Hysterectomy Experiences-9

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Real Hysterectomy Experiences from Real Women!

Many, many thanks for sharing

The following sent 03/27/02 from Jacquelyn:

Hi Jeannah
I experienced something after my surgery that I think other ladies should
be aware of. I had a supra cervical hysterectomy 3/5/02, was due
to be released 3/8/02. Because I was having a difficult time
voiding my bowels I was kept for one more night. I returned to the
hospital on 3/9 at noon in extreme abdominal pain. According to the
Dr., I had developed a bowel obstruction as a result of the anesthesia.
I was confined to the hospital for another week during which I
had a tube down my nose and throat. I am resting comfortably at home now.

I asked Jacquelyn what they did for her bowel obstruction
and she replied with the following:

After my experience I found out that its not that uncommon.
In my case the Drs. didn't want to operate again since the
anesthesia seemed to be to culprit.So they chose
instead to wait and remove any meds that contained powerful pain
relievers like Morphine. In my case it worked but took an
additional week in the Hospital. Sometimes surgery is the only other option.
You may of course include my name and email address.

Email Jacquelyn

1.)What was the reason for your hysterectomy?(endo,fibroids,etc.)
**I had anemia for 4 years with the count below 9. Oral iron did not
help. I suspected heavy periods as they were more painful and distressing
but was largely ignored. It was as if each month I delivered and I had three
kids I know of what I speak. I also had complained of chest pain for
years, told I was "stressed" and "fine". I then had an esophageal hemorrhage,
because what I really had was severe reflux disease. By then my iron was 4.
I needed 6 months of infusions and transfusions. After this time my
periods were so heavy I feared returning anemia. So after a D and C to
remove a "uterine growth" not a fibroid tho, continued bleeding even
worse-then had awful hot flashes for three months- these issues at 42
trying to keep working as a teacher I was given the hysterectomy. Basically
to offset any chance of getting so anemic if I had another esophageal issue
it wouldn't kill me as the first damn near did.

2.)Do you feel like you were informed about what to expect after
surgery and what the long term effects might be on your health by your doctor?
**I was told repeatedly I would be "sterile", it was a very clear thing as if
I was too idiotic to get that. I did not get info on long term effects,
little booklet that was cheerful and said some things like can be fatigued
and watch stairs for a bit implying in four weeks I'd be back up and just
fine. Because of my concern about recurrent anemia I failed to ask for
more. I was extremely naive. But here I just think what else could I
do? It's not like the Mayo Clinic comes rushing to your door to save the day.

3.)If not your doctor, where did you get your information on hysterectomy?
**I read a book by Dr. Northrup.

4.)Did you use birth control pills in your lifetime? If yes for how long total?
At what age did you start using them?
**About two years total to control bleeding that did not stop at age 21 and
30, approx a year each time.

5.)Did you use tampons or pads during menstruation?
**Tampons

6.)Do you have female blood relatives with reproductive diseases?
If so, what ones and which relatives?
**My grandmom on mom's side had a hysterectomy. She had a prolapsed uterus
with bladder issues as did her mom w/o the hysterectomy.
I do not think she knew too much. My aunt's daughter just had cervical
cancer. To be honest I'm not sure of entire family in this regard.

7.) Are you a DES daughter?
**I am not.

8.)How long has it been since your surgery?
**5 months

9.)Did you have uterus, and both ovaries removed?
**The uterus

10.)What problems, if any, are you experiencing?
**I had two months later an infection-peritonitis. I cannot probably because
of liability get anyone who has sen me to connect or not the two. I have
had fainting, dizziness anxiety and spells of great weakness, tummy pain.
I feel awful. A doctor I went to in family practice, sent by OB/GYN claims
it is "depression". I feel there is more to it than that, in short.

11.)What if anything has made them better?
**For one thing rest, sleeping, not going back to work. To some extent
I'm still pretty lousy and would like to know what to do to feel healthy.

12.)Have you ever encountered a doctor or nurse that did not treat
you with respect in regard to your difficulties? If yes, would
you like to share the experience?
**Yes. This most recent encounter with the family practitioner was very
difficult, I was sent to him when I encountered health issues two
weeks after my surgery and almost two months later the recurrent severe
stomach pain became severe infection for which I went to the hospital 8 days.
He did not even treat that (either OB/Gyn or Family Practice Doctor)and
both consistently ignored it, I went to an Urgent Care that placed me with a
surgeon. The family doctor did not "listen" in appointments well and was
dictatorial, bossy and often rude, was obviously expecting to get to the
next room. He stated "depression" in the first visit, would not follow up
on the peritonitis , acted as if I had not had it was in short rude and in
my opinion using a term I rarely employ "a chauvinist". Beyond that
I felt unsure what to do, whom to go to, how to follow up and
damn near lost my life. I personally was told by the family practitioner
many "women" have depression and other things phrased strangely and oddly
to me in terms of my gender and mental health . To me the most irritating
thing is to be in essence threatened with a "mental health" label or
charge for something connected to hormone function, a female reproductive
issue, a need to have my system assessed, for my reaction to these
system shocks of anesthetic, surgery and infection as well as 6 days of IV
Demerol and for being ill connected to surgery and recovery by being
labeled a "woman" as a derogatory thing. I find no cogent reason for
this. I suspect it common and utterly ridiculous and women should work
together to stop it entirely. It is unconscionable.

13.)Are you currently using any form of hormone replacement therapy? If so what?
**I get tummy pain but use Provera, 3 mg.

14.)How are you feeling currently?
**Just lousy, dizzy daily, have weak spells, tummy pain and anxiety.
I'm not myself and for 42 years with many stressors I know what myself
is like.I have always been highly functional, hard working and I'm
not a happy camper this has just ruined quality of life for my family
and myself. I appreciate the expression of care.

15.)Anything else you need or want to share??
**I'd like to share the doctor names but I suppose I can't. I think women
are treated worse than the family pet frankly by and large in regards
to their "hormones", system and health.

If you'd like to leave your email address for other women to
be able to contact you, please add it here:

Email Sarah Puglisi

1.)What was the reason for your hysterectomy?(endo,fibroids,etc.)
**unexplained and uncontrollable bleeding as well as cysts

2.)Do you feel like you were informed about what the long
term effects might be on your health by your doctor?
**I am comfortable in saying that yes, my doctor made sure that I
was fully aware of what to expect after surgery, but as for future
I am really still not very sure what to expect.

3.)If not your doctor, where did you get your information on hysterectomy?
**my doctor for the most part but also looked on this site for some info

4.)Did you use birth control pills in your lifetime?
**yes for about ten years,I was 15 when i started

5.)Did you use tampons or pads during menstruation?
**always pads tampons are to uncomfortable

6.)Do you have female blood relatives with reproductive diseases?
If so, what ones and which relatives?
**my cousin has endometriosis

7.) Are you a DES daughter?
**I am unsure what that stands for

8.)How long has it been since your surgery?
**2 weeks tomorrow

9.)Did you have uterus, and both ovaries removed?
**not the ovaries just the cervix and uterus

10.)What problems, if any, are you experiencing?
**I am very fatigued and as well I have still got
a flow that seems to be quite heavy

11.)What if anything has made them better?
**I feel that I am not getting as many cramps as before and I
think that in the long run I will feel much better and more able to
function and maybe be able to not be told I am anemic when I go to the
doctors I do hope that the problems that I am still having will go
away I am still taking pain medication but hopefully not for long.

12.)Have you ever encountered a doctor or nurse that did not treat you
with respect in regard to your difficulties?
**No so far all the doctors and nurses I have dealt with have
made me feel ok about what i was going to do.

13.)Are you currently using any form of hormone replacement therapy?
If so what?
**no

14.)How are you feeling currently?
**I am still extremely tired and my emotions are on an overload
right now one minute I feel great the next I feel like my world
has just collapsed I do not feel as much like a woman as I used to
and I can't seem to find someone who understands

15.)Anything else you need or want to share?
**thanx for letting me vent, oh and maybe u could tell me if
u think it is normal to have bleeding still

06/17/02

1.)What was the reason for your hysterectomy?(endo,fibroids,etc.)
**Endometriosis, Adenomyosis & Fibroids

2.)Do you feel like you were informed about what to expect after surgery
and what the long term effects might be on your health by your doctor?
**Yes

3.)If not your doctor, where did you get your information on hysterectomy?
**I received a lot of info. from my doctor, but I also
did a lot of research for myself

4.)Did you use birth control pills in your lifetime? If yes for how
long total? At what age did you start using them?
**Yes. Started at age 18 & used on/off for 6 years

5.)Did you use tampons or pads during menstruation?
**Pads only

6.)Do you have female blood relatives with reproductive diseases?
If so, what ones and which relatives?
**Yes. Mother & aunt have endo also

7.) Are you a DES daughter?
**No

8.)How long has it been since your surgery?
**5 months

9.)Did you have uterus, and both ovaries removed?
**No, I still have my left ovary

10.)What problems, if any, are you experiencing?
**I am having those familiar endo pains again and I
believe that my ovary is not functioning properly

11.)What if anything has made them better?
**Nothing

12.)Have you ever encountered a doctor or nurse that did not treat
you with respect in regard to your difficulties?
If yes, would you like to share the experience?
**Yes. I had a doctor that tried to put me on Prozac because all of
the pain was in my head. I also had a doctor that did a lap and only
removed part of the endo so that I would have to keep returning for treatment.

13.)Are you currently using any form of hormone replacement therapy? If so what?
**No

14.)How are you feeling currently?
**Awful. I am hurting and so tired!!

15.)Anything else you need or want to share??
**Thank you for your support to all of us that need it.

16.)Do you have a Web Site/Home Page? If so, leave me the url I'd love to visit !

Endo Center of Parkersburg

If you'd like to leave your email address for other women
to be able to contact you, please add it here:

working_4_endo@hotmail.com

July 09, 2002

1.)What was the reason for your hysterectomy?endo,fibroids,etc.)
**1998-5 1/2 lb ovarian cyst removed lost right ovary

1999-adhesions-abdominal ovarian cysts on left ovary,
polyps and two-1/2 in. growth in uterus, endo.

2001-massive endo, ovarian cysts.

2002-lost the war. Massive abdominal endo, left ovary damaged and organs attached
together, basically everything was covered with endo I was a above 4 rating.
Cervix was also covered with endo. I was so bad they couldn't believe I was functioning.

2.)Do you feel like you were informed about what to expect after surgery
and what the long term effects might be on your health by your doctor?
**Not really. I was told I would feel a lot better and considering my history, I was lucky I never had any type of cancer.

3.)If not your doctor, where did you get your information on hysterectomy?
**I learned more by using the internet and emailing
and talking to women who have had hysterectomies.

4.)Did you use birth control pills in your lifetime?
**No, I was prone to ovarian cysts and it was not a good idea.

5.)Did you use tampons or pads during menstruation?
**tampons

6.)Do you have female blood relatives with reproductive diseases?
If so, what ones and which relatives?
**Sister had a thickening of the uterus wall, that's
it. I'm the only one who had all these problems.

7.) Are you a DES daughter?
**no

8.)How long has it been since your surgery?
**two weeks ago

9.)Did you have uterus, and both ovaries removed?
**full hysterectomy

10.)What problems, if any, are you experiencing?
**Bladder infection, soreness, and have not been able to eat solid food yet.
Intestines were engulfed by endo, not sleeping well. no hot flashes :)
had abdominal hysterectomy through old scar from 1st surgery, very tender to touch.

11.)What if anything has made them better?
**Resting and antibiotics

12.)Have you ever encountered a doctor or nurse that did not treat you with respect
in regard to your difficulties? If yes, would you like to share the experience?
**After 1st surgery, about a year later I experienced doubling over abdominal
pain on the right side. I was told by many obgyn's that it was in my head
and I was having sympathy pains because I lost my right ovary, well finally
I met Dr. Feste, he was the only one who took what I said seriously.
After running tests, it turned out to be massive adhesions, through out my
abdomen from the 1st surgery, and endo and cysts
on left ovary, he's retired now, wish he hadn't.

13.)Are you currently using any form of hormone replacement therapy? If so what?
**Yes, patch that I have to change every two days, not strong enough.

14.)How are you feeling currently?
**I've been through hell and back. I know I'm different(besides the loss),
I just feel mentally different now. I was blessed that I never got cancer,
but you know, since 1998 I have been trying to keep my female organs, many
battles almost every year I went through some kind of surgery to save what was
left, you know what I really hope one day they find some kind of cure for
cysts, endo etc., or at least come up with one answer as to how some women
develop this. Many have said that I should have just had it all removed in 98,
but I just couldn't let that part of me go, now I'm learning.

I believe it's up to each and everyone of us to support any decision
any woman makes. Thanks for letting me vent a little. I'm still very angry I
lost my war, but then again I'm blessed too.

15.)Anything else you need or want to share?
**drink lots of cranberry juice after surgery

If you'd like to leave your email address for other women to be able
to contact you, please add it here:

peppielpew@aol.com

Fawn

07/10/2002

1.) What was the reason for your hysterectomy?
**Severe lower abdominal pain of unknown origin. After surgery, it was
discovered that I had adenomyosis (Endo that effects only the uterus.) My
ovaries were removed as well; there was a cyst on one.

2.)Do you feel like you were informed about what to expect after surgery and
what the long term effects might be by your doctor?
**Absolutely not! My doctors were the best at the Cleveland Clinic. My
surgery was flawless. Their expected diagnosis was right on the button, but
they did a poor job of preparing me for the long-term emotional and
physical consequences of a hysterectomy/oophorectomy.

3.)If not your doctor, where did you get your information on hysterectomy?
**The internet and books.

4.)Did you use birth control pills in your lifetime?
**Yes
If yes for how long total?
**5 years, off and on. At what age did you start using them?
**17 for irregular periods, 20 for birth control,
later for irregular periods again.

5.)Did you use tampons or pads during menstruation?
**Tampons almost exclusively.

6.)Do you have female blood relatives with reproductive diseases?
**One first cousin with Endo. Another first cousin had a hysterectomy but
I don't know why. My mother, sister, two aunts & both grandmothers had
NO problems whatsoever. Why me?

7.)How long has it been since your surgery?
**2 - 1/2 years

8.)What problems are you experiencing?
**Recurring bouts of fatigue lasting up to one week at a time, which are
totally disabling, requiring bed rest. I have had to quit working because
of this fatigue problem. Thank the Good Lord that I have a supportive husband.
Otherwise, what would I do? What do other women do?

9.)What if anything has made them better?
**Using bio-identical hormone gels. I'm still trying to find the "perfect"
doses. I suffered with migraine headaches from age 16 when my periods started,
until March 2002; that's 31 years. When I finally got my hormone gel ratios
figured out (with the help of my engineer brother-in-law) my headaches disappeared.
It's nothing short of a miracle!

10.)Have you ever encountered a doctor or nurse that did not treat you with
respect in regard to your difficulties?
**Yes, my local OB/GYN told me that my pain was due to a venereal disease.
Another practitioner at that same office simply said, "There's nothing
more I can do for you." So, I went out of state to a "specialist" who gave
me mega-doses of estrogen (w/o progesterone) which actually "fed" my
adenomyosis. Then, when I complained about pain, I was told to change my
position during sex (as if I was having an active sex life - get real!) My
husband took me to the emergency room on many occasions because the
pain was unbearable. My vagina was injured during one such visit. I
literally begged for pain medication. My surgeon would not return my
calls; would not give me pain medication, would not move up my surgery
date. I was bedfast and in constant pain. My surgeon said that I
should get pain meds from my family doctor. My family doctor said
I should get meds from my surgeon. One of my surgeons told me that my
post-operative pain would be so mild that all I would need was a
"couple of Tylenol." I responded, "Doctor, if you had just been castrated,
would you be satisfied with a couple of Tylenol?" I got my pain medication.

7.) Are you a DES daughter?
**No.

9.)Did you have uterus, and both ovaries removed?
**Yes.

13.)Are you currently using any form of hormone replacement therapy?
If so what?
**Yes, bio-identical hormone gels from a compounding pharmacy: estradiol,
estrone, estriol, and progesterone in doses meant to replicate the ratios
of these various hormones in a healthy post-menopausal woman.

14.)How are you feeling currently?
**Everything is fine, except that I am always tired. I have occasional
hot flashes, but they aren't too troublesome.

If you'd like to leave your email address for other women
to be able to contact you, please add it here:

kimmatt@worldnet.att.net

07/10/02

1.)What was the reason for your hysterectomy?(endo,fibroids,etc.)
**Persistent infection (PID) non-responsive to treatment with antibiotics.
For years I had recurring bouts of severe abdominal pain with high fever and was
hospitalized many times for IV antibiotics which didnít help much. Tests
would show high white count but no pathogen could be identified. I also had
extremely long periods. Also, starting in my 30s, my periods got gradually
heavier, and longer and longer - 1 week on 3 weeks off, then 10 days on
20 days off, then 2 weeks on 2 weeks off, then 3 weeks on 1 week off,
finally as much as 4 weeks on and 2 or 3 days off!

Eventually I got tired of this routine. I asked all my women friends who they
think is the best gyn in town and I began going to Doctor Martha. She wasnít
even taking new patients at the time, but I was desperate - I begged and
told my story and the nurse took pity on me and talked to Martha and she
accepted me as a patient. An endometrial biopsy showed some hyperplasia,
and she tried me on progesterone, but I got no relief. After a couple
more hospital admissions, she finally convinced me to go in for a diagnostic
laparoscopy and D&C. I had been avoiding this,
turned out to be the best decision I ever made.

She came to visit me in recovery afterwards: ďChristy, you will
not believe what I found!Ē She found an IUD in my uterus. Me, incredulous:
ďWhat kind?Ē Martha, wide-eyed: ďHow many have you had?Ē Two, I replied.
It was a Dalcon Shield, she said. Me, shocked: ďOh my God, thatís been in
there for Ö something like 22 years!Ē I even had two IUDs in at the same time
for awhile in my 20s - not knowing it was still in there, I had a copper 7
in there for a couple years along with the Shield.

I had an abortion at age 22 - that doctor asked me: Do you want me to take
out the IUD? I couldnít believe he even asked me that! ďIt didnít work,
did it! Yes, please take it out.Ē Well, that bastard left it in AND DIDNíT EVEN
TELL ME. I had an IUD in my womb for my entire adult life and didnít even know
it. I was unable to get pregnant and didnít know why. And I went through
years of sickness and ultimately lost my womb, tubes, and ovaries.

Anyway, now Martha knew the likely cause of my problems. There is
a certain bacteria, actinomyces, that thrives under the specific condition
of a foreign object in the body. New lab work confirmed actinomycosis.
There are so many possible pathogens, and apparently they need to have some idea
of the pathogen theyíre looking for in the lab work. Actino is responsive
specifically to penicillin. Iíd taken many, many
antibiotics over the years, but not that one.

I began on penicillin but continued to have recurring bouts of pain and fever.
Martha knew I wanted to keep my organs if possible, but eventually it
became obvious that actino was winning and hysterectomy was my only
choice. Marthaís research turned up one other case like mine - and when they
performed that womanís hysterectomy, they found such extreme woody fibrous
tissue surrounding her organs that they almost could not perform the surgery.
Apparently because the body cannot fight this anaerobic pathogen, in a
last-ditch effort the body tries to wall off the infected organs with
a wall of fibrous tissue. Continuous penicillin IV for weeks or months is
recommended prior to surgery. I got a PICC line (peripherally inserted
central catheter) and a penicillin pump which I had to wear all the time
and change my medicine cartridges periodically with sterile precautions.
It was kind of nightmarish. When they put in the PICC line, they insert it
in your arm and thread it up through your arm vein then down towards your
heart. They have to x-ray you afterwards to make sure it didnít take a
wrong turn and go up towards your brain! Mine went too far - actually into
my heart! I swear I could feel it although the nurse tried to claim this is
impossible But I felt a really creepy fluttery
feeling in my heart when they put it in.

Anyway, after about a month with the PICC line I had another pain-and-fever
incident, and doc said itís time. I went in that weekend. I asked Martha to
leave my ovaries if possible. But there was no way. Turned out my womb, ovaries
and tubes were all stuck together within a mass of fibrous tissue. It was
a very difficult surgery. Some of the fibrous tissue (like scar tissue) was
adhering my organs to my bowel and they were very concerned about possibly
nicking my bowel. Took two surgeons working together four hours to get my organs out.

Oh, did I mention - a screw up with my COBRA notification a few months
earlier had left me uninsured. Martha did my surgery for free, and she made my
case a teaching case (brought in a 3rd-year resident who was also a fantastic
doctor). So the hospital room, anesthesiologist, everything was free, I
only had to pay for the home infusion services.
That woman is a saint and I praise her name every day!

This story was long, I hope you donít mind, but I really needed to tell it.
Doctor Martha saved my life. As much as I dreaded it and tried to avoid it,
I eventually realized that I truly needed a hysterectomy.

2.)Do you feel like you were informed about what to expect after surgery and
what the long term effects might be on your health by your doctor?
**To some extent. I was surprised to learn afterwards about how the uterus
acts as cushion for the activity of the bowel and bladder, and when the
uterus is removed, the motions of the bowel and bladder can be felt
much more strongly. This was mentioned in my going-home instructions after
my surgery, and I soon found out what they meant - ever since then, I often
have excruciating pain when I have intestinal gas or bowel activity.

3.)If not your doctor, where did you get your information on hysterectomy?
**Besides my doctor: women friends; some anti-hysterectomy
organizations whose name I forget now; books; etc.

4.)Did you use birth control pills in your lifetime? If yes for how long total?
At what age did you start using them? **Yes, for around 2 or 3 years beginning at age 18

5.)Did you use tampons or pads during menstruation?
**Pads before I became sexually active, tampons after. When my
periods became so profuse, I often had to use two super tampons at a time.

6.)Do you have female blood relatives with reproductive diseases?
If so, what ones and which relatives?
**My sister had an ovarian cyst.

7.) Are you a DES daughter?
**No.

8.)How long has it been since your surgery?
**8 years

9.)Did you have uterus, and both ovaries removed?
**Yes - TAH/BSO (uterus, both tubes, both ovaries).

10.)What problems, if any, are you experiencing?
**Hot flashes. Night sweats. Poor sleep and resulting exhaustion.
Weight gain. Depression. My mind feels disorganized, unfocused, confused.

11.)What if anything has made them better?
**Premarin helps a little - I have hot flashes on Premarin (and am generally
too hot most of the time), but without it Iím climbing the walls from
extreme hot flashes. I donít notice any other help from Premarin. All my
other symptoms are unrelieved.

12.)Have you ever encountered a doctor or nurse that did not treat you with
respect in regard to your difficulties?
**No

13.)Are you currently using any form of hormone replacement therapy? If so what?
**Premarin .9

14.)How are you feeling currently?
**Not very well, see (10) and (11) above.

15.)Anything else you need or want to share?
**I would like to try NHRT (bio-identical hormones) but when I tried
a progesterone cream I found I couldnít stand to use it (donít like hand
lotion, face creams, etc. either). Iíve read about sublingual drops but
I havenít been able to find a source for these.

16.)Do you have a Web Site/Home Page? If so, leave me the url I'd love to visit !

Christy Brewsaugh's Home Page

If you'd like to leave your email address for
women to be able to contact you, please add it here:

christy@pspc.com

1.)What was the reason for your hysterectomy?(endo,fibroids,etc.)
**Endo and fibroids.

2.)Do you feel like you were informed about what to expect after surgery
and what the long term effects might be on your health by your doctor?
**NO!

3.)If not your doctor, where did you get your
information on hysterectomy?
**several books and the internet.

4.)Did you use birth control pills in your lifetime?
**NO!

5.)Did you use tampons or pads during menstruation?
**pads

6.)Do you have female blood relatives with reproductive diseases?
If so, what ones and which relatives?
**Mother and two sisters all with same problems.

7.) Are you a DES daughter?
**Not sure what you mean by DES.

8.)How long has it been since your surgery?
**5 years

9.)Did you have uterus, and both ovaries removed?
**Yes

10.)What problems, if any, are you experiencing?
**Hot flashes and weight gain. I choose to try natural products
a few years ago. Which are working but not completely!

11.)What if anything has made them better?
**Soy Isoflavens

12.)Have you ever encountered a doctor or nurse that
did not treat you with respect in regard to your difficulties?
**No

13.)Are you currently using any form of hormone
replacement therapy? If so what?
**Soy Isoflavens instead or hormones

14.)How are you feeling currently?
**average. I feel I could be feeling a lot
better for my age.

15.)Anything else you need or want to share?
**no

1.)What was the reason for your hysterectomy?(endo,fibroids,etc.)

**I had been bleeding for nearly four years non-stop and had developed
some type of vaginal infection that was impossible to cure because of the
persistent bleeding. (I had undergone a surgery after 3 years to have a
myomectomy and polpectomydone prior to the hysterectomy. I had
at that time had tubal ligation done. This operation was done by
laparoscopy & the fibroids and polyps were removed by a D & C technique.)
The hysterectomy was performed on August 2, 2002

2.)Do you feel like you were informed about what to expect after surgery
and what the long term effects might be on your health by your doctor?

**Nothing could have prepared me for the nightmares
that have followed the hysterectomy.

3.)If not your doctor, where did you get your information on hysterectomy?

**Most of my information has been through my own research of the internet.

4.)Did you use birth control pills in your lifetime?

**yes

If yes for how long total?
**4 years

At what age did you start using them?
**I was 17 when i started and 21 when i stopped. I developed a
pulmonary embolism on the pill because i tried to make up three
pills I had missed by taking two per day over three days.

5.)Did you use tampons or pads during menstruation?

**I was using tampons for the most part of my menstrual life,
but four the past two years prior to surgery i was using incontinence
pads because the bleeding was so heavy.

6.)Do you have female blood relatives with reproductive
diseases? If so, what ones and which relatives?

My mother underwent a hysterectomy in her 30's for cancer. My
sister had a vaginal canal blockage of tissue that had to be removed
surgically. My daughter has cystic ovarian dysfunctions.

7.) Are you a DES daughter?

**I don't know what this is.

8.)How long has it been since your surgery?

it is now October 12th, 2002

9.)Did you have uterus, and both ovaries removed?

**They only took the uterus in August. They plan to remove the
ovaries on October 25th, 2002

10.)What problems, if any, are you experiencing?

**I was released from the hospital 48 hrs after surgery. I was
readmitted on August 9th, 2002. I went to the ER that morning and
my surgeon was on call at the time. I was complaining of swelling on the
right hand side of my lower abdomen, a lot of pain, and some vaginal
bleeding. He told me that I was going to have pain, swelling, and
bleeding gave me a pat on the head and sent me home. He went on
vacation and i went home. Later the same day my older children
came home and found me semi-conscious and took me back again.

I had developed an ABSCESS on the pelvic floor that had burst and
I peritonitis was beginning to set in. I had a fever of over 103
and was pumping a necrophilic fluid that smelled like gangrene.
They gave me a 30/50 chance of surviving the night. They told my
daughters that if i got through tonight i would probably recover.
My body pumped gallons of this nasty death smelling fluid and tissue
through the vaginal stitches all of the night and the next day.
Six days later, I was released with a packet of antibiotics to take.

On September 12th, 2002 I went to the surgeon again. I was complaining
of swelling on the left hand side and pain again. He told me that
there was nothing to worry about this was normal. I insisted he do
an ultrasound and to shut me up he did. He found two ovarian cysts on
the left ovary. One was 9 CM the other 4.9 CM. I was admitted the
following day to the hospital again for and aspiration to be
done on the larger of the two cysts. They refused to drain the smaller one.

On September 23rd I went back again. I am overly tired. I have
more pain now than before. There is swelling on both sides of my
abdomen now and i get shooting pains going down the fronts of my
groin and thighs. Again I have to insist that there be an ultrasound
done. They tell me they will arrange one ASAP.

When i go home after the examination at the office i am getting severe
cramping on the right hand side. There is a rush of fluids (like when
your water breaks prior to labor) and more pain and cramping the following day.

On September 30th I finally get the ultrasound. I have several cysts
on the right ovary and one on the left. The larger one of 4.9 CM
has disappeared. These average 3 CM each.

On October 5th I am back at Urgent Care again. I can barely walk now.
There is severe back pain radiating down from my waist every time
I move. The doctor there tells me she thinks it is all related to
the cysts and the pain is radiating from the ovaries. She
refers me to the Hospital again the following morning, October
6th. I see another doctor who tells me she can find nothing wrong
with me but wants me to see my surgeon. They will not do an ultrasound
again but the Surgeon says he is going to do the oophorectomy on
October 25th. I am scheduled to arrive there about 11 am for the
surgery and they will do it by 1 pm that afternoon. Oh!,... and they
are going to cut me belly button down this time, instead of
following the scar line from the hysterectomy. "Now I will have to
blame my maladies on something other than the surgery!"

11.)What if anything has made them better?

**A heat pad has helped somewhat with the cysts. Also anti-inflammatory
pain relievers have helped with the back and pelvic pains.

12.)Have you ever encountered a doctor or nurse that did not treat
you with respect in regard to your difficulties?

**YES!

If yes, would you like to share the experience?

**During my stay at the hospital for the Hysterectomy one nurse actually
wrote on my charts that she suspected i was an addict and on speed.
Because the Morphine they were giving me were not having any effect
on me at all. A glass of water would have been as much use.

My Surgeon asked me if I had ever used HARD NARCOTICS in my past as a
recreational drug, because he was not able to administer a dose
of morphine based drugs high enough to effect me with out the risk
of overdosing me. Apparently he was giving me doses of 150 mg every
four hours and I was still walking. This would have had your average
horse on the floor and i was still wondering when it was going to
kick in and take effect telling them that they were not giving me
anything at all and the injections were placebos
because they did not think this crap hurts.

My surgeon also has this... "There isn't anything wrong with you
get over this and get on with your life attitude!", over my complaints.
I think he feels that I blame him for this string of incidents that
have happened to me as a result of the hysterectomy.
This is untrue. These are just the hand that GOD has dealt me for
this round of life. My complaint with him is that he does not take
my complaints seriously. Even when I have repeatedly proved myself to
be right and that there really is something adrift
in my body that needs attention and correcting.

13.)Are you currently using any form of hormone replacement therapy? If so what?

**Not yet but I am willing to share after this next
surgery if you would like me too.

(I certainly hope for an update on how you are doing and wish
you the best in recovery and health!. Jeannah)

14.)How are you feeling currently?

**I am in pain and feeling very depressed. I wish my surgeon had
done this a month ago. My company will no longer pay my medical
insurance and supplementary paycheck. Disability does not give
me enough to cover these fees and pay rent too. The delay has set
me way way back financially. My company does however continue to
hold my position open for me to return when this
(hopefully) last surgery is done.

15.)Anything else you need or want to share??

**I am understandably apprehensive about this surgury being done.
The new scar lines are going to look great with a bikini.
Yes, I can wear bikinis with confidence, (OR COULD) I am only 43
years old and have five children, (two very small children
aged 5 & 6). I am also a very SINGLE MOM. I have had no partner
for nearly four years now. This has been a huge strain on my
children, especially the older ones. The younger ones just keep
asking their older sisters (never me) if Mommy is going to die.
They tell them that they don't know and that all
we can do is pray for Mommy to get better.

If you'd like to leave your email address for other women
to be able to contact you, please add it here:

Simpledlte@aol.com

© Jeannah McElroy. 2003

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