Hysterectomy Experiences 2

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Thanks from my heart to the women, that I consider my (((sisters))) that have
taken the time to contribute their often painful experiences. My hope is that
together we can raise awareness and spare another the problems and often pain
we have suffered.

**I am 32 years old....
1.)What was the reason for your hysterectomy? (endo, fibroids, cancer,etc.)
*I was told I had severe PID. No known cause. Also had fibroids.

2.)Do you feel like you were informed about what to expect after surgery and
what the long term effects might be by your doctor?
*I was not informed at all!!! I had no idea what I was getting into.I had no
pamphlets given to me, no information sheet, no oral instructions as to how to
deal with surgical menopause. I get mad every time I think about it.

3.)If not your doctor, where did you get your information on hysterectomy?
*I started searching the internet AFTER my hysterectomy. I then stumbled across
Sans-Uteri. This was after my hyst and then two more laparascopic surgeries for
adhesions that were caused from the hyst.

4.)Did you use birth control pills in your lifetime?
If yes for how long total? At what age did you start using them?
*I began birth control at age 16 and continued to use them (with the exception of
my son) for the majority of the next 15 years.

5.)Did you use tampons or pads during menstruation?
*I used tampons. since age 12.

6.)Do you have female blood relatives with reproductive diseases?
If so, what ones and which relatives?
*nope. none

7.)How long has it been since your surgery?
*My hysterectomy LAVH/BSO was 6/97. I had then had laparoscopic surgeries for
adhesions of the bowel, abdomen, etc. on 9/97,and 2/98, caused from the hysterectomy.

8.)What problems are you experiencing?
*It's more like what problems DON'T I have?!?!? I have severe and constant abdominal
pain. Still have hot flashes (although they are less frequent now), weight gain,
joint aches, fatigue, depression, no libido, frustration, side effects of
medications, adjustment to medications(they keep changing them)...and on,
and on, and on...:)

9.)What if anything has made them better?
*My new gyn has me now on an antidepressant, Zoloft. Seems to be helping to
even things out so to speak. Don't have the feelings of rage as often, and
severe depression as passed.

10.)Have you ever encountered a doctor or nurse that did not treat you
with respect in regard to your difficulties? If yes, tell me about it.
*Which one? There are so many! My prior gyn, the one who operated would
give me a five minute appointment to review my problems. He would have
one foot out the door and I would be struggling to get up from the stirrups
and yelling "but wait...!!! You haven't answered my questions!!" I would end
up tears at home later, my husband would get mad at me because I didn't ask
the doctor the questions I wanted to. It was terrible!

11.)Are you currently using any form of hormone replacement therapy?
*I'm now on 2mg Estrace, Zoloft for antidepressant, and Naprosyn 1100mg
per day for control of pain and adhesions.

12.)If you are using HRT or NHRT, what are you using? Is it helping?
*answered above.

13.)How are you feeling currently? (I truly care!)
*I have good days and bad days. Lately more good. I still work,
although I truly don't want to. Financially I have to but I feel
I'm just to damn tired! Most nights I go home and am watching tv
in bed by 7 or 7:30. It's hard because I have a 5 year old who just wants
to play when he gets home. Fortunately my husband is very understanding.

14.)Anything else you need or want to share??
*Isn't this enough ;) ??

Hi, My name is Rachelle Hicks.I don't mind my name being known. I just am
not very good at writing email.

1)*The reasons for my hyst were fibroids, endo, and adhesions.(4 c-sections
and 2 laps)

2)*mostly, but I found Sans Uteri before my surgery and endo support.I also
read quite a few books .

4)*Yes stated them at age 21 after birth of 2nd son used about6-8 yrs.

5)*pads

6)*possibly, my grandma had hyst but I don't know why.

7)*6months on oct6th

8)*joint pain, rashes,moodiness,numbness in toes ,bloating(terrible after
eating.

9)*naproxin and sometimes amitriptyline.Helps a little.

10)*yes the med asstat my drs.Im treated like a hypochondriac.

11)*yes, I alternate between estradiol 1mg and estratest.625

12)*not helping much

13)*not as much pain as before

14)*started feeling endo like pain recently I'm
worried about endo in the bowel.

*Before my surgery had a colon polyp removed.I was told
it usually happens in your 50s.I'm 36.
Thanks

(((Rachelle)))...you did a fine job ! :o)

*Here is my story that I sent to Oprah. Feel free
to use it and my name as you wish. Thanks!

Dear Oprah,
*In General
As I sat and watched your show on July 15, 1998 on the subject of Hysterectomies
I cried. I thought to myself "if only someone had aired this a year ago my life
would be different". You MADE a difference in a lot of women's lives that day.
But it is time to take it a step further. What about the women who have already
made this drastic step and now suffer daily? What options do they have? When
will the hell end? These women I am talking about are your sisters, your friends,
your co-workers. They suffer from Surgical Menopause. It is said that this is
suppose to be a "normal" process everyone goes through in life. Although this may
be true, it is a proven fact that most of the women who go through menopause are
actually suffering from "Surgical Menopause". Women go through this mainly after
the removal of their ovaries but some women suffer just as much with the removal of
their uterus only. When I say suffer I do not use this term lightly. Some women
experiencing Surgical Menopause go through Hell. This process has destroyed
marriages, family relationships, self worth and made a lot of women wonder
"WHY DID I DO THIS TO MY BODY?" and
"WHY IS MY BODY WORKING AGAINST ME?"

*The Feelings

The feelings women go through when they suffer from Surgical Menopause
are tremendous. Not only have they lost their internal organs, and for
most women, the ability to have children, but they are experiencing all
these emotional and physical symptoms beyond anything they ever imagined
or had been told! Loss of sexual drive, inability to have orgasms, hot
flashes, hair loss, bladder problems, joint pain, thyroid dysfunction,
painful intercourse, dry skin, anger/rage, crying spells, suicidal
thoughts, depression, insomnia...the list goes on an on. A woman going
through Surgical Menopause will experience all or some of these symptoms.
Some women experience more severe symptoms which will have her going to all
types of doctors, put on all kinds of medicines, just to be told "it is all
in your head", "take this antidepressant and come back in a few months"!
It is time to educate the doctors about what is going on with our bodies.
This is not in our heads! Our feelings are real and although it may look
like we are losing it, we are reaching out for the help that we deserve.

*My Story
I am a 29 young woman who feels 10 years older. I should not be going
through this in my life right now but because of poor research and a doctor
who just wanted to "take everything out" I am suffering from Surgical
Menopause. I had my surgery in September of 1997 because of painful
intercourse, pelvic pain, and adhesions from a C-Section. My doctor
said I would feel as good as new. I was 28 years old and I had only been
married a month. Now, nearly a year later, I am still experiencing painful
intercourse, pelvic pain, and adhesions. The same symptoms I was having
which forced me to have a hysterectomy have returned.
*My life changed in September of 1997. My marriage, my health, and my job
suffered. I experienced all symptoms listed above and more. I had to have
another surgery in February of 1998 to remove more scar tissue only to be
told that it would reform and I would just have to live with it. The day
after your show I found out I had a tumor on my vaginal cuff around the
nerve endings. This was not suppose to happen to me. Now I am faced with
another possible surgery if the in-office procedure does not help me. Sex
is out of the question because of the severe pelvic and back pain I get. I
am also STILL trying to find the right HRT "cocktail".
I know there are people in worse condition than I am. I am not trying to
complain but to EDUCATE. That is the key. If, through my experience, I can
help another young woman from going through this
then I know I have made a difference.

*In Conclusion
Although this letter is long, I hope it has reached your heart. The women of
this world NEED a show on Surgical Menopause and what it does to your body.
We need the education so we can make a responsible choice about our bodies.
I urge you to do a show on this and I can guarantee that you will be blessed
by millions of women faced with this problem.

Thank you for your time and help.
Kellie Greer
Kellie.Greer@Thrifty.com

For Hysterectomy

1.)What was the reason for your hysterectomy? (endo,fibroids, cancer,etc.)
*I had seven diagnostic lap surgeries by the age of 27 and they found adhesion
disease, endometriosis and chronic appendicitis problems.

2.)Do you feel like you were informed about what to expect after surgery and what
the long term effects might be by your doctor?
*NO. I wasn't told about any of the changes that would go on
other than the fact that I would have to take hormones to
replace what my body would not have after the surgery, and
to a 28 yr old that seemed like no big deal at the time to get
rid of the constant pain that I had..little did I
know what else was really involved.

3.)If not your doctor, where did you get your information on hysterectomy?
*I am still learning 2 yrs later from any info that I can find

4.) Did you use birth control pills in your lifetime?
If yes for how long total? At what age did you start using them?
*Yes. I took them by Doctors orders to regulate my periods. I took them for
about 2 yrs I think and I was around 18 or so.

5.) Did you use tampons or pads during menstruation?
*Tampons

6.)Do you have female blood relatives with reproductive diseases? If so,
what ones and which relatives?
*Not that I am aware of

7.)How long has it been since your surgery?
*2 years

8.)What problems are you experiencing?
*Unable to find the correct hormones to take without having constant
tiredness, "power surges" and moodiness.

9.)What if anything has made them better?
*Nothing really so far and I have been on several different doses,
types of medicine both natural, pills, injections, and now on Progesterone

10.)Have you ever encountered a doctor or nurse that did not treat you
with respect in regard to your difficulties? If yes, tell me about it.
*They want to help but can only give me something new to try.

11.)Are you currently using any form of hormone replacement therapy? If so what?
*Right now I am on a new medicine that I have to take twice a day..progesterone,
It is supposed to be what your body has during pregnancy so they are hoping that
this will help. So far the power surges have eased but the tiredness is the
same..and have to ask hubby how the moods are.*G*

12.)How are you feeling currently? (I truly care!)
*I am at the point that I think I would rather put up with the pain I
used to have than feel ...hmmm..not myself like I do so often now.

13.)Anything else you need or want to share??
*I think that for anyone that is facing this surgery they need to do
research first. I regret that I did not do any before my surgery and
now I feel like I am lost. This is something that you cannot undo and
if I had it to do over again I would opt to NOT have it done. I am now
30 yrs old and am going thru changes that I should not have to go thru
at this time in my life and it is very hard to explain to my husband
sometimes. As a matter of fact, 2 days after I came home from the
hospital I lost it and just shut myself into the bathroom and cried for
reasons I don't even know. My husband was so upset he called my mom and
with her being a nurse she came right over and sat with him and
explained some of what my body will be going thru in the next few months
until I adjust. She was at a loss when she found out that the Doctor
had not explained anything to us. It was just assumed that we knew what
was going to happen. This is something that will affect not only your
body, mental status,emotions etc...but your family also. I have 3
girls and it is hard when you just don't have the energy to go outside
and play and that is something that I would like to be able to explain
to them but with the oldest being 12 and the youngest being 3 this is
not something they can understand.

15.)Do you have a Web Site/Home Page? If so, leave
me the url I'd love to visit !

*Gina's Adoption Page

For Hysterectomy
1.)What was the reason for your hysterectomy? (endo,fibroids, cancer,etc.)
*I put the surgery off almost a year ... when the doctor found my fibroids and
recommended surgical removal of my uterus, I was devastated. My marriage was rocky
and I wasn't at all sure we would still be together. Knowing that, I wasn't ready
to give up my reproductive self. I was still easily within child bearing years
(I was 34). I sought a second opinion, a woman gynecologist confirmed the
diagnosis and was kind enough to counsel me and told me to go home and think long
and hard ... but not wait too long because the bigger they got, an incision would
have to be made rather than vaginal removal. I waited too late, but the doctor
made the incision SOOOo low, no one can tell.

2.)Do you feel like you were informed about what to expect after surgery and what
the long term effects might be by your doctor?
*yes, although I still feel like my weight gain
has tons to do with the surgery

3.)If not your doctor, where did you get your information on hysterectomy?
*actually, the second doctor, not my regular physician was more more helpful.
But I love my OB/GYN and he has a great bedside manner. I really can talk
to him about anything (and I DO!)

4.)Did you use birth control pills in your lifetime? *yes
If yes for how long total?* seven years
At what age did you start using them? **18

5.)Did you use tampons or pads during menstruation?
*tampons except when cycle was really heavy during the nights

6.)Do you have female blood relatives with reproductive diseases? If so,
what ones and which relatives?
*paternal grandmother had uterine cancer

7.)How long has it been since your surgery?
*nine years

8.)What problems are you experiencing?
*I hate not knowing when it's PMS time *grin*

9.)What if anything has made them better?
*I LOVE NOT HAVING PERIODS!

10.)Have you ever encountered a doctor or nurse that did not treat you
with respect in regard to your difficulties?
*not at all

11.)Are you currently using any form of hormone replacement therapy? If so what?
*no, I still have my ovaries - my doctor only took my uterus

12.)How are you feeling currently? (I truly care!)
*overweight ..... =(

13.)Anything else you need or want to share??
*I think I said it all in number one

*and I forgot to say, I really DID feel better after the surgery
than I had before ..... I was having heavy periods (long ones 10 days)
and had a 21 day cycle, so I felt I was having a
period every two weeks! UGH

15.)Do you have a Web Site/Home Page?**oh yesssss =) If so, leave me the url
I'd love to visit !

Snuggems Cove

And this one

For Hysterectomy
1.)What was the reason for your hysterectomy? (endo, fibroids, cancer,etc.)
*Fibroids

2.)Do you feel like you were informed about what to
expect after surgery and what the long term effects might be by your doctor?
*Yes. My surgeon was wonderful.

3.)If not your doctor, where did you get your information on hysterectomy?
*I also got LOADS of info from Sans Uteri people.

4.)Did you use birth control pills in your lifetime?
If yes for how long total? At what age did you start using them?
*I used BC pills for a total of about 3 years. I began using them at age 16.

5.)Did you use tampons or pads during menstruation?
*I always used both tampons and pads.

6.)Do you have female blood relatives with reproductive
diseases? If so, what ones and which relatives?
*No, not that I know of.

7.)How long has it been since your surgery?
*11 months

8.)What problems are you experiencing?
*none

9.)What if anything has made them better?

10.)Have you ever encountered a doctor or nurse that did not treat you
with respect in regard to your difficulties? If yes, would you like to share it?
*Not really. I had a fine experience with my problems and surgery.

11.)Are you currently using any form of hormone replacement
therapy? If so what?
*I still have my ovaries.

12.)How are you feeling currently? (I truly care!)
*I feel great. I finally have some iron in my blood, now
that I am not constantly bleeding!

13.)Anything else you need or want to share??
*No but feel free to contact me with any questions.

FOR HYSTERECTOMY

1.)hyst. for endo, adhesions, ovarian cysts called Stein-Leventhal tumors--grow
inside ovaries--but kept both against dr.'s
wishes--had cysts "popped" instead of removal

2.)I absolutely was not informed by my dr.! What
I learned, I learned from Sans-Uteri

3.)Sans-Uteri and all those wonderful ladies for
whom I have the UTMOST respect

4.)I used birth control pills several different times--first, at age 16
to regulate periods and for severe pain & heavy
bleeding, for two years--went back on them at age 22, after the
birth of my daughter for about three years

5.)I used tampons WITH pads for the first few days of my periods for
heavy bleeding, then tampons for the following three or four days,
then panty shields for a day or two of spotting at the end

6.)My mother had terrible reproductive problems--many miscarriages,some
in second trimester (I am a DES daughter)--also heavy bleeding
and much pain; my aunt had the same symptoms with menstruation;
both, after I was diagnosed with endo, realized
they must have had the same thing

7.)This is Oct. 26--I had my surgery Sept. 22

8.)I am experiencing cramping (dr. tells me this is impossible)--I
wonder if, since I kept my ovaries, the estrogen is feeding the
endo and it's still there in place. Also left ovarian pain (dr.
won't see me for it--says this is impossible too and it's just my
Irritable Bowel Syndrome--I say I know my body and I know the
difference). Also, fatigue, feelings of "PMS", slight
depression and insomnia

9.)Pain medicine for cramping and ovarian pain; also hot baths--taking
calcium and magnesium--I think they help my energy level
some--I don't know what to do for the "PMS" feeling--this is
another thing my dr. doesn't seem to believe in

10.) Oh, yes! I can write a book on this question. A dr. who tried
to discharge me with no pain meds, saying I was the first woman
he'd ever heard of who complains of pain after a hysterectomy.
Please read what I wrote to Beth & Sans-Uteri--can't write it all
again now--it'll be in the Oct. 26 digest

11.) No HRT as I kept both my ovaries

12.)Currently, I am feeling frustrated, sad, depressed, angry and sore.
I do think that in the long run I probably made the right
decision, but with the wrong doctor

13.)I don't know what else to share--except to express my appreciation
to wonderful, brave women like you and Beth Tiner, who help me to
feel a little less alone. I know that's not what you were
asking, but that's what you're getting =-)

If there's anything else you want to know, feel free to ask. I've gone
the Synarel route, had trouble obtaining my diagnosis of endo--so let me
know if you want me to expand on anything.
Good luck!

For Hysterectomy

1.)What was the reason for your hysterectomy?(endo,fibroids, cancer,etc.)
*I was diagnosed with a very large cyst on my right ovary which turned
out to weigh 10lbs. Also, cancer was suspected but thankfully, no cancer
was found.

2.)Do you feel like you were informed about to expect after surgery and what
the long term effects might be by your doctor?
*I was given pamphlets to read. They were all positive experiences
reported by other women. My doctor said I would feel better and there
was no proof to any rumors or side effects.

3.)If not your doctor, where did you get your information on hysterectomy?
*I worked in an office with many other women who had gone through this
experience... Most were very positive....

4.) Did you use birth control pills in your lifetime?
If yes for how long total? At what age did you start using them?
*Yes, I took BCP for 1 year at age 20.

5.)Did you use tampons or pads during menstruation?
*Tampons and pads for the heaver flow periods.

6.)Do you have female blood relatives with reproductive diseases?
If so, what ones and which ones?
*None to my knowledge.

7.)How long has it been since your surgery?
*9 1/2 yrs.

8.)What problems are you experiencing?
*Everything you have ever mentioned.. Especially, depression, weight
gain, loss of libido, bouts of sleeplessness, the feeling of well being
is lost, low energy, not only hot flashes but my temperature gauge is
set at hot all the time now.

9.)What if anything has made them better?
*I took HRT for 2 years and when I discovered that it really didn't help
I went off of it.

10.)Have you ever encountered a doctor or nurse that did not treat you
with respect in regard to your difficulties? If yes,tell me about it.
*No, but more of an attitude of not really believing what I am feeling.

11.)Are you currently using any form of hormone replacement therapy? If so what?
*None whatsoever.

12.)How are you feeling currently?
*Over the years, my system has adjusted somewhat. I just feel that I
will never be the same person that I was 9 1/2 yrs ago. I feel that I
have been robbed of my life. I am not the same person that I once was.

13.)Anything else you need or want to share?
*I would plead with women NOT to have this surgery if at all possible.
Nothing about it has been a positive experience for me.

14.)Would you like me to keep you updated by email periodically regarding
the progress I'm making in my efforts to raise awareness?
*That would be very nice, thank you.

15.)Do you have a Web Site/Home Page? If so, leave me the url
I'd love to visit !
*Yes, but at this time, I would like to remain anonymous. This has been
just too painful for me. Most people don't realize just how I really do
feel.. I'm thankful to find others who will truly understand. God Bless
You.........


*If you would like to share your hysterectomy or endometriosis story, feel free
to email me, you can find the questionaire at the link below.

Hysterectomy Awareness

**NEW**Research & Data Collection Let your voice be heard!

NEWRecommended Reading

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Hysterectomy Post Op & Pre Op Advice

Hysterectomy Experiences

Hysterectomy Experiences 3

Hysterectomy Experiences 4

Hysterectomy Experiences 5

Hysterectomy Experiences 6

My Endometriosis Story

Endometriosis Treatment Options

Endometriosis Experiences

Hysterectomy-My Plea !

Hysterectomy & Endometriosis Resources

Hysterectomy & Endometriosis Questionnaire

Natural Hormone Replacement

HRT Resource

My Recovery Journal

About Me


� Jeannah McElroy. 2001

Counter Replaced: 10/03/01

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