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Massachusetts Association for the Chemically Injured
Contents: MCS Awareness Week General Information Chronic Fatique and Fibromyalgia Disability Government Information Indoor Air Quality/Frangranced Products/Housing Litigation Newsgroups Research Pesticides Physicians & Treatment MCS Awareness Week: Massachusetts Governor Duval Patrick proclaims May 11-17, 2008 as Multiple Chemical Sensitivity Awareness Week. The Massachusetts Association for the Chemically Injured requested the Governor's Proclamation for the "MCS Awareness Week" to help raise public awareness about Multiple Chemical Sensitivity (MCS). Governor Patrick's Proclamation has kept Massachusetts among the list of states granting this recognition and has helped raise public awareness on this very important health issue. View the proclamation. GENERAL INFORMATION: BedandBreakfast.com BedandBreakfast.com is a comprehensive worldwide listing of bed and breakfasts, B&B homestays, country inns, urban bed and breakfasts, guest houses, lodges, cabins, historic hotels, small resorts, guest ranches, farmhouse accommodations, and working farm and ranch vacations. B&B database searches allow you to find the ideal bed and breakfast inn, whether you are looking by location, amenities, etc. Check out the Green B&Bs article. Health & Environment Resource Center H&ERC provides education on the relationship between environment and health through articles, newsgroups, publications, & one-on-one correspondence. Easy to navigate, wide ranging info and links about MCS & related topics, continually being expanded. This site also includes a Safe Shopper Directory. MCS Referral & Resources Professional outreach, patient support, & public advocacy devoted to the diagnosis, treatment, accommodation, & prevention of Multiple Chemical Sensitivity Disorders Human Ecology Action League Excellent organization & resource for information. Publishes The Human Ecologist. MCS Survivors Comprehensive resource & referral site with links to information, books, articles, products, treatment, physicians, legal aid, referral agencies, etc. Ecological Health Organization, Inc. (ECHO) Connecticut's support, education and referral group for MCS. Information on local & national legislation. Publish The ECHO. Environmental Health Network: Good source for general information, info on fragrances, general links, Government links, pesticides, books, audiotapes. Publishers of The Reactor. National Coalition for the Chemically Injured Yahoo Website for MCS Searchable with many hotlinks to information. Chemical Injury Information Network Publisher of Our Toxic Times monthly newsletter since the early 1990's. Children's Environmental Health Network Extensive links to environmental and health issues related to children. Immune Related Resources A website by Cyndi Norman includes information on a variety of health conditions, alternative medicine, disabilities, Government agencies and toxicology. Latex Allergy Information Service; Torrington, CT (860) 482-6869. Alison Johnson / Chemical Sensitivity Foundation Information on her books and videos and on 351 MCS patients experience with different therapies and the chemical sensitivity foundation website. MCS Recovery Contains the story of Debra Lynn Dadd's recovery from MCS and links to resources for 1000s of nontoxic products.
CHRONIC FATIGUE & FIBROMYALGIA David Axford's M.E./CFS site Considered by some to be the world's best CFS site. Articles & analysis of the medical information, theories & related topics. The Fibromyalgia Network National newletter for the Fibromyalgia Network. MassCFIDS P.O. Box 690305; Quincy, MA 02269-0305 (617) 471-5559. State support group for those with CFIDS
DISABILITY: Society for Disability Study Links Linked through Barbara Robertson's MCS website, this extensive list has links to disability information including related organizations, agencies, disability journals, general information sites (including a link to the Americans with Disabilities Act home page), cross-disability newsgroups, mailing lists & academic/scholarly societies.
GOVERNMENT INFORMATION National Institute for Environmental Health Sciences (NIEHS) Searchable. Links to many Government sites & information on current research on the environment & health. National Institute for Safety and Health (NIOSH) Listing of journal articles on MCS research. Includes a few hotlinks to articles related to the definition of MCS. EPA's Indoor Air Quality Home Page
INDOOR
AIR QUALITY / FRAGRANCED PRODUCTS / HOUSING
LITIGATION: ToxLaw For those involved in toxic tort cases, or needing to obtain information on chemicals. This site contains many links to networking resources, legal information, federal health agencies & ChemTracker, a searchable database for information related to chemicals & their associated health hazards.
NEWSGROUPS (CONNECTING YOU WITH OTHERS): Subscribe at the URLs listed below - FREE! Chemical -Illnet A moderated newsgroup, owned by Andi Desjardins, where people with MCS or their family & friends can go to gather information, support, learn how to be pro-actively involved in advocacy, accommodation & acceptance of environmental illness. Members of Chemical Illnet may access sublists : Illnet-chat, Illnet-unleashed, Illnet-chat-announce, Illnet-activism, Ecocommunity. See URL above for details or write to Andi Desjardins at: ChemXpose@aol.com Family Support MCS This newsgroup is dedicated to spouses, partners, family members & friends of people living with MCS and is a place where they can go to find information, support and understanding. HealthE A moderated newsgroup owned by Andi Desjardin, focusing on education of the general public about potential environmental threats to physical, emotional, & psychological health and well being. Immune Moderated by Cyndi Norman & Susan Beck, it is a broad based site providing information exchange & support for people with various immune conditions including MCS, CFIDS, fibromyalgia, lupus, multiple sclerosis, etc... There are 2 additional sublists available only to list members: Immune Admin & Immune Survivors. Immune Survivors for survivors of childhood abuse, domestic violence, rape, or other severe trauma. See URL above for detailed information. TOXTALK A low volume list for discussion related to toxic tort cases. Expest A newsgroup for individuals who have been poisoned by pesticides. IAQ2000: to subscribe send a message to jhunt@mail.state.mo.us to request instructions. A newsgroup owned by Jeanne Hunt focusing on the problem of indoor air quality & obtaining accommodations for in the work place & schools for people with MCS. Communicate and Cooperate for a Cure (Co-Cure) A well-known CFS/FMS site with an information exchange forum.
RESEARCH Invite to participate in MCS research regarding the Centers for Independent Living: In effort to study and improve services to the chemically sensitive, Dr. Pam Gibson and her students are seeking persons with chemical sensitivity that have requested help from a Center for Independent Living (CIL). The study will take approximately 20 minutes to complete and is accessible through Dr. Gibson’s research site at www.mcsresearch.net. You can also access the survey directly on Websurveyor at https://websurvey.jmu.edu/ss/wsb.dll/40/mcsperspectives.htm. We would be grateful for your participation. If you have attempted to access a CIL and are willing to participate, but unable to complete a study online, please contact us for a paper survey or a phone interview. Phone 540-568-6195. E-mail: gibsonpr@jmu.edu.
PESTICIDES National Coalition Against the Misuse of Pesticides (NCAMP) Excellent site for information on pesticides with links to sites related to pesticides & the environment. (202) 543-5450 Northwest Coalition for Alternatives to Pesticides (NCAP) Excellent site for information on pesticides, inert ingredients in pesticides & effects on health. Links to other sources. Protect All Children's Environment (PACE) Information resource & advocacy group relating to pesticides. National Pesticide Telecommunications Network A cooperative effort of Oregon State University & the U.S. EPA. NPTN provides information on all aspects of the health effects of pesticides. (800) 858-7378 E-mail nptn@ace.orst.edu EPA Office of Pesticide Programs - New Active Ingredients Fact sheets Information on new active ingredients used in pesticides. Site is growing & will eventually include information on older active ingredients. Food News An excellent, interactive website developed by the Environmental Working Group. Select foods you commonly eat & obtain data on the class of pesticides used on those foods & associated, potential health hazards. Some information specifically focused on children's health. Extension Toxicology Network (EXTONET) Supported through a cooperative effort by 5 universities: U. of California-Davis, Oregon State, Michigan State, Cornell & U. of Idaho, this is a searchable data base providing fact sheets on pesticides. C&P Press - The Big Green Book A free service of C&P Press, this searchable data base has information from the Crop Protection Reference Book., a.k.a. "The Big Green Book." Searchable by product or company name & provides a product label or the Material Safety Data Sheet written by the manufacturer.
PHYSICIANS & TREATMENT American Academy of Environmental Medicine An overview of the theory & approach to treatment by Environmental Specialists. Includes a searchable database of physicians. Association of Occupatonal and Environmental Clinics (AOEC) Obtain a list of occupational health physicians.
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