This is Me and my son Joey
Hi, my name is Trudy. In cyber land I am known to most as Babbles. I have done alot of pages on the web, but this is the most important one of all. I wanna talk about something that alot of people have never heard of. Its something called Lupus. Its something I had never heard of until back about a year and a half ago. The doc mention it to me because of a butterfly like rash that I always have on my cheeks. After a few months he decided I didn't have it. Well as the months went along I began to have alot of trouble with fatigue. Then the word Lupus was brought up again. From there I started having tons of ulcers in my month, just another thing that goes along with Lupus. After slowly developing more and more of the symptoms of Lupus it was decided I did have it. Then came the treatment. I have been on so many different types of medication that I couldn't start to tell you about. Finally after about 8 months I have started to feel a little better. The one thing I know is that Lupus has changed my life in a big way. Lupus is a disease that is hard to even tell that someone has it. You look very normal, but what you go through is far from it. If you have a friend or even know someone who has Lupus, I wish you would take the time to read and learn what it actually is. Then you will understand why they look completely normal and feel so rotten. I hope this will help someone in some way.
Lupus is a chronic, autoimmune disease which causes inflammation of various parts of the body, especially the skin, joints,blood and kidneys. The body's immune system normally makes proteins called antibodies to protect the body against viruses, bacteria and other foreign materials. These foreign materials are called antigens. In an autoimmune disorder such as lupus, the immune
system loses its ability to tell the difference between foreign substances (antigens) and its own cells and tissues. The immune system then makes antibodies directed against "self". These antibodies, called "auto-antibodies," react with the "self" antigens to form immune complexes. The complexes build up in the tissues and can cause inflammation, injury to tissues, and pain.
More people have lupus than AIDS, cerebral palsy, multiple sclerosis, sickle-cell anemia and cystic fibrosis combined. LFA market research data show that between 1,400,000 and 2,000,000 people reported to have been diagnosed with lupus. ( Study conducted by Bruskin/Goldring Research, 1994.) For most people, lupus is a mild desease affecting only a few organs. For others, it may
cause serious and even life-threatening problems. Thousands of Americans die each year from lupus-related complications.
Dancing With the Wolf
Sometimes my Dance is very fast,
Sometimes my Dance is slow;
It all depends upon the day,
And how my symptoms go.
Sometimes the Dance is an Irish Jig,
When my energy is high;
Most of the time the Dance is a waltz,
When the fatigue is drawing nigh.
Sometimes the Dance slows to a shuffle,
And I let the day slide by;
Some days I don't Dance at all,
But lay in bed and cry.
I do many kinds of Dances now,
That the Wolf has become my partner;
My hope is that, as the steps are learned,
I will learn to Dance much smarter.
The Wolf has slowed my Dancing down,
And I take the time to discover,
My Lord, My Strength, My Jesus,
Is a partner like no other.
I lean on Him when times are bad,
And I know that He can see;
The three of us are partners now,
Jesus, the Wolf, and me.
Whether the day is very good,
Or full of pain and strife;
I thank Jesus every day
For this gift - The Dance Of Life.
Rosemary Lee
© 1998 Jennifer R. Lee, All Rights Reserved.
Links of Interest:
Living With Lupus
Test to Diagnose Lupus
Symptoms of Lupus
Hamline University/ Lupus Homepage
Circle of friends
Lupus, Stop the Sickness
Cathy Welsh's Guide to Lupus
I do hope you find these links very helpful.
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