Hi to all out there, I decided to write my story for the world to read, maybe in hopes of finding help, or at least educate people about this horrific disease......
Th story begins as a young girl, I was always slightly fatigued easily, lets just say I was no track runner. everyone was faster then my in gym class:) I had no stamina so i never even learned to swim, because it would tire me out. I had frequent colds and flues and missed alot of school because of it. of course this never alarmed my doctors . or me it was just the way I was. I had a pretty normal life other than this, I went to school, had friends, I enjoyed dancing, that was my passion, but still lacked the stamina to become a performer. I was always very skinny i was 102 at the age of 19. Skipping to the college. My freshman year i had an accident falling down some steps and was in a wheel chair for 5 years. Slowly with chiropractors and therapy i could walk again:) but sadly, not for long.......
A year later, As I began the preparations to get My master's degree I started to notice severe shortness of breath while climbing stairs or small inclines. i would have to sit and rest for 3 or 4 minutes from just walking up someone's porch steps.. and for a few months i ignored it seeing as though i had always been a little tired. as the months went by this shortness of breath increased just standing and walking would tire me out. til one day i was unpacking some books, and walking up and down my basement stairs, i collapsed and turned blue the shortness of breath had become too severe. after three emergency room visits and one trip to the family doc who said, it's just stress. I became bedridden for six months any move i made including feeding myself exhausted me to tears.. During this time i had noticed that within a six month period my skinny frame had become noticeably fatter. i began to gain two pounds steadily everyweek. with no change in diet. I was referred to cardiologist to make sure it wasn't heart failure, I went to one and then another for second opinion. both said i had the heart of a healthy 30 year old woman. Healthy!?! I lost my job, my place at a very good Master's program, I wondered if it was me, if i was crazy, why couldn't i just get up and walk? After a few more months went by another strange symptom came along. I would get hungry every couple hours despite what or when i ate last. and if i did not eat i would get low blood sugar symptoms, shaky hands, panic, blurred vision, I would eat and eat and the symptoms would not lesson, hunger pains and panic keeping me awake at night cause traumatic insomnia, I began to stay awake for three nights straight, no sleep at all, cause more panic, and hallucinations.I went to an endocrinologist, who said everything was normal. I thought i was losing my mind or dying, one or the other. I started to look for answers in alternative healing, they had no answers either, in fact they made things worse. One day my Husband at the time was talking to his dad about me, He suggested i get tested for Lyme disease. I did, and i got a positive result which i hear is rare. However there are No Lyme doctors in the state of Kentucky, So no one could help me here. As I became almost paralyzed unable to wash myself, take care of myself in anyway, unable to sleep without the help of pills. and a constant nagging hunger inside(which , as I know of is not a symptom of Lyme.) I lost my job, my place at a very good master's program, my husband, my friends. MY LIFE! And yet another strange symptom manifested itself. I was no longer able to eat anything, every food i ate created a strange almost allergic reaction, to where i would almost pass out . i would feel so sick, and so tired and my heart rate would skyrocket. by trial and error we narrowed it down to where i can only eat beef, gluten free rice and vegetables for every single meal. i had even tried anitbiotics perscibed by my family doctor, it turns out i am allergic to them too.so since i could not travel anymore except by stretcher in ambulance.My mother began looking for books that may help, if there are no Lyme doctors here, maybe we can find one who will work with us by phone, sounded like a good idea. But sadly, it was just another dead end........
hram1979@gmail.com