Hysterectomy Experiences 16

Bellevue Pharmacy Solutions-Compounding Specialist
and my source for bioidentical hormones

Many sincere thanks to all that continue to share their experiences here

05/11/09

1.)What was the reason for your hysterectomy?

**I had a 16 pound ovarian tumor, what was called 'borderline' meaning benign with atypia.

2.)Do you feel like you were informed about what to expect after surgery and what the
long term effects might be on your health by your doctor?

**Absolutely not! I was given the 'Happy Not to Have Periods Anymore' booklet by a nurse.
Nothing was explained to me or any of my questions/concerns answered.

3.)If not your doctor, where did you get your information on hysterectomy?

**My friend who had one 3 years before me.

4.)Did you use birth control pills in your lifetime?

**Probably 5 years total, off&on. Started using them when I was 23.

5.)Did you use tampons or pads during menstruation?

**Both, and occasionally the 'cup'.

6.)Do you have female blood relatives with reproductive diseases?

**A sister who had a hysterectomy for precancerous changes to her cervix and a cousin
who had a hysterectomy due to endo.

7.) Are you a DES daughter?

**Yes.

8.)How long has it been since your surgery?

**6 months.

9.)Did you have uterus, and both ovaries removed?

**Yes, with lymph nodes and layer of fat over intestines.

10.)What problems, if any, are you experiencing?

**Severe depression, OCD, numbness in legs, arms & hands, restless leg syndrome,
no feeling at all in my vagina, gingivitis, chronic sinus infections, memory loss,
visual disturbances (increased floaters, flashes of light,etc..) return of migraines
w/vomiting, my back & hips are deformed because of the tumor,
have contemplated suicide more than twice.

11.)What if anything has made them better?

**Nothing. I am seeing a psychologist, my new Dr is trying to set me up with physical
therapy to re adjust the structural deformities of hips/back.

12.)Have you ever encountered a doctor or nurse that did not treat
you with respect in regard to your difficulties?

**Nobody treated me with respect. I made sure that my wishes were clear. I only wanted
the affected ovary & tumor removed and to leave everything else be if it was not
cancerous. I awoke in recovery to be told by someone that it was borderline & the next
day was rudely awakened by someone who was telling everyone in the hall outside my room
'This is the woman who has a 30 pound tumor removed!' This someone later turned out
to be an 'assistant' surgeon I had not been told about who probably yanked everything
out of me. He was so nice, telling me not to be overly optimistic because they were
waiting for the results from my lymph node biopsy (like something not cancerous would
spread into your lymph nodes?), that I could take HRT (so I could get breast cancer?).
Thank God I got out of there in 3 days. Then I never got a return appointment,
and my phone calls went unreturned. I am now seeking a malpractice attorney.

13.)Are you currently using any form of hormone replacement therapy? If so what?

**No.

14.)How are you feeling currently?

**Miserable, angry, depressed. I feel like I was raped.

15.)Anything else you need or want to share?

**I think that there should be a law that gives a woman the final say in what gets
yanked. The tumor I had was huge & I expected to loose the ovary it had grown on,
I could live with that. But to be gutted & castrated & left so shattered physically &
mentally & emotionally is inexcusable. To be told that I just lost some tissue is like
telling someone who lost a leg they just lost some toenails. I enjoyed being a woman,
I enjoyed having a period, having children, having sex. Nothing will ever replace what
I lost, and I will never be able to be me again.

16.)Do you have a Web Site/Home Page?

http://www.blogger.com/profile/15955816652968228842

If you'd like to leave your email address for other women to be able to
contact you, please add it here:

ALL WRITTEN MATERIAL ON THIS WEBSITE ARE COPYRIGHTED
AND MAY NOT BE REPRODUCED
WITHOUT THE AUTHOR'S PERMISSION

MEDICAL DISCLAIMER

THIS WEB SITE IS NOT DESIGNED TO, AND DOES NOT, PROVIDE MEDICAL ADVICE.

No individual should make any medical decisions or change their health
behavior based on information provided here.

All content, including text, graphics, images and information available on or through this Web site
are for general informational purposes only. The Content is not intended to be a substitute for
professional medical advice, diagnosis or treatment.

NEVER DISREGARD PROFESSIONAL MEDICAL ADVICE, OR
DELAY IN SEEKING IT, BECAUSE OF SOMETHING YOU HAVE READ
ON THIS WEB SITE. NEVER RELY ON INFORMATION ON THIS WEB
SITE IN PLACE OF SEEKING PROFESSIONAL MEDICAL ADVICE.

RELIANCE ON ANY INFORMATION ON THIS WEB SITE IS
SOLELY AT YOUR OWN RISK.

The information provided on this site is to be used as a reference source
only. The site author does not warrant the completeness or accuracy of
the information nor in any way endorse or recommend any specific
individuals, medical professionals, or course of treatments listed.
In no event shall the site author be liable to you or anyone else for
any decision made or action taken by you in reliance on this information
nor does your use of this information constitute the offering of medical advice by the site author.

Website author reserves the right to ammend this disclaimer at any time.

Back To:

Hysterectomy Awareness
Join Us For support at HRT-NHRT Yahoo Groups