The word DEMENTIA has eight letters, each one standing for something key in unlocking the door to the mysteries on the other side.
D stands for our increasing need for Dignity, which bolsters our waining self-worth and social standing, which is to us like the wind that fills the sail that moves our boat.
E the first E is for our Emotionalism. We are sometimes quite busy setting off or just noticing fireworks... it seems very natural to us, just as the behavior of a developing child is tolerated and understood with wisdom, the same is needed and natural for the undeveloping adult.
M is for Misplaced things, words, thoughts and feelings. Far from being lost, yet we scatter these as naturally as a maple tree in the Fall. And our true colors... we need you to notice and respond.
Second E is for Energy which is a lot like a model T Ford. Sometimes we chug along straight and steady, and other times we can barely make it to the top of the hill. Engine additives (medicines) can make a big difference, but other times we just do better sitting in the sun out in front of the house.
N is for Noticing. Golly how frustrated we can get sometimes. Its like were in the forth grade and the new teacher seems to notice only the mistakes and not the creativity or underlying but invisible effort. We want so much to be appreciated for our efforts.
T is for Talking. We need to talk, express ourselves and be listened to, slowly and carefully, almost as if we speak a foreign language. And interruptions to our trains of though almost always end in derailments. being listened to patiently to the point of understanding is the balm of life for us.
I is for Intellect. Just because were demented does not at all mean were stupid. We need stimulation, activity and mental exercise. We need to contribute. We need partners and friends who don't have prejudiced minds and look down on us just because of name of our illnesses...
And finally A is for Adjustment. Its like two steps forward and one back or vice versa. But it is vital to recognize and get in tune with trends and changes in our ways of doing things in all respects. Really, its all inevitable yet challenging; sometimes broken but sometimes brave; maybe frustrating but always attempting to save.... us
Hello Kyle and Tim,I made some potato soup for lunch, set up my medications for the week, made a peach cobbler and watch a lot of TV. Since I had to leave chat because of the thunderstorm… I got to talk to both my Son’s today so it has been a good day… Goodnight all… Keeping The Faith In Oklahoma
In 1995 when I received my diagnosis of Dementia of the Alzheimer's type I was told I would have to give up my business. I ran a Licensed Day Care in my home in which I cared for infants and I loved my job. When my neighbor found out she brought me a beautiful cross-stitched frame picture that she had made just for me. It said, "When God Closes A Door, He Opens A Window." I would read that with tears in my eyes, and wonder how in the world a window could be opened now. I had Alzheimer's and was told by my Neurologist that I had five years to live.
Later I found out that window was opened. I had more special time for my husband and Son's, time to enjoy the birds. Also, I found DASN, where I have met so many wonderful friends. Now I don't have the babies to wake up for but what I do have is my computer (another window).
Each morning I run to the computer to read my email from my DASN friends, to see if we have had new members join so I can welcome them, and how many have visited my web page and signed my guest book. It has encouraged me to do a Web Page where I can reach out to newly diagnosed PWiD and also hopefully help their Care-Partners to understand what it is like for us to live with dementia.
I host a chat room for DASN twice a day where we can share, laugh, sometimes cry, and just talk about the weather if we want.
Many nights I go to bed and I can't sleep and I will just lie there thinking about my DASN Friends all over the world. Sometimes I will even just laugh out loud at some of the things we have shared. It is though I feel like I get a hug each time I host a DASN chat room. Like Will Rogers once said, He Never Met A Man He Didn't Like. I can honestly say I never met a DASN member that I didn't like.
I have been lucky enough to meet several of our members in person, some have came to my home, my husband and I went to Texas to meet one couple, and others I met in Montana when we had our DASN Conference in June. It always seems like when I meet them in person they are like a long time friend.
Oklahoma City, OK.