesday, May 16, 2001 at 12:27 PM|
|Comments: I read with interest your article on molar pregnancy. I experienced the same thing in 1973. Some of the things you spoke of were very familiar. Mine was a little more complicated. I had a reoccurrence 8 wks. later but was never told anything about cancer or never received chemotherapy. Thank you for sharing your story. God bless you.|
|Signed on:||Wednesday, May 16, 2001 at 4:41 PM|
|Comments: I too one year ago had a molar pregnancy. I did not get cancer. But everyday I think about what could have been.|
|Signed on:||Thursday, May 17, 2001 at 6:47 AM|
|Comments: Hi. My Mom who is 53 yrs old has molar pregnancy, which she is very scared of. I just got unto the net, to read about it, and came upon your page. I have not yet read your story, but decided to sign your page before. My condolences to you and your family. Hope you are managing to heal after such a terrible loss. Regards, Shawna Mitchell|
|Signed on:||Thursday, May 17, 2001 at 7:08 AM|
|Comments: I am very glad I found this site today.... I never knew what a molar pregnancy was until now, even though the doctors told me that is what I had when I miscarried 23 years ago, even though I had two healthy children after I never forgot the one I lost...many people do not seem to understand how I feel...Now I know there are people out there who know exactly how I feel. Thank you so much...|
|Signed on:||Thursday, May 17, 2001 at 9:54 AM|
|Comments: I also had a partial molar pregnancy after having 2 very healthy pregnancies. My two older girls were 8 and 5 at the time. They did not understand at all. It was a hard time as you know and thank God, I did not have the cancer. I had another girl June 1, 2000. That was a hard pregnancy because I was so worried that something was wrong the whole time. Natalie is very healthy and everything went fine.|
|Signed on:||Friday, May 18, 2001 at 10:11 PM|
|Comments: Hi and Iím very sorry forever one who went thought this situation I of this year 2001 of March had a molar pregnancy. I was so scared that I didn't know what to do Iím still doing blood work waiting for it to go down to one I hope Iím successful and be ok. May God bless me and everyone.|
Home Web Site:
|Signed on:||Sunday, May 20, 2001 at 9:25 PM|
|Comments: I tried to email you to let you know I had lit a candle for Nina's angel day but the emails kept getting returned to me so I am hopeful that you are doing ok.
Just know that although we aren't in touch much anymore you are never far from my thoughts.
I am also hopeful you had a special birthday this year.
|Signed on:||Tuesday, May 22, 2001 at 10:39 AM|
|Comments: DEAR KENDRA, MY NAME IS TANGELA JOHNSON. I AM 18 YEARS OLD LAST SUMMER I ALSO HAD A MOLAR PREGNANCY. IT REALLY HURT ME BECAUSE I WAS HAVING TWINS AND I LAST THEM BOTH.PLEASE E-MAIL ME WITH ANY INFO YOU HAVE.|
|Signed on:||Tuesday, May 22, 2001 at 7:15 PM|
|Signed on:||Wednesday, May 23, 2001 at 7:09 AM|
|Signed on:||Saturday, May 26, 2001 at 12:22 PM|
|Comments: From one survivor to another. This Thanksgiving, 2001 I will have been cancer free 31 years. I underwent two separate weeks of chemo and our 'second' child was born 5/1973. I KNOW our 'first' child would have been a son. (But not having the fetus present allowed all the medical bills to be paid for by our insurance company. And during those months of 'blood letting' costs were covered by the University hospital and labeled "research".) So, hopefully I helped pave the way for your recovery in some small way. Both my children are adults now son/28 and daughter/26. Unfortunately they both inherited insulin-dependent diabetes from my husband's side of the family. But GOD is good and he has brought me through bunches. Thank you for your story. Sincerely Kathi Wood|
|Signed on:||Tuesday, May 29, 2001 at 12:45 AM|
|Comments: Has anybody reading these entries had an experience like the following (I went thru this last year and can't find a story or anybody that has had similar to me) Well I won't go into detail now, but I had a normal baby in my uterus only to discover there was a twin in there, the second "egg" was a hydatidaform mole-complete type. So what happened was I had a normal fetus and a molar. I went in for an amnio and found out my baby was dead ( about 5 months along) only when they induced my labor so they could get the baby out of me , I found out I had a molar too. The baby had the cord around its neck 3 times, so that might be how it died, or maybe complications from the mole. I donít know. Please write if you have had a twin normal fetus/ complete mole experience or know of something that could help. Thanks.|
|Signed on:||Tuesday, May 29, 2001 at 8:04 PM|
|Comments: Thank you for sharing your story. We (my husband Zach and I) had a miscarriage in February. It was not a molar pregnancy and I am grateful I have not had to go through what you did. God said He would not give us more than we could bear. He must know you are a strong woman. You are so right about our babies being real! God loves them and we will see them someday. You will get to hold and love Nina and I will get to love and hold Matthias. I am grateful Jesus gave his life so we and our loved ones could have eternal life! Aren't you? I would love to hear about your family and if you have a new little one yet.
My husband's name is also Paul. He goes by his middle name. We have a 15 month old son, Paul Simeon who is a joy and pleasure to us. God bless you and keep you in all your ways and may His face shine upon you. Sincerely, Jennifer Neese
|Signed on:||Wednesday, May 30, 2001 at 5:37 AM|
|Comments: Hi, I just read about your molar pregnancy. Your story really hit home today. I'm e-mailing you from Twillingate, Newfoudland. But my daughter Cynthia lives in Brampton, Ontario. She had to be admitted to hospital in the early hours of the morning yesterday. She was told after an ultrasound that there was no baby. Even though there was a sac and that she was 7 weeks. She went through all the symptoms of being pregnant and was told by an obgyn that she was indeed pregnant. I guess I just have to be there for her now. I know what it is like to lose a child because I lost my first child to stillbirth at full term and my second child also at birth which was Cynthiaís twin sister. But God did give my husband and I another child which was a son, so you see I have two beautiful children. Cynthia is 25 yrs. and Chad is 16yrs. If you have any suggestion for me you can e-mail.
Thank you for you story. Loretta
|Signed on:||Thursday, May 31, 2001 at 5:55 AM|
|Comments: I will read your story with interest it is only now that I have looked my previous medical problem this happened to me 28 years ago and I met someone the other day who also had the same pregnancy but without the cancer scare, she asked if I knew what caused it and I said I knew it was a malfunction that happened after fertilization and said I will look it up on the internet and here I am about to read your story.|
|Signed on:||Thursday, May 31, 2001 at 1:25 PM|
|Comments: Hey, I am so sorry for what has happened to you and your family. I had a molar pregnancy about 4.5 weeks ago. They got rid of it and had me follow up with them last week. They checked my hcg and the doctor said "a little high but it should be back to normal in a week or so". You having gone through this, can you tell me a little about signs of when to worry? He said my hcg was around an 8. What does that mean, and shouldn't it be lower since it's been almost a month? I would really appreciate the help from you or anyone. May God bless you and your loved ones.|
|Signed on:||Friday, June 1, 2001 at 12:05 PM|
|Comments: Hello. I myself was diagnosed with a molar pregnancy in Nov 1998. I had given birth in Jan. 1998 to a healthy baby boy and I was having problems with my birth control pills and ended up getting pregnant, I was happy but, felt that there was something wrong right from the start, I was feeling nausea even before I found out I was pregnant and at the time my test should red positive it was still showing negative but, I knew I was pregnant I was know 1 week late and when to my Dr and the test was finally positive, it was that afternoon that I started to spot Dr. said it might be implantation bleeding and I should just rest, the bleeding would come and go but never got out of control, then one day at work it started to become heavier, I saw my Dr the next day, I was know 12 weeks she tried to find the heart beet but, could not so she ordered a ultrasound and thatís where my live changed. I was told that they could not see anything in the uterus. I was sent that day for a D&C the days that followed where a nightmare I was told that I had a partial molar pregnancy and that I had to wait 1 one year before I became pregnant again. I had to have all those blood tests weekly then monthly I was lucky nothing developed my my molar pregnancy except 2 months before my 1 year anniversary date I had a feeling I was pregnant again. my feeling was right and all test showed it I was pregnant and everything went very smoothly I had lots of ultrasounds to make sure all was well, and on June 10,2000 I gave birth to baby girl 6 lbs 7 oz. Thatís when my luck ran out during the birth I started to bleed really bad and after she was delivered I was rushed to surgery for a D&C to remove the placenta because it refused to leave me. Just when you think all is well more problems arise I was readmitted to hospital on June 17, 2000.
Because I started to bleed again really heavy at that time I had another D&C and was told that I should not have anymore children because of my history of retained placentas ( had with my son also but not as bad ) they feel I might not be so lucky next time. So after spending 5 more days in hospital I was given a blood transfusion because, my organs were beginning to shut down due to the trauma and shock. in the end my husband went and got fixed because, I was not able to have my tubes tied due to all the stuff my body had been through. It's been almost 1 year since the birth of my daughter and not a day goes by that I don't think about the fact that I can't have anymore children it hurts but, I thank God everyday for what I have and for saving my life so I could be here to raise my children.
God Bless you and your family Jennifer
|Signed on:||Saturday, June 2, 2001 at 10:55 AM|
|Comments: My name is Kari, I too had a molar pregnancy last February followed by a D&C in March of 2000. It was a terrible experience and I have had a really hard time dealing and recovering from this. I have found out in April that I am expecting again. Almost the same time as last year. We are both very nervous of the outcome. I have had 2 ultrasounds so far. The first showed nothing but an empty uterus. The second at 6 wks showed a heartbeat and fetus almost immediately. We are still to nervous to get excited as it is still too early. This will be our first child. I have had no pregnancy symptoms. My doctor appointment is scheduled for Monday. Say a prayer for me as I for you.|
|Signed on:||Sunday, June 3, 2001 at 5:59 PM|
|Comments: I had a cmp and D&C on 4/5/01. My levels began to rise after four weeks of weekly blood draws. I began immediately with the chemo shots and will hopefully have my last one on 6/8/01. This has been a difficult time and an emotional rollercoaster as it is for all who have had to endure a molar pregnancy.
I have truly been blessed by joining the chat group that you started and am amazed at how you took the most difficult time in your life and turned it into something that will continue to bring good for years to come. Your site has brought healing and support during a time when you feel like no one can understand all that you are going through. You have touched many hearts and given us hope that there is a rainbow at the end of a molar pregnancy.
If there is anyone who is considering joining the chat group, I would encourage you to post your story. The ladies there truly empathize with all that you are going through. Thank you again, Kendra, and I wish you love and happiness always. :)
|Signed on:||Sunday, June 3, 2001 at 6:06 PM|
|Comments: Thank you for sharing your stories...|
|Signed on:||Monday, June 4, 2001 at 10:17 AM|
|Comments: I have signed your book earlier but this was before I had read your story I am now returning to thank you for this very informative website after 28 years I now know the full story. I knew it was a malfunction of the fertilization of the ovum and sperm but that was it, it was talking to another woman who had had the same pregnancy that made me wonder whether I could find out anything on the internet and I was very pleased when I found your story.
My story was similar but 28 years ago the technology was different and my molar pregnancy wasn't detected until I was 51/2 months and for 41/2 of those months I was very sick I had to have injections to help me from vomiting as I couldn't even keep the debendox and stemetil tablets down. Ultrasound was very new in those days and after I was diagnosed with a molar pregnancy my lab report was cancerous and I had to go through 3 lots of methatrexate and 2 years of tests to keep an eye on my hormone levels then after 3 years of waiting I was given the all go to fall pregnant much to my surprise I did fall pregnant immediately and gave birth to a lovely daughter I am now the proud mother of 3. This was a terrible ordeal and I wouldn't wish it on anyone. Undergoing those difficulties and being made to feel like I was a freak I had a nervous breakdown. I wonder now looking back whether I would look on my children as the precious gifts that I know they are.
I thank you for giving me this opportunity to share my story with you. Vivienne
|Signed on:||Monday, June 4, 2001 at 4:25 PM|
|Comments: My Sister Jennifer had a Molar Pregnancy in October 0f 1998. She was having Morning Sickness and Jennifer had a D & C done in November 1998. Then they said to Jennifer to wait 1 year well Jennifer has waited almost 3 years.|
|Signed on:||Wednesday, June 6, 2001 at 5:51 PM|
|Comments: I have been told it is possible I had a molar pregnancy. Iím just trying to get some info on it. Thank you for sharing your story. May God bless you.|
|Signed on:||Thursday, June 7, 2001 at 2:28 PM|
|Comments: Thank you so much for sharing you story.|
|Signed on:||Thursday, June 7, 2001 at 7:28 PM|
|Comments: I ALSO HAD A PARTIAL MOLAR PREGNANCY AT 13 WEEKS. YOUR STORY HAS HELPED ME SO MUCH! MUCH LUCK TO YOU AND YOUR FAMILY. I STILL HAVE UNTIL MAY OF 2002 BEFORE I CAN TRY AGAIN.|
|Signed on:||Monday, June 11, 2001 at1:16 AM|
|Signed on:||Tuesday, June 12, 2001 at 7:59 PM|
|Comments: Thank you for your story. I was just told this morning that my pregnancy may be a partial molar pregnancy. I had an US last week that was not diffative and a HCG of 18,629. A follow up US today appeared more irregular and the molar pregnancy was discussed. I am having an E and C tomorrow and will await the results. We have lost three pregnancies prior to this (2 miscarriages and an ectopic) but we are also blessed with two beautiful girls. Though we never saw their faces, they will still live on in our hearts and I await the day when I will meet my other children in Heaven.
Thank you for the opportunity to share.
God Bless you
|Signed on:||Tuesday, June 12, 2001 at 8:25 PM|
|Signed on:||Tuesday, June 12, 2001 at 8:49 PM|
|Comments: I have tried to read all of your stories but, only to get halfway thru them.
In April 2001 I was told I had a Partial Molar Pregnancy. On the 24th April, 2001 I had a D&C. My HCG levels were a little high, I had 2 blood tests and my ob/gyn told me everything should be okay now. My HCG levels were at 119.
I am now testing positive to being pregnant and have to go and have an ultrasound tomorrow. I have a feeling there is something wrong. Please pray for me. I am very scared.
|Signed on:||Wednesday, June 13, 2001 at 8:40 AM|
|Comments: As I was browsing the net for info on molar pregnancies I came across this site, your site dedicated to the loss of your Nina. I am grateful for your site because although I have gained info, this has been not only educational but an emotional support. Knowing that I am not alone. I was told that I had a partial mole in April 2001 after having a D&C. I have only had one hormone level result back which was "5" lucky or what. I have another due now, fingers crossed it may be back to normal. Although I have been very fortunate to have such low levels at this early stage, nothing will stop the worry, an anguish that I still suffer. I am sorry for you misfortunes, but I can see that you are strong maybe stronger now than you ever were before.
Take Care. Rebecca. x x
|Signed on:||Wednesday, June 13, 2001 at 10:33 AM|
|Comments: I just got back from a check-up 2 weeks after having a d&c. My doctor told me I had a molar pregnancy and said there "might" be a malignancy (sorry if misspelled.) talk about a lump in your throat. I had gone in for a regular ob check-up on May 30, 2001, 13 weeks pregnant. My doctor was running late, therefore my nurse did the check. She couldn't hear a heartbeat and did an abdominal and then a vaginal ultrasound. I knew it wasn't good. My nurse told me she wasn't an expert at ultrasound and asked me to wait for the doctor. My beloved doctor came in and did a vaginal ultrasound. I plainly saw my little baby, so perfect still, but he had no heartbeat. I could have died right there myself. I couldn't believe it, this happens to other people, not me. How wrong I was. This was my second pregnancy, my son Colin is 17 months old. I thank GOD for blessing me with a beautiful, healthy child. Now Iím facing this. I just have to have faith and pray that everything will be alright and I can start again soon trying to have another baby. Itís very hard, one day being pregnant and the next day not. It's heartbreaking. I pray to GOD I don't have cancer. I have a little boy to live for and I will fight for my life! Thank you for your story.|
|Signed on:||Wednesday, June 13, 2001 at 1:13 PM|
|Comments: Iím sorry for your loss my sister just had a d&c due to a molar pregnancy. We haven't found out too much as this just happened yesterday.|
|Home Web Site:||http://www.geocites.com/thornfield8998/molar.html|
|Signed on:||Thursday, June 14, 2001 at 8:28 AM|
|Comments: I too have had a molar pregnancy, although it's only been 2 months at this point and so far everything is going OK. I think your site is helpful to everyone, and it, along with many of the messages in your guestbook, inspired me to make a page of my own. I have also founded a Yahoo Club called "Surviving Molar Pregnancy" where those whose lives have been touched by molar pregnancy can share, support, and connect with others. My website and the message board can be accessed via the website link above.|
|Signed on:||Thursday, June 14, 2001 at 9:39 PM|
|Comments: I too have Persistent gestational trophoblastic neoplasm as a result of a partial mole. After 3 courses (15 doses) of iv Methotrexate, I continue to follow my B hcg levels. The past two weeks they have remained the same 2.7. Hopefully next week I too will see the beautiful number "0". I wish you the best of luck with your future pregnancy with a healthy child. Kimberlea|
|Signed on:||Friday, June 15, 2001 at 1:40 AM|
|Comments: I JUST WANTED TO SAY THAT WORDS CAN NOT DESCRIBE WHAT YOUR SITE HAS DONE FOR ME. I FIRST FOUND OUT ABOUT LOSING OUR BABY AND ABOUT MOLAR PREGNANCY AUGUST OF 2000 AT 10 1/2 WEEKS. THE THOUGHT OF LOSING OUR BABY WAS DEVASTATING TO THE WHOLE FAMILY. WE JUST KNEW IT WAS THE BOY WE WANTED. WE ALREADY HAVE A SWEET LITTLE GIRL. WHEN THE DOCTOR MENTIONED CANCER I WAS BEYOND FLOORED. MY WHOLE WORLD WAS RIPED OUT OF MY HANDS AND TWISTED INTO CHOAS IN A MATTER OF MINUTES. THANK GOD THAT MY HUSBAND WAS THERE WHEN I FOUND OUT I WOULD HAVE NEVER MADE IT HOME, I WAS TOO HYSTERICAL. I MEAN I WAS EXPECTING TO SEE MY BABY FOR THE FIRST TIME AND HEAR THE HEARTBEAT BUT INSTEAD I WAS TOLD THERE WAS NO BABY. THERE HAD TO AT LEAST BE A BABY! (IT TURNED OUT TO BE A PARTIAL). THE DOCTOR HAD LITTLE INFO TO OFFER AND WHAT SHE DID TELL ME SCARED THE HELL OUT OF ME. ONE OF THE FIRST THINGS I DID WHEN I HAD ACCESS AND STOPPED CRYING WAS GET ON THE INTERNET AND SEARCH. I FOUND MULTIPLE MEDICAL SITES BUT THEY DID NOT TELL ME WHAT I NEEDED TO HEAR. YES I CARED ABOUT TREATMENT, SIDE EFFECTS, AND STATISTICS. BUT I WANTED TO KNOW THE TRUTH. I WANTED TO BE TOLD I GUESS WITH A HUMAN TOUCH WHAT TO REALLY EXPECT. WHAT WAS I IN FOR? WOULD I ALWAYS FEEL LIKE THIS? I TOO EXPERIENCED POEPLES STRANGE REACTIONS ABOUT THE BABY AND THE CANCER. TOO MOST EVERYONE ELSE BUT FAMILY AND CLOSE FIRENDS THE BABY WAS AN AFTER THOUGHT BUT THE CANCER... WHOA. I ON THE OTHER HAND WAS TOO DEVASTATED BY THE LOSS OF THE BABY, INSTEAD I WAS THE AFTER THOUGHT. MAYBE IT WAS MY NAIVE YOUNG NATURE BUT CANCER, AS SCARY AS IT WAS, COULD BE OVERCOME BUT THAT BEAUTIFUL SWEET INNOCENT LIFE WAS RIPED OUT OF MY ARMS, OUT OF MY FUTURE. AND TO TOP IT ALL OFF, EVERY DOCTOR WAS TELLING ME IT WOULD BE A YEAR AT BEST BEFORE I SHOULD CONCIEVE AGAIN. TALK ABOUT KICKING YOU WHILE YOUíRE DOWN. I TOO WENT THOUGH A MULTITUDE OF FEELINGS AND PHASES AND TO BE HONEST STILL DO. I AM NEARER THE END OF MY YEAR OF TORTURE, I'M GETTING MY MONTHLY LEVELS CHECKED. BUT I STILL HAVE UNTIL DECEMBER. IT MAY NOT BE CONSUMING MY LIFE ANYMORE WITH THE WEEKLY OR MORE FREQUENT DOCTORS VISITS, LABS, SCANS, AND CHEMO; BUT ITS STILL THERE. EVERY DAY... EVERY MONTH...EVERY CYCLE...EVERYTIME I SEE A BABY OR THINK OF TRYING TO HAVE ANOTHER ONE. YES PEOPLE ASKED ME WHY GO THOUGH THIS JUST LET THEM TAKE YOUR UTERUS. AND TO THOSE PEOPLE I SIMPLY SAY THAT WOULD BE LETTING FEAR WIN. TO GIVE OF HOPE OF ANOTHER SUCESSFUL PREGNANCY AND ANOTHER BEAUTIFUL BABY IS TO GIVE UP ON GOD AND MYSELF... AND GUESS WHAT I HAVE MORE FAITH THAN THAT. (NO, THAT DOES NOT MEAN THAT I AM NOT SCARED.) POEPLE ARE STILL AMAZED WHEN THEY FIND OUT I HAD CANCER AND WENT THOUGH CHEMO. I MIGHT AS WELL BE A LEPER JESS. POEPLE LOOK AT ME AS THOUGH I'VE WALKED THOUGH THE VALLEY OF DEATH AND LIVED TO TELL THE TELL. I JUST EXPLAIN THAT YEH IT TOUGH, BUT PEOPLE DO IT. PEOPLE FIGHT CANCER ALL FORMS EVERY DAY. MINE MIGHT HAVE COME IN AN UNUSUAL WAY BUT YOU DO WHAT YA GOT TO DO. ANY WAY I JUST WANTED TO LET YOU KNOW THAT I COULD NOT HAVE MADE IT THIS FAR AND BEEN THIS STRONG WITHOUT MY FAMILY, FRIENDS, GREAT DOCTORS, AN OVER-ABUNDENCE OF INFORMATION, AND YOUR SITE. I THINK IT IS A WONDERFUL IDEA TO START A SUPPORT GROUP FOR PEOPLE WHO SUFFER FROM THE EFFECTS OF MOLAR PREGNANCIES. JUST ASK ALL MY FRIENDS, THEY HEARD ME COMPLAIN ABOUT THE LACK OF KNOWLEDGE AND SUPPORT AND THE NUMBER OF WOMAN THAT ARE SHOCKED TO HEAR NOT ONLY THAT THIS HAPPENS BUT HOW OFTEN. FEEL FREE TO CONTACT ME AND PUT THIS ON HER SITE AS ANOTHER TESTIMONIAL IF YOU LIKE. AND TOO I WOULD LOVE TO HELP AND BE INVOLVED IF YOU DO DECIDE TO START A SUPPORT GROUP.|
|Signed on:||Friday, June 15, 2001 at 9:02 AM|
|Signed on:||Friday, June 15, 2001 at 11:26 AM|
|Signed on:||Friday, June 15, 2001 at 12:35 PM|
|Comments: I'm 24 years old and just recently had a partial molar pregnancy. I had a d&c on April 30, 2001. This was my 4th pregnancy. I've had 2 miscarriages, and I have a healthy 3 year old son. I had my hcg levels tested 2 weeks ago, and I was at 11. Part of me wants to try again now so badly, but I don't want to get another molar, or get cancer. My doctor told me I had to wait 6 months. I may give it another couple of months then see what my doctor says. But PLEASE if anyone knows if getting pregnant so soon after having a d&c is safe and can be ok, please write me. I'm hearing so many different things from so many different people. Even different doctors! Can you still have a healthy child without getting cancer by pregnant after about 2 or 3 months after a partial molar pregnancy? I wouldn't be even considering it, if things didn't look ok for me. My doctor says I'm fine, and I have no cancer cells. I've only had 1 period since the d&c, but know I'm just waiting for my hcg level to be back to 0. 2 weeks ago it was at 11. Someone who may have answers please write.|
|Name:||G. Jan Q. Brewer|
|Signed on:||Friday, June 15, 2001 at 2:57 PM|
|Comments: My precious neighbor, the daughter I never had, just went through a molar pregnancy and lost her much anticipated and already loved baby. This condition has been an eye opening experience since we never heard of it until it happened to Mary and Lynn and effective so many.
God bless you. Your Nina is already blessed. Jan
|Signed on:||Sunday, June 17, 2001 at 12:56 AM|
|Comments: Thank you for sharing your story. I also, had a molar pregnancy, after which I had to go through chemotherapy. It has been only one month since I became HCG negative. My husband and I are hopeful that everything will be ok one day and that we will have a healthy and beautiful baby of our own.|
|Signed on:||Monday, June 18, 2001 at 8:32 AM|
|Comments: I just wanted to say how wonderful your site is. Your site gave me all the answers that I needed...more so than any doctor! I was diagnosed with a complete molar pregnancy in April. Had a d&c done & 4 weeks later they tested my beta hcg. My count was 2701...then a week later it rose to 3554. I have had x-rays, cat scans & lots of blood work, now I have to start chemo this Friday 6/22/01. I am very scared of having the injections. If anyone can offer support or advise I would love to hear from you. I am especially afraid of losing my hair & developing the mouth sores.
Once again thank you to everyone for your wonderful input! Carol
|Signed on:||Monday, June 18, 2001 at 11:36 AM|
|Comments: Thank you for taking the time to put this website together. I'm so glad to know that future successful pregnancies are possible!|
|Signed on:||Monday, June 18, 2001 at 3:35 PM|
|Comments: I know how you feel; I am going thru it right now. I am sorry for all your pain.|
|Signed on:||Wednesday, June 20, 2001 at 3:18 PM|
|Comments: Hello - I hope you are happy again. My daughter has just had a molar pregnancy terminated at about 11 weeks. She is still very ill and weak. When can we expect an improvement? She has two beautiful children, so we are blessed, but I wish she was feeling better.|
|Signed on:||Wednesday, June 20, 2001 at 5:41 PM|
|Signed on:||Thursday, June 21, 2001 at 3:59 PM|
|Name:||Lowell Bunch & Rebecca Reimer|
|Signed on:||Thursday, June 21, 2001 at 9:34 PM|
|Comments: This was a very sad but nice story we both enjoyed it. We had a little one not long ago right now he is 7 months old and growing like a weed we hope that u will be strong and carry on with your loss and have another to take her place|
|Signed on:||Friday, June 22, 2001 at 7:06 AM|
|Comments: Thank you so much for your website. I had my second miscarriage in April of 2001 and we were told it was a partial molar pregnancy. After 8 weeks of having my blood drawn, my hcg levels are finally at zero. We have been told to wait 6 months before trying again, and will need to be tested monthly to make sure my levels stay at zero. We knew nothing about molar pregnancies until it happened to us and really didn't comprehend the severity of what could happen if my levels did not go to zero, until I read your story. Until I found your website, I felt so alone. Thank you for having the courage to share your story.|
|Signed on:||Friday, June 22, 2001 at 12:18 PM|
|Comments: Iím really sorry about your situation. I'll pray for you and please know that I wish you nothing but the best in your future endeavors.|