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Myotonic and Congenital Dystrophys Support Group International

Mission To Provide Information and to give moral support

The story is about my wife of 27yrs. Laurel White she has Myotonic dystrophy type 1 Diagnosed in 1999.It is severe in late Nov.2002 she almost died due to respitory and pacemaker problems.She was in the hospital for 1 month and in a nursing home for a month her inner strength to live and Gods help she is still living.She had endured a new pacemaker,a feeding tube which is gone now and a trach which she still has due to her diaphram that is weak.She is more wheelchair bound using it more and more . The rest of the site still under construction

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