Hysterectomy Experiences 16

Bellevue Pharmacy Solutions-Compounding Specialist
and my source for bioidentical hormones

Many sincere thanks to all that continue to share their experiences here♥

05/11/09

1.)What was the reason for your hysterectomy?

**I had a 16 pound ovarian tumor, what was called 'borderline' meaning benign with atypia.

2.)Do you feel like you were informed about what to expect after surgery and what the
long term effects might be on your health by your doctor?

**Absolutely not! I was given the 'Happy Not to Have Periods Anymore' booklet by a nurse.
Nothing was explained to me or any of my questions/concerns answered.

3.)If not your doctor, where did you get your information on hysterectomy?

**My friend who had one 3 years before me.

4.)Did you use birth control pills in your lifetime?

**Probably 5 years total, off&on. Started using them when I was 23.

5.)Did you use tampons or pads during menstruation?

**Both, and occasionally the 'cup'.

6.)Do you have female blood relatives with reproductive diseases?

**A sister who had a hysterectomy for precancerous changes to her cervix and a cousin
who had a hysterectomy due to endo.

7.) Are you a DES daughter?

**Yes.

8.)How long has it been since your surgery?

**6 months.

9.)Did you have uterus, and both ovaries removed?

**Yes, with lymph nodes and layer of fat over intestines.

10.)What problems, if any, are you experiencing?

**Severe depression, OCD, numbness in legs, arms & hands, restless leg syndrome,
no feeling at all in my vagina, gingivitis, chronic sinus infections, memory loss,
visual disturbances (increased floaters, flashes of light,etc..) return of migraines
w/vomiting, my back & hips are deformed because of the tumor,
have contemplated suicide more than twice.

11.)What if anything has made them better?

**Nothing. I am seeing a psychologist, my new Dr is trying to set me up with physical
therapy to re adjust the structural deformities of hips/back.

12.)Have you ever encountered a doctor or nurse that did not treat
you with respect in regard to your difficulties?

**Nobody treated me with respect. I made sure that my wishes were clear. I only wanted
the affected ovary & tumor removed and to leave everything else be if it was not
cancerous. I awoke in recovery to be told by someone that it was borderline & the next
day was rudely awakened by someone who was telling everyone in the hall outside my room
'This is the woman who has a 30 pound tumor removed!' This someone later turned out
to be an 'assistant' surgeon I had not been told about who probably yanked everything
out of me. He was so nice, telling me not to be overly optimistic because they were
waiting for the results from my lymph node biopsy (like something not cancerous would
spread into your lymph nodes?), that I could take HRT (so I could get breast cancer?).
Thank God I got out of there in 3 days. Then I never got a return appointment,
and my phone calls went unreturned. I am now seeking a malpractice attorney.

13.)Are you currently using any form of hormone replacement therapy? If so what?

**No.

14.)How are you feeling currently?

**Miserable, angry, depressed. I feel like I was raped.

15.)Anything else you need or want to share?

**I think that there should be a law that gives a woman the final say in what gets
yanked. The tumor I had was huge & I expected to loose the ovary it had grown on,
I could live with that. But to be gutted & castrated & left so shattered physically &
mentally & emotionally is inexcusable. To be told that I just lost some tissue is like
telling someone who lost a leg they just lost some toenails. I enjoyed being a woman,
I enjoyed having a period, having children, having sex. Nothing will ever replace what
I lost, and I will never be able to be me again.

16.)Do you have a Web Site/Home Page?

http://www.blogger.com/profile/15955816652968228842

If you'd like to leave your email address for other women to be able to
contact you, please add it here:

08/08/10

1.) What was the reason for your hysterectomy? (endo, fibroids, cancer, etc.)

*Tumor on my right ovary... turned out benign

2.)Do you feel like you were informed about what to expect after surgery
and what the long term effects might be by your doctor?

*I was told very little, just that it was necessary, and no time to waste, I was told
that if I did not have it, I could ultimately die.
I was told on Wednesday and was in the OR on Friday

3.)If not your doctor, where did you get your information on hysterectomy?

*My sister

4.)Did you use birth control pills in your lifetime?

*Yes, I was put on "the pill" at 15 because of irregular cycles

5.)Did you use tampons or pads during menstruation?

*Pads

6.)Do you have female blood relatives with reproductive diseases?

*Yes, all of them

7.)How long has it been since your surgery?

*4 years

8.)What problems are you experiencing?

*Where do I begin, I am post menopausal at 29 years old, I am full of hair, I am depressed,
MY SEX LIFE SUCKS, let me not forget that I want and need a baby

9.)What if anything has made them better?

*NOTHING

10.)Have you ever encountered a doctor or nurse that did not treat
you with respect in regard to your difficulties?

*Not really

11.)Anything else you need or want to share?

*Don't let anyone back you against a wall and forbid you
to make an irrational decision

07/22/2012

1.)What was the reason for your hysterectomy?(endo,fibroids,etc.)

**My hysterectomy with BSO was due to 18 years of dealing with endometriosis.

2.)Do you feel like you were informed about what to expect after surgery and
what the long term effects might be on your health by your doctor?

**No. I even asked a lot of point blank questions, and I was flat out lied to
about how I would be changed forever. ( sexually, mentally, emotionally)

3.)If not your doctor, where did you get your information on hysterectomy?

**I did research on the net, and became a member of hystersisters.com.

4.)Did you use birth control pills in your lifetime? If yes for how long total?
At what age did you start using them?

**Yes, for 16 years. Age 21.

5.)Did you use tampons or pads during menstruation?

Both. Began tampons at age 21.

6.)Do you have female blood relatives with reproductive diseases?

**Yes. Grandmother, great-grandmother, and aunts. Uterine and ovarian cancer.

7.) Are you a DES daughter?

**No.

8.)How long has it been since your surgery?

**18 months.

9.)Did you have uterus, and both ovaries removed?

**Yes!

10.)What problems, if any, are you experiencing?

How much time do you have to listen?! Lol!
Totally blown adrenal system, thyroid issues, vaginal pain, pelvic pain, pain with sex,
unable to complete my thoughts/sentences, no sex drive, no longer able to climax,
lack of sensation in the genitals and breasts, depression, and the list goes on.

11.)What if anything has made them better?

**HRT pellets, but only makes life survivable.

12.)Have you ever encountered a doctor or nurse that did not treat you with respect in regard to your difficulties?

**Yes. After my surgery, my doctor of 17 years relocated to another state. My new doctor,
which practices at Lakeside Women's Hospital in OKC said that my hormones did not need to be adjusted.
She stated this even having seen my emotions raw with depression and telling
me that my vaginal tissue was pale, indicating low estrogen.

13.)Are you currently using any form of hormone replacement therapy? If so what?

**Yes. Natural hormones pellets placed under the skin in the hip, plus oral progesterone and testosterone
troche, and vaginal estrogen cream as well as a topical estrogen gel.

14.)How are you feeling currently?

**Like crap! Very sad and depressed. Depressed to have lost my health, my mind, my joy, my sexuality!

15.)Anything else you need or want to share?

**I feel so sad, and angry and hurt ... and wonder, can one get an ovary donated?

16.)Do you have a Web Site/Home Page?

Life After Female Castration on facebook.

UPDATED: 07/22/12

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