Hysterectomy Experiences 4

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For Hysterectomy

1.)I had a ovarian cyst on my right ovary. They also found cancer
in my left ovary and I had to have a total hyst at the age of 22.
I will be 29 this December 29th.

2.)In my case,I had to have a hyst. but my doctor did not inform
me of all the side effects.

3.)I got my information from the doctor. At the time I did not
have a computer.

4.)I did not use b. control pills but for about 1 yr. 18 yrs old.

5.)both tampons & pads

6.)mom-fibrocystic breast disease ;my aunt (mom's sis) breast
cancer; my grandmother (mom's mom) died of ovarian & breast
eventually bone cancer;and me ovarian cancer.

7.)6 years since surgery

8.)I never have any energy, sometimes I do feel like I have lost
myself (that is the best I can explain it), also headaches, NO
short term memory, & two other problems that deal with the sex part.

9.)Nothing has made the problems better for the simple reason that
no doctor wants to talk about what can be done. I feel as though the
gyn thinks I am just complaining or something. Like he just blows
off what I say.

10.)See #9 and also one time, about 6 months after my surgery, I
asked my doctor about sex drive after a hyst. He just acted like
that would not be because of my hyst and made me feel embarrassed
about asking him. So, I never asked again about side effects of a
hyst because I personally don't feel as though the drs know what to
do about the side effects so therefore they just blow them off.

11.)I am taking Premarin 1.25 (oh yeah, another thing. The only
other drug the doctor said I needed beside the hrt would be calcium
to prevent osteoporosis.

12.)I am still having all the symptoms that I mentioned from above.

13.)I just want to ask anyone else with a similar situation to mine
to email me at afg28@aol.com. thanks.1. I had a ovarian cyst on
my right ovary. They also found cancer in my left ovary and I had
to have a total hyst at the age of 22. I will be 29 this December 29th.

1.)What was the reason for your hysterectomy?
(endo,fibroids,etc.) **Endometriosis

2.)Do you feel like you were informed about what to
expect after surgery and what the long term
effects might be by your doctor?
*I was only supposed to have my left ovary
removed,but I ended up having to have a complete
hysterectomy.

3.)If not your doctor, where did you get your
information on hysterectomy?

4.)Did you use birth control pills in your lifetime?
If yes for how long total?
At what age did you start using them?
*Yes--7 years total. I was 21 when I
started using birth control pills.

5.)Did you use tampons or pads during menstruation?
*Tampons until I had children/tubal ligation
then I had to use pads because I bled so much.

6.)Do you have female blood relatives with
reproductive diseases? If so, what ones and
which relatives?
*My identical twin sister had the exact same
thing as I did. However she had her surgery at
the age of 22-having had no children. I was 38
and had two children.

7.)How long has it been since your surgery?
*6 months./ May '99

8.)What problems, if any, are you experiencing?
*Headaches, dizziness, nausea, fatigue, hot
flashes immediately followed by chills.

9.)What if anything has made them better?
*Nothing that I can find Yet.

10.)Have you ever encountered a doctor or
nurse that did not treat you with respect in
regard to your difficulties?
*No-I have always been treated with respect.

11.)Are you currently using any form of hormone
replacement therapy? If so what?
*Premarin .625 mg

12.)How are you feeling currently? (I truly care!)
*fatigue, dizziness, nausea, not normal--you
know what I mean?

13.)Anything else you need or want to share??

14.)Do you have a Web Site/Home Page? If so, leave me the url I'd love to visit !

YES! Unfortunately! I do know what you mean!
**Complete, by prescription, natural hrt can help!!
Jeannah~

1.)Reason for hysterectomy?
*Induced labor hemorrhaging. Emergency life saving
need. lost uterus, and ovaries.

2.)Informed about long term?
*There was no option. I was not able to be informed
and there was no follow up discussion of long term
health care.

3.)Where did you get info on your hysterectomy?
*My quest began here.

4.)Did I use birth control pills?
*Once and I mean once I had a severe reaction.

5.)Tampons or pads?
*Both.

6.)Relatives with reproductive disease?
*Aunt with many difficulties. Cancer also has affected
me and members of my family.

7.)When did surgery take place?
*two weeks after my marriage in April of 1997.

8.)What problem have I been experiencing?
*No sex-drive, weight, mood swings (drastic) to the
point that my husband thinks I am a monster, fatigue,
depression, aches, racing heart but through testing
it is not a problem with my heart it is something
else they don't know what.

9.)What has made them better?
*Nothing so far. I am looking and was losing hope
with there being any answers. I thought I was just
going crazy and my husband agreed.

10.)Have any healthcare workers treated you unkindly?
*I have been afraid to ask anyone. I thought it was
just me and my head and was embarrassed and ashamed
to ask for help. after my surgery I was to emotionally
upset to ask anything.

11.)What hormone replacement have I tried?
*premarin . 625. I think it was standard. It didn't
affect me one way or the other. I took it for a year
and haven't taken it for a year.

12.)How do I feel currently?
*Lousy and getting worse. My symptoms are getting worse.
fainting, dizzy, insomnia, numbness in my face and arm,
irritability, emotionally more frantic and depressed.

13.)Anything else I want to share?
*I would like to share that I was 27 years old at the
time and though a devastating blow to me as a woman and
the sudden inability to have children and the emotional
repercussions of losing a child. I did not realize the
extent of health problems and the seriousness of losing
my reproductive system and until I really got sick with
all of these strange symptoms I did not take this very
seriously. I now see the balance of nature that exists
and feel the need to come forward and find a doctor and
pharmacist to help me understand the long term health
care I need to live a full and productive life.
this is not a case of take it out and solve the problem
and forget about it. Quite the opposite. thank you for
the education that did not seem available anywhere else.
I would love to email or be of help or support to anyone
at all. I would also love any advice from anyone.
any email to Tupperparty@aol.com

Hugz * Prayers to you!!
Jeannah

1.)What was the reason for your hysterectomy?(endo,
fibroids,etc.)
*I am a 42 year old woman who was bleeding excessively.
So badly that when I would stand up, blood would gush down
my legs, onto the carpeting or flooring, wherever I was
standing. After going to my primary doc, he sent me to a
gynecologist, who found a large tumor and suggested that I
have a laparoscopy done the next day. Following the
procedure, I was informed that I had at least 1 large
tumor, along with endometriosis. The gynecologist recommended
a total hysterectomy. This bleeding continued for 14 weeks,
up until I had the surgery. My blood count dropped so low
that I was not able to give my own blood for the surgery
and my children (b-18 and g-22) donated their blood for
me - we have the same blood type.

A total hysterectomy was done on January 17, 2000, (2 weeks
ago).

2.)Do you feel like you were informed about what to expect
after surgery and what the long term effects might be by
your doctor?
*The gynecologist had me sit and watch a movie about the
hysterectomy prior to making a decision. After I watched
the movie, I decided that I was making the right decision
by having a total hysterectomy (removal of the ovaries,
along with the uterus).

3.)If not your doctor, where did you get your information
on hysterectomy?
*Along with the movie, I was given information (pamphlets)
and I looked information up on the web.

4. Did you use birth control pills in your lifetime? If yes
for how long total? At what age did you start using them?
*I used birth control pills when I was 18 years old until I
was 19 (1 year). That is the only time I used them.

5.)Did you use tampons or pads during menstruation?
*I first started menstruation when I was 9 years old. At
that time, I used pads. However, as the years passed, I
started using tampons, until after I had my second child
at 24 years of age, when I was told by my physician that
I was prone to TSS and to discontinue their use. I used
pads up until the hysterectomy.

6.)Do you have female blood relatives with reproductive
diseases? If so, what ones and which relatives?
*My maternal grandmother had a hysterectomy when she was 32
years of age. My mother was diagnosed with fibroids and
experienced excessive bleeding; however, she did not have
a hysterectomy. She went through menopause for 10 years,
starting when she was about 45 years old until 55 years
of age.

7.)How long has it been since your surgery?
Two weeks

8.)What problems, if any, are you experiencing?
*I am currently experiencing sleeplessness, which is an
every night occurrence. I am up until 5-6 o'clock in the
morning. I cannot sleep at all, except for 2-3 hours in
the late morning. I was given a script for sleeping pills
and they did work the first night and have not worked since.
Other than that just general surgical problems.....pain in
the incision, tiredness, etc. I seem to be having frequent
headaches everyday, which is causing me more pain than the
incision.

9.)What if anything has made them better?
*I sleep whenever I can, then just take it easy the rest of
the day. Take pain meds when it is necessary.

10.)Have you ever encountered a doctor or nurse that did
not treat you with respect in regard to your difficulties?
If yes, would you like to share it?
*No, I have never encountered any type of disrespect from
any medical professional.

11.)Are you currently using any form of hormone replacement
therapy? If so what?
*I was given 2 shots prior to my leaving the hospital.
Originally, I was supposed to have had them in surgery;
however, while I was in the hospital, I suffered a severe
hot flash, which I mentioned to my gynecologist. Upon
checking my surgical records, I did not receive the shots
and they were given to me upon my discharge. These shots
will last 5-6 weeks, after which time I will discuss hrt
with my gynecologist.

12.)How are you feeling currently? (I truly care!)
*Other than not being able to sleep at night, I am feeling
a lot better, although I do cry at the drop of a hat over no
reason. I'm getting cabin fever and for the first time in 2
weeks, I was able to go out and have dinner with friends,
although I was extremely tired when we returned home. But,
I think that is due to lack of activity.

13.)Anything else you need or want to share??
*At the time of my surgery, I looked like I was 6 months
pregnant due to the size of the tumor. My stomach was
reduced drastically after the hysterectomy and I was told
that a second tumor, not as large as the first was also
found. My gynecologist told my husband and I that my uterus
weighed 498 grams at the time of removal, whereas a normal
uterus weighs around 80 - 90 grams. So I truly feel that I
made the right decision in having a total hysterectomy.

1.)Reason for Hysterectomy: Fibroids, at least a
dozen, one the size of a tennis ball, uterus
deformed to size of 11 week pregnancy, bleeding
with periods that lasted for weeks, mass on one
ovary probably endometriosis, uncontrollable pain
with periods. Fibroids had grown considerably
over last two years. Suffered with painful periods
for at least 12 years. I'm 48, divorced,no children.

2.)Informed about surgery? Yes. I recovered
quickly as the doctor predicted. Talked about
estrogen replacement,long term effects,not really.

3.)Where did you find your information?
Internet, books, talking to other women.

4.)Birth Control Usage:
Yes. 10 years age 21-31

5.)Tampons or Pads during menstruation?
Both

6.)Female relatives with reproductive disease?
Grandmother, ovarian cancer. Mother had breast
cancer and hysterectomy at age 43.

7.)How long since surgery?
6 weeks.

8.)Problems experiencing?
No sex allowed yet!

9.)What has made them better?
no comments

10.)Problems with doctors treatment of you?
No. No problems with the two doctors I had for
the past dozen years.

11.)Hormone Replacement?
Yes. Climara 0.05

12.)How are you currently feeling?
I feel fine. Was slightly dizzy starting the
Climara but it went away in a couple weeks. Just
waiting for the go-ahead to work out at the gym
again. My boyfriend said I am behaving fine also.
No mood swings.

13.)Anything else you'd like to share?
I believe that being in good physical shape (i.e.
proper weight, chronic diseases under control,
like my asthma, and working out 7 days a week)and
mental shape (being happy with myself and life)has
helped me get through this major operation and
this will continue in the future. I was back at
work in 4 weeks. Women need to continue to keep
well informed of their condition, latest
developments, new drugs/treatments because doctors
don't know everything. Read and ask questions!

1.)What was the reason for your hysterectomy?
(endo,fibroids,etc.)
*I was bleeding excessively, so badly that when
I would stand up, blood would gush down my legs,
onto the carpeting or flooring, wherever I was
standing. After going to my primary doc, he sent
me to a gynecologist, who found a large tumor and
suggested that I have a laparoscopy done the next
day. Following the procedure, I was informed that
I had at least 1 large tumor, along with
endometriosis. The gynecologist recommended a
total hysterectomy. This bleeding continued for
14 weeks, up until I had the surgery. My blood
count dropped so low that I was not able to give
my own blood for the surgery and my children (b-18
and g-22) donated their blood for me - we have the
same blood type. A total hysterectomy was done on
January 17, 2000, (2 weeks ago).

2.)Do you feel like you were informed about what
to expect after surgery and what the long term
effects might be by your doctor?
*The gynecologist had me sit and watch a movie
about the hysterectomy prior to making a decision.
After I watched the movie, I decided that I was
making the right decision by having a total
hysterectomy (removal of the ovaries, along with
the uterus).

3.)If not your doctor, where did you get your
information on hysterectomy?
*Along with the movie, I was given information
(pamphlets)and I looked information up on the web.

4.)Did you use birth control pills in your lifetime?
If yes for how long total? At what age did you
start using them?
*I used birth control pills when I was 18 years
old until I was 19 (1 year). That is the only time
I used them.

5.)Did you use tampons or pads during menstruation?
*I first started menstruation when I was 9 years
old. At that time, I used pads. However, as the
years passed, I started using tampons, until after
I had my second child at 24 years of age, when I
was told by my physician that I was prone to TSS
and to discontinue their use. I used pads up until
the hysterectomy.

6.)Do you have female blood relatives with
reproductive diseases? If so, what ones and
which relatives?
*My maternal grandmother had a hysterectomy when
she was 32 years of age. My mother was diagnosed
with fibroids and experienced excessive bleeding;
however, she did not have a hysterectomy. She went
through menopause for 10 years, starting when she
was about 45 years old until 55 years of age.

7.)How long has it been since your surgery?
*Two weeks

8.)What problems, if any, are you experiencing?
*I am currently experiencing sleeplessness, which
is an every night occurrence. I am up until 5-6
o'clock in the morning. I cannot sleep at all,
except for 2-3 hours in the late morning. I was
given a script for sleeping pills and they did
work the first night and have not worked since.
Other than that just general surgical
problems .....pain in the incision, tiredness,
etc. I seem to be having frequent headaches
everyday, which is causing me more pain than
the incision.

9.)What if anything has made them better?
*I sleep whenever I can, then just take it easy
the rest of the day. Take pain meds when it is
necessary.

10.)Have you ever encountered a doctor or nurse
that did not treat you with respect in regard to
your difficulties?
If yes, would you like
to share it?
*No, I have never encountered any type of
disrespect from any medical professional.

11.)Are you currently using any form of hormone
replacement therapy? If so what?
*I was given 2 shots prior to my leaving the
hospital. Originally, I was supposed to have had
them in surgery; however, while I was in the
hospital, I suffered a severe hot flash, which I
mentioned to my gynecologist. Upon checking my
surgical records, I did not receive the shots and
they were given to me upon my discharge. These
shots will last 5-6 weeks, after which time I will
discuss hrt with my gynecologist.

12.)How are you feeling currently? (I truly care!)
*Other than not being able to sleep at night, I
am feeling a lot better, although I do cry at the
drop of a hat over no reason. I'm getting cabin
fever and for the first time in 2 weeks, I was
able to go out and have dinner with friends,
although I was extremely tired when we
returned home. But, I think that is due to
lack of activity.

13.)Anything else you need or want to share??
*At the time of my surgery, I looked like I was
6 months pregnant due to the size of the tumor.
My stomach was reduced drastically after the
hysterectomy and I was told that a second tumor,
not as large as the first was also found. My
gynecologist told my husband and I that my uterus
weighed 498 grams at the time of removal, whereas
a normal uterus weighs around 80 - 90 grams. So I
truly feel that I made the right decision in
having a total hysterectomy.

*Disclaimer-This information is not intended to be a
substitute for professional medical advice. You should
not use this information to diagnose or treat a health
problem or disease without consulting with a qualified
healthcare provider. Please consult your healthcare provider
with any questions or concerns you may have regarding
your condition.

**NEW**Research & Data Collection Let your voice be heard!

Created: 07/31/99
Updated: 06/11/2002

1999 Jeannah McElroy. Copyright

Counter Replaced: 10/03/01

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Links !

Hysterectomy Experiences
Hysterectomy Experiences 2
Hysterectomy Experiences 3
Hysterectomy Experiences 5
Hysterectomy Experiences 6
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