September 5, 2000 to December 21, 2000
Protein Kim Slagle
1:39 pm tuesday september 5, 2000
Hi Rick,
Just wanted to let you know that I have noticed a correlation
between eating protein and decreasing symptoms. Interestingly,
turkey meat seems help the most. I call it my Meneires Dinner.
I've also noticed that if I go more than 3-4 hours without
eating the noise in my ear goes up as well as the chance of a
vertigo episode. I try to eat something quickly or take 2.5 mg.
of valium. This seems to do the trick.
By the way, I am seeing my Neuro ENT today and am going to see
if I can get the "Vertigo-heel" (homeopath med) prescribed to
me. I'd like to give it a try since I don't want to end up
dependent on valium. Also, it's no fun trying to get that Rx
refilled. It seems like people automatically assume you are
a "Drug-seeker". Thanks for your message.
Pregnancy Kim Slagle
1:45 pm tuesday september 5, 2000
Hi!
Just wanted to know if anyone out there has been pregnant after
they were diagnosed. I am taking diuretics and valium on a
daily basis and know that you can't take these drugs while
pregnant.
I've also noticed that my symptoms are worse during the PMS
times. Makes me wonder how my body would respond.
Any info would be GREATLY appreciated.
Kim
re: help Tim 8:56 pm tuesday september 5, 2000
I am 56 yrs old myself your dads age & have had Meniers for
approx 20 yrs. I also have MS, these are autoimmune diseases &
you can have more than one at once. I'm lucky the MS rarely
bothers me. The meniers is a different story. Ive found out the
gym really works for me. I told my ENT doctor that today & he
told me it was probably sweating out the salt which is very bad
for meniers suffers. I also think it could be helping with blood
flow to the inner ear.
Anyway your dad has diabetes to contend with also which I believe
the gym would benefit also. In fact I know it would. See if his
doctor agrees with this & prompt him to get a program started.
The tiredness that I'm sure he feels will lessen after he is able
to do a good workout. Also the dizzyness is greatly helped. Im
sure it will benefit his blood sugar & diabetes. He's to young to
lay down & not fight this.
His diet should be low salt, no caffene & just common sense for a
diabetic. Now this may sound strange after preaching to you about
diet but wine seems to help me greatly. I checked the carbo's in
it & they are low to nil in Chardonnay & cabrenat. But have him
ck with his doctor, I don't know what they think about wine &
diabetes.
Good luck & let me know how he gets. Like I said Ive been
fighting the MS over 30 yrs & the meniers 20 or so & I do fine. I
row the boat at the gym, lift weights, treadmill & many more
machines. I may go a little overboard, I don't eat beef But I
like fish, chicken,& vegies. I take xanax when needed,but other
than that, EXERCISE
re: Cure Kim Slagle 6:32 am thursday september 7, 2000
Hi Greg!
I was just wondering if SERC is the same thing as Verigo Heel? I
was able to get a RX for vertigo Heel from my ENT yesterday.
Also, have you heard about Methyltrexate? I know it's an
immuno-suppresant, used for cancer. What my ENT proposed was a
course of high dose prednisone, which I took in the past,
responded to well, (my heariing came back) but whenever I tapered
down,the hearing loss and everything else came back. So, finally
after a few months and 20 lbs later, I stopped taking it. The
prednisone side effects made me crazy and I promised myself I'd
never use that medicine again.
My hearing loss has progressed steadily and the attacks come in
clusters but irregularily. Thankfully the attacks seem to have
decreased in their potency but unfortuneately, I have much less
warning.
Thanks for this website....it has helped me tremendously.
re: Vertigo- Low Blood Sugar? jc
11:28 am friday september 8, 2000
Sorry to sound so hard on you, but since when a high protein diet
has anything to do with low blood sugar (or hypoglycemia..)??????
What you need to feed yourself are not protein but carbohydrates
(slow ones that is), like pasta, bread, potato, etc...
If you are in real trouble: a little trick that I use and has
saved me many times from bigger trouble is a slice of bread (slow
carbs) with a bit of jam (fast carbs) on top!
But I repeat protein is no use in this... Anyway in order for the
body to benefit from protein intake you need to be fed properly
with carbos otherwise it is no use...
regards
JC
Surgery Shelley 6:09 pm sunday september 10, 2000
Hi there.
I have been diagnosed with Menieres and was prescribed SERC. So
far this has not worked, and I think might have made things worse
with regard to the attacks. My doxctor has told me to try
different tablets and if these do not work then we might try
surgery, Could anyone tell me what types of surgery there are
and if you have had them, have they worked? Also, it might
be because I am from England, but what is a 'shunt' that I have
see you all go on about in previous dicussions?.
Has anyone EVER got over Menieres? I am desperate to know
because I have a five month old baby and am having trouble
looking after myself nevermind the apple of my eye. I cannot
carry on like this, I jsut wish these doctors were more
understanding. I don't see them running around looking after a
baby whilst in the middle of a dizzy and vomiting spell!
re: Surgery Tim 9:02 pm sunday september 10, 2000
Shelly,
I have had meniers for 20 + years & the 1st thing my ENT doctor
told me is don't let anyone operate on your ears. He said he
would recommend someone if the symptoms got bad enough. I am so
thankfull he gave me that info , because Iv'e heard so many
horrer stories about loosing appreciable amounts of hearing after
the operation. I can only tell you that stress in my case & many
brings on attacks. So the best thing to do in my estimation is
take a stress course, yoga etc, join a gym & get exersise ( this
helps me very much ). Watch your salt intake ( very imp for some,
others say dosen,t matter, but it does cause water retention in
the middle ear which is one of the culprets. Alchol they say no ,
I say it helps relax, I like wine. It is an autoimmune disease of
which there are many. I have MS also which is one also, but does
not give me any trouble. I consider myself very lucky. I work out
4 times a week at the gym,for 2hrs each,try to eat right low fat,
high carbo, not much salt, & sip my wine which I'm doing now.
Hope you do ok also.
PS,
Im a 56 yr old male & have had the symptoms for yrs so don't get
excited to much. My doctor said many people actually outgrow
them. Let me know how your doing & don't hesitate to let me know
if yoy need me.
re: Vertigo- Low Blood Sugar? Rick
9:39 am monday september 11, 2000
I don't don't know what book you've been reading, but I
suggest you do a little research on Reactive Hypoglycemia. My
understanding of the disorder, as told to me by a physician,
which has also been confirmed by everything I have read, is that
the carbohydrates and pure sugars overstimulate the pancreas,
which then produces too much insulin for the amount of sugar in
the blood stream, which then lowers the blood sugar levels.
Protiens which are harder to break down than carbs and sugars
tend to regulate the insulin output of the pancreas.
I had one vertigo attack early last week when I ate a cookie
before lunch. Coincidence? I also got very dizzy last Friday when
I had a sub sandwich on a rather large sourdough bun. Another
coincidence? Both happened within 15 minutes after ingestion. So
your recommending a little carbohydrate loading? I don't think so.
Regards,
Rick
Menieres-possible treatment Henry J. D'Souza
1:16 pm monday september 11, 2000
Dear Tim:
Thank you for sharing your experience with us(meniere's victims).
I feel a lot better after hearing that you too are 56years young,
my doctor made me feel as if I was aging rapidly.
I have had menieres for about 3 years now, and for the past 2.5
years, have had to take a diuretic everyday. It has helped in
the past, but during this past week it hasn't. I had the very
dizzy spells, the nausea, just the worst!! One of my daughters'
friends came across an article about menieres in one of the
"ladies" magazines, and that article mentioned something about a
"non-surgical" procedure called "chemical labrinthectomy", have
you or any of your website users ever heard of this? I would
like to know more about this procedure. From this article, it
appears to do away with dizziness, but does it also do away with
the hearing? I have an appointment with a new doctor on 13th, if
I get to know more about this procedure, I will share the
information, but I would not recommend it, it is upto each
individual to get their doctor's advice.
Thanks again for sharing
Meniere's symtoms/Hg dental amalgam toxi Karen
9:33 am friday september 22, 2000
Hi,I'm Karen, an RN who's suffered from Meniere's symptoms over
several years, with an exacerbation during the last two months.
My heart goes out to anyone with this illness....I'm beginning
to feel isolation that I've never experienced before (emotional)
because this is truly a "silent" disability. That is, unless
someone has the misfortune of attending one of the vertigo with
N & V attacks. That a fairly obvious disability. Not a pretty
sight!
I have recently run across information in my many hours of
interet and other research that I've found very intriquing.
Many of my symptoms are also consistent with those of heavy-
metal toxicity...specifically mercury. I have a mouth-full of
fillings with dental amalgam (some are many years old). Has
anyone else made this connection? Any experience with doctors
on this subject?
Based on what I've read, there really is no definitive blood
test to determine the body's mercury burden as there is no "base-
line" value. Of course with my "brain fog" in a very active
phase, my understanding of that may not be clear.
Any feedback would be appreciated... Thanks
need some help Kris
11:51 pm monday september 25, 2000
Hi there to all. I'm new to all these internet sites and have
just found this one (along with some very helpful information
already). I am 23 years old and was diagnosed with Meniere's
just after high school. I've had this disease for at least 6
years now. I've tried the low salt and whole diet thing, tried
lots of different meds and so on- no relief. I have been
especially bad the last 8 months or so, having severe attacks
several times a week. I'm not able to work anynore and I'm
getting really frustrated! My doctor finally suggested a
vestibular nerve section and I agreed and am scheduled for the
end of October. I'm wondering who else has had this surgery and
what it was like. I am a nurse myself and know a lot of the
technical info, but what I can't seem to find is personal
accounts and what the doctors "avoid" saying. I know everyone
is different and reacts differently, but I would love to
correspond with anyone who has any info (or anyone who just
wants to talk- I get bored around the house alot). Thanks to
all! Feel free to email me personally at jlrosenz@earthlink.net
Thank you!
Krysta
re: need some help Shelley
6:22 am wednesday september 27, 2000
Hi Kris
My name is Shelley and I live in England and have been suffering
with
Meniere's for nearly a year and a half.. I started with the
syptoms
just before I found out I was pregnant, was told they would go
after I
had the baby but unfortunately it got worse and was finally
diagnosed
with Meniere's. I have just been signed off sick from work after
having
several months off with Maternity leave (bet that won't go down to
well).
Anyway, after trying several different tablets, I am currently
using
"Buccastem" which you put under your gum when you feel an attack
coming
on. So far (after a couple of days of taking them) they started
to kick
in and touch wood I have not had a severe attack for nearly two
weeks...a lifetime when you suffer from our disease.
Anyway, if things don't work I will be put in for surgery too. I
have
asked people to let me know what the surgery they have is like but
so
far no one has answered me so I would appreciate it if you could
please
let know what it is like.
I would love for you to stay in touch cause no-one unless they
suffer
from it really understand what we go through.
Take Care
Shell
protien
thomas 2:21 pm monday october 2, 2000
I love to exercise I wish I could get paid for it. I once
thought that exercice was what kept my MENIERES in check, but
now I think it was the powder protien I took.I stopped takeing
the protien and found during times of stress I would lose my
hearing in my one good ear (my other ear is a menieres casualty)
and have small dizzy spells. Yesterday I had a full blown
attack. I also noticed that my dizzy spells came just before
meals. I do not know what causes or cures this menieres but I do
think protien helps me deal with the stress of life. It seems as
long as I am getting one 30gram protien drink a day I do not get
dizzy or sick. I can not hear very well, but as long as I can
avoid the attacks that put me on my back, I can live with the
deafness.
Vertigoheel Question Doug
7:49 pm monday october 2, 2000
I have had bi-lateral Menieres for over 12 years. Nothing
seemed to help except for shut surgeries. I have had 2 in each
ear. Now my only hearing ear is going bad and needs help. I
had a shunt revision last year in that ear, so maybe that's not
the answer.
I tried SERC about a year ago, it just gave me asthma. For that
last 2 weeks I have been taking Prednisolone drops in my ears
(tubes to get past the ear drum), and Pred. tablets. This
remedy is not working for me. This is also know as
Dexemethosone perfusion.
Any pro's or con's to trying Vertigoheel?
Is there any other known or experimental meds to try?
Thanks,
Doug
re: protien Rick 9:20 am thursday october 5, 2000
I've noticed the exact same thing. If you haven't read it
already, I have a posting titled "Low Blood Sugar" which talks
about the same things you did. Good to hear that someone else has
the same symptoms. I'm going to the Dr tomorrow about a new
condition I have. I've been getting a small vertigo attack and
then dizziness 5 minutes after I eat. Very strange as this has
never happened before. I've been taking an antihisamine before I
eat and I haven't had another attack, but this is so different, I
think a check up is necessary.
Good luck,
Rick
Small vertigo attack after Eating Rick
9:47 am thursday october 5, 2000
I haven't had a major attack ( 4hrs of vertigo)since increasing
my protein intake and eating small snacks inbetween meals. But
here lately I started having a 15 to 30 second vertigo attack
followed by 2 hrs of dizziness and nausea 5 to 10 minutes after
eating a meal. This is so different from the "norm" I'm going to
the Dr to make sure everything is ok. Has anybody had a simular
experience?
Thanks,
Rick
Gentamicin Jan Creager
3:48 pm monday october 9, 2000
Can anyone, in great detail, give me their experience with
gentamicin injections?
I have had my first one, and am still having attacks. I am
concerned that it is not working for me.
Any insight?
re: Small vertigo attack after Eating Doug Schneider
9:17 pm tuesday october 10, 2000
Rick,
I have had the same experience for many years. It is believed
that many Meneires sufferers have an autoimmune disorder. You
could be allergic to certain foods that trigger the attack. I
personally am allergic to corn products, and if I eat something
with more than a trace of corn in it, I have an attack. It is
very difficult to find what food(s) are a problem. It took me
years of doing elimination diets to find the problem foods. With
Meneires you can't eliminate a food for a week and determine that
it is or is not a problem food, it takes time. Allergist can not
help with food allergies, so your on your own.
I would still see you ENT, but start looking at food labels and
try to buy foods that don't have a long list of ingredients
(especially the ones that you can't pronounce).
Doug (12 year bi-lateral)
re: Small vertigo attack after Eating Rick
8:59 am wednesday october 11, 2000
Thanks, Doug, I think you make a valid point and I'll start
keeping stats on what I eat to try to isolate the foods that are
triggering these attacks.
Thanks again,
Rick
National Publicity For Meniere's and SERC goodaswine
12:34 pm wednesday october 11, 2000
Hello fellow Meniere's sufferers. I am going to do everything in my power to finally bring this
condition to the public. With your prayers and support I and you, we, can accomplish this.
I have written e-mails to the three television networks. It is time for us to take the bull by
the horns. There are thousands and thousands of us in just this country alone. It is time for
the FDA to get off of its butt and legalize the distribution of the drug SERC. Not the
compounding bulk version of this drug. A pharmacist does not have the time to prepare this nor
can we afford it. There have been proven positive results from the use of this drug.
Unfortunately, the source for SERC, for the sufferers of this disease that are having positive
results is drying up. It is becoming harder and harder to obtain. Folks, get behind me on this!
We have got to bring Meniere's Disease to the forefront, not left on a shelf in a closet because
physicians DO NOT know how to treat this DISABLING disease. Yes, we have our various websites,
message boards, and membership groups and thank God for them. If not for them, what few that
have found them, would have nobody to turn to. Somebody, who understands what we are going
through on a daily, minute to minute, and second to second basis are constantly found at these
various locations. Not knowing what the very next second may bring! Contact the various news
networks(ABC, NBC, and CBS) who have the primetime news magazines. Let them know there is a
serious disabling disease being put on a shelf. Surgeries are being performed with and without
success. Surgeries that are leaving people TOTALLY DEAF with no cure for the conditions of the
Meniere's. The networks have my name, address, phone number, and e-mail address. I am going to
publish all this below. So, when you send them an e-mail through their contact links, you can
and will give them my personal information for them to contact me. Fellow sufferers of Meniere's
and family members, I am taking the bull by the horns and I am asking you to ride this bull with
me to tell the FDA to wake up! Thank you, I am looking forward to hearing from all of you!
Please feel free to e-mail me or even give me a call. Danny Ethridge Panama City, FL 850-769-2171
goodaswine@yahoo.com 48hours@cbsnews.com. dateline@nbc.com http://abcnews.go.com/onair/email.html
meniere and asthma jane lemarr 9:16 pm friday october 13, 2000
I have meniere, and I also have asthma. Every time I have a
vertigo spell, I have an asthma flair up. Does anyone have or
know of any link there?
Shunt surgery
Kim Slagle 9:54 pm tuesday october 17, 2000
Hi!
Does anyone have any experience with the shunt surgery? I have
heard from one person that it helped her tremendously. My Dr.
says it has a 50-70% success rate.
thx
kim
Allergies and Meniere's Rick
1:40 pm wednesday october 18, 2000
Here's an article I found at
http://medscape.com/reuters/prof/1999/10/10.01/cl10019k.html.
I think it's interesting that the old antihistamines (H1
blockers Benedryl, Actifed, etc) were the only ones that were
effective. I have found that wheat products may be triggering my
attacks. Time will tell if this is going to work, but I was
having 2 to 5 attacks a week immediately after eating and when I
started the antihistamines three days ago I haven't had anymore.
It's way too early to claim success. But I wanted to share this
discovery.
Meniere's Disease May Have Allergic Component
-------------------------------------------
WESTPORT, Oct 01 (Reuters Health) - The incidence of allergies
in patients with Meniere's disease is twice that of the general
population, researchers told attendees at the American Academy
of Otolaryngology--Head and Neck Surgery Foundation annual
meeting in New Orleans this week.
A team from the University of Southern California in Los Angeles
believes that allergen-related immune dysfunction may help
trigger symptoms of the disease.
"For the majority of patients, allergy immunotherapy with
allergy shots if they have airborne allergies or diet if they
have food allergies, is very effective in controlling the
vertigo and tinnitus associated with Meniere's," Dr. M. Jennifer
Derebery reported.
In an interview with Reuters Health, Dr. Derebery said that
although studies have suggested a link between allergy and
Meniere's disease, "...there's really been no good data on how
often that occurs."
Her team interviewed nearly 1,500 patients with the disease
and "...found a much larger percentage of patients than
anticipated that were allergic." The Los Angeles researchers
found that 42% of respondents said that they suspected they were
allergic. Allergies were confirmed in 37% of the group by blood
and/or skin tests.
"The anatomy of the inner ear suggests that it can be a target
of histamine and other chemicals that are released with an
allergic reaction," she explained. Airborne allergens such as
dust, mold and pollen were most frequently associated with
Meniere's symptoms. Food allergies, especially to wheat, were
also associated with symptomatology.
Dr. Derebery pointed out that the bulk of the most widely
prescribed allergy medications remain ineffective against
allergy-related Meniere's symptoms, since they do not act upon
the inner ear. However, "...there are some medications that will
help," she said, including some older antihistamines that cross
the blood-brain barrier.
Dr. Derebery and colleagues have found that dietary and drug
therapy has proven effective in reducing Meniere's symptoms in
allergic patients treated at the House Ear Clinic and House Ear
Institute, in Los Angeles. She told Reuters Health that hearing
loss in these patients has "remained quite stable" over time,
suggesting that antiallergy therapy may affect disease
progression.
frustrated with Meniere's Rhonda
1:54 pm friday october 20, 2000
I was diagnosed with Meniere's in 1989 after realizing that I had
lost some hearing in my left ear. Prior to that, I had had several
episodes of getting out of bed and walking into the wall; I just
thought I was a klutz. After I had my first child in 1995, I was
plagued by fatigue, mental fog, and extreme allergies to smells (I
could smell someone's perfume and feel like I was completely
intoxicated!). A second ENT diagnosed me with Candida(which is a
yeast that infects the intestines and gut) and allergies, so I was
put on a miserable no sugar (no wheat, no salt, no etc., etc.
etc.) diet for 6 months. I believe the diet helped immensely, but
the symptoms continue to recur. I was interested to hear that some
of you have allergy-related Meniere's; I would like to hear more
about that. This past year I have had more bouts of the
traditional Meniere's symptoms and have been told by my doctor
that I'm "sloppy" on my diet. I'm extremely tired of being on
diets and would like suggestions of where to find the ingredients
that I see listed in so many of the low salt recipes (like no salt
cheese, no salt rolls, etc.). I live in a small town so many of
these items are not available in our grocery stores. I would
appreciate any help.
re: frustrated with Meniere's Kim
10:17 pm sunday october 22, 2000
I too, was told that I probably had Candida. It was so hard to
stay on the diet prescribed and the treatments and supplements
weren't covered under my insurance so I didn't stay on it long.
I do know that I felt better on it for the few weeks that I did
it. I'm glad to hear that it helped your MM's symptoms. Perhaps
we should both go on it again. :-)
I live in a large town and many of the items I hear discussed or
see in recipes are not available in our local grocerie stores but
are available in Natural Grocery Stores. We have a few in the
Twin Cities. I bet there has to be an on-line grocery store that
would be able to ship the non-perishable stuff.
I'll let you know if I find out about any on-line gocery
shopping. Take care....and know that sometimes it doesn't
matter how good you are w/ the diet...it just happens.
Kim
Blood Tests During Vertigo Attacks Rick
1:42 pm monday october 23, 2000
I've noticed with my own vertigo attacks and also from what
other people have said, that once it starts there is no stopping
it. I find this odd to say the least. I can't help but believe
that some chemical or drug is being released into the blood
stream that causes the vertigo and nausea, otherwise why would
it have to run it's course? If you drink too much alcohol, you
have to wait for the body to eliminate the alcohol before the
symptoms go away and there's nothing you can do to speed up the
process. And the same goes for any drug that alters your state
of being. So I'm wondering if any of you have thought the same
thing and have you ever had a blood analysis done during a
vertigo attack or heard of any research being done in this area?
Thanks,
Rick
Meniere's Disease and Meniere's Syndrome Greg
4:01 pm monday october 23, 2000
Grettings everyone,
I received this from the Ear Foundation weekly newsletter, and thought I would pass it on to
you;
"We at the EAR Foundation have created this weekly e-letter to inform and encourage you as you
deal with the chronic illness of Meniere's Disease
Meniere's Disease Vs Meniere's Syndrome
Do you hear people talk about Meniere's Disease and Meniere's Syndrome and wonder if there is a
difference? Like many others, you probably read a great deal about Meniere's Disease and
Meniere's Syndrome with no explanation that there is a difference.
According to The booklet An Introduction to Meniere's Disease, the terms Meniere's Disease and
Meniere's Syndrome are not synonymous. Meniere's Disease is used to refer to the condition
which has no known cause, While Meniere's Syndrome refers to the same classic clinical picture
but for which a recognized cause is suspected. Recognized potential causes of Meniere's
Syndrome include: allergy, endocrine-metabolic disorders, syphilis, immune-mediated disorders,
congenital malformations, etc. Treatment of Meniere's Syndrome is usually more predictable in
that a cause can be specifically attacked."
http://www.earfoundation.org/
Two Weeks Without a Vertigo Attack Rick
12:09 pm friday october 27, 2000
Since I've started taking the antihistamines 30 minutes before I
eat, I haven't had another vertigo attack. I also quit eating
anything with wheat in it. I'm taking a little more than the
recommended dose but I am 6'2" 235lbs and I think I can handle
more than the dosage for a 120lb 12 year old. I will however
discuss this with my DR if it continues to work. It also got rid
of the brain fog for the two weeks except for yesterday which
was really foggy. LOL. But I made it without an attack. The
little attacks I was getting frequently weren't the same as the
big ones I used to get, so one of those may be lurking in the
shadows, but at least I can enjoy a few days of peace. I haven't
had time to post recently so I wanted to check in and say hi.
May God be with you.
Rick
ps. If you all check all the boards like I do, I hope you don't
mind seeing my postings at all of them. I'll stop if you want me
to.
Are We Type A or B Personalities Rick
12:00 am tuesday october 31, 2000
If Histamines can trigger MM attacks, are we doomed bye our
personality profiles? I've been doing quite a bit of research
since I read that article of Dr. Dereberry's relating allergies
and MM. I knew that antihistamines would stop the histamines
from reacting with different cells in our bodies, but I didn't
realize that adrinalin would prevent the production of
histamines all together.
I've been accused of being too layed back and never worrying
about anything. Did this cause my MM? Am I not generating enough
adrenalin in my daily life. Are all MM sufferers type "B"
personalities. Is that why MM tends to affect us after we turn
40 because we've mellowed out? What do y'all think?
Good News- Bad News Rick
1:11 pm monday november 6, 2000
I went three weeks and two days without a vertigo attack. That
was after I started taking Ephedrine(metabolite), antihistamines
and eliminated wheat products from my diet. It also got rid of
the constant fog I had been enduring for the last 2 years. Well
so much for the good news.
This morning I had a vertigo attack about ten minutes after I
finished my oatmeal. It was another small attack like I've been
having the last two years with the spinning lasting about a
minute but I was completely off balance for 2 hours. I'm ok now
and the fog didn't come back so I don't think all is lost. Looks
like I maybe have lost another food group though. I also
probably ate too soon after I had taken the meds and they didn't
have time to take affect. Or I'm wasting my time altogether and
getting my hopes up for nothing because this isn't working and
I'm just fooling myself. Oh well life goes on. Thanks for
listening....Rick
Am I losing my mind? Laura
4:46 pm saturday november 11, 2000
Hello, I am very new at this. First of all let me begin to say
up until 10/18/00, I was in fact healthy. It started at work.
I work in a factory and am a Mechanical Brake Operator. This
entails to bend down and look at tooling for the machine.
Anyways, I did just that and I had a feeling unlike any other.
Every thing, and I mean EVERYTHING was going so fast. I thought
that I had imagined it, ignored it and started over. same thing
happened. I was terrified. I almost fell into the machine.
Well anyway I got sent home from work. Went to regular dr, he
said labrythinitis. symptoms worsened. sent to an ENT, he said
vestbular neuronitis, still symptoms with little or no
improvement. He has ordered a MRI on brain and inner ear canal,
He suspects Meniere's. I am scared but more importantly hoping
that he is wrong and I will be normal again. Any suggestions?
re: Am I losing my mind? Rick
7:04 pm saturday november 11, 2000
Most vertigo attacks (if that is what you had)with Meniere's,
come and go. It sounds like yours hasn't stopped. I hope you get
more than one opinion if they say it is meniere's.
re: Am I losing my mind? Laura
12:49 pm monday november 13, 2000
Thanx for your reply. I hope that this subsides and I can get
back to a"normal" life.
low sodium diet lianne
3:33 pm tuesday november 14, 2000
I am very newly diagnosed with MD. It seems to have come out of
no where i just woke up with it one day. After a few attacks and
being sent to ent specialist was diagnosed and sent on my way.
Any information i have on MD is on the net from sites like this
one. I am so thankful there are others like me to talk to. My
doctor has told me to be very careful with the foods I eat (low
sodium,sugar, cafene etc.) but has given me no diet to follow.
Does any one have a good diet they can stear me towards. I am
taking diazide and feeling very tired and nausious and of corse
dizzy most of the time any one else feeling like this??????
re: low sodium diet Rick
5:28 pm tuesday november 14, 2000
Here are some other Meniere's message boards and some MM sites.
There's lots of good information and what you'll find is that
everybody is different. Try what your doctor says because that
does help in the majority of cases. My best advice is to track
what you do, what you eat, etc and hopefully you'll find out what
triggers your attacks.... Rick
http://www.conciliocreative.com/dizzy/cgi/board4.cgi?
boardname=dizzyboard.txt&boardtitle=Vestibular+Disorders+Message+B
oard&gobackurl=../index.shtml
http://www.menieres.org/forums/cgi-bin/forumdisplay.cgi?
action=topics&forum=Meniere|APO|s+Main+Forum&number=1&DaysPrune=20
&LastLogin=
http://www.coolboard.com/boardshow.cfm?mb=865745329612135
http://apps3.vantagenet.com/zforums/thread.asp?id=19281368
http://www.michiganear.com/wwwboard/wwwboard3.html
http://www.michiganear.com/wwwboard/wwwboard4.html
http://www.clubs.yahoo.com/clubs/menieresdiseaseclub
http://clubs.yahoo.com/clubs/thetinnitussupportclub
http://medscape.com/reuters/prof/1999/10/10.01/cl10019k.html
GOOD NEWS!! Kim 7:49 pm tuesday
november 14, 2000
Hi all!
I jumped through the hoops (and there were many)and I finally
got my insurance to approve to pay for a visit to Dr. Derebery
at the House Ear clinic in Los Angeles, CA. I was so glad that
I literally had tears of joy! Hopefully, she'll find something
that I'm allergic to and it will work in controlling my
attacks. I'll keep you posted. I will be seeing her 11/20 and
11/21!
Also, just an interesting note for women with Menieres. I
switched my diuretic from diazide to spironalctone because I
found that my attacks were worse during PMS. On another website
(www.dr.gwen.com) that is for women w/ Menieres she posts a
study that shows that the only diuretic found to help PMS water
retention was spironolactone. So far, it's helped!
re: GOOD NEWS!! Rick 4:48 pm wednesday
november 15, 2000
That's great Kim and I will be looking forward to your posts.
I've noticed that wheat has been triggering some of my episodes
and possibly milk. I'm very interested in the allergy connection
with MM... Good Luck...Rick
fluvastatin sodium Rick 6:19 pm
thursday november 16, 2000
I looked at a web site "www.menieres.com" and the person says he
was cured when his GP prescribed fluvastatin sodium for his
cholesterol. Has anybody tried this? I know my cholesterol is
high is anybody else's? Another person also posted on his BB
that their mother's hearing was restored and tinnitus cured by
the same drug. What do y'all think?
re: GOOD NEWS!! Lori 9:47 pm saturday
november 18, 2000
That's very interesting, Kim. I look forward to your results
also. I personally have multiple allergies. I noticed this
week, when I tried using a wheat grass powder, that not only did
I have typical grass allergy symptoms such as stuffiness, throat
constriction, etc., but the dizziness has been really
problematic. Ironically, I'm trying this new cleansing regimen
for the purpose of trying to clear up the allergies and the
Meniere's. So much for the wheat grass.
Barometric Pressure Lori 5:43 pm
tuesday november 21, 2000
Is anyone is New York today suffering from extra dizziness from
the low barometric pressure? Is it me or does this weather
really mess with your equilibrium?
re: Barometric Pressure Rick 10:18 am
wednesday november 22, 2000
I think the answer to your question is yes, barometric pressure
can cause problems. I researched it a long time ago because I
noticed I had problems everytime a cold front came through and
the weather was clear, sunny, and cold. I tracked the barometric
pressure for quite awhile and there were several times the
pressure was high and several times it was low and I had no
problems in either case. But in my research on the net, which I
encourage you to do, I found lots of info on Barotrauma. Scuba
Divers are especially suseptable to this and it does produce
dizziness and vertigo. So you may have found something here that
helps you even though in my case it turned out to be a dead end.
re: low sodium diet James C. Daniel 3:36 pm
wednesday november 22, 2000
My main concern with having this disease is am i gonna be able
to recieve s.s.d. I have not been able to work since sept. of 99.
I have`nt been diagnosed as of yet but i am sure i have it. I am
totally at my wits end by the end of each day and don`t want to
hear anything,BUT i have a 12 yr. old to deal with which means
the tv must be on and i have to turn the volume all the way up &
i still have tremendous problems undrestanding wat is being said.
If anyone has anything that mite help e-mail me at
Jimbocepus@aol.com
re: Barometric Pressure Lori6:42 pm wednesday
november 22, 2000
Thanks for the feedback, Rick. I'm going to check it out.
Kim? Rick 9:20 am thursday november 30, 2000
How did your appointment go with Dr Derebery?
Rick
constant vertigo Tami 1:47 pm friday
december 1, 2000
Hi. My doctor just diagnosed Meniere's disease and I don't know
anyone else with the disease. My next appointment isn't for
awhile and the more I read about it the more I wonder if it's
really what I have. (Yes, I am aware that with every diagnosis
comes denial). But I have constant vertigo, not just when I have
an acute attack and can't stand up. I have only had a couple
acute attacks and the rest of the time I have this awful
spinning feeling and pressure in my ear, some ringing and the
hearing loss has invaded by ability to function. I was just
curious if anyone else has had a more constant vertigo??
re: constant vertigo Laura 11:29 pm friday
december 1, 2000
hello, I wish that this came under better circumstances, but I
too am suffering with constant vertigo,earpressure and fullness
sometimes pain, fatigue, ear noises. I have been surviving this
for almost 2 months. I understand fully what you are going
through and my sympathies are with you 100% My ENT first told me
that it was vestibular neuronitis, then Meniere's and now I have
to go to a otolarngologist. I am recently experiencing facial
numbness. Scary!!!! To say the least it is frustrating to know
if you are brave enough to get up and walk or will you fall. Or
should I watch t.v. or will my eyes go bonkers. I really do
understand what you are going through. Keep a positive attitude
if you can and try to keep going. Keep coming to the message
board for support and information. It does help to know people
are out there and know what you are going through. Remember
stay as positive as you can. I know it's not easy. Stay well.
Laura
no subject specified) Martyann 10:13 am tuesday december 5, 2000
I just found this site yesterday and was thrilled. I've found
discussion boards a good source of info in the past. It took
two years for me to get the dx of Meniere's. At that time I was
having constant dizziness and fog along with other symptoms and
knock downs at least once a week. Prior to this I would have
occasional bouts of dizziness and a knock down every 2-3 months.
When the problem became chronic I started searching for an
answer. I first suspected allergies as I had two knockdowns
after known exposure to mold. I was told by an allergist that
even though I was allergic to mold that this was not a typical
reaction. Finally after 2 years of various doctors and dx I
found an allergist that has given me some relief.
I'm allergic to numerous things including pollens and many
foods inclding yeast and wheat. Yeast seems to be a bugger. And
definitly molds. So I have to avoid many things such as cheese,
beer, any thing with yeast (which is hard because it is hidden
in many things under other names and used as a
peservitative.),wine and others.
When I first started my restrictive diet I felt immediatly
better. I have been on antigen shots and drops since March. I
recently went back to a less restrictive diet and gradually have
gotten lax on paying attention to what I eat. I can tell a big
change. I just had a major vertigo attack this past Friday,
triggered I think by exposure to mold (in the soil of a large
plant believe it or not). I haven't felt well since.
I have an appt. with my allergist/ent Monday. I know what
she's going to say,"What did you eat?" It's so very difficult
to stay on the diet because it basicall consist of fruits and
vegetables and beans as I'm allergic to beef, pork and chicken.
It involves more preperation than I am feeling capable of doing
at the moment. And when I am well it involves preparing two
different meals, one for me and one for the family. I eat some
very unintresting things some times.
Enuf gritching, the thing is I know there is a direct
relationship between my allergies and my attacks. Some times I
wonder though if there may be another component as there
sometimes seems to be no known reason for an attact. Usually
these are mild in comparison to the major knockdowns I have.
Thanks for letting me share, and hope that the info on
allergies help
re: (no subject) Rick 12:04 pm wednesday
december 6, 2000
I believe that the attacks I've had that weren't allergy related
were from low blood sugar. I noticed that they always came when I
haven't eaten in a long time 5 or 6 hours. Now I make sure I eat
a little something every two hours or so. I also am allergic to
wheat and I had a simular problem with finding foods that I can
eat. I didn't realize that Gluten is a wheat protein and I was
eating a lot of stuff I thought was wheat free that wasn't. Stay
away from Gluten, starch, flour, and other grains like oats,
malt, and barley. Rice seems to be ok. If it doesn't say "corn"
starch for instance then it's wheat. Same is true for flour, if
it's something other than wheat, it will say "rice", "corn", etc.
Maybe the same thing happened to you when you were "lax" on your
diet. I've found Rice crispy treats to be an excellent substitue
for cookies and cakes and that sort of stuff. I also take an
antihistamine an hour before I eat in case I eat something I
shouldn't have. Remember it's the histamines that are the
culprit, the allergies just cause the body to release them. Good
Luck.. Rick
re: (no subject) Martyann 6:08 pm thursday december 7, 2000
I'm super watchful at the grocery store. The problem is I'm
allergic to corn, (corn is hidden in many things, in the form of
starch and sweetner) rice, potatoes, also. I can eat those
things once a week. Basically I'm suppose to rotate everything I
eat. I have found a spelt bread which is wheat and yeast free.
The problem is that it is about $6.00 for a pound loaf! I can
eat oats but it is hard to find products that don't contain other
things I can't have. The biggest problem is preservatives, msg,
yeast in many forms is used as a preservative, only they call it
something else much of the time.
I love rice crispy squares, but marshmallows are made from
corn syrup. So you can see my dilima.
Another BIG problem are fragrances, something I have no
control over in public. Not all bother me, but when they do
watch out! I came home from shopping today with a headache I
think was triggered by formyldhyde in clothing. That's the only
place I went was a clothing store. I never know when this may
trigger a virtigo attack. It makes me very panicky sometimes,
especially if my husband is out of town as we are new in town and
I don't have any back up support if something happens. My
biggist fear is getting caught away from home and my husband is
out of town.
At this time I'm not on any maintance. I have an appointment
Monday. Would like to hear about others maintance programs that
have or have not been successful. Also is there any meds that
work to ease the symptoms once you are in a full blown attack?
Antivert doesn't seem to work any more nor does Scopace. I can't
use the Transderm patchs because I'm allergic to the adhesives.
Thanks
re: (no subject) Darrell 5:31 am friday december 8, 2000
If I may reccomend VertigoHeel.
It is a homeopathic so no harming side effects and it has worked
great when I needed it. I used it last year for a couple of
months and the dizziness has subsided (knock on wood). Please
research it yourself on the web and check with your ENT. I know it
worked for me and other people on this site.
Take care and keep us all posted.
Darrell
PS - Greg keep up the good work as we are all appriciate your
work.
dumbfounded Laura8:13 am friday december 8, 2000
To all of you, I am totally dumbfounded when it comes to this
condition. I have been experiencing all symptoms of mm for 2
months with little or no relief. I have been to ent who has
done absolutely nothing but give me antivert, and an MRI, he
first thought labryinthitis, then vestibular neuronitis, then
Meniere's, I am now preceding to a otolaryngologist. can anyone
tell me what to expect. I have so many symptoms that will not
decrease or simply go away, to list a few, constant dizziness,
ear fullness and pressure. Can't tolerate loud noises, constant
nausea, facial numbness, even when I move my eyes I am
spinning. I feel that I am out of control and this has really
taken all the patience that I had out of me. Am either
exhausted or have spell (attack) and sleep will not come.
Mentally am not completely with it and also when get attacks, I
shake. Is this common? Anyone have any answers. I am trying
to stay positive but it is so hard. thanx for your time. Laura
sorry to ramble
re: (no subject) Rick 11:38 am friday december 8, 2000
Your right, if it doesn't have wheat, then it probably has corn.
Hopefully your Dr will be able to help. I also take Metabolite
which has Ephedra. I don't usually mention this because it's
supposed to be really bad stuff, but ephedra seems to help me.
From what I've read it prevents histamine release. I'm not
suggesting you use it unless your Dr tells you, but I did want to
let you know what has worked for me. I'm surprised the
antihistamines don't at least make your symptoms tollerable.
Here's a web site of someone who controls their MM with diet by
eliminating foods that contain histidine which the body uses to
make histamines. I haven't tried it, but a lot of what he says
makes sense and it didn't sound too difficult.
http://www.goldbaum.net/balance/index.html
Hope you get better.... Rick
re: dumbfounded Rick 11:46 am friday december 8, 2000
The ringing is constant with me and I can't tolerate lous noises.
I always have ear fullness and pressure. I think once I found out
I wasn't dieing, I was able to get used to those symptoms. It's
been 17 years now. I'm dizzy a lot but not always and I'm only
nauseated when I have an attack. I would hold out hope that the
Dr's could help with those symptoms. I'm sure you've read my
posts regarding allergies, so make sure that your not dealing
with that also. Low blood sugar ( hypoglycemia) has also caused
me to have problems. Hope you get better.... Rick
re: Barometric PressureJayne 11:38 pm friday
december 8, 2000
Dear Rick,
Last year on the way to church I experienced my first "bout"
of meniere's disease. I only had about 6 spells of the dizziness
that was followed by severe neasea and then I would go into a
deep sleep for about 2 hours. When I woke up..I was fine. I deal
with the ringing (or low roaring on some days) almost daily in my
right ear. I have constant headaches if the weather is bad, but I
always thought it was sinus. Could this be related to the
menieres..and is there any way of knowing how long it will be
before I have another "spell". My doctor has me on a daily fluid
pill for my blood pressure and thought it may help with menieres.
Any input would be greatly appreciated. thanks..Jayne
re: Barometric Pressure Rick 11:55 am saturday
december 9, 2000
Jayne, the most important thing you can do is to start keeping
track of what you do and what you eat and try to see any re-
occurring conditions exist before you have an attack. It's not
easy and in fact if I hadn't had read an article about food
allergies and MM, I don't know if I would have ever got that
connection. I have another post at this site about allergies and
menieres that I suggest you read. But I did find there was a
correlation to my attacks and fasting. In fact I reconfirmed it
yesterday. We went to my sister-in-laws graduation from college
and I went 6 hrs without a big meal. When we left the college I
felt like my feet weren't touching the ground I was so dizzy. I
knew it wouldn't be long for the vertigo attack came. We all went
out to eat and I took my antihistamines ( more than I should) and
after I ate it went away. That's probably the closest I have ever
come to having a vertigo attack and not getting it. I don't know
if it's a blood sugar thing or not because my blood sugar always
tests normal, but I do know that I have to eat a regular meal
every four hours and a small snack inbetween to keep these
attacks away. When an attack is caused by something I eat, it
usually happens within 15 minutes, so it's pretty obvious what
happened when I get those. I truly am believing more and more
that histamine levels are the root cause in both scenarios. I had
an attack simular to yours, Jayne, when we were going to church
one Sunday. We stopped at McDonalds for breakfast with the
Grandchildren and as soon as we left, I started spinning. I had
to pull over and let my wife drive. I realize now it was the
bisquit LOL. So lets assume it's Histamines in your case, Jayne,
it could be anything that your exposed to that causes your body
to release histamines. In my case I don't react as severely to
airborne allergens as I do foods, but I have had attacks in the
past that I was convinced were caused by my sinus's, which makes
sense to me, most sinus problems are caused by histamines. There
are certain substances that are so aromatic that I get an instant
vertigo attack when I'm around them. Some are chemicals that are
in the work place but I have been sent reeling by some perfumes
and after shaves. So in your case it could have been that you
didn't eat that morning, you ate something that your allergic
too, there was something in the air that wasn't there the day
before, or you may have tried a new perfume that morning or
somebody around you may have had a perfume or aftershave that you
were reactive to. I take Chlortrimeton 30 min to an hour before I
eat along with a Metabolite pill (ephedra)during the day and
Benedryl at night. The ephedra to prevent histamine release and
the antihistamine to minimize my reaction to histamines. The
ephadra is supposedly bad stuff so I'm not recommending it, but
just letting you know what I do to try to control my situation.
Last night was the first dizziness I had in four weeks and at
that I still didn't have a full blown attack and I was having 3
or 4 attacks a week before I started all this. In fact I had 3
attacks in two days at one point. Hope this helps and I hope you
get better...Rick
MicorWick Beth 1:10 pm monday
december 11, 2000
Considering using micorwick has anyone heard of this? or its
resutls?
Thanks Beth
Can an ENG test cause a Vertigo attack Rick 12:46 pm
wednesday december 13, 2000
Has anybody experianced a vertigo attack after the caloric part
of the ENG test? The reason I ask is that I had a small vertigo
attack yesterday after walking about 200yards in 34' weather
with winds of 20mph+. It was like no other vertigo attack I have
had. The movement was very , very slow and I didn't get
nauseated. It's been 5 weeks since my last vertigo attack after
I started my diet which eliminated all wheat and oat products
and I was having about 5 attacks a week before I started the
diet. I know this wasn't food allergy related because it was 2
hours after I had eaten breakfast. The only thing I could think
of was the change in temperatures that would be simular to the
caloric part of the ENG, but I've never had that test done so I
don't really know. I'm not worried about it because I can handle
1 attack per month if this was just a random attack, but it was
so much different from any I had before I thought it might be
related to the cold. I'm keeping my ears covered anyway..
LOL ....Rick
re: Can an ENG test cause a Vertigo attack Lori
7:29 pm thursday december 14, 2000
Rick, I'm not sure I understand your question. An ENG test does
induce vertigo, by design. I don't know if extreme cold can
induce an attack. I know I have felt dizzy upon walking in the
cold lately. I believe what induces the vertigo during an ENG is
the sustained introduction of cold or hot air or water for about
one minute in ONE EAR only. I believe it's the fact that it goes
into only one ear that actually causes the vertigo. The vertigo
lasts for about one minute and then goes away. At least that was
my experience. Lori
re: Can an ENG test cause a Vertigo attack Rick
0:14 am friday december 15, 2000
Well even if you didn't understand the question, you did answer
it, Lori. What I was wanting to know was " Can a change in
temperature in the ear canal cause vertigo?" I couldn't find
anything on the net that told what effect the test had on a
person. All I found was information on how the test was performed
and that the Dr's measured eye movement. I couldn't tell from the
literature if it caused vertigo or not. The episode I had was so
different from any I had ever had, I really felt it was caused by
something different than the others. It was very mild and didn't
last very long and it happened about 5 minutes after I came in
from the cold. Another thing was that the wind was blowing so
hard and directly into my left ear which is also my bad ear. A
person at another message board said he went into a vertigo
attack also when he had the caloric part of the ENG test also.
From what you and he have told me, I will wear earplugs when I go
out in cold weather to make sure the temperature in my ear canals
stay constant. These message boards are truely a God send. I have
learned so much in the last months and it's good to have my
Menieres under control again, well at least for the time being.
Thanks again, Lori
Rick
re: Can an ENG test cause a Vertigo attack Lori
8:30 am friday december 15, 2000
That's a great idea, Rick. I'm going to try some ear muffs this
winter. It makes sense to cover the ears. What I'd love to know
is how to protect my inner ear or balance center from damp
weather. The minute it gets damp (which is quite often in New
York), my Meniere's goes crazy--crazy--horrible. I'm shopping
for ideas! Lori
re: Shunt surgery 9:53 am friday december 15, 2000 Beth
Happy Holidays to you,
I"am also looking for information on the shunt surgery? Have you
received anything?
I visited with my ENT yesterday and he is very pro (he doesn't
actually do the surgery)
But I'd really like to hear from someone who's had it...
Good luck I'll let you know what I found out. Beth
SHUNT SURGERY HELP!!!! Beth 9:55 am friday december 15, 2000
Goodmorning, and happy holidays,
Has any one out there know anyone who's had the shunt surgery?
know what the pro's and con's are?
Gotta do something or there placing me on Long term disability
where I work. ;-(
Thanks
re: Can an ENG test cause a Vertigo attack Rick
12:09 pm friday december 15, 2000
It's 100% humidity here on the Texas Gulf Coast 99% of the time,
but it's also a lot warmer here than in New York. We may have
only 3 or 4 weeks of 30' weather here. I haven't noticed that the
dampness has any effect on my Menieres but it was drizzeling rain
during the episode I was talking about. So maybe it's a
combination of the cold and dampness. As far as a solution? Maybe
a move to Arizona, I don't know... that's a tough one. See ya....
Rick 2
re: SHUNT SURGERY HELP!!!! Rick2:17 pm
friday december 15, 2000
Hi Beth,
I haven't had the shunt surgery but I wanted to let you know
that I was almost in the same position with my job until I found
out about food allergies causing my frequent attacks. I just
wanted to say something about it in case you haven't investigated
that aspect of MM.
Good Luck... Rick
re: SHUNT SURGERY HELP!!!! Martyann 3:12 pm friday december 15, 2000
My doc won't even do the surgery for her patients. She said they
often get stopped up and you have to go back in and redo. She
also said the results were not that great. As Rick mentioned
investigating the possibilites of allergies is a good idea, as
that appears to be what is causing my MM. I don't have the
classic symptoms of allergys, all my symptoms are MM related.
But it is also hard to find a good allergist. People come from
around the country and abroad to see my allergist. She also
takes Medicaid patients. She is really out to help people. If
anyone is intrested in her name let me know.
re: SHUNT SURGERY HELP!!!! Lori 3:25 pm friday december 15, 2000
I'm interested in her name. Lori
re: SHUNT SURGERY HELP!!!! Beth 4:36 pm friday december 15, 2000
I'd like her name and where she is located, Thanks so much for
the info, Beth
re: SHUNT SURGERY HELP!!!! Martyann 9:47 am saturday december 16, 2000
Her name is Soraya Hoover. She is located in Houston, Tx. I
know she also has a clinic in London, England. Her Houston
number is 713-626-4999 or 713-694-8188.
she has two offices in Houston. If you decide to visit her visit
the West Loop office as it is in the better area. The first time
I visited her other office I almost left with out seeing her!! ha-
ha. It is in a lower income area (not unsafe in daylight hours,
but not the best) Building is run down by most standard's. But as
I said she has a lot of Medicade patients and they see her in
that office. There are a few hotels in the area but I would stay
somewhere else up the road. If you visit the other office it is
in a very high end area and you have your choice of the Marriot
(which is where the office is located, in the office building
there), or other nicer hotels. It's in the Galleria area if
anyone is familar with Houston.
I always feel I have to explain about Dr. Hoover when I recommend
her. She has been practicing since the '60's but we haven't
figured out how old she is yet. She is Egyptian and speaks with
an accent but she is easy to understand. She very knowledgeable
and keeps current of all info. She is very insistant about you
following her instruction if you want to get better. Reminds me
of my grandmother-" I told you to do this and you didn't listen.
Now less try it again the way I told you the first time" Not in
those exact word's but you get the drift!!
MD in the family Lianne 2:36 pm monday
december 18, 2000
About three months ago I was diagnosed with MD I have been lucky
so far that I havn't experienced too many bad attacks. On the
week end my 75 year old mother called me - she was very sick.
What she discribed to me sounded exactly what I have experienced
with MD. She was so very sick she couldn't stand without
vomitting etc. She has never experienced anything like this in
her life. My question is do many of you have family members
with meniers and does anyone know how common this is. I also
have a sister with symtoms for many years but never diagnosed.
Also this is something that has come out of no where for myself
and my mother. Has anyone else had symtoms just occur out of no
where??? Very anxious to here from anyone who understands.
Email: gf899@hotmail.com
