New kind of Breast Cancer -

In November, a rare kind of breast cancer was found. A lady developed a rash on her breast, similar to that of young mothers who are nursing.
Because her mammogram had been clear, the doctor treated her with antibiotics for infections. After 2 rounds, it continued to get worse, so her doctor sent her for another mammogram. This time it showed a mass.

A biopsy found a fast growing malignancy. Chemo was started in order to shrink the growth; then a mastectomy was performed; then a full round of Chemo; then radiation. After about 9 months of intense treatment, she was given a clean bill of health.

She had one year of living each day to its fullest. Then the cancer returned to the liver area. She took 4 treatments and decided that she wanted quality of life, not the after effects of Chemo. She had 5 great months and she planned each detail of the final days. After a few days of needing morphine, she died. She left this message to be delivered to women everywhere:
Women, PLEASE be alert to anything that is not normal, and be persistent in getting help as soon as possible.

Paget's Disease: This is a rare form of breast cancer, and is on the outside of the breast, on the nipple and aureole. It appeared as a rash, which later became a lesion with a crusty outer edge. I would not have ever suspected it to be breast cancer but it was. My nipple never seemed any different to me, but the rash bothered me, so I went to the doctor for that.
Sometimes, it itched and was sore, but other than that it didn't bother me. It was just ugly and a nuisance, and could not be cleared up with all the creams prescribed by my doctor and dermatologist for the dermatitis on my eyes just prior to this outbreak. They seemed a little concerned but did not warn me it could be cancerous.

Now, I suspect not many women out there know a lesion or rash on the nipple or aureole can be breast cancer. Mine started out as a single red pimple on the aureole. One of the biggest problems with Paget's disease of the nipple is that the symptoms appear to be harmless. It is frequently thought to be a skin inflammation or infection, leading to unfortunate delays in detection and care.

Johns Hopkins has recently sent this out in its newsletters. This information is being circulated at Walter Reed Army Medical Center. Dioxin chemicals causes cancer, especially breast cancer.

Recently, Dr. Edward Fujimoto, Wellness Program Manager at Castle Hospital, was on a TV program to explain this health hazard. He talked about dioxins and how bad they are for us. He said that we should not be heating our food in the microwave using plastic containers. This applies to foods that contain fat. He said that the combination of fat, high heat, and plastics releases dioxin into the food and ultimately into the cells of the body. Instead, he recommends using glass, Corning Ware or ceramic containers for heating food. You get the same results, only without the dioxin.

So such things as TV dinners, instant ramen and soups, etc., should be removed from the container and heated in something else. Paper isn't bad but you don't know what is in the paper. It's just safer to use tempered glass, Corning Ware, etc.

He reminded us that a while ago some of the fast food restaurants moved away from the foam containers to paper. The dioxin problem is one of the reasons.
Also, he pointed out that Saran wrap is just as dangerous when placed over foods to be cooked in the microwave. As the food is nuked, the high heat causes poisonous toxins to actually melt out of the plastic wrap and drip into the food.
Cover food with a paper towel instead.

One of the female professors in the social work department, Tuula, sent this to all the female staff. I think this is extremely important to pass on to as many women as you can. I know some of you who will receive this email use them.

If you are a woman and use pads, but especially if you use tampons, read this and pass it on to your friends. For the men receiving this note,please forward it to your friends, significant others, sisters, mothers, daughters, etc. Thanks!

Check the labels of the sanitary pads or tampons that you are going to buy the next time and see whether you spot any of the familiar signs stated in this email. No wonder so many women in the world suffer from cervical cancer and womb tumors. Have you heard that tampon makers include asbestos in tampons? Why would they do this? -- because asbestos makes you bleed more. If you bleed more, you're going to need to use more. Why isn't this against the law since asbestos is so dangerous? -- because the powers that be, in all their wisdom (not), did not consider tampons as being ingested and therefore, did not consider them illegal or dangerous. This month's Essence magazine mentions two manufacturers of a cotton tampon alternative. The companies are: Organic Essentials @ 1-800-765-6491 and Terra Femme @ 1-800-755-0212.

A woman getting her Ph.D. at University of Colorado sent the following: "I am writing this because women are not being informed about the dangers of something most of us use: Tampons. I am taking a class this month and I have been learning a lot about biology and women, including feminine hygiene. Recently we have learned that tampons are actually dangerous for other reasons than TSS (TSS-Toxic Shock Syndrome "not changing tampon often enough causing toxic illness).

Last September, the Environmental Protection Agency (EPA) reported that there really is no "acceptable" level of exposure to dioxin given that it is cumulative and slow to disintegrate. The real danger comes from repeated contact (Karen Couppert "Pulling the Plug on the Tampon Industry"). I'd say using about 4-5 tampons a day, five days a month, for 38 years is "repeated contact", wouldn't you? Rayon contributes to the danger of tampons and dioxin because it is a highly absorbent substance. Therefore, when fibers from the tampons are left behind in the vagina (as usually occurs), it creates a breeding ground for the dioxin. It also stays in a lot longer that it would with just cotton tampons. This is also the reason why TSS toxic shock syndrome) occurs.

WHAT ARE THE ALTERNATIVES? Using feminine hygiene products that aren't bleached and that are all cotton. Other feminine hygiene products(pads/napkins) contain dioxin as well, but they are not nearly as dangerous. So, what can you do if you can't give up using tampons? Use tampons that are made from 100% UNBLEACHED cotton. Unfortunately, there are very few companies that make these safe tampons. They are usually only found in health food stores.

Countries all over the world (Sweden, Germany, British Columbia, etc.) have demanded a switch to this safer tampon, while the US has decided to keep us in the dark about it. In 1989, activists in England mounted a campaign against chlorine bleaching. Six weeks and 50,000 letters later, the makers of sanitary products switched to oxygen bleaching (one of the green methods available) MS magazine, >May/June 1995).

HAT TO DO NOW: Tell people. Everyone. Inform them. We are being manipulated by this industry and the government, let's do something about it! Please write to the companies: Tampax (tambrands); Playtex, O.B.Tampons, Kotex. All the 1-800 numbers are listed on the boxes. Let them know that we demand a safe product: ALL COTTON UNBLEACHED TAMPONS...

Years ago, Gilda Radner died of ovarian cancer. Her symptoms were inconclusive, and she was treated for everything under the sun until it was too late. This blood test finally identified her illness but alas, too late. She wrote a book to heighten awareness.
Gene Wilder is her widower.

I have Primary Peritoneal Cancer. This cancer has only recently been identified as its OWN type of cancer, but it is essentially Ovarian Cancer.

Both types of cancer are diagnosed in the same way, with the "tumor marker" CA-125 BLOOD TEST, and they are treated in the same way - surgery to remove the primary tumor and then chemotherapy with Taxol and Carboplatin.

Having gone through this ordeal, I want to save others from the same fate. That is why I am sending this message to you

One thing I have learned is that each of us must take TOTAL responsibility for our own health care. I thought I had done that because I always had an annual physical and PAP smear, did a monthly Self-Breast Exam, went to the dentist at least twice a year, etc. I even insisted on a sigmoidoscopy and a bone density test last year. When I had a total hysterectomy in 1993, I thought that I did not have to worry about getting any of the female reproductive organ cancers.

LITTLE DID I KNOW. I don't have ovaries (and they were HEALTHY when they were removed), but I have what is essentially ovarian cancer. Strange, isn't it?

These are just SOME of the things our Doctors never tell us: ONE out of every 55 women will get OVARIAN or PRIMARY PERITONEAL CANCER. The "CLASSIC" symptoms are an ABDOMEN that rather SUDDENLY ENLARGES and CONSTIPATION and/or DIARRHEA.

I had these classic symptoms and went to the doctor.
Because these symptoms seemed to be "abdominal", I went to a gastroenterologist. He ran tests that were designed to determine whether there was a bacteria infection; these tests were negative, and I was diagnosed with "Irritable Bowel Syndrome". I guess I would have accepted this diagnosis had it not been for my enlarged abdomen. I swear to you, it looked like I was 4-5 months pregnant! I therefore insisted on more tests.

They took an X-ray of my abdomen; it was negative. I was again assured that I had Irritable Bowel Syndrome and was encouraged to go on my scheduled month-long trip to Europe. I couldn't wear any of my slacks or shorts because I couldn't get them buttoned, and I KNEW something was radically wrong.

I INSISTED on more tests, and they reluctantly) scheduled me for a CT-Scan (just to shut me up, I think). This is what I mean by "taking charge of our own health care"

The CT-Scan showed a lot of fluid in my abdomen (NOT normal). Needless to say, I had to cancel my trip and have FIVE POUNDS assure you), but NOTHING compared to what was ahead of me).

Tests revealed cancer cells in the fluid. Finally, finally, finally, the doctor ran a CA-125 blood test, and I was properly diagnosed.

I HAD THE CLASSIC SYMPTOMS FOR OVARIAN CANCER, AND YET THIS SIMPLE CA-125 BLOOD TEST HAD NEVER BEEN RUN ON ME, not as part of my annual physical exam and not when I was symptomatic. This Is an inexpensive and simple blood test!

PLEASE, PLEASE TELL ALL YOUR FEMALE FRIENDS AND RELATIVES TO INSIST ON A CA-125 BLOOD TEST EVERY YEAR AS PART OF THEIR ANNUAL PHYSICAL EXAMS.

Be forewarned that their doctors might try to talk them out of it, saying, IT ISN'T NECESSARY." Believe me, had I known then what I know now, we would have caught my cancer much earlier (before it was a stage 3 cancer). Insist on the CA-125 BLOOD TEST; DO NOT take "NO" for an answer!

The normal range for a CA-125 BLOOD TEST is between zero and 35. MINE WAS 754. (That's right, 754!). If the number is slightly above 35, you can have another done in three or six months and keep a close eye on it, just as women do when they have fibroid tumors or when men have a slightly elevated PSA test (Prostatic Specific Antigens) that helps diagnose prostate cancer.

Having the CA-125 test done annually can alert you early, and that's the goal in diagnosing any type of cancer - catching it early.

Do you know 55 women? If so, at least one of them will have this VERY AGGRESSIVE cancer. Please, go to your doctor and insist on a CA-125 test and have one EVERY YEAR for the rest of your life.

And forward this message to every woman you know, and tell all of your female family members and friends. Though the median age for this cancer is 56, (and, guess what, I'm exactly 56), women as young as 22 have it. Age is no factor.

A NOTE FROM THE RN:

Well, after reading this, I made some calls. I found that the CA-125 test is an ovarian screening test equivalent to a man's PSA test prostate screen (which my husband's doctor automatically gives him in his physical each year and insurance pays for it). I called the general practitioner's office about having the test done. The nurse had never heard of it. She told me that she doubted that insurance would pay for it. So I called Prudential Insurance Co., and got the same response. Never heard of it - it won't be covered.

I explained that it was the same as the PSA test they had paid for my husband for years. After conferring with whomever they confer with, she told me that the CA-125 would be covered.

It is $75 in a GP's office and $125 at the GYN's. This is a screening test that should be required just like a PAP smear (a PAP smear cannot detect problems with your ovaries) And you must insist that your insurance company pay for it.

Gene Wilder and Pierce Brosnan (his wife had it, too) are lobbying for women's health issues, saying that this test should be required in our physicals, just like the PAP and the mammogram.

Be aware! Gentlemen, pass this on to the ladies in your life!

Sometime ago, I attended a Breast-Cancer-Awareness seminar organized by Terry Birk with support from Dan Sullivan. During the Q&A period, I asked why the most common area for breast cancer was near the arm pit.

My question could not be answered at that time. The leading cause of breast cancer is the use of anti perspirant. What? A concentration of toxins leads to cell mutations, a.k.a. cancer. Yes, ANTI-PERSPIRANT.

Most of the products out there are an anti-perspirant/deodorant combination, so go home and check. Deodorant is fine, anti-perspirant is not. Here's why.

The human body has a few areas that it uses to purge toxins from the body, behind the knees, behind the ears, the groin area, and armpits.

Additionally, men are less likely (but not completely exempt) to develop breast cancer prompted by anti-perspirant usage because most of the anti-perspirant product is caught in their hair and is not directly applied to the skin. Women who apply anti-perspirant right after shaving increase the risk further because shaving causes almost imperceptible nicks in the skin which give the chemicals entrance into the body from the armpit area.

Breast Cancer