Hysterectomy Experiences 14

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may learn, and others may not feel alone

01/09/06

1.)What was the reason for your hysterectomy?(endo,fibroids,etc.)

**After being diagnosed with the most severe case of anemia my Doctor had ever seen we
discussed possible causes. We both agreed that my menstrual cycles were unusually
heavy/painful/too often. I made an appointment with my gyn and came in with my tail
between my legs. The last time I had seen him was a follow up appt. after my tubal
ligation. We had discussed my menstrual problems (he was aware I always had them)
and talked about my options prior to my exam. During my exam he found "something".
After a biopsy I was diagnosed with cervical cancer at the age of 32.

2.)Do you feel like you were informed about what to expect after surgery
and what the long term effects might be on your health by your doctor?

**I was referred to a Cancer Specialist Gyn. He really was a great guy, very
candid. I was informed about what to expect in the short-term period after surgery.
I was somewhat informed about long-term effects.

3.)If not your doctor, where did you get your information on hysterectomy?

**I read as much as I could online. I also had a great friend who had gone through
a similar experience to talk to. I was scared~petrified.
Not only was I facing the biggest surgery I had ever had, but I also had cancer.
I had nightmares about dieing when I occasionally slept.

4.)Did you use birth control pills in your lifetime?

**yes, for 8 year, started using them at the age of 16

5.)Did you use tampons or pads during menstruation?
**I HAD to use both. Super Plus tampons and bled through those in
5 minutes so I needed to wear the thickest pad available.

6.)Do you have female blood relatives with reproductive diseases?

**My maternal Grandmother had Ovarian Cancer. My Mother had a hysterectomy
in her late 30's but she doesn't remember the "clinical" reason.

7.) Are you a DES daughter?

**MMMMMMMM I don't know?? Desired Educated Sexy daughter?
By all means~yes of course

8.)How long has it been since your surgery?

**September 15, 2005 Just under 4 months ago

9.)Did you have uterus, and both ovaries removed?

**I had a Radical Hysterectomy but my ovaries are still intact ~in-"tacked"
actually my Doc says they are tacked up in strange places.

10.)What problems, if any, are you experiencing?

**I don't know if my 4 month problems count. I'm not sure if they will hang around
for the long haul~I hope not. I have "fluid" that needs to be removed.
This is caused from removing the lymph glands, I am told. I was supposed to
have this taken care of prior to Christmas but I have recently moved. I cry a
LOT for no reason, any reason, all reasons. I have recently noticed these last
few weeks EXTREME hair loss. I have very long hair, so it always looks like a
lot of hair in my brush when I am through brushing. This is devastating though,
I have TONS of hair coming out. So much hair that I have to take it out of my
brush multiple times before I can even finish. I read that hair loss is not
uncommon 2-3 months after having a major surgery. I am keeping my fingers
crossed that it will stop. I have strange, sharp pains in my lower vaginal
area anytime I am sitting still. I have sharp pains sometimes in my left side.
I have no feeling on the 3 inch surface of my skin below my incision area but
I do above the incision area.
Strange??? Sex: OUCH Only certain positions are bearable. Actually one
position and it's pretty boring. I'm moody. No longer need to dread
the P.M.S. days, It's always a P.M.S. day. I am depressed.

11.)What if anything has made them better?

**MMMMMMM... Kleenex. Reading about other people going through similar
experiences, knowing I am not alone.

12.)Have you ever encountered a doctor or nurse that did not treat
you with respect in regard to your difficulties?

**YES!!! Not ANYONE related to the Cancer Center. They were always kind and
considerate of my feelings.

The nurses at the hospital though can jump in a lake!! My J-tubes (drainage)
were not emptied every hour and they didn't want to teach me how to do this myself.
They would be absolutely bulging and heavy (which really hurt by the way) before
they would do something about it.
My foley-catheter was the same. The tubes were all pinned to my gown and the gown
couldn't support the weight of the liquid and they wanted me to walk every hour.
It hurt bad enough as it was to walk when they were empty but full was excruciating.

After the surgery I was SO very thirsty. I was allowed to suck on some ice
chips. After they were gone, I asked if I could have some more and the answer was,
"no". I asked when I could have some more and the nurse YELLED at me. I cried
and cried right in front of her. I couldn't even explain myself. My sister
had to intervene and tell her that I only want to know when it would be o.k.
to have more. It was true, I wanted to watch the clock until I could have my next
"ice-fix". She was very mean to me the whole time I was there.

I had an allergic reaction to my morphine drip (darn the luck). I itched SO bad
I was in tears!!! It was driving me crazy; worse than the chicken pox.
I refused other narcotic pain killers because they told me they would most likely
cause the same reaction. Day 2 after surgery I was allowed a liquid diet.
This really made 3 days as I couldn't eat the day before my surgery. I told
the staff I could not take a lot of pills, I just couldn't handle too many.
I wanted a pill for pain and a daily pill that I have to take. They brought me
stool softener, iron, pain pill, 2 LARGE pills of maybe Motrin? for pain, my
daily pill, a pepcid for stomach upset and another one that I don't recall.
I told them and told them I shouldn't take them all. I shouldn't have taken them
all, I could have refused. I could have asked for the pills to be stretched out in
increments throughout the day. When you are in the hospital after a traumatic
surgery, you just want to be taken care of. You want to do what you are told so
that you can heal enough to go home. Well, I vomited. That's not a good thing,
let me tell you. In they came with the "garden hose" to pump my stomach.
They told me to drink water, tip my head back and swallow this hose (very large)
while they shoved it up my nose. I tried, I really did. The crunching noise and
pain were too much and I got physical enough to push the 2 nurses off of me.
I had blood gushing out of my nose, it drenched my gown. A nurse friend of
mine and my gyn said they did it wrong and that should not have happened.
I told them I absolutely REFUSED to let them do that again. I then had a
delightful blood transfusion.

End of day 2 and I will never eat broth again!! I couldn't have anything more
to drink that day. Fever. Day 3 limited drinking. Fever Day 4 more of the same.
Day 5 again liquids but they brought me some broth. The smell of it made me want
to vomit again. I made them take it away. Day 6 Thank God the weekend was over
and my Doctor came in. He said I could have a more substantial diet. He didn't
want me to have steak but he thought I could handle food. I got a nutri-shake.
I didn't even get an apple sauce. It was luke-warm, thick and gross. I got broth
AGAIN for dinner. I was ANGRY. I asked for toast and jelly. The nurse didn't
want to give me any. 45 minutes on phone to O.K. it. Another hour went by and
I told my Mom I was going to rip my I.V. out and leave if they didn't bring
my toast in 30 minutes. It had been 7 days since I had ANYTHING to eat.
I meant it and my Mom new I did and she made sure they knew I did.

I got my toast I got my j-tubes taken out this day, too. One side hurt really
bad but the other side I didn't feel at all. Day 7 and I'm getting ready to
leave (4 days late thanks to vomit). I am told that if I can urinate on my own
that they will take out the foley-catheter. My roomie had taken a shower
and also had an explosive diarrhea attack in the restroom. Instead of
cleaning up the mess, they brought me a rolling toilet. It was very
humiliating as she had visitors next to me. You can see through the cracks of
the curtain and they also don't reach the floor. I really wanted to cry but
I did NOT want to go home and have to deal with that on top of everything else.

I was able to urinate on my own and had the catheter removed. It was the cause
of most of my discomfort and the source of my biggest scar. I didn't have my
first bowel movement until day 13 and it hurt SO BAD and wasn't anything of
substance. It took a month later to get back to anything normal. Urinating
took 2 weeks later to get sort of normal. I didn't get a real "urge" to go
until then. Then, there was the humiliating moments when out in public when
I urinated in my pants because I just couldn't make it stop.
That's when I realized I had a bladder infection.

13.)Are you currently using any form of hormone replacement therapy?

**No.

14.)How are you feeling currently?

**Yes, it's hard not having insurance (explanation below). I have recently
moved out of state. I have yet to find a job and need this fluid problem
resolved. I was told it could have lasting debilitating effects
if I don't. My children don't understand. My boyfriend doesn't understand.
The mood swings are hard on everyone around me. I apologize for the space
I have used. I would want to know some of the things I have written about
if I was ready to undergo this surgery or have recently had it.

15.)Anything else you need or want to share??

**Yes. I am adding this because I am bitter and I will
NEVER EVER get over how this has affected me:

I was told I had cancer and needed a radical hysterectomy at work. It was
a very hard conversation to have while working. I was the Assistant Manager at
a Goodwill store. The Store Manager & good friend of mine was very supportive.
We both came to that location at the same time. The previous managers had been
horrible~ Caught stealing, not abiding by company rules, treating employees
unfairly. We turned the store around in a few weeks. We made the first
bonus EVER for the employees there. Sales were sky-rocketing, customers were
thrilled, I was happy. Senior Vice-President of our region was supportive (or I thought).

Then one day he came to me and asked if I had talked to anyone
in HR about FMLA. I said that I had and that I wasn't eligible because I
had only been there 9 months. My boss told me that it wasn't a problem, I thought
everything was o.k. I was told that I just needed to pay for my insurance since
it couldn't be deducted from my pay check. I mean, this is a company that
is supposed to care for people, especially its community. I never called
in, I was never late, I worked on my days off, etc...I was forced to
quit. I was asked how much sick/vac time I had and it was around 3 1/2 weeks worth.
It didn't cover the 6-8 weeks they said I would be out. They said they wouldn't
hold my job and I would have to quit to get my sick and vacation time. Otherwise
they would fire me and I wouldn't get any of it. I called the unemployment
office to see if it would benefit me more to be fired. I wasn't even
eligible because you have to be READY, WILLING & ABLE to work. So, now I had no
insurance after the month and knew I would need more treatment, etc. Here's the
real kicker to the whole thing: I could have gone back to work after 1 & 1/2
weeks following my release from the hospital. I wouldn't have even
needed a lighter job. I still would have had a weeks worth of vacation left, too.

If you'd like to leave your email address for other women
to be able to contact you, please add it here:

01/14/06

1.)What was the reason for your hysterectomy?(endo,fibroids,etc.)

**I had the hysterectomy at age 36. No children. Married for ten years. My name
is Nita Conner. I suffered severe pain during and before my periods for several years.
After seeing at least 4 GYNs, I was told in 2004 that I needed a DNC. Following the DNC, I
went "cluelessly" to my doctor's office to review the results of my lab work. My doctor
did not even look me in the eye when he said--never "heard" of this before-
but the cysts removed were cancerous, stage 1. Before I could respond to this news,
he said he had scheduled a radical hysterectomy for me within thirty days.
(After procedure(s), polyps, cycsts and fibroid tumors were also discovered.)

2.)Do you feel like you were informed about what to expect after surgery
and what the long term effects might be on your health by your doctor?

**ABSOLUTELY NOT.

After surgery, developed blood infection and was in hospital for 7 days, also had
severe reaction to morphine, no bowel movements for 3 weeks--can you imagine. Have had
multiple complications--for three months following surgery had UTIs and nausea.
Been depressed for over a year, which of course, includes trying out every major
anti-depressant on the market (have been on 7 meds). Quit my job of 6 yrs--which I
once loved--working on contract now (which means I have successfully isolated myself).
So much more than I expected. AND I AM STILL IN PAIN

3.)If not your doctor, where did you get your information on hysterectomy?

I researched on the internet and read books before the surgery. Talked with relatives
who had surgery. I had a long list of questions for my doctors but I still don't
understand what happened and why everything happened as it did. I feel like I have
been in a dream state throughout the past 13 months.

4.)Did you use birth control pills in your lifetime?

**For about 2 years. (26-28) Stopped taking to have children. Could not have children
due to infertility result of endometriosis and fibroid tumors.

5.)Did you use tampons or pads during menstruation?

**Tampons. Last two years had to use both due to heavy periods.

6.)Do you have female blood relatives with reproductive diseases?

**Aunt-endometriosis, hysterectomy, 36 y.o. Sister-endometriosis

7.) Are you a DES daughter?

**no

8.)How long has it been since your surgery?

13 and a half months

9.)Did you have uterus, and both ovaries removed?

**1 ovary, fallopian tubes, uterus, cervix removed (abdominal)

10.)What problems, if any, are you experiencing?

**UTI, Depression (previous suicidal thoughts), Insomnia, Severe Irritability,
Rage, Severe Abdominal pain, Headaches/Migraines,
Hot flashes, Mood swings, Gained about 50# in year

11.)What if anything has made them better?

**Demerol, laughing when I can

12.)Have you ever encountered a doctor or nurse that did not treat
you with respect in regard to your difficulties?

**For the past year, I would estimate I have had over 30 doctor's appointments.
This month alone, I have 7 appointments with doctors. Only one doctor treated me with
respect and understanding. I remember so many horrible encounters with the
medical professionals. The initial discovery. I was not prepared for the news of
having cancer. I went to the appointment alone, and after being informed of having
cancer--waited, crying, outside the office for my husband to come pick me up.
I have never felt so alone in my entire life.

Following the surgery, (doctors were not positive if I would have everything removed
or not--had to "wait and see"), my doctor did not see me for two days and every time
I asked "just exactly what's left", no one could/would tell me.

Perhaps, the worst experience I had in the hospital was when an intern was working
with my medical team. He came in and asked if I needed anything. I asked for pain
medication. He told me that I could have another Advil. Advil----half a dozen
people were playing twister in my nether region two days
ago and this young guy wants me to have an Advil.

13.)Are you currently using any form of hormone replacement therapy?

**I was prescribed Premarin but this was discontinued in January. Hot flashes continued
and doctor said it I was not responding well to med.

14.)How are you feeling currently?

**Awful.Sad. Empty. Alone.

15.)Anything else you need or want to share??

**For there to be a requirement that is recognized and followed by medical
professionals to inform the patient of the serious long term effects not just
physically but mentally and emotionally as well.

By the way, I was a therapist for ten years. Can you see the irony here.

If you'd like to leave your email address for other women to be able
to contact you, please add it here:

Rhonda B - Nassau, Bahamas - 01/06

1.)What was the reason for your hysterectomy?(endo,fibroids,etc.)

**Endometriosis diagnosed at 17 living w/ it from 12 y.o. large
fibroids - baseball sized - 8, ovarian cysts

2.)Do you feel like you were informed about what to expect after surgery and what the
long term effects might be on your health by your doctor?

**Somewhat - the short term effects have been horrible so far.

3.)If not your doctor, where did you get your information on hysterectomy?

**The internet and medical books

4.)Did you use birth control pills in your lifetime?

**Yes. From 16 for irregular cycles and Depo Provera injections
bi-weekly or monthly depending on bleeding time.

5.)Did you use tampons or pads during menstruation?

**Both sometimes I had to use 2 overnight pads at a time

6.)Do you have female blood relatives with reproductive diseases?

** 2 sisters with endo and polycystic ovaries

7.) Are you a DES daughter?

**YES - I couldn't believe someone has asked

8.)How long has it been since your surgery?

** 11/11/2005

9.)Did you have uterus, and both ovaries removed?

**Yes - TAH / BSO - vaginal

10.)What problems, if any, are you experiencing?

** Lower back pain, abdominal pains, stretching and pain where my left ovary was even
though on the pathology report they could not find the left tube and ovary. Pain
and numbness along the right calf and leg, swelling to the nose (I was bleeding from
the nose when I would have a cycle) 2 months post op spotting occurred - saw my Doc who
checked it out and I feel he was a bit embarrassed to really see that there was something
wrong - scar tissue. Oh, did I mention he told me well the hys will help the
fibroids, but you know Endo can travel throughout the body!

11.)What if anything has made them better?

** Back on pain killers - morphine, pethidine etc, Physiotherapy is actually
helping more than the drugs because I cant function with them.

12.)Have you ever encountered a doctor or nurse that did not treat
you with respect in regard to your difficulties?

**When I would explain my medical history the number of laparoscpies (about 9),D&C's,
thoracotomy and decortication due to pelvic infection moving to the lungs, the fact
that labor was a joke compared to the pain of endo. That they give me pain meds and
I get no relief. I've been made to feel like a drug addict and a
hypochondriac from doctors, nurses, pharmacists and even family members!

13.)Are you currently using any form of hormone replacement therapy? If so what?

**Not really - Lydia Pinkham, Black Cohosh, Calcium, Magnesium and Zinc -
have tried low dose bcp but they make me too nauseated.

14.)How are you feeling currently?

** With endo and fibroids I knew what to expect, now that I have had a TAH/BSO they
told me my quality of life would improve - it hasn't, they said the pain would go -
it hasn't, I am a miserable cow with more moods that I can count, I have little to
no appetite food or drink, my children think I'm a loony bin, my 6 year old son
asked if I was sure I would not have to be hospitalized again and that the
pain was gone for good this time - I said yes then but I'm still painful.

Finding you site has made me realize that I'm not crazy, these experiences
are because of that operation and these hot and cold flashes are torture!!!!

15.)Anything else you need or want to share??

**Be very, very sure that this what you want - my family has been living through
surgery after surgery - I went from every 2 years to once a year to every 6 months
over the past 17 years - my Doctor was even tired of operating on me. Make sure its
your decision that you have made peace with it if not,
the "what if's...." will send you mad!

If you'd like to leave your email address for other
women to be able to contact you, please add it here:

01/31/06

1.) What was the reason for your hysterectomy? (endo, fibroids, cancer, etc.)

**Stage four endometriosis, recurring cysts on ovaries, chronic pelvic pain.

2.)Do you feel like you were informed about what to expect after surgery
and what the long term effects might be on your health by your doctor?

**Definitely not. It was briefly explained to me that I would need to be put on HRT
afterwards, and that I might have hot flashes, and "other" symptoms.

3.)If not your doctor, where did you get your information on hysterectomy?

**I did some investigating on-line, but not much.
I went into the surgery way too uninformed.

4.)Did you use birth control pills in your lifetime?

**I was on Depo-Provera from the age of 16-19.
I was on Ortho-tricyclen for a very short time after that.

5.)Did you use tampons or pads during menstruation?

**Tampons

6.)Do you have female blood relatives with reproductive diseases?

**My grandmother on my dad's side died of ovarian cancer.
No other relatives have had any reproductive diseases.

7.)How long has it been since your surgery?

**Seven months. June of 2005.

8.)Did you have uterus, and both ovaries removed?

**Yes. My uterus and left ovary were removed. My right
ovary had already been removed the year before.

9.)What problems, if any, are you experiencing?

**All I can think about during
my day is crawling into bed. I am SO tired all of the time! And of course, at night
I can't sleep. When I do fall asleep (after painful obligatory sex with my husband
because I have lost my previously healthy sex drive) I wake up in the middle of
the night soaking wet. I have horrible urinary problems including an almost
constant pain in my urinary tract and bladder which my doctor doesn't seem to
take seriously. A few months after the surgery I started getting migraines that
my doctor thinks might be from the hormonal changes. I'm irritable, forgetful, and
angry that I agreed to have such a life changing operation
without fulling understanding the consequences.

10.)What if anything has made them better?

**The night-time Estroven sometimes helps get me to sleep. Increased dosage of
Premarin has made the hot flashes better. Don't know what to do about the lack of
a sex drive. Also, don't know what to do about the
guilt I feel for not wanting to have sex anymore.

11.)Have you ever encountered a doctor or nurse that did not treat
you with respect in regard to your difficulties?

**The doctor who performed my surgery was a young resident at an ob/gyn clinic
for people with low income or no insurance. At my first checkup four weeks after
the surgery I was given a year long prescription for Premarin and told that there
was no reason for me to be seen at that clinic anymore. They told me to find
a family practitioner who could manage my HRT. I did find a family doctor, but so
far he is admittedly out of his element in dealing with my symptoms.

12.)Are you currently using any form of hormone replacement therapy? If so what?

**I currently take Premarin. I think the dosage is .625.
I have been reading lately on-line about natural HRT, and want to explore that as an option.

13.)How are you feeling currently?

**I have run the whole gamut of emotions. I am 24 years old, and I can't imagine
the rest of my life like this. I'm angry that my doctor performed this operation
on someone so young without explaining what would happen to me, and I'm ashamed
that I didn't fully research all of my options. I'm terrified that I'm going to
lose my husband. He is a wonderful, loving, supportive man, but this has
been a terrible burden on him. I'm almost in as much pain as before the surgery
between the migraines and the urinary pain. The worst part is that I have no female
friends or relatives to talk to about what's going on, and it makes me feel so alone.

If you'd like to leave your email address for other women
to be able to contact you, please add it here:

My name is Adrienne and my email address is:

1.)What was the reason for your hysterectomy?(endo,fibroids,etc.)

**Endo.

2.)Do you feel like you were informed about what to expect after surgery
and what the long term effects might be on your health by your doctor?

**NO, NO, NO, my doctor did a great job at completely removing every female part you can
imagine, but he gave me estrogen and sent me on my way.
I have just begun to realize I need more than what I have received.

3.)If not your doctor, where did you get your information on hysterectomy?

**Online, still 6 years ago I did not research
enough, I was too trusting of my doctor.

4.)Did you use birth control pills in your lifetime?

**yes, 3 years total, at age 19

5.)Did you use tampons or pads during menstruation?

**both, though not tampons until about the age of 20

6.)Do you have female blood relatives with reproductive diseases?

**yes, sister with PCOS

7.) Are you a DES daughter?

**No

8.)How long has it been since your surgery?

**5 and a half years

9.)Did you have uterus, and both ovaries removed?

**yes

10.)What problems, if any, are you experiencing?

**weight gain(I cannot find a solution to lose it now) agitation, mood swings,
no energy(I was a super high energy person before)and insomnia.

11.)What if anything has made them better?

**Nothing yet, I have just started NHRT.

12.)Have you ever encountered a doctor or nurse that did not
treat you with respect in regard to your difficulties?

**Yes, I encountered many before my surgeon realized it was endo.
The experiences are long so I will pass.

13.)Are you currently using any form of hormone replacement therapy?

**NHRT, estriol and Progesterone cream

14.)How are you feeling currently?

**Worse for now than when I was on synthetics, I am not sure why yet.
My biggest complaints, weight and lack of energy, then insomnia.

15.)Anything else you need or want to share?

**I started NHRT a couple of weeks ago, I sent off a saliva
test yesterday, so I will see how this works out.

If you'd like to leave your email address for other women
to be able to contact you, please add it here:

you may use my name and age,Kimberly Van Antwerp, age 36.

1.)What was the reason for your hysterectomy?(endo,fibroids,etc.)

**After many tests, and years, (10+ years), of chronic unresolved pain for unknown reasons.
Post Hysterectomy discovered: Massive scar tissue and adhesions, and surprise surprise,
(i continually asked doctors IF this could be cause of pain), the biopsies showed
that I had Chronic Pelvic Inflammatory Disease, (CPID).

2.)Do you feel like you were informed about what to expect after surgery and
what the long term effects might be on your health by your doctor?

**Minimally short term expectations where explained.

3.)If not your doctor, where did you get your information on hysterectomy?

**On-line research and discussions with family & friends.

4.)Did you use birth control pills in your lifetime?

**Yes, Aprox. 4 to 5 years total. At age 17. I lied to DR about past pregnancies,
so that I could have an IUD for very 1st birth-control, IUD in place for 18 months.

5.)Did you use tampons or pads during menstruation?

**Both

6.)Do you have female blood relatives with reproductive diseases?

**Yes, Biological Sister: Endometriosis & Chronic Pain.

7.) Are you a DES daughter?

**Unsure

8.)How long has it been since your surgery?

**1 month today, (08/18/06)

9.)Did you have uterus, and both ovaries removed?

**Yes, Fallopian Tubes & Cervix also removed.

10.)What problems, if any, are you experiencing?

**Intense and painfully numb sensations in abdominal area, gas, diarrhea, lower back
and kidney area pain, painful and VERY frequent urination, and left-behind
stitch in belly button that rubs on clothing and is painful.

11.)What if anything has made them better?

**Intestinal and urinary problems have begone to get better after adding 4 oz
of Aloe Vera Juice, (per my G.I. doctor), to my daily diet.

12.)Have you ever encountered a doctor or nurse that did not
treat you with respect in regard to your difficulties?

Yes. All my medical care was through the Veterans Admin. Hospital & Clinics -- and several
doctos & nurses talked to me about my concerns like I was a dumb blond school girl.
And, my original GYN doctor continuously told me "Ahhh, okay" every time I asked about CPID.

13.)Are you currently using any form of hormone replacement therapy?

**Yes. Self prescribed over the counter Progesterone Cream.

14.)How are you feeling currently?

**Absolutely crappy, tired of hurting, depressed, and very much like no-one cares.

15.)Anything else you need or want to share?

**I would like to find more information on CPID and its tie to hysterectomies, and more
information in the laparoscopic procedures, (is it normal for a stitch to be left in
belly button that does not dissolve?)

If you'd like to leave your email address for other women to be able to
contact you, please add it here:

Anyone who can point me in the direction I want to go, I'd appreciate very much.

1.)What was the reason for your hysterectomy?(endo,fibroids,etc.)

**I had severe endo, 12 laps in 5 yrs, did whole lupron, depo route

2.)Do you feel like you were informed about what to expect after surgery
and what the long term effects might be on your health by your doctor?

**I had a great obgyn and I believe even she didn't realize the health effects I'd suffer

3.)If not your doctor, where did you get your information on hysterectomy?

**In general terms all my Dr spoke about was hot flashes and osteoporosis.

4.)Did you use birth control pills in your lifetime?

**My whole life.
At what age did you start using them?
**12 to 25

5.)Did you use tampons or pads during menstruation?

**Tampons

6.)Do you have female blood relatives with reproductive diseases?

**All the women in my family on Mom's side as well as Dad's side

7.) Are you a DES daughter?

**no

8.)How long has it been since your surgery?

**12 yrs

9.)Did you have uterus, and both ovaries removed?

**yes, as well as cervix

10.)What problems, if any, are you experiencing?

**Horrible bowel problems, aged 20 plus yrs. Bone pain, hormone problems, thyroid dysfunction,
severe arthritis, no sex drive(none,zero). Hair falling out. Skin rashes, fatigue, then no
sleep. worst of all the horrible emotional problems that I have suffered.

11.)What if anything has made them better?

**I've tried everything, but I'm to the point where Dr's
think I'm crazy and I've stopped going to them.

12.)Have you ever encountered a doctor or nurse that did
not treat you with respect in regard to your difficulties?

**Yes. Too much to mention, all though I will say the psychological
community has been great to me, no one relates any of this to that (total hysterectomy)

13.)Are you currently using any form of hormone replacement therapy?

**Premarin 1.25

14.)How are you feeling currently?

Horrible. Have massive bowel problems, lots of scar tissue causing lots
of pain and no one wants to touch it ie it'll cause more scar tissue.

15.)Anything else you need or want to share?

**No, just thanks for listening. And I wish I knew then what I know now.
I would never ever have gone thru this.

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