Mary's World - Journal Entries July thru Nov 2001



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November 30, 2001

Thanks to Janey in Plainfield, Illinois for visiting Mary’s Place and signing my guest book… I had a good night’s sleep… I had an early appointment at the dental college this morning. I had someone from Provide A Ride to pick me up. They are going to remake my partial and I am not looking forward to that again. Today they made some impressions and that seemed to take forever. After we left there we stopped at Wendy’s for some lunch. I went to pay for it and I thought I laid out the exact amount of money. I checked it twice, counting the change which I thought was seven cents, a nickel and two pennies. The cashier told me to wait for my change. I had thought a quarter was a nickel. I don’t know if this happened because Dave usually pays for everything, or I use a charge card. Or what?? Also last night I had a glass of water in my left hand and I asked Dave what happened to my glass of water. I hope I am not getting worse… Goodnight all… KTFIOK

November 29, 2001

HAPPY BIRTHDAY BOB!!! Bob is my Bother-in-law in Huntington, West Virginia… The snow has stopped and the sun is shinning but it is still very cold. Dogs don’t spend much time outside. They do their thing and are ready to get back in the house. Dave fed the birds for me, so I am happy. The Cardinals are so pretty in the snow… Dave is now off his pain medication so he is coming right along. I missed him today so went to look for him and found him sitting in his new car… I made cornbread to go with the ham and beans Lori fixed for us. They were yummy. Seems like I never lose my appetite and I am always craving sweets… I called Josh, he was out of school today. Because of the snow he spent the day home alone. Also called Lori, Madison is doing fine… Goodnight all… KTFIOK

November 28, 2001

Thanks to Ashley in Seagrove, North Carolina and Kathy in Seagrove, North Carolina for visiting Mary’s Place and signing my guest book… George, it was great getting to IM with you last night… We are having a big winter storm and Dave and I are not getting out in this. We have been canceling appointments and called David to bring us some groceries. He came with the groceries and the Beans; also while he was here he brought our mail in. We had no idea we would get this much snow. Whatever happened to the kids who would come to your door and ask if they could rake your leaves or shovel the snow??? We may end up suffering from cabin fever if this keeps up… I remembered to call my Mother today; I forgot to call her Sunday like I always do. Taking care of Dave and having him at home all the time, I have gotten my days all mixed up. But my Mother says she forgives me. She is so sweet, and I love her so much… In the past week I have received three e-mail’s with viruses, that always scares me. So I ended up spending the biggest part of the morning running my Norton Anti Virus scanner… I fixed supper and made a Dump Cake… Goodnight all... KTFIOK

November 27, 2001

Thanks To Sally in Hollywood, California and Diane in Pleasant Plains, Illinois for visiting Mary’s Place and signing my guest book… I woke up at 5:00 this morning; I guess all the excitement and anxieties of buying a new vehicle was on my mind... All the running around we have been doing has caused me to really get behind on my work. Dave isn’t able to help me like he used to before his accident and I sure do miss him… We are having winter weather now, it is 30 degrees and it is snowing. It is our first snow of the year… It feels so good to not have to go anywhere today... I fixed us a country breakfast, did laundry, and worked some more with the checkbook… David called and said Lori was cooking a pot of beans and she would share with us. She knows how much we love beans and cornbread... I called Josh just so I could hear his voice. He has been working hard on his NY, NY 3D puzzle… I got caught up on Chip’s journal and seen where he has and wears a Safe Return Bracelet also. I wear mine all the time. It makes me feel so secure. I tell Dave if I ever get lost, that I will always be returned to him. I am not sure how he feels about that. LOL… Goodnight all… KTFIOK

November 26, 2001

Thanks to Diane in Australia and Lela in Port Charlotte, Florida for visiting Mary’s Place and signing my guest book… What a day this has been. Dave and I left early in the day to run some errands before the bad weather comes in tonight. While we were out we went car shopping again. This time we finally found the one we wanted to buy. I had forgotten what all is involved in buying a new car. It has taken about all day to do the dealing, paper work, and all. I am really tired tonight… Goodnight all… KTFIOK

November 25, 2001

I had a good nights sleep and woke up with my allergies really bothering me, but as the day went on I felt better… Didn’t do much of anything today except clean the kitchen. This afternoon, after my nap, Lori called and invited us out for dinner. She said Madison would be there too. So I helped Dave get ready and got myself ready to go… Madison is so sweet, I held her for a good hour and she smiled at me but mostly she just slept. But I am sure she knows I am her Great Grandmother already. I can’t wait to see what she ends up calling me… As always Lori sent lots of leftovers home with us. She even made Dave his favorite meatloaf to send home with us... She spoils us so… Goodnight all… KTFIOK

November 24, 2001

Thanks to Dan and Madeline in Black Forrest, Colorado for visiting Mary’s Place and signing my guest book… It was midnight when I got home last night from the Concert. I really enjoyed the concert, Neil Diamond put on a terrific show. He never once took a break. Getting into the concert wasn’t a lot of fun. We had a ways to walk from the parking garage and the crowd was horrible. I love people, but this was a lot of people. It was a full house, and it was all well worth it… It has been a beautiful day up in the 60’s. Dave and I got out of the house and went to look at some cars. We just can’t make up our mind which one we like the best yet… Goodnight all… Keeping The Faith In Oklahoma

November 23, 2001

I woke up feeling overwhelmed with things to do… I gave the dogs a bath, paid bills and worked with the checkbook, did three loads of laundry and talked to Kathy, Lori and Sheri on the phone. I wrote a check for our donation to the Salvation Army and that always gives me a warm fuzzy feeling… I was supposed to go see Madison today but couldn’t fit that into my schedule. But I hope to see her sometime this weekend… I needed to find time to get some rest because tonight I go to see the Neil Diamond concert. I will be going with Kathy and Sheri, Kathy is my Daughter-in-law and Sheri is a friend from my childcare days… I won’t be able to host the DASN Chat tonight… I am doing my journal early because I know I will be too tired after the concert… I am still taking good care of Dave… Goodnight all… KTFIOK

November 22, 2001

Happy Thanksgiving!!! HAPPY BIRTHDAY JOSE!!! Jose is my nephew in North Carolina… Thanks to Terry in New York for visiting Mary’s Place and signing my guest book… We were up early this morning so I could help Dave get his shower and I could get mine... I called my Mother; she was having dinner at my Nephew’s family’s home. Then I called my Sister-in Law Margot, and she was cooking dinner at her home… I made a salad to take to Brenda’s and I messed up and chopped my finger as I was cutting the vegetables. Soon I will not be able to play with knifes anymore… We had a wonderful Thanksgiving Dinner at Brenda and Bill’s home. David and Lori were there, and most of Lori’s family. I think there were around thirty people there. And yes I over ate. When we left there we stopped by Kenny and Kathy’s where there was another big Thanksgiving get together going on. All of Kathy’s family was there… I am so thankful that our Son’s married into such wonderful families. I always feel so comfortable around all of them… Goodnight all… Keeping The Faith In Oklahoma

November 21, 2001

HAPPY BIRTHDAY PETER!!! Peter is my friend in United Kingdom… Thanks to Aralee in Schertz, Texas and Sis in Texas for visiting Mary’s Place and signing my guest book… Dave had a pretty good night and I slept like a baby… This morning we had to make a trip on base to pick up some medications, pickup a few groceries, and an electric can opener. I found out the other night how hard it is to open a can with my can opener; it hurt my elbow so bad, and there was no way Dave could open one. That is when we decided we needed an electric one… Dave insisted on doing the driving this morning so it was my job to change the gears for him. We are quite the pair. But we are going to make it… Madison and Jenni got to go home from the hospital today… After the DASN Chat I was able to take a short nap. Then I fixed us some supper… To add to my stress we tracked in grease on our carpet. It came from our garage door opener that we didn’t know was leaking. I can’t stop repeating myself and complaining, and Dave keeps telling me not to worry about it… I hope everyone has a Happy Thanksgiving. We are having dinner with Lori’s family… Goodnight all… KTFIOK

November 20, 2001

Thanks to Jean and Brian in New Zealand and Lynne in Iowa Park, Texas for visiting Mary’s Place and signing my guest book… Dave got me up at 5:00 this morning so we could get ready to go to the hospital… We arrived at the hospital right on time and David met us there… Dave’s surgery took about an hour and a half. It seemed much longer than that. I'll admit I was a little anxious… Everything went well, the Doctor showed us an X-ray of the pins that he had put in and they were much longer than I had expected. The nurses at the hospital were great. As soon as Dave was good and awake and they knew that he was able to get by on the pain pills and didn’t need injections. They said he could go home. The Nurses insisted that I have a wheelchair too. …So Dave and I both had a nurse pushing our wheelchair out of the hospital. That was great because my foot was so swollen from hanging down for eight hours that I could barely walk… Thank you David for being there with me through all this… I drove Dave home from the hospital around 4:00 and David followed us. The Merry Maids were just finishing up when we got here… We ordered pizza and David made sure we both were just fine before he left to go home… Kenny, Josh, Heather, and Lori called … Dave and I then laid down and took a nap… Thanks to Kenny and Kathy for switching vehicles with us last Saturday, so we would have a automatic transmission while all this is going on… Dave and I often wonder what we would do without our kids. We sure are thankful for them… Goodnight all… KTFIOK

November 19, 2001

Congratulations to Chris and Jenni on your new arrival Madison!!! Madison arrived this morning at 7:45; she weighs 6 pounds and 15 ounces and is 19 inches long… HAPPY BIRTHDAY DIANE!!!! Diane is my DASN friend in Australia… Thanks to Lela in Port Charles, Florida, Pat in Carson, California, Glenna in Vancouver, Canada, Sis in Texas, and Kate, in Fresno, California, for visiting Mary’s Place and signing my guest book… Dave and I left around 8:00 this morning for his appointment with the Orthopedic Surgeon. We left there and went to the hospital where he was pre admitted for surgery tomorrow. They are going to put a couple of pins in his shoulder. I drove him, and I did fine. We didn’t get home till just in time for me to do the DASN Chat, I only stayed for about a half hour, I was just so tired… I laid down and was able to take a short nap. Karmeletia and Tootsie can hardly stand for me to nap. So I just got up and then Dave and I went to Norman to visit the new Mother and see our Great grandbaby Madison. I held her and she is just beautiful. I do think she has to be the prettiest baby in all of Oklahoma. David and Lori are sure proud grandparents… We stopped at Braums on our way home and picked up some supper… I have been doing laundry and trying to get things picked up for the Merry Maids to come tomorrow… I am exhausted tonight… Thanks to everyone who has called and sent cards and emails to Dave. He really appreciates every one of them… Goodnight all… Keeping The Faith In Oklahoma

November 18, 2001

My deepest sympathy goes out to my friend Pat in California, who lost her mother to Alzheimer’s today. Thanks to Sis in Texas, and Diane in Australia for visiting Mary’s Place and signing my guest book… Dave and I both slept well last night, him with his pain relievers and I took a whole Ambien, the half wasn’t working anymore… David and Kenny both called to see how we were doing today… We are doing fine, I am taking good care of my care partner. We are a mess, Dave with two broken bones in his right arm and me with a tumor in my foot and still healing from my broken right elbow, we are both right handed… I called my Mother and my brother George had been to visit her and took her out to lunch... Dave and I got a bunch of stuff together for the AmVets... Goodnight all… KTFIOK

November 17, 2001

Thanks to Melinda in Chattanooga, Tennessee for visiting Mary’s Place and signing my guest book… Dave and I had our breakfast this morning. He went outside to clean the leaves out of the guttering and I started the laundry. Dave had just finished his job and was coming down the ladder when he had a fall. He managed to get up and come inside and told me to call Kenny to take him to the Emergency Room. He had fallen and thought he broke something, he was in a lot of pain. Kenny got here as soon as he could; he came all the way from Bethany and drove us to the Emergency Room. We called David and he met us at the hospital. After a good five hours at the Emergency Room we got to leave and come home. Dave has two fractures in his right arm. We will have to see the Orthopedic Surgeon on Monday to see if they will need to do surgery… I received a Care Package today from my friend Diane in Australia. Diane you turned a bad day into a good one. Thank you Diane so much for everything, especially the large Koala Bear, he is adorable and Dave loved his gift too… Goodnight all… Keeping The Faith In Oklahoma

November 16, 2001

HAPPY BIRTHDAY DEWEY!!! Dewey is my Brother-In-Law in North Carolina… It was rainy this morning when I woke up, just a nice shower. I like rain. I was outside picking tomatoes this morning and noticed that the Roses and Morning Glories are still blooming also still have butterflies… Our winter is supposed to start next week. So soon I will be digging out my sweats and putting flannel sheets on the bed… I got the clothes out of the dryer that I had forgotten about yesterday and folded them and got them put away and I cooked supper… I have had a good day and I am so thankful for all my family and friends… Goodnight all… KTFIOK

November 15, 2001

This morning I woke up feeling much better and I knew it had to be a better day… Last night when I was getting ready for bed and taking my bedtime medication I noticed that I hadn’t taken my afternoon medication. So that helps explains why my day went so badly yesterday… The sun is shining today and so am I… I did the laundry and Dave took me for my haircut appointment so now I am groomed and that always helps… I had a call from Lori and our little Madison will arrive on Monday. We will all be relieved when she arrives… My phone buddy Virginia and Martha called… I have so much to be thankful for... Goodnight all… KTFIOK

November 14, 2001

Congratulations to Kevin and Joy on their new baby, Madison. Kevin is my nephew in Huntington, West Virginia. I couldn’t fall asleep last night and I couldn’t remember if I had taken an Ambien or not. So I just laid there tossing and turning… I got up at 6:30 this morning and read my email but felt so bad I went back to bed… I got up again around 9:00 and took a shower, had my oatmeal, set up my medications for the week, paid some bills, and cut out coupons. Then I made us some potato soup for lunch… I am not feeling too chipper tonight. Tomorrow will be a better day… Goodnight all… KTFIOK

November 13, 2001

Thanks to Diane in Australia for visiting Mary’s Place and signing my guest book… I took a half of Ambien last night and really slept . I didn’t wake up till after nine this morning. I think the three-day weekend exhausted me… I haven’t gotten much of anything accomplished today. Just resting and I know tomorrow I will get some work done… A lady from the dental college called and they are going to remake my denture for no charge so that is good news. I hope this time it is easier than the last time… The realtor let us know this morning that they have an offer on the hangar home. I am feeling so relieved about not having to move. I am thinking Dave is feeling the same way. Even though I don’t think he has any idea how much stress a move would put on me… My friend Martha called … No sunshine here today but still in the mid 60’s… Goodnight all… KTFIOK

November 12, 2001

Today is the day they are observing for Veterans Day, and Dave is off work… Well, he didn’t have to go in to Tinker AFB to work but he is working hard at home… Thanks to Lela in Port Charlotte, Florida, for visiting Mary’s Place and signing my guest book… Kenny and David called last night… David and Lori met us at the hangar house today so they could view it too… Kenny and Kathy would loved to have come also but they both had to work… Dave has decided now, I think to look for some land on an airstrip… I helped Dave fix supper tonight and I am feeling extra tired… Goodnight all… KTFIOK

November 11, 2001

HAPPY BIRTHDAY WESLEY!!! Wesley is my Brother-in-law in Lake Isabella, California… This November is so warm that it even has my flowers confused. I noticed this morning when I was feeding the birds and hanging my pillows out to air that my Forsythia was blooming… Dave left early this morning to go to the airport. He was having flying withdrawals. Not really, he needed to get some practice in for his bi-annual… I stayed here and gave the dogs a bath and caught up on the laundry. So now tomorrow I can play… I called my Mother… Goodnight all… KTFIOK

November 10, 2001

Yeah OU!!! I only took half of an Ambien and did sleep well… Oh what a beautiful day this has been, up into the 70’s, nothing like November… David called and invited us out to see the pond. We had a Spaghetti lunch with them and then went out to the pond. It is really a nice pond. Now all he needs is some rain. While we were there Erin took me three wheeling. What a grandma won’t do to make memories for her grandchildren… I was having so much fun out there I forgot all about the DASN Chat. But I needed a break… Dave has been working in the garage, getting rid of some stuff. I have lots of stuff to get rid of too… A beautiful sunset tonight… Goodnight all… Keeping The Faith In Oklahoma

November 9, 2001

I had a sleepless night; I was doing pros and cons all night long on moving to another home. Tonight I am taking an Ambien for sleep. Never given into a sleep aid before but I need some sleep… I did a lot of picking up, did laundry, paid bills, and balanced the checkbook… Tonight we are having a realtor come to give us a market analysis on our home… We are curious to see what they will come up with… I called and checked on Jenni and told her I was starting to cut out diaper coupons for her… Goodnight all… KTFIOK

November 8, 2001

Dave and I had a good time at Heather’s birthday party last night, visiting mostly with Kenny and Kathy. Heather was too busy having fun with her friends to realize we were there. I did get some hugs from Josh… I called an old friend Jean today. We used to go on motorcycle trips with her and her husband Chuck. I had phone calls from Virginia, Martha, and Lori… I called my Doctor about a flu shot but they don't have any of the vaccine right now... Dave and I are still discussing the pro and cons of moving to another home… Goodnight all… Keeping The Faith In Oklahoma

November 7, 2001

HAPPY BIRTHDAY UNCLE ROY!!! Uncle Roy is 91 and is my Mother’s brother in Monticello, Indiana. HAPPY BIRTHDAY HEATHER!!!! Heather is our granddaughter in Bethany, Oklahoma… I had a good night’s sleep and woke up feeling so good. I have been cleaning house today and getting rid of a lot of paperwork, also cut out some coupons. I love it when I get these energy spurts… It is so good to have my friend Lynn in Canada back home from an extended stay in NZ. She went there for a ADI Conference and stayed on to tour the area… Dave will have to go for a biopsy at the end of the month. He had a cleaning last week and they found a couple spots on the inside of his cheek. I pray everything will turn out okay for him… Tonight we will go to Heather’s birthday party. I can’t believe she is ten already… Had a phone call from David, they are putting a pond on their property and someday I will be able to go out there and fish. Something else for me to look forward too… Goodnight all… KTFIOK

November 6, 2001

HAPPY BIRTHDAY AUNT FLORENCE!!! Aunt Florence is my Dad’s Sister in San Antonio, Texas… I didn’t sleep well again, this time my elbow was hurting. I have been bad about not wearing my sling, can’t do a thing with it on… I set up my medications for the week, fed the birds and picked some more vegetables. I have one more cantaloupe that is about to ripen. Don’t know if it will be good this late in the year or not…. This afternoon Dave and I went to our EASE meeting 25 miles away. It was a pretty good meeting, at least I laughed a lot… Goodnight all… KTFIOK

November 5, 2001

Yesterday was such a great day. It was one of those days when I felt almost cured. But today has not been one of those days. It seems like every time I have a day like yesterday then the next day is a bad one… I haven’t gotten anything accomplished so I have hopes of tomorrow being a better day… I have been told I am too sensitive and I know I am very sensitive but I don’t like hearing it all the time… I spent sometime out on the patio just watching the dogs, butterflies, and birds and doing a lot of thinking… Goodnight all… KTFIOK

November 4, 2001

David and Lori came by on their way to a costume party last night. David went as Michael Jackson and Lori went as Elizabeth Taylor. They both looked great. David called this morning and said that he had won. I am not a bit surprised. David also said he finally got the bull loaded in the trailer and off to market…A beautiful day in Oklahoma, 67 degrees right now… I had a phone call from Dick, my Brother-in-Law in Tennessee early this morning; he was checking on me and teasing me as usual. He said that when I feel it shook all the leaves off the trees in Tennessee. LOL… I heard from my nephew Dan in Black Forrest, Colorado. Madeline, I hope you have a quick recovery from your surgery… I picked some tomatoes, cucumbers, and bell peppers out of our garden. It is hard to believe that I still have vegetables this late in the year… I did a load of laundry and Dave made a loaf of Amish Bread… Then we took a drive to New Castle to meet a realtor, we wanted to take a look at a hanger home. The drive out there was beautiful with all the foliage turning. We fell in love with the home and Dave would have a ball having his airplane right there at the house and I would have a great view, something I don’t have here... Now if we can only afford it and I can handle the stress of a move… Goodnight all… Keeping The Faith In Oklahoma

November 3, 2001

Thanks to Jack in Gettysburg, Pennsylvania for visiting Mary’s Place and signing my guest book… It has been a quiet and cloudy day… I would like to post an article written by one of our DASN members who attended the ADI Conference in New Zealand. Thanks Brian for giving me the permission to share.

What a Gathering!

A PWID Perspective.


It seems fitting to borrow from the Christmas slogan. 'We are the Reason for the Season.'

Without us who have dementia there would be no Alzheimer's Association and no World Conference. The officials and organisers would be quite rested and blissfully unaware of their potential to change lives and attitudes. For that was what this conference was all about and to everyone's credit this potential is starting to be realised as well as being increased by the moment.

Yet this was a world first. People with dementia (PWiDs) were not only invited to attend but were also given leading roles in addresses and seminars. PWiDs were active and respected participants in all facets of the occasion. We had twelve PWids in our discussion group which makes us 0.5% or less of the entire conference of over one thousand people. Yes, we felt special and we will work to promote the early diagnosis of dementia as we are able so that the percentage of PWiDs to carers and medical and social professionals will increase in the future..

DASN International, a "Worldwide non profit organisation by and for those diagnosed with dementia working together to improve our quality of life" had a booth set up in the main gathering area. Husbands and care partners of members manned it while they were in discussion groups. An hour long video presentation was shown and countless printed articles distributed sharing the realities of living with dementia and emphasising the great pool of talent and potential we PWiDs have to change our personal, social, medical and political futures. Great interest was shown in this booth.

In our discussion group, which was PWiDs ONLY, facilitated by Jan Phillips from USA and Christine Boden from Australia, we covered subjects as diverse as the dismal reality that Pharmac does not accept that life changing drugs e.g. Aricept and Exolon are worth subsidising for our greater involvement in society, (or is it that they have the mindset that we have little worth in their scheme of things?), to a great demonstration of a numbers game 'Numero" which was created by an Australian PWiD as a game for his grandchildren. He later found it a wonderful way to stimulate our slowing abilities in calculations. It is fun to play and a great way to spend time with more advanced dementa patients in care. This game is available world wide and the proceeds return to the Western Australian Alzheimer's Association. 'Numero' will soon be available through branches of Whitcouls in N.Z. and I strongly recommend it for all ages, not only PWiDs.

We cried with each other as we told our stories and shared the fears of a progressive illness that would finally take our minds away and laughed at the burnt toast, the half cooked dinners, the forgotten appointments and all the many wonderful situations only we with dementia get ourselves into. There was never an atmosphere of inevitability to regress. Rather the love and support we received from each other created a passion that empowered mind and spirit. As a result I have been empowered to speak and write of my experiences and given a vision of hope and involvement which I intend to offer to our local Alzheimer's Association and to DASN International.

While I was cosseted with my fellows and 'fellowesses' Jean had time to inspect the booths of the international associations present, and to spend time with the drug companies exhibits. She received cheerful support wherever she went and would especially like to single out Dr Verna Scholfield and Mary Rose for being just that much extra. I say thanks to them also.

One jarring note sounded above the music of the occasion. Why do some carers and administrators continue to refer to us PWiDs as clients or 'bodies in care'? The terms were even used on a provincial poster! Being called thus, I find, is both disgraceful and demeaning. We are people with all the humanities that others have. We may be a little slow and forgetful but we are not stupid or depersonalised. I ask the offenders to please accord us more respect.

For me, with early stage dementia, this gathering was a most rewarding and encouraging experience. We shared laughter and tears, deep dissertations on living and dying. Through it all we gained strength from being together. It humbled me greatly to experience the depths of faith and humanity and the heights of love and support offered by my fellow journeymen.

I came to this conference in fear and left in wonder.

Thankyou and God bless.

Brian McNaughton.

PS

I forgot to tell about Jan's bubbles. She gave each of us a little bottle of gin...oops, bubbles to hang round our necks. When we felt particularly stressed we would open the bottle and blow bubbles over everyone. It made for much hilarity and the rank and file became even more convinced that we had lost the plot somewhere along the line. Funny thing was that the all wished that they had one too.

Goodnight all… Keeping The Faith In Oklahoma November 2, 2001

Thanks to Glenna in Vancouver, Canada and Anthony in Ottawa, Canada for visiting Mary’s Place and signing my guest book… I slept better last night and have had a great day… I fed the birds, paid some bills, and did a couple loads of laundry… Then this afternoon Dave and I went to Edmond for my appointment with Dr. Smith. She had good news for me on the MRI of my foot; the tumor hadn’t gotten any larger. She took x-rays of my right elbow and left hand. She wanted to see where the break was in my elbow and to make sure my hand wasn’t broken because it was so swollen and bruised. I told her how I was starting to loose my balance more and she recommended I start using a cane… We did a little car shopping and then went by Kenny’s and Kathy’s; we wanted to see the jack-o-lanterns Josh and Heather had carved. They were really good. Even Kenny and Kathy had carved one too. I am glad they did that, making memories for my grandchildren… Goodnight all… KTFIOK .

November 1, 2001

Thanks to Diane in Canada for visiting Mary’s Place and signing my guest book… It is November and the month I have been waiting for. My Granddaughter Jenni and her Husband Chris are due to have their baby girl, Madison this month. It has been so long since I have held a newborn. I need to hurry and get well… I didn’t sleep well last night because my elbow was hurting; finally at 6:00 this morning I gave in and took a pain pill. I kept bumping it yesterday and I am sure I was doing a few things I shouldn’t have been doing… This afternoon I remembered to call my phone buddy Virginia, I was supposed to call her when I returned from my vacation but I just kept forgetting… I went out in the garden and picked some green tomatoes so we could have fried green tomatoes for supper. I have been craving them. Dave got on to me for going outside because he said I could have fallen. I still am so scared of falling. I am more worried about falling again than I am about Anthrax… Goodnight all… KTFIOK

October 31, 2001

Happy Halloween, and Trick or Treat everyone. I always think of peanut butter kisses this time of year and I feel like if I had a bag I could eat the whole bag… Thanks to Glenna in Vancouver, Canada, Sally in North Hollywood, California, Marie in Miami, Florida, and Pat and Peter in Canada for visiting Mary’s Place and signing my guest book… My brother George called last night and we had a nice visit. He will be having foot surgery on the 15th of November. Poor guy has sure had his share of problems… I have had calls from David, Lori, Martha, and Jauntia… This morning I had a fun IM Chat with all my AD Friends. I love every one of them… Dave and I got to get out of the house tonight and just go for a drive. We went to Norman and picked up a take out chicken dinner at Barry’s Chicken Ranch... Goodnight all... KTFIOK

October 30, 2001

Thanks to Kathy in Moore, Oklahoma for visiting Mary’s Place and signing my guest book… I had to set my alarm this morning for an appointment with a Neurologist. This was with a lady and I was hoping it would be a good appointment. But was I ever disappointed. She was a big mistake. I was able to fold a piece a paper, knew what day it was and knew what a watch and a pen were so after that she was convinced I didn’t have dementia and I was trying to convince her I had dementia. Why don’t these doctors know about Early Onset Alzheimer’s Disease? I left her office in tears and calling her all kinds of names. I refuse to ever see her again or go through the tests she ordered for me. Which were an EEG and a CT Scan. When we got home Dave called and cancelled all the appointments including the follow up appointment with her. When they asked Dave why, he just told them that the Doctor had insulted my intelligence and made me feel like an idiot and that was just putting it lightly. There are too many doctors in this world to put up with one that treats you like she did me. I may forget a lot but will never forget this Doctor I seen today... We at DASN International are trying to get the word out that you don’t have to be in your 80’s to have dementia and we do know how to fold a piece of paper too. The doctors may be the last to know… The good news is I have gone all day without a pain pill, did a load of laundry and was able to help out some with supper… I am ready for a pain pill now… Goodnight all… KTFIOK

October 29, 2001

My deepest sympathy goes out to a DASN International member and friend Cathy who lost her Mother to Alzheimer’s… Thanks to Di in Australia, Janey in Plainfield, Illinois, and Cathy in Dracut, Massachusetts for visiting Mary’s Place and signing my guest book… I was hoping to get off my pain medication today but I didn’t make it. I am still hurting pretty bad, but each day is a little better. I will be so happy when I can start doing my share around the house again. I don’t like to be waited on… Dave has been just great to take care of me… This morning we made a trip to David and Lori’s so Dave could help David load up a bull and take it to auction. But things don’t always work out as planned. So they will try again another day. I had a good time visiting with Lori and looking at old pictures… Tonight we start our DASN PWiD Chat at eldersearch.com. If you are a person with dementia and would like to join us please email me at mari5113@home.com I sure hope it works out for everyone, I am looking forward to seeing everyone there that wasn’t able to get into Yahoo… My friend Martha called… Goodnight all… KTFIOK

October 28, 2001

Thanks to Pat in Carson, California for visiting Mary’s Place and signing my guest book… I have had a much better day. I had a good night’s sleep and my pain medication is being needed less and less. I hope to be off of it by tomorrow. It is my right elbow and my left hand, which hurt the worst… My Diverticular Disease is improving with Cipro so everything is looking up… My laptop is so heavy that I still can’t pick it up or pull the handle on the recliner so I still have to rely on Dave for so much… David came by this morning and cleaned the aquarium so it is sparkling clean now… Dave cooked a chicken today for tortilla soup for supper and he finished unloading the motorhome… I went back in DASN chat for a little while this afternoon, didn’t stay the full hour because my hands were hurting from typing… My friends, Jan and Wade are home from New Zealand, I just love to hear her stories about how well that DASN International went over there at the ADI Conference. I am so proud of Jan, Lynn, Morris, and Christine for representing us over in New Zealand. Brian, Jean, and Alan, I was also happy to hear that you all were there also… I called my Mother. She had been to a Halloween Party, it was her job to hand out candy to all the children and she really sounded like she was so tired, so we didn’t talk long… I had phone calls from two of Dave’s brother’s, Howard and Richard and Dave’s nephew Dan called checking on me Goodnight all… KTFIOK

October 27, 2001

HAPPY BIRTHDAY KATHY!!! Kathy is our daughter-in-law… I have rested most of the day… Lori came by and brought some baked goodies… Then later we were invited to Kenny and Kathy’s for a big Spaghetti birthday dinner that her Mother Louise had prepared for her. You should all try eating spaghetti with your left hand when you are right handed. I made a mess, lol… We enjoyed visiting with everyone. Louise’s Dad has just started on the new memory drug. We were joking about our remembering and our drugs… Kenny and Kathy picked out their birthday shoes so now I will order them,,, I haven’ t done any chats since my accident. Because my hands hurt too bad to type.... I hope to try soon, because I really miss chatting with my DASN and AD Friends… Today was the day I was to go with Kathy and Louise to have crab legs and then to the Affair Of The Heart, a big craft show at the fairgrounds. I backed out because I wouldn’t have been able to crack my crab legs and no one was going to volunteer to do it for me..LOL And I sure didn’t want to be around a crowd having them bump my foot or elbow… Goodnight all… Keeping The Faith In Oklahoma

October 26, 2001

Thanks Dave for the update in my journal yesterday… Congratulations to Howard in Gahanna, Ohio for being the 10,000th person to visit my web page… Thanks to everyone who has called, came to visit, sent cards, and emails. You all make my heart smile… David came by and brought some of Lori’s delicious leftovers… I hurt so badly today, I just stayed in bed all day. I can’t believe how badly bruised I am and how bad I hurt for only having one cracked bone. I don’t know which hurts the worse, the knees, the wrists, or the elbow. But I am still so thankful it wasn’t worse. I could have been outside in the cold with no phone as I had been unloading the motorhome all morning. I could have easily broken my hip or legs, or I could have hit my head on the fireplace. So I am just so thankful… Goodnight all… KTFIOK

October 25, 2001

This is Dave, Mary’s husband. Mary is unable to type anything tonight for her journal so I am doing it for her. This morning Mary fell in our living room while doing some housework. She was unable to get up but managed to crawl to a phone and call me at work. When I got home I realized I would not be able to lift her to her feet and get her into our truck so I called 911 and got an ambulance. After about four hours in the hospital ER I was allowed to bring her home. She has a cracked elbow, bruised knee and a couple very bruised wrists. She did not pass out but does not know why she fell. She was put on Cipro and Loratab so she will be OK. She is going to be pretty sore for awhile but she is in good spirits. That’s all for today folks…KTFIOK

October 24, 2001

Thanks to Jeanne in Honolulu, Hawaii, Diane in Australia, and Joanne in Marietta, Georgia for visiting Mary’s Place and signing my guest book… It sure is great to be home. We talked to Kenny, Kathy, and Josh last night and David and Lori today… I heard from several of my friends on IM today. Jan in New Zealand, Helen in Georgia, Sis in Texas, Chip in Ohio, and Sally in California… It felt good to be back hosting chat at DASN again… Dave and I planted the tulips and I am looking forward to seeing them bloom in the spring… Goodnight all… KTFIOK

October 23, 2001

We had a big breakfast with Ken and Joanne this morning, then told them goodbye… We drove through Hot Springs, Arkansas, now I am thinking this was the prettiest view so far… We went to Beaver’s Bend State Park in Broken Bow, Oklahoma and was planning to spend the night there. But right after lunch we decided we just wanted to go on home... So after Dave had gone to all the trouble to hook up at the campground, he started unhooking and we left headed for home… We were so happy to see our home. The dogs were happy to have a fenced in backyard to run around in, and no more leashes… I fixed us some hamburgers in our lean machine… Later I got on my computer to check e-mail’s. I had been unable to check e-mails the whole trip. I found I had 889 e-mails. Needless to say, that was a bit overwhelming for me… My DASN Friends, Christine, Jan, Lynn, and Morris, are in New Zealand now for the ADI Conference. Jan said the response over there was overwhelming… I am so excited for all of them… I joined the DASN Chat tonight for a little while and then went to AD Friend chat for a little while… Goodnight all… Keeping The Faith In Oklahoma

October 22, 2001

Right after breakfast, we loaded up the dogs and were telling Dick and Frances goodbye… We drove to Benton, Arkansas were we visited with our old friends, Ken and Joanne whom we had met when Dave was stationed at Pease, AFB in New Hampshire back in the 60’s. We were lucky enough to also get to see their Son, Jim whom we hadn’t seen in over twenty years. He just happened to be there visiting his parents…. We had a delicious spaghetti dinner that Joanne and prepared… Then we watched a video with them. "Sling Blade" We hadn’t seen it and we all enjoyed it. The movie was made in Benton, Arkansas… We visited for a few hours and went to our RV for the night… Goodnight all… KTFIAR

October 21, 2001

Dave and I had our breakfast in the RV and went inside to visit with Dick and Frances. Dave set up a computer that he had put together and taken to them. But he wasn’t able to get online with it. They don’t have AOL there… Later we all went to the Center Hill Restaurant for lunch. The food was great and the view was overlooking the lake. It was just beautiful and wouldn’t you know I had forgotten my camera… Later we went for a three hour tour of the area. Tennessee is just so beautiful… Goodnight all… KTFITN

October 20, 2001

This morning we woke up early to get ready to leave Indiana. We really had a good time here and this time of year was the perfect time to see the foliage… We told Donnie, Martha and George goodbye and Dave and I went to the Nursing Home to see Mom and to tell her goodbye, she was having her breakfast… Our next stop was in Louisville, Kentucky. I had called my Uncle Bob who lives there and asked him to meet us at the Cracker Barrel. We had lunch there. Dave was really looking forward to having their meatloaf. While we were eating George shows up and eats with us. I was happy to spend a little more time with my brother. It was great to spend some time with my Uncle Bob, he is Daddy’s only living brother. It is almost like spending some time with my Dad. They look and act alike… We said our goodbyes and left there on our way to Smithville, Tennessee… We got to Smithville just before dark. It sure was a beautiful trip. We found Dick and Frances and of course their dog, Sparky waiting for us. Our dogs were more than welcomed in their home… We had a nice visit and went to bed in our RV… Goodnight all… KTFITN

October 19, 2001

This morning I had my oatmeal in the RV and Dave had a big breakfast with Donnie, Martha, and George… Connie a school friend picked me up and we went to Homer’s for lunch. Barbara and Myrna met us there. I had some of the best white fish for lunch. It was nice visiting with my school friends. Just like old times… Later George and I went to the Nursing Home and picked up Mom to go back to Homer’s for dinner. There we met many friends and relativities for a nice dinner. We took lots of pictures, my sister Martha and my two brother’s George and Everett were there. The first time we had all been together in many years. My cousin Ruthann and her husband Lou had came in from Logansport, Jr and Antia, Maryellen, Janice, Ruth, and I am sure I am forgetting some, please forgive me if I did… Goodnight all… KTFIIN

October 18, 2001

This morning George fixed us a big country breakfast. Then he and I went up to the Nursing Home to visit Mom. We took my Bichon Cindy and his Bichon, Happy to visit. All the patients loved them… They held the dogs and would just smile and gibberish talk to them. I am sure some of them seldom ever smile. We took pictures… While George and I ran around, Dave was in the RV studying for his bi-annual flight review that will be due when we get back home… This evening George drove Mom, Martha, and I to Monticello, Indiana to visit Mom’s brother, our Uncle Roy who is in a Nursing Home there. He is 91 years old. Mary Lou, our cousin met us at the Nursing Home and after visiting Uncle Roy we left and went out for a nice dinner. I had my first Smelt meal. After dinner we stopped in Logansport to visit our Aunt Marie and Joyce. We had a nice visit and Aunt Marie gave all of us some of her home made dried noodles to take home with us. We all loved her noodles when we were kids… When we got back home it was late and I was really tired, I am not used to going like this all the time… Goodnight all… KTFIIN

October 17, 2001

George and I went to Kokomo to visit our brother Everett and his wife Ruth. They got us the biggest breaded tenderloin I have ever seen in my life. George and I split one and I couldn’t even eat all mine. When I was a teenager having tenderloin was a big thing back in Indiana and they are something we don’t have in Oklahoma or Colorado so it was a big treat for George and I… We went shopping while we were in Kokomo. I got Mom some Red and Yellow roses. I couldn’t make a decision on whether to get red or yellow so I had to get both. Then I went to get her some house slippers; again I couldn’t make a decision on which ones to get so I got her two pairs… Martha had made an appointment for us at the Nursing Home for a conference with the staff. It was a good meeting, the Nurses answered all of our questions and we are all happy with the care our Mother is receiving there at the home and Mom seems to be content… Martha and I went to get a manicure and then back to Donnie and Martha’s home to have a family dinner. Mom was there as was George and my nephew Jr. and Antia and her son Jordan. We had a great early Thanksgiving Dinner… Goodnight All… KTFIIN

October 16, 2001

Last night we spent the night around Joplin, Missouri. We neither one slept very well… We left early this morning right after breakfast… We arrived in Peru, Indiana at 6:30 PM. George was there at Donnie and Martha’s house. George and I left right away and went to the Nursing Home to see Mom. Martha was already there. We got there just as they were having church services. They were singing gospel songs. Mom was so happy to see me. But she had already been told I was coming so it wasn’t a surprise like I had hoped. We sang some old songs and some brought tears to my eyes as I was remembering the days when Mom would take us kids to church and we would sing the same songs… I seen several of my school friends there. Janice Hudson and Pat Spohn were there. It was great seeing them all again. Mom looked good and I was pleased even though she is now in a wheelchair. She has been in one since her stroke in June. We took Mom back to her room and we left to go back to Martha and Donnie’s. We visited for a while and then went to our RV for the night… Good night all… KTFIIN

October 15, 2001

We are all ready to leave… I will catch up with everyone when we return for our trip… Goodnight all… Keeping The Faith In Oklahoma

October 14, 2001

Thanks to Pats in Carson, California and Sis in Texas for visiting Mary’s Place and signing my guest book. I love it when people take the time to sign my guest book… Dave went flying this morning and I stayed here loading up the motorhome. I am about to get it loaded, just a few last minute things yet. Tomorrow, Dan Spencer, one of my DASN friends from Ohio, will be here to visit. We are looking forward to meeting him… Then Tuesday we leave for our trip to Indiana to visit my Mother. My brother George from Colorado will be there also. This will be the first time we have all been together since Daddy passed away… David called and I called my Mother, but I didn’t tell her I was coming home, I want it to be a surprise… After we leave Peru, Indiana, we will be going to Smithville, Tennessee to visit Dave ’s brother… I couldn’t sleep again last night and my foot was hurting bad too. I think the next time I see my Doctor I will have to ask for something for sleep. Although I hate to think about taking one more pill… Dave has washed the motorhome and cut the grass today. So we are both tired tonight… Goodnight all… KTFIOK

October 13, 2001

HAPPY BIRTHDAY TERESA!!!! Teresa is my friend and Web mistress in Missouri… Thanks to Aralee in Swartz, Texas for visiting Mary’s Place and signing my guest book… I fixed us a big country breakfast and then played some dominoes on the internet with someone in Istanbul, Turkey, then I hosted the DASN chat. After that I worked on cleaning the motorhome and starting to load it up... I had phone calls from David and Lynne, Lynne was passing through Oklahoma City from Iowa Park, Texas, she said they would try and stop on their way back from Missouri…Here is something I would like to share. Before I Go When my life has reached it's very end, And I take that final breath, I want to know I've left behind, Some "good" before my death. I hope that in my final hour, In all honesty I can say, That somewhere in my lifetime, I have brightened someone's day. That maybe I have brought a smile To someone else's face, And made one moment a little sweeter, While they dwelled here in this place. Lord, please be my reminder And whisper softly in my ear... To be a "giver", not a "taker", In the years I have left here. Give to me the strength I need, Open up my mind and my soul. That I might show sincere compassion, And love to others before I go. For if not a heart be touched by me, And not a smile was left behind... Then the life that I am blessed with, Will have been a waste of time. With all my heart, I truly hope, To leave something here on earth. That touched another, made them smile And gave to my life ... worth. ~ author unknown I am really tired tonight… Goodnight all… Keeping The Faith In Oklahoma .

October 12, 2001

This morning I woke up with so much on my mind… Soon we will be leaving on vacation and I have so much to do to get ready. I went to the motorhome to take inventory; I hadn’t been in there since our trip to Montana. I must have been in bad shape when I returned from that trip because I noticed as soon as I walked in the motorhome that I had not even washed our bedding from our last trip. So I had that to do today on top of everything else. I will get it done… I received an email today from my school friend Connie and we will be doing lunch while I am home visiting my Mother… I also received an email from an old friend here in Oklahoma City who we met when Dave was in the military. She had heard about my web page from RSVP, a sponsor of Provide A Ride. It was sure good hearing from Shirley after all these years. I had told the lady who drove me yesterday to the Doctor’s that I would like to be a volunteer to help out anyway I could and pay back for all they do for me. She gave one of my business cards to Shirley who works for RSVP… Kenny called tonight and everyone is fine at his house… Goodnight all… KTFIOK

October 11, 2001

Congratulations to Martha and Alfred on their wedding today… Thanks to Larry and Lynne in Iowa Park, Texas for visiting Mary’s Place and signing my guest book… I was in bed last night at 10:00 and I felt so sleepy, but at 1:00 this morning I was still wide awake. I don’t know what time I finally fell asleep. A nice lady named Pat from Provide A Ride picked me up this morning at 7:45. She drove me to the Doctor’s for my eye exam. I got a thorough exam, I have dry eyes and found out my plate wasn’t quite full as I now have cataracts in each eye, but the good news is that I don’t need surgery yet. I will go back in six months… I had calls from my friend Martha and my phone buddy Virginia… DASN Chat is still really messed up, people show up and we don’t even see them. I hope something will be done about it soon… Dave and I are making final plans for our trip next week; I have so much to do to get ready for it, kind of overwhelming… I made a grocery list for Dave and did some laundry and hung them out to dry. .. Dave got me some tulip bulbs; I can’t wait to get them in the ground… Goodnight all… KTFIOK

October 10, 2001

We were having terrible storms last night and under a tornado watch… I had turned off the news and was watching a video movie FAMILY MAN, when Josh called; he was so frighten of the weather warnings. His city Bethany and Oklahoma City was under a Tornado Warning. He was worried about his home, our home and his Mother’s home. I am so sorry he had to witness the tornado we had here two years ago, when it wiped out most of our neighborhood. Every since then he is a basket case when we have warnings. I stayed on the phone with him for a good half hour and tried to calm him. We watched the weather on TV together. When it did pass our area and he seen we were all safe he was thanking God. He is such a sweetheart… I missed DASN chat last night and had to leave early yesterday afternoon because of the storms. I try to keep everyone happy in chat, but sometimes it is a bit more than I can do… Today it was late afternoon before I remember to take my morning medication… Dave and I are starting to plan our vacation for next week… David dropped by before he went to work and brought us some Goulash and fresh pears… Thank you God for such a wonderful family… Goodnight all… KTFIOK

October 9, 2001

HAPPY BIRTHDAY KENNY!!! Our Son Kenny turns 38 today… I will be taking both of my Son’s shopping for shoes soon. This is what I do every year for their birthday and I love doing it… I had a horrible night last night. I was in so much pain from over loading my stomach. I should know better but when I see so much food I just enjoy it at the time and always forget how bad I hurt afterwards. It always tastes so much better than Lean Cusine’s. I was awake most of the night. I have been warn about doing that every since I had my colon surgery… Today I have just been resting, a good day for it. We have had thunderstorms and even Tornado Warnings in part of the state. I did get the clothes folded and put away and set up my medication for the week… I heard from my friend Glenna who is visiting in England. I sure miss her. My friend Martha called… I am sending my thoughts and prayers to my friend Brian in New Zealand who will be having major surgery on Thursday… Goodnight all… KTFIOK

October 8, 2001

HAPPY BIRTHDAY DAVID!!! I can’t believe we have a Son who is forty years old… Some days I don’t feel much older than that… But today I do. I am not having a very good day. I washed a load of clothes without detergent and I remember around noon today that I had forgotten to call my Mother yesterday. That is something I have done for years. I hope she will forgive me, I feel so terrible about it… We went to David and Lori’s for a big birthday dinner. As always Lori cooked a wonderful meal and David did the cooking outside. As usual we came home with out tummies full and many leftovers… Goodnight all… KTFIOK

October 7, 2001

Congratulations to Pat in Carson, California for being number 9500 to visit my web site. Thanks also Pat for signing my guest book and letting me know… To my DASN friends Chip, Jan, and Morris so happy your Memory Walks were a success yesterday… We had a nice visit with Martha and Alfred last night we did a lot of teasing them about getting married next Thursday. They are our ages and we are happy for both of them… Kathy made it home from RN First Assistant School today. She made straight A’s and she is so happy to be back with her family… I had a phone call from Carolyn a good friend in Indiana that I used to work in the hospital with back in the sixty’s. We talk for an hour, so much to catch up on. But like many of my friends I had to try and convince her I had Alzheimer’s. I hate it when people do that to me. If I had cancer it wouldn’t be that way. Let them catch me on a bad day sometimes, and then they would be convinced. . Dave went to the airport and I have been paying bills and working on the checkbook. I also did some work on my Angel Babies page… I don’t like the news but guess it needs to be done… Goodnight all… KTFIOK

October 6, 2000

Yeah OU!!! Dave and I just finished watching the OU / Texas game. We are still undefeated… This morning Dave and I had a late breakfast out on the patio. It was a beautiful morning. Dave then took care of the yard and I worked with deadheading my flowers… Lori called and she is invited us over for a fish fry for David’s birthday on Monday. Martha called and she and Alfred are on their way over. Looking forward to their visit and seeing Martha’s new ring… Goodnight all… Keeping The Faith In Oklahoma

October 5, 2001

Thanks to Pat in Reno, Nevada for visiting Mary’s Place and signing my guest book… I still am not sleeping, and I am getting so tired. I have watched several Bill Gaither Videos today. Oh how I enjoy listening to them. I always feel so blessed after watching them… I played dominoes on the internet, I feel it is helping with my numbers besides being enjoyable for me… I enjoyed chatting with my DASN friend Chip this morning on IM. We always seem to talk to each other so easily. Maybe it is cause we have so much in common. Someday I hope to meet Chip in person and get his autograph. If you haven’t visited Chip web site and read his journal, I hope you will visit. The address is: http://www.zarcrom.com/users/alzheimers/chip.html. I am looking forward to a weekend with my husband. He has been so tired lately. I worry about him… Goodnight all... KTFIOK

October 4, 2001

My deepest sympathy goes out to my dear friend Sally who lost her Mother to Alzheimer’s… HAPPY ANNIVERSARY To GREG and JOANNE in New Jersey… Thanks to Aralee in Swartz, Texas for visiting Mary’s Place and signing my guest book… We had a good visit with Kenny and the grandkids last night. I ended up watching a movie with them. I can’t remember the name of it but it was a good one. Kenny is doing a great job playing Mr. Mom. He was doing the laundry and he had cleaned the house. Kathy will be so proud of him when she gets home… I didn’t sleep last night either. I am beginning to think it is the full moon. I hope this passes soon, I need my sleep. I tried to take a nap this afternoon but like always I was too hyper. I did some picking up around the house and baked a dump cake. It was really easy and oh so good… My friend Martha called... Goodnight all… KTFIOK

October 3, 2001

I had a terrible time falling asleep last night, I did a lot of tossing and turning. It was really late when I woke up this morning. I have felt bad today, it is my tummy again. I pray the antibiotics will take care of it… David called and came by this afternoon. He brought us some leftovers, yummy. He brought me some chocolates that Martha had sent with him and he showed me pictures of their trip… Tonight we are going to see how Mr. Mom is doing and visit with Josh and Heather. The kids want us to bring the dogs, so we will do that... Goodnight all… KTFIOK

October 2, 2001

Thanks to Bob in Tenmile, Oregon, Marie in Miami, Florida, and Egidijus in Kaunas/Lithuania for visiting Mary’s Place and signing my guest book… Last night I was very tired and grouchy. I guess all the going and going has caught up with me. Today I have just taken it easy… I got a call this morning from David and he and Lori were home. They are happy to be home. I know the feeling. There is no place like home… Kathy left Sunday to go to school at Taos, New Mexico. She is there for Nurse’s First Assistant training. Kenny is busy working and playing Mr. Mom to Josh and Heathere… Last night I forgot to mention that Christine has written a book. She is a PwiD (Person With Dementia) Her book is WHO WILL I BE WHEN I DIE. It is a great book for the patients and caregiver’s as well. You can order the book at http://www.angusrobertson.com.au/ Goodnight all… KTFIOK

October 1, 2001

Thanks Lynne in Iowa Park, Texas for visiting Mary’s Place and signing my guest book… A brand new month and I am sure it will fly by like all the rest have. It will be Christmas before we know it… I had breakfast out on the patio this morning but didn’t see any hummingbirds; I think they may have left already. It seems like they were not here for long… Our weather is still just beautiful. The mums are so pretty; I love the flowers this time of year… I gave the three dogs a bath and washed their bedding and ours… I had a phone call from Martha and I called my phone buddy Virginia… Dave and I went car looking again… Goodnight all… KTFIOK

Here is something that my friend and DASN International Board member wrote and said I could share I believe this is how most of us with dementia feel. Christine Bryden in Australia wrote this article, and I got her permission to post it here. Thanks Christine. What can you do to help us live well? You can inform and empower us · Provide help sheets for us. We need to understand the nature of this disease, and how it is as individual as we are, and that there are many things we can do to help ourselves. · We need to know about anti-dementia drugs such as Aricept, about keeping mentally and physically active, and about complementary medicines such as Vitamins E and C, lecithin and Ginko that have been shown to help address brain damage. Make sure we know about an enduring Power of Attorney as soon as possible after our diagnosis, so that we can exercise our own choices about our future. It may well reassure us about our financial affairs. However, it will of course distress us to realize that one day we may lose our ability to read, write and use numbers. For some of us this occurs very early on in the disease, yet for others it may be a lot later. Present information simply and clearly, with not too many choices, and encourage us to function as a normal human being. Help us make choices in small areas of our lives so that we feel in control, and not pushed into things. You can provide us with support and encouragement · Encourage us to join a support group to reestablish social skills in an environment in which we feel normal, in which we no longer need to hide the fact that we have dementia. If there isn't one, help set it up! · Provide specialized counseling services for us, so we can deal with our emotions, and develop coping strategies. We need all the support we can get after having what I think is one of the worst diagnoses anyone can get. · If we live alone make sure we have access to transport and home help. But don't provide a large bus labeled "Alzheimer's", for all our neighbors will then know what we are trying desperately to hide from them. · Help us to develop our life story, with photos, business cards, favorite foods etc, so that we recapture memories and have a resource alongside us as the disease progresses. Make sure we don't give up. Give us time and space to try to keep doing as much as we can. "Use it or lose it" is painfully true in the case of dementia. Is there a way you can help us carry on doing at least some ordinary chores? What about signs around the place, colour coding light and other switches, lists each day of steps to take for each task? · Maybe get us a diary, and help us parcel out activities for each day, and remind us about the day's activities to get a sense of the day and date, and to register what we did yesterday or last week. Even of we can no longer read, you can talk us through our daily activities. · Perhaps think up some sort of "brain gym"-reading children's books, magazines, particularly in the early stages to keep us able to cling on to these abilities. Watching quiz shows. Newspapers, board games, crosswords. · Maybe the golf club can arrange a buddy to play a round of golf with us and keep our score and find our ball! You can value us. How you relate to us has a big impact on the course of the disease. You can restore our personhood, and give us a sense of being needed and valued. Give us reassurance, hugs, support, a meaning in life. Value us for what we can still do and be, and make sure we retain social networks. It's hard for us to be who we once were, so let us be who we are now-and realize the effort we are making to function. If you could see the damage- like you could if we had an arm or leg missing-you would be very proud of us and the way we are managing despite missing bits in our brain. Include us in the activities of community health organizations, particularly those addressing dementia. Are we on your committees, boards, seminar organizing groups and suchlike? Unlike people with other diseases, we seem to be written off from active participation in addressing our own needs. Don't call us "dementing"-we are still people separate from our disease, we just have a disease of the brain. If I had cancer you would not refer to me as cancerous, would you? You can communicate with us better · Just because we can't express ourselves very well does not mean we have nothing to say. Try to find the meaning behind the words as we will make mistakes in tenses, words and grammar. Be sure we would like you to help fill in the gaps in our struggle to find words and sentences before you do so. Try to avoid direct questions, which make us feel pressured for the immediacy we have lost. If we have forgotten something special that happened recently, don't assume we didn't enjoy it. Surely the memory of the event is not what is important-it is our experience at the time that really matters. Speak clearly and not too fast, for we will have gaps in reception and understanding-and the faster you talk the more we will miss. Don't shout at us though-the problem is usually not our hearing. · Most importantly, don't push us into something, because we can't think or speak fast enough to let you know whether we agree. Try to give us time to respond-to let you know whether we really want to do it. Being forced into things makes us upset or aggressive, even fearful. You can modify our environment-Our environment is a critical part of our disease-how we exhibit symptoms will very much depend on how well we can cope as the world around us becomes strange and our ability scrambled. Our behaviour is usually a perfectly reasonable response to our environment given the degree of brain damage we have. Paranoia and psychosis may well be perfectly logical responses to what is happening around us given our poor memory, confusion and fear of losing control. Make our spaces uncluttered, particularly in areas like the kitchen and bathroom. We may have difficulty in vision and coordination which mean we might knock things over and feel clumsy. Avoid background noise, as this helps avoid additional confusion. If TV is on, mute it first before talking to us. We won't realise we need you to do this, though, and may even complain. But one source of sound is usually enough! · If children are underfoot, remember we will get tired very easily and find it very hard to concentrate on talking or listening as well. Maybe one child at a time and without background noise would be best. Maybe think about ear plugs for a visit to shopping centres, or other noisy places. Get the entry / exit doors to toilets in public places, such as community centres, painted a contrasting colour so we can go to the 'loo! There can be so many doors in there to confuse, and our carer may not be able to go in there to help us!

September 30, 2001

HAPPY ANNIVERSARY DAVID and LORI!! HAPPY BIRTHDAY LARRY ROSE!!! I woke up in the middle of the night with a terrible burning sensation in my head. But I was able to get back to sleep and when I woke up it was gone… I tried to call my Mother but couldn’t catch her at home. She was probably out with David and Lori; I know they had planned on getting her out of the Nursing Home while they were there… Dave and I went to the airport and we did some flying. It was a perfect day for it. Later we did some rearranging in the hangar and got it cleaned up... I love my pilot… I have had a wonderful weekend. I hope all of you did too… Goodnight all… KTFIOK

September 29, 2001

Thanks to Jay in North Andover, Massachusetts for visiting Mary’s Place and signing my guest book… It was another cool morning. Dave and I both wrapped up in a Afghan to watch the birds this morning. I noticed that my Primroses were blooming again; I don’t remember them doing that this time of year before. Dave and I watched several planes flying over to go to the big football game in Norman. OU played Kansas State today and won by one point. The Sooners are still undefeated… I remembered to listen to my garden show on the radio this morning. Something I have been forgetting to do on Saturday’s … Kathy my daughter-in-law, her Mother Louise, and I went to Red Lobster for Crab Legs and then to Crosswords Mall shopping. We had a great time… Goodnight all… Keeping The Faith In Oklahoma

September 28, 2001

My granddaughter Jenni called last night. She had just gotten everything from the baby shower laundered and put away. Chris had put the highchair together we had gotten them, she said he just couldn’t wait. Now that Chris and Jenni are married we have two more great grandchildren… Dave and I had an enjoyable evening last night at the Gaither’s Concert. My favorite Mark Lowery is no longer traveling with them. Dave and I both enjoy the Gaither’ s Gospel Music, I shed a few tears when they sang the patriotic songs, as I always do. We ended up in the nosebleed section because we waited too long to get tickets. There were 9000 people there. I handled it pretty good except I had to do quite a bit of walking and we did leave at intermission, we were both tired after three hours. And I didn’t want to hang around till it was over and take a chance on someone stepping on my foot. We didn’t get home till 11:00 and I slept till after nine this morning… When we got home last night we had a message on the answering machine from David and Lori, they had made it to Indianapolis… Dave took most of the day off and we got to spend some time on the patio enjoying the beautiful weather and drinking coffee… I did some work in the yard deadheading flowers and did the laundry… Goodnight all… KTFIOK

September 27, 2001

Thanks to Kay in Alberta, Canada and Lena in Ottawa, Ontario, Canada for visiting Mary’s Place and signing my guest book… David and Lori called last night to tell me bye. They were to leave early this morning… I called Josh last night just to hear his voice. I got to see Heather Sunday when we were there but Josh was still at his Mother’s when we had to leave to come home… I woke up early this morning; I was hoping I would be able to sleep late because tonight is when we go see the Gaither’s Homecoming Concert. I am really looking forward to it... My dogs and I went outside this morning, they give me so much love and make me feel like I could do no wrong. Dave and I are always saying we wouldn’t take a million dollars for any of them. They are such good dogs. I would sure be lonely when Dave was at work if it weren’t for them… Goodnight all… KTFIOK

September 26, 2001

I had a good night’s sleep and woke up feeling great this morning… I love this weather and so do my roses. I spent some time working with my flowers and just enjoying the cooler weather. I called my Mother and she is looking forward to David and Lori’s visit. David called and they will be leaving tomorrow for Indiana. I pray they have a safe and enjoyable trip… I got so involved with being outside taking care of my flowers, picking cucumbers and bell peppers that I forgot my medications this morning. I did remember to take them this afternoon. Now if I could only forget to eat. I don’t think that will ever happen… I fixed stuffed bell peppers for supper; it was a request from Dave… I love pleasing my man… Goodnight all… KTFIOK

September 26, 2001

I had a good night’s sleep and woke up feeling great this morning… I love this weather and so do my roses. I spent some time working with my flowers and just enjoying the cooler weather. I called my Mother and she is looking forward to David and Lori’s visit. David called and they will be leaving tomorrow for Indiana. I pray they have a safe and enjoyable trip… I got so involved with being outside taking care of my flowers, picking cucumbers and bell peppers that I forgot my medications this morning. I did remember to take them this afternoon. Now if I could only forget to eat. I don’t think that will ever happen… I fixed stuffed bell peppers for supper; it was a request from Dave… I love pleasing my man… Goodnight all… KTFIOK

September 25, 2001

Thanks to Lela in Port Charlotte, Florida and Donna in New York City, New York for visiting Mary’s Place and signing my guest book… I have been receiving emails from people about how happy they are that they have found DASN and how much better their lives are since they have found it. My friend and Web Mistress Teresa has made me a special DASSY turtle logo image so you can now just click on it and go check out DASN International, if you or a loved one has Dementia. I am a proud member of DASN. Also if you would like to have your own web page and need a web mistress I highly recommend mine. Just write to Teresa at Resa526@hotmail.com. I have been busy today still clearing out clutter and getting ready for the Merry Maids who came this afternoon. I love it when they come… Dave surprised me when he came home for lunch, he brought us Burger Kings and French Fries. That was a real treat for me. We usually have a salad or a bowl of soup for lunch. He is a keeper… My phone buddy Virginia, David and Martha called … I felt pretty good today until about three and then I started feeling tired again. I tried to take a nap but the phone kept ringing… Goodnight all… KTFIOK

September 24, 2001

Thanks to Albert and Martha in Bethany, Oklahoma for visiting Mary’s Place and signing my guest book… I got up at 6:30 this morning, I had lots of work to do. Did a lot of picking up and some laundry. I did the afternoon chat. I am still tired. But soon I hope to get rested up. I have to remember I had a big weekend… Tonight we had left over steaks, scalloped potatoes that Kathy sent home with us last night and I fixed some eggplant… Goodnight all… KTFIOK

September 23, 2001

Thanks to Helen in Marietta, Georgia, Aralee in Schertz, Texas, and Larry and Lynne in Iowa Park, Texas for visiting Mary’s Place and signing my guest book… Dave and I got woke up early this morning by the alarm. I set it yesterday for the Memory Walk and forgot to shut it off… We had breakfast on the patio. Seen lots of birds, a baby squirrel, and the hummingbirds. I was afraid the hummingbirds had left because I hadn’t seen them lately. It felt like a fall morning, I wrapped up in an afghan and drank a lot of coffee… It sure feels good to be taking some time off from hosting… Dave is winterizing the pool and covering it up for the winter, I worked some with my flowers and called my Mother… After lunch we went to the airport. Later Martha and her fiancé joined us. We had never met Alfred before. We approved of him right away. Martha and I visited while the guys talked airplane talk.., We really enjoyed them coming out to the hangar. Later we went and watched Kenny fly his model remote controlled helicopter. Then we went to their home and had a nice dinner. Now I am tired and ready for bed… Goodnight all... KTFIOK

September 22, 2001

HAPPY BIRTHDAY DIANE G!!! Diane is my friend in Pleasant Plains, Illinois… Thanks to Ray and Eileen Smith in Auckland, New Zealand for visiting Mary’s Place and signing my guest book… Thanks to Norb and Janey in Plainfield, Illinois for the generous check for the Alzheimer’s Assn… This morning was our Memory Walk… What a beautiful first day of Autumn morning it was too. There were seven of us. Dave, David, Erin, Cassandra, Kathy, Heather, and me, plus two dogs, Cindy and Tootsie went too. The dogs loved all the attention they got. Dave pushed me in the wheelchair for the entire walk. He did a great job. We all had a fun time. They had a large crowd and raised over $43, 000. Much better than I had expected for this year. Not a good time for people right now. I handed out handouts of Dan’s DEMENTIA article and DASN International Brochures… Right after the Memory Walk, Kathy, Heather, Erin, Cassandra, and me all went to Jenni’s shower. What a beautiful baby shower it was. Jenni got so many nice things for the baby. We are all so anxious for that baby to come… I did some laundry when I got home and laid down for a nap but couldn’t sleep… Later I fixed us some supper… Tonight we are going to watch a video… Goodnight all… Keeping The Faith In Oklahoma

September 21, 2001

CONGRATULATIONS CHRIS and JENN!!! Jenni is my granddaughter who got married today… Last night I watched my President’s speech and what a great job he did… I have been so tired lately and making a lot of mistakes. I think I have just been trying to do too much. Getting my 1999 and 2000 journal transferred to another page. Hosting two DASN Chats a day and joining in on the Alzheimer’s Friend’s chat, going to the Doctor’s three times a week, posting my journal, and trying to raise money for the Memory Walk… So today I decided I would give up doing any chats for three days. I have finished with transferring my journal and I have decided to stop going to the Chiropractor for a while. I have noticed when I get overtired I make a lot more mistakes. I am going to start resting every afternoon. Even if I can’t sleep, I can lie down for a while. Tonight I enjoyed being outside with Dave having an ice-cream cone and brushing and enjoying our dogs for a change… Goodnight all… KTFIOK

September 20, 2001

HAPPY BIRTHDAY MELENIE!!! Melenie is my niece in Georgetown, Kentucky. Thanks to Diane in Australia and Pat in Carson, California for visiting Mary’s Place and signing my guest book… Thanks to Dean and Helen in Marietta, Georgia and Dewey and Judy in Lexington, North Carolina for your generous checks to the Alzheimer’s Association, they are very much appreciated… I did some laundry cause my hamper was running over and fed my orchids. Tonight Dave and I went to the Alzheimer’s Assn. and turned in our checks and picked up our shirts for the Memory Walk Saturday. I got a big hug from Penny, the director and found out she was resigning after the Memory Walk… Then we came home and made Tortilla Soup for supper… I have just had to push myself today to get anything accomplished. I hope tomorrow I have some energy… Goodnight all... KTFIOK

September 19, 2001

Thanks to Judy in Lexington, North Carolina and Dr Brown in Midwest City, Oklahoma for visiting Mary’s Place and signing my guest book… I called Josh and Heather last night and we had a nice long talk. They have been busy building a Titanic Ship out of Lego’s. I can’t wait to see it… Dave and I were outside last night with our candles, waiting on the Satellite to come take a picture… I got up this morning early after a good night’s rest. I put a cup of water in the microwave for my coffee and walked away to check my e-mail’s. When I went back to make my coffee, I noticed the microwave showed I still had sixty-nine minutes to go. Then I realized I must have set it for two hundred minutes instead of two minutes. I had a teaspoon of water left in the cup when I checked it. Next I will loose my microwave privileges... I spent a lot of time out in the back yard, pulling weeds and deadheading flowers. I noticed my yellow rose was blooming that David had given me; it is just so big and beautiful. Also my Queen Elizabeth, New Dawn, Cecile Brunner, and the Morning Glories. I never did see my Hummingbirds… My garden has starting going again. We are getting cucumbers, bell peppers, and eggplants. I love this time of the year. Windows opened and no AC… David, Jenni, and Martha called me today… Good night all… KTFIOK

September 18, 2001

I received a call from my granddaughter Erin last night, saying she would be walking in my Memory Walk with me. She was there with me last year too. A teenager getting out of bed early on a Saturday morning… I woke up to a heavy rain this morning; we got four and a half inches of rain… I did a lot of picking up around the house, paid bills, and balanced the checkbook… Goodnight all… KTFIOK

Here is an article that was written by a friend and DASN member that I would love to share. Thanks Dan for allowing me to share this...

By Dan Spencer of DASN (Dementia Advocacy Support Network) A nonprofit organization for those diagnosed with dementia working together to improve quality of life. Their website is:
www.dasninternational.org

Maybe the following can help caretakers and significant others understand us better:

The word DEMENTIA has eight letters, each one standing for something key in unlocking the door to the mysteries on the other side.

D stands for our increasing need for Dignity, which bolsters our waining self-worth and social standing, which is to us like the wind that fills the sail that moves our boat.

E the first E is for our Emotionalism. We are sometimes quite busy setting off or just noticing fireworks... it seems very natural to us, just as the behavior of a developing child is tolerated and understood with wisdom, the same is needed and natural for the undeveloping adult.

M is for Misplaced things, words, thoughts and feelings. Far from being lost, yet we scatter these as naturally as a maple tree in the Fall. And our true colors... we need you to notice and respond.

Second E is for Energy which is a lot like a model T Ford. Sometimes we chug along straight and steady, and other times we can barely make it to the top of the hill. Engine additives (medicines) can make a big difference, but other times we just do better sitting in the sun out in front of the house.

N is for Noticing. Golly how frustrated we can get sometimes. Its like were in the forth grade and the new teacher seems to notice only the mistakes and not the creativity or underlying but invisible effort. We want so much to be appreciated for our efforts.

T is for Talking. We need to talk, express ourselves and be listened to, slowly and carefully, almost as if we speak a foreign language. And interruptions to our trains of though almost always end in derailments. being listened to patiently to the point of understanding is the balm of life for us.

I is for Intellect. Just because were demented does not at all mean were stupid. We need stimulation, activity and mental exercise. We need to contribute. We need partners and friends who don't have prejudiced minds and look down on us just because of name of our illnesses...

And finally A is for Adjustment. Its like two steps forward and one back or vice versa. But it is vital to recognize and get in tune with trends and changes in our ways of doing things in all respects. Really, its all inevitable yet challenging; sometimes broken but sometimes brave; maybe frustrating but always attempting to save.... us

Goodnight all...KTFIOK.


September 17, 2001

Thanks to Joanne in Marietta, Georgia for visiting Mary’s Place and signing my guest book… I slept in till 9:00 this morning. I couldn’t believe how late it was but it did feel good. I didn’t have any place to go until Dave got off work. Then I had to go to the chiropractor. I worked some more on my 2000 journal and ended up loosing all of it. Tomorrow it will go better I hope… Dave got groceries and picked up some chocolates and gumdrops. He is a keeper...Goodnight all...KTFIOK

September 16, 2001

HAPPY BIRTHDAY EDIE!!! Thanks to Mary in Attleboro, Massachusetts and Lela in Port Charlotte, Florida for visiting Mary’s Place and signing my guest book… I called my Mother this morning and she didn’t know who I was at first. I hope it is just because I woke her up from a nap. It is so hard living so far away from my Mother… Every once in awhile I smell things that no one else can smell. Recently I smelled toast burning. It was so real. But there was no toast anywhere… I mentioned this in chat and others have said that they have experienced the same thing. So it is just part of the disease… Thanks to Teresa, my web mistress for putting the flag on my journal. It just feels right… I have spent the biggest part of the day transferring my 2000 journal to another page. That is really time consuming… Dave took me out shopping to look for a wristwatch that has an alarm on it. My friend Lynn has one; I am hoping I can learn how to use it now that I have one. It will help me to remember my medications better … Thanks Dave for all you do for me, I just don’t tell you often enough… David came by on his way to work and brought us some fresh okra and some of Lori’s delicious leftovers. Thanks Lori… I fixed some Okra tonight to go along with some of the leftovers… Goodnight all…KTFIOK

September 15, 2001

We woke up to a rainy morning. It was nice and something we needed. We enjoyed having our coffee and cereal out on the patio and watched the birds. It was a light rain at first but then it got pretty heavy and it started to thunder. I was chilly so I wrapped up in an afghan, trying to stay outside as long as I could… I am so happy to announce that DASN (Dementia Advocacy Support Network) is now DASN INTERNATIONAL. We have really grown in just a year. We are having new members join us every day. If you are a PWiD (Person with Dementia) or a TAB (Temporarily Able Brained Persons or Care Partner) and are interested in joining, just check out our site at www.dasninternational.org There are no fees and we would love to have you join us…

Here is a letter I sent to a Canadian Newspaper about DASN:

Hello Kyle and Tim,

In 1995 when I received my diagnosis of Dementia of the Alzheimer's type I was told I would have to give up my business. I ran a Licensed Day Care in my home in which I cared for infants and I loved my job. When my neighbor found out she brought me a beautiful cross-stitched frame picture that she had made just for me. It said, "When God Closes A Door, He Opens A Window." I would read that with tears in my eyes, and wonder how in the world a window could be opened now. I had Alzheimer's and was told by my Neurologist that I had five years to live.

Later I found out that window was opened. I had more special time for my husband and Son's, time to enjoy the birds. Also, I found DASN, where I have met so many wonderful friends. Now I don't have the babies to wake up for but what I do have is my computer (another window).

Each morning I run to the computer to read my email from my DASN friends, to see if we have had new members join so I can welcome them, and how many have visited my web page and signed my guest book. It has encouraged me to do a Web Page where I can reach out to newly diagnosed PWiD and also hopefully help their Care-Partners to understand what it is like for us to live with dementia.

I host a chat room for DASN twice a day where we can share, laugh, sometimes cry, and just talk about the weather if we want.

Many nights I go to bed and I can't sleep and I will just lie there thinking about my DASN Friends all over the world. Sometimes I will even just laugh out loud at some of the things we have shared. It is though I feel like I get a hug each time I host a DASN chat room. Like Will Rogers once said, He Never Met A Man He Didn't Like. I can honestly say I never met a DASN member that I didn't like.

I have been lucky enough to meet several of our members in person, some have came to my home, my husband and I went to Texas to meet one couple, and others I met in Montana when we had our DASN Conference in June. It always seems like when I meet them in person they are like a long time friend.

Mary Lockhart
Oklahoma City, OK.
I made some potato soup for lunch, set up my medications for the week, made a peach cobbler and watch a lot of TV. Since I had to leave chat because of the thunderstorm… I got to talk to both my Son’s today so it has been a good day… Goodnight all… Keeping The Faith In Oklahoma

September 14, 2001

HAPPY BIRTHDAY BARBARA RUTH!!!! Barbara is my friend in Norman, Oklahoma… I got up early this morning and starting paying bills. They were piling up and I had been putting them off... Lori came by for a short visit right after her Dr. appointment. It was sure good to see her. She had to hurry home to get David off to work. She really spoils him. Then I was picked up for my Chiropractor appointment, a lady from Provide a Ride drove me. From now on I should be able to go with Dave when he goes for his treatments after he gets off work… I called my phone buddy Virginia and Barbara Ruth… We had planned on flying to Peru, Indiana this weekend to visit my Mother. But we will not be doing it now because we are grounded… Goodnight all… KTFIOK

September 13, 2001

Thanks Dr. Morgan for visiting Mary’s Place and signing my guest book… David called last night; he had harvested honey from his beehive again and got twenty-four pounds of honey… It sure has been nice not to have any appointments today… Dave came home for lunch and we had a salad out on the patio while watching the dogs, hummingbirds, other birds and the squirrel. I love this time of the year. I have been doing a lot of watching of the TV. Can’t seem to stop, and feeling so sad for the families of the vict ims… This evening Dave took me to get a wheelchair and then we went to the mall. I got a couple items that I had needed; it felt good to visit a mall. It has been a long time since I was in one. The wheelchair sure was nice… Goodnight all… KTFIOK

September 12, 2001

HAPPY BIRTHDAY LEWIS!!!! Lewis is my Nephew in North Carolina… I was up bright and early this morning. I had to go for an appointment with Dr. Morgan. Everything was okay, I got my vitamin B12 shot and he gave me a prescription for a wheel chair. I can walk okay around the house but anymore than that is too much for me. I have a Desmoid tumor in my foot and Peripheral Neuropathy and all this makes it very hard for me to walk… I am thinking about my Memory Walk, which is coming up very soon... I did laundry, fixed supper, fed flowers, and called my Mother, she had heard I was coming home. I wanted to keep it a secret but someone told her. Now with this attack we may not be able to go after all… They are searching everyone and their vehicles before they can go on Tinker Air Force Base. It took Dave over two hours to get to work this morning, usually he is there in ten minutes… Goodnight all… KTFIOK

September 11, 2001

HAPPY BIRTHDAY MATT!!!! Matt is my DASN Friend in Long Island… This morning I got up at 6:00 and I still didn’t have phone service, I was just working on the computer catching up with my email. Anymore I am always forgetting to turn on the TV… When my friend Diane in Australia started IM’ing me telling me about the attack at the World Trade Center and telling me to turn on my TV. I did and I could not believe what was going on. It was like I was living the Oklahoma City Bombing all over again. I just can’ t stop crying. I am praying for all the victims and families and for our country… I will be flying my flag half-mast today… My phone was repaired this afternoon. I was right; the cable people did accidentally cut our phone line. David called and my phone buddy Virginia called… Good night all… KTFIOK

September 10, 2001

HAPPY BIRTHDAY ALLISON!!! Allison is my five year old Great granddaughter in Kentucky, who turned five today. She was so cute when I called to sing Happy Birthday to her… Last night Josh and Heather called for Grandparents Day, and I got a card from Jenni. They were all very much appreciated… I slept well last night and have had a better day. I went to my Chiropractor appointment, did laundry, fed the roses, put fresh nectar in the hummingbird feeders, and fixed supper… Dave went for his first visit with the Chiropractor today. When I told him I had made him an appointment, he didn’ t even fuss. Now I wished I had done it a long time ago… This afternoon someone knocked at my door and I didn’t recognize him when I peeped through my peephole so I just ignored it. It wasn’t long till he came back again. I again ignored it. Then later I saw someone in my back yard. To get in my backyard you have to climb a privacy fence or come through a locked gate. Usually I am not afraid but I will have to admit I was starting to get scared… I checked my phone and it was disconnected. Later I think I figured out maybe they were working on the cable. It looks as though they have cut my phone line. I don’t like the idea of being without a phone and being here alone. I hope they fix my phone soon… Donnie, I hope you have a quick recovery from your surgery… Good night all… KTFIOK

September 9, 2001

Happy Birthday Karen!!! Karen is my niece in Huntington, West Virginia… Happy Grandparents Day!!! Thanks to Brian and Jean in New Zealand and Larry Rose in Arkansas for visiting Mary’s Place and signing my guest book… I woke up at 6:00 this morning. I had a terrible night. Too much German food I guess. I have this problem of over eating, I don’t know if that overeating is part of my dementia or not. But I sure do have that problem. I do know how bad I hurt afterwards and it isn’t good for some one with diverticular disease.. . My foot was hurting pretty bad during the night and I also had a nightmare. Oh what a horrible night… It has cool off quite a bit and I have had the windows open all day. First time I have been able to do that in a long time… I have just been laying down most of the day… Good night all… KTFIOK

September 8, 2001

Today is our 41st anniversary. We had a nice dinner tonight at the Royal Bavarian, where they had live German music… Thanks to everyone that sent cards. David came by and brought us some beautiful flowers and his Dad some peanuts… I called both of my Sons today; I always enjoy talking to my kids… Dave and I spent a lot of time on the patio this morning. We even had a pigeon at our feeder. We discussed our next vacation… Happy Anniversary Honey!!! Goodnight all… Keeping The Faith In Oklahoma

September 7, 2001

Thanks to Diane in Australia, Edie in Marietta, Georgia, and Gloria in Moore, Oklahoma… Dave got our tickets last night for the Gaither’s Homecoming Concert. I can’t wait… I slept late this morning, I woke up when Dave was leaving for work and I heard it thundering and raining so I just went back to sleep… I woke up just in time to get my shower, and have breakfast before the lady was to pick me up for my dr. appointment. It was my favorite driver today. While I was there I made an appointment for Dave to see Dr. Brown. Dave has been having problems for a long time and he would never make an appointment for himself. It is a man thing, I guess… We are supposed to get some bad weather, in fact, we are under a Tornado Watch now, that is always frightening hear, so I am writing this early in case I don’t get on tonight… My friend Martha called and I enjoyed chatting with my AD Friends… Good night all… KTFIOK

September 6, 2001

I have had a great day; the best part was not having a Dr. appointment… I spent a long time out on the patio having my oatmeal and coffee. I put fresh nectar in the hummingbird feeder; we had an inch of rain during the night, which was needed… I folded clothes and cleaned out the refrigerator. I called several friends and I had calls from Glenna in Vancouver, Angela Buckelew from Channel 9 TV station, and Virginia, my phone buddy… Dave took me to get groomed tonight, it was my turn and I am sure glad. A good haircut always makes me feel better. I just wish I looked as pretty as Cindy does when she gets groomed… Dave agreed tonight to get tickets to go see the Gaither Homecoming Concert. I will be happy to get to see them again. Something else to look forward too … Good night all… KTFIOK

September 5, 2001

Happy Birthday to Kerry!!! Kerry is Erin’s Man… Thanks to Lynne in Iowa Park for visiting Mary’s Place and signing my guest book… Last night I went to bed right after my DASN chat, I was so tired. I slept later than usual this morning and that didn’t leave me much time to get my shower, eat breakfast, and watch the birds before my dr. appointment. We had some rain during the night so I got outside and pulled some weeds, did laundry, and gave Karmeleta and Tootsie a bath. Cindy went to the groomers I paid bills and balanced the checkbook, fixed supper, and IM’d with my brother George… I have had a good day. Thank you God… Goodnight all… KTFIOK

September 4, 2001

Thanks to Marie in Miami, Florida, and Pat in Carson, California for visiting Mary’s Place and signing my guest book… Thanks to everyone who voted for me last month. I got forth place for the month of August… I was invited to participate in a chat last night. There was Sally, Sis, Pats, Janey, Glenna, and Lynne. We all had a fun time chatting., I have sure missed them. This morning I woke up feeling terrible. I got up, had breakfast, and took my medicines. Still didn’t feel good so I went back to bed. I hate it when I have to do that. Today seemed like a Monday and my hamper was full. I guess I had too much excitement over the weekend and it was catching up with me… I have always been a believer in the Golden Rule. I like to treat everyone like I would like to be treated but I have noticed not everyone believes that way. Some people like to hurt others. I believe like my Mother always said what goes around comes around. I will now get down off my soapbox. Today just seemed like the perfect day to get on a soap box.. I had a phone call from Martha… Dave and I went to our EASE meeting this afternoon. There was only one other couple there. Dave and I have just about decided it wasn’t worth the long trip. We did go by and see Joshua, since we were in the neighborhood and it was time for him to get out of school. I just knew I needed one of his hugs today… Goodnight all… KTFIOK

September 3, 2001

Thanks to Judy in Arkansas and Glenna in Vancouver, Canada for visiting Mary ’s Place and signing my guest book… Dave and I had our breakfast and coffee out on the patio this morning. We didn’t see the squirrel’s just lots of birds and I guess the bunny is gone for good… Dave did the lawn and I brushed the dogs… David called and invited us out for dinner tonight. Lori had prepared a delicious meal. Jenni, Erin, and Kerry were there too. So I got lots of hugs. Grandma Lori showed me what she was making for Madison’s room. All the crib trimmings and matching curtains. Madison is going to be a lucky baby. Madison is the Great grandbaby that I am looking forward to. Jenni is due to have her the end of November. Grandpa David is busy doing the furniture… We all went to look at the cows, I got to see T-bone for the first time and also seen how big Miss Mae was getting. They will be getting a new calf soon. Dave and David went to check out the beehives and David said it wouldn’t be long till he will be getting more honey. Then David and I went out to see his garden, and to look at their rhea, chickens, and goats. It is always fun to go to their home… I have had a wonderful Labor Day Weekend and. I hope all of you did too… Goodnight all… KTFIOK

September 1-2, 2001

Thanks to Julia in London, United Kingdom, for visiting Mary’s Place and signing my guest book… Saturday: Dave and I had our coffee out on the patio and Martha got here around 9:30, she had spent an hour waiting in line at Krispy Kreme Donut drive thru for donuts for us and to take to her Mother and Dad in Kansas. We had some coffee and donuts and then left for our trip to Stafford, Kansas. Dave was going to go out to the airport for the day. We arrived at her parent’s home five hours later. That was the shortest five-hour trip I had ever made, it was only because we talked non-stop just like I knew we would… We visited for a while with her Mother and Dad and then we went to a restaurant called " Icky’s" that was the name of the owners. The food was really good. I had Catfish. We stayed up to watch the news to see who won the OU / Air Force Academy game and we all went to bed. I was ready. Sunday: We were all up at 6:30 this morning drinking coffee and getting ready to go out to brunch. I believe the name of the restaurant was Curtis’s. It was really neat; the walls were decorated in real jigsaw puzzles… Then we went back to the house and loaded up and headed back home. Again we talked non-stop. I had teased Martha that she had to let me talk on the way home. We laughed and had a wonderful trip. Thanks Dave for letting me make that trip. I realized when I got home how tired I was but I would do it all over again. Dave said the dogs were looking all over the house for me… Good night all… Keeping The Faith In Oklahoma

August 31, 2001

Another month has just flown by, I can’t believe how fast time goes by anymore… I had a good night’s rest, and woke up feeling good this morning even though I knew I had a busy day ahead of me. I took thirty minutes to spend outside, watching the birds, squirrel and deadheading the flowers. I was so excited to see the Passion Flowers were blooming that Lynne had given me when Dave and I flew to Iowa Park to meet Larry and her. Lynne is one of my DASN friends. It is such a pretty flower; I had never had one or even seen a Passion Flower before. Lynne I will always think great thoughts of you when I look at my flower… A really nice lady from Provide a Ride picked me up for my Chiropractor appointment at 10:00… I was supposed to go with Dave to a meeting on Tinker AFB but I was hurting and the Dr. suggested I put ice to my neck and back so I stayed home and did that. Dave filled me in on the meeting when he got home. I took a nap, did the DASN chat, did laundry, helped Dave fix supper and started my packing for my Kansas trip tomorrow. I hope I don’t forget anything… I think the trip will be good for me and give Dave a break too. I know he will be spending his time at the airport. I told him I didn’t want to hear him singing, "Thank God and Greyhound she is Gone" He just grinned. lol my dogs will sure miss me too… Kenny called me… I will continue my journal when I get home… Goodnight all… KTFIOK

August 30, 2001

Thanks to Erin Brooke in Norman, Oklahoma, for visiting Mary’s Place and signing my guest book… I had a good night’s sleep and woke up feeling much better… I had my oatmeal and coffee out on the patio and brought out my laptop so I could go through all my emails and answer them or delete them. Seems like in no time I will have over a hundred to go through. I got so excited when I saw two hummingbirds at the feeder at 8:30 this morning that I had to call Dave at work. This is the first time I have seen more than one at a time this year. I love the sound they make, a whole lot of noise for such small birds. It was a nice cool morning and it almost felt like fall… I can’t tell you how good it felt not having to go anywhere today. I love being able to stay home. It seems to tire me out so when my schedule is interrupted… Pam called me last night and she will be here tomorrow night to give me a massage. That will be so nice to have before I run away Saturday for the weekend… David I hope you get to feeling better soon… Goodnight all… KTFIOK

August 29, 2001

Thanks to Brian in New Zealand , Wade in La Mirada, California, and, Pat in Carson, California for visiting Mary’s Place and signing my guest book… I got up at 6:30 this morning, just in time to get everything done I needed to do before I had to go for my Doctor’s Appointment. A lady from Provide a Ride picked me up this morning. I wasn’t hurting when I went but I am hurting now. I hope I stop hurting soon. After lunch Dave took me out to Tinker Air Force Base to get my new ID card. My other one was expiring next month. Now it will be good for four more years… My friend Martha called and asked me to ride to Kansas with her this weekend. We will be going to visit her Mother. We have done this before about six years ago and we had a fun time. We will be talking nonstop… Thanks to all of you who visit my web page, sign my guest book, and vote for me. I now have gone over 8000 hits to my site. Just since I have started this web page that Teresa helped me with in February. All I can say is WOW!!! Goodnight all… KTFIOK

August 28, 2001

We had a two-hour chat last night; everyone was having such a good time we went on and on. We got to hear Gerri’s Boston accent, it was fun, but was I ever tired afterwards. I could hardly wait to get to bed. Once I got there I wasn’t able to fall asleep, I laid awake for hours. I guess it was all the excitement from chat. I hadn’t done that in a long time. I hope it doesn’t start again, cause I had been sleeping so well… I woke up early and extra tired this morning. I had so much to do before the Merry Maids came. Strip the beds, give the dogs their baths and wash their bedding and do some picking up before they got here. I did get it all finished before they arrived. My house is squeaky clean again, just the way I like it. I won’t have the maids again for another month… My friend Martha called and David called and came by. He brought our supper that Lori had prepared for us. Thanks Lori, it was delicious. While David was here I was doing the DASN chat so he got to talk to Brian in New Zealand and he loved that. David has always wanted to go to New Zealand and take his bicycle. I hope someday he can do that… I did some IM’ing with my brother George and answered several emails… I called Dr. Smith’s office again to see if she had the films yet from my MRI and she said they didn’t and she was going to call them again and ask them to FedX them since they had taken so long... The Dell computer man came today to fix the lid on my laptop. It was a loose screw. He also vacuumed the keyboard for me, a really nice guy… Goodnight all… KTFIOK

August 27, 2001

Happy Fortieth Anniversary to Donnie and Martha in Peru, Indiana… Thanks to Aralee in Swartz, Texas for visiting Mary’s Place and signing my guest book… I woke up this morning feeling overwhelmed with too much to do. But I have just done the best I could. I went to get my treatment. My neck and back have been hurting but I believe it has to do with the weather… I fed the birds, fed the roses, set my medication up for another week, did some picking up, did laundry, and fixed supper… I didn’t have time for a nap today… I had a phone call from my friend Martha and I am so happy for her, after about fifteen years of not dating she has found someone special… Good night all… KTFIOK

August 26, 2001

Thanks to Diane in Australia and Peter in the United Kingdom for visiting Mary’s Place and signing my guest book… We had a good rain last night, according to our rain gauge we got almost two inches of badly needed rain… Dave and I have spent a lot of time out on the patio today. We have decided next year we are going to move our garden to a different area and move some of the flowers around. Next year our haven is going to be even more beautiful. We had our breakfast and supper out here. In fact I am out here now writing my journal while Dave is cleaning the pool, the dogs have a doggy bone, the birds are singing, the butterflies are flying around the flowers and the humming bird is drinking nectar from the feeder… I called my Mother today several times and her line was busy. I knew something must have been wrong. So I called the Nurses Station and the Nurse went to check and sure enough her phone was off the hook. Mom was doing fine and she was telling me about the pretty red and yellow roses that my Sister-in-law Ruth had brought her. Mom has always loved her flowers… I haven’t gotten much accomplished today. I did fold some clothes that I had left in the dryer yesterday and took a short nap. That is all my dogs will allow me to have. I am such a light sleeper… I am going to watch a Gaither video before I go to chat… Good night all… KTFIOK

August 25, 2001

Thanks to Debbie in Columbus, Ohio and Diane G. in Pleasant Plains, Illinois for visiting Mary’s Place and signing my guest book… It was nice as always having Dave home today to have coffee with and do some bird watching. We were out on the patio from seven till eleven this morning just enjoying the morning and visiting. Then we came in and I started the laundry and we both started clearing a path in the house. We can sure get in some messes around here. So much STUFF and clutter to deal with and get rid of… I hosted the DASN Chat and we are having so much fun with our new voice chat. Hearing everyone’s voice for the first time. I can’t believe how clear they are, especially Peter in United Kingdom an Brian in New Zealand, and oh how I love hearing their accents… After chat we went to Frostie and Terri’s for Perry’s (Terri’s Dad) Birthday Dinner. Frostie always makes the best Ribs and Terri made some delicious dishes and everyone else brought a dish. As always I ate too much but I don’t get to eat like that very often. Among the guests were Lori, my beautiful granddaughter’s Jenni and Erin. David had to work and he was missed. Little Danielle was there so I spent a lot of time holding her. I hadn’t seen her since Mother’s Day, but she seemed to remembered me… We got home just in time for me to go to chat. But a big thunderstorm came and I had to leave right away and shut my computer down for the evening… Dave and I watched the OU game… Goodnight all… Keeping The Faith In Oklahoma.

August 24, 2001

HAPPY BIRTHDAY EVERETT!!! I called Everett today to wish him a Happy Birthday. He is my baby brother… Thanks Diane in Australia for visiting Mary’s Place and signing my guest book. Thanks Helen for being the first person to sponsor me in my Memory Walk… My daughter-in-law Kathy just informed me that she has tickets to the Neil Diamond Concert for her, her Mother and me. Now that really gives me something to look forward to. Thanks Kathy… I was watching the birds this morning and I can tell you exactly what time the hummingbird will come to the feeder now. He always comes at 8:30. But shows up a lot more in the evening. I haven’t seen the bunny in several days now. So he has either moved on or didn’t make it across the street one time. I hate to think about that happening… I went to my Chiropractor appointment… They have updated our DASN chat room. We had such a good time today talking live to each other. It was really great hearing Peter in the UK. I loved his accent. I was in shock that this was really happening. The Internet never quits amazing me… David called and I called my friend Diane G. I hadn’t been able to send her Email so I needed to check on her… I haven’t gotten anything accomplished today, it has been one of those days… Dave got groceries and he got me some more fresh peaches, they are so delicious right now and some spice drops too… Good night all… KTFIOK

August 23, 2001

Thanks to Teryl in Oklahoma City, Oklahoma for visiting Mary’s Place and signing my guest book… We had a quick supper last night so we could go watch Josh and Heather test for their bel