Hello! Welcome to my page. This is a penpal page for kids, teens, adults, and parents of people who have Chronic Fatigue Syndrome (CFS), Neurally Mediated Hypotension (NMH), Fibromyalgia, and other related diseases. Just look at the people listed below and e-mail whoever you wish. If you would like your name up here than please e-mail me with your name, age, where your from, what your condition is (you don't need to make it too detailed if you feel uncomfortible). Also include your sex if your name does not indicate it. Please also include some things about yourself. What bands you like, movies, stuff like that. Anything you want as long as it's fairly brief and PG rated!
I live in Punta Gorda, FL and have had NMH for 5 years, but only confirmed 15 months ago (tilt table test). I so far have not found a medication that helps much. I would love to visit with anyone else with this. It can help us all so we don't feel so carzy!
Hi my name is Toni (female), i'm 44 and have had CFID for almost 10 years, FMS for 3 years, also have Hashimoto's thyroiditis, been struck by a car as a pedestrian and recently diagnosed with NMS (Neurally Mediated Snycope). Last year my Lyme disease test came back POSITIVE (on a rare outing to Yosemite i was bitten by "something" that caused a huge bull's eye rash) - o.k. now that i sound totally crazy - i am not! my husband has stood by me thru all of this and i am very thankful to have him in my life - he is my sunshine.
i'm 24, and i'm pretty sure i have cfids. i'm in the middle of connecting with the right specialists and diagnose(s). who knows, i might have other things too. i think i still need some tests to confirm things. anyhow- i'm a big-time soccer player, love all kinds of music, poetry, sports, and anything fun. i live in california.
i'm a girl, 14 yrs old. i was diagnosed with cfs and nmh today. i like ani difranco, bikini kill, rasputina, poppy z. brite, francesca lia block, heathers and empire records, being a veggie, and riot grrrl. i'm from nj.
My name is Kimberly and I am 25 years old and I live in DE. I have NMH and I was diagnosed in July of 98. I am still going to the doctor often because medication has not yet worked for me and my cardiologist thinks I may have other problems also. I spend alot of time caring for my animals, mainly my 5 dogs. I am very interested in helping homeless and needy animals. Would love to hear from others with NMH!
My wife, age 69, has a diagnosis of Idiopathic Orthostatis HYPOTENSION,
a rapid drop
in blood pressure due to an Autonomic Nervous System disfunction. She
has been tested
for Amyloidosis conditions and has been ruled negative. The principal
side-effect is
and continues to be Nausea...if anyone is experiencing nausea (from mild
to severe)
please respond with the Name/Dosage of the medicine being used to
control or stop
Nausea. Thank you.
My name is Erika. I'm 27,
married, and was diagnosed with NMH in 1993 by the tilt test. I would love to
hear from anyone suffering from NMH,too!! I have been to Mayo Clinic,
University of Minnesota, University of California, Irvine--all confiming my
diagnosis. I have most been helped by my beta-blocker (metoprolol,
Lopressor), herbs, and nutrition. I would love to communicate with anyone
suffering with NMH!!!!!
Hi, my name is Michelle Townsend. I'm 16, & have just today been diagnosed with NMH. I'm just starting to learn about it, so it's really new for me. I'd love to talk to anyone!
Hi, I'm Jess. I'm 12 and have NMH for almost 4 years. I love the computer (am a computer wiz) and the
band HANSON! And hate this illness!!!
Name: Marcy
age: 43
Interested in talking with anyone who has been diag: NMH. 
Links
http://members.aol.com/cfsurvivor/cfids.html
http://www.geocities.com/SoHo/Lofts/1505/powwow.html
http://www.btinternet.com/~whyme
