Hysterectomy Experiences 12

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Thank you to all who share their stories here so
that others may learn, and others may not feel alone.

1.)What was the reason for your hysterectomy?(endo,fibroids,etc.)

**I was told that due to history of cervical cancer, the new dr requested more
tests. he then told me i was covered internally in ovaries and uterus with
cancer. i was 29 just got married a month before and was there for info on tubal reversal.

found out through pathology that i was 100 % normal
no cancer.. the dr was surgery happy

2.)Do you feel like you were informed about what to expect after surgery
and what the long term effects might be on your health by your doctor?

**absolutely not! during surgery, he cut my bowels, liver and didn't tell me.
i was taken by ambulance 2 days after i got home with toxic blood, infection in
liver and needing removal of gall bladder. also, my lungs to this day haven't
recovered, they used to much meds during surgery. as far as the issue now,
i see a new dr who has informed me i may never enjoy
sex as far as orgasms again as he cut all the nerves.

3.)If not your doctor, where did you get your information on hysterectomy?

**the hospital i spent 2 weeks in after i got home.

4.)Did you use birth control pills in your lifetime?

yes.. was dx at 8 with cervical cancer and had numerous surgeries to
remove cells, they put me on them to regulate the
periods even though i was not active.

5.)Did you use tampons or pads during menstruation?

**use tampons and got TSS after my first daughter was born

6.)Do you have female blood relatives with reproductive diseases?

**no

7.) Are you a DES daughter?

8.)How long has it been since your surgery?

**October 8, 2003

9.)Did you have uterus, and both ovaries removed?

**everything

10.)What problems, if any, are you experiencing?

**not able to achieve sexual satisfaction with husband, no feeling
in the area physically, depression, anger at the dr who did this to me,
frustrated because no meds help nor does having hubby depressed because
he cant please me sexually. dr verified i have no
sensation in the area. and that may never return.

11.)What if anything has made them better?

12.)Have you ever encountered a doctor or nurse that did not
treat you with respect in regard to your difficulties?

**current dr is great! they try to help. BUT they don't understand how hard
it is to have marriage issues because husband feels like failure due to
lack of sensation. he feels like he cant please me
and that he doesn't want to try anymore.

13.)Are you currently using any form of hormone replacement therapy?

**i stopped taking the meds because it made me more depressed,
agitated and moody. the new gy took me off them

14.)How are you feeling currently?

i am depressed. unable to have a child with my husband because the
dr said i had to have the surgery. he scared me into thinking i was going to
die without it. i wanted to have a baby with my husband as we had planned
now i am afraid my marriage will end because he wants kids. i have 3 and he has
1 but we wanted one together. now at 30, i am unable to have a baby because
this dr decided to make a big issue that turned out to be nothing,
i was 100 % fine. i get mad easily and depressed every time i see a baby.
people keep saying adopt, we wanted a baby together. i also get mad because
insurance didn't allow 2nd opinion and now for the rest of my life i will
regret the surgery and will suffer from it. although i must say i am so
tired of hearing people say that ill get over it, the dr said over 6 months
after surgery being depressed is abnormal. oh ok you go through what i did
and am still having issues with and see him smile.

15.)Anything else you need or want to share??

If you'd like to leave your email address for other women
to be able to contact you, please add it here:

1.)What was the reason for your hysterectomy?

**Endo and menorrhagia. (The last time I started bleeding, it lasted
6 1/2 weeks. I was bleeding so heavily I had to change clothes
3 times in 4 hours despite wearing the heaviest pads).

2.)Do you feel like you were informed about what to expect after surgery
and what the long term effects might be by your doctor?

**Somewhat. But I was not informed of the risks. I went online to look up
the risks before I had the surgery--but my doctor
NEVER told me about the risks I could experience.

3.)If not your doctor, where did you get your information on hysterectomy?

**I'm a nursing student, so I spoke with my instructors, my mother
who has her MS in Nursing; a family friend who is a physician. Plus, I did
research on the internet. Everyone told me I "needed to have this done and
that I'd feel so much better when I recovered." No one told me of the risks
or thought I would be a candidate for any of them.

4.)Did you use birth control pills in your lifetime?

**I started B.C. pills for about 6 mos. at age 19. Then my doctors
used them off and on for treatment at different times in the last 12 years.

5.)Did you use tampons or pads during menstruation?

**Pads mostly. Sometimes tampons depending on how heavy I was bleeding.

6.)Do you have female blood relatives with reproductive diseases?

**Yes.

7.)How long has it been since your surgery?

**14 days

8.)What problems are you experiencing?

The first day post surgery, I developed internal bleeding. I told my
nurses I was experiencing heart palpitations and didn't feel right.
For four hours, she 'assured me' it was all normal. She told me to
'use my skills--go through my systems and I would find I'm o.k.".
Then, they found out I had been tachycardia for over 6 hours with a
pulse rate of 162 to 178. (Normal adult pulse is 60-100 bpm). My bp was
extremely high. My urine was was very dark. I was sweating profusely
and afraid. My doctor came in early in that morning and ordered blood tests.
The tests revealed my hematocrit and hemoglobin levels were extremely
low. They first ordered a blood transfusion. I was transfused but for the
next two days I was kept pretty much 'out' of it. My labs were drawn every
2 hours and they constantly monitored me. I had to have another operation
to go in and tie off the bleeder and remove the clot. A few days later, they
said what was left of the blood clot would reabsorb and d/c me home.
Within a week, I was back in the hospital, I had a high fever, more pelvic
pain, and a severely swollen abdomen with a lot of pain. They readmitted
me, gave me rapid fluids (I was also dehydrated); and eventually d/c me home
to recover. It's been 2 weeks today, and I'm still experiencing light
headedness and my labs are not yet what they should
be. I am, however, on the road to recovery!

9.)What if anything has made them better?

**I didn't like taking the pain meds. prescribed by my physician because
it pretty much knocked me out for 6 hours at a time. I've been drinking a
lot of water and making sure I take my stool softener, etc. to
avoid any strain from possible constipation.

10.)Have you ever encountered a doctor or nurse that did not treat you
with respect in regard to your difficulties?

**pre surgery--no. Post-surgery, the staff nurses at the hospital where
I had my operations were awful. I had one lie flat out about my vitals
to the doctor. Their quality of care made it seem
'routine' that I was having complications, etc.

11.)Anything else you need or want to share??

**I want everyone to know there ARE risks following hysterectomies. I can't
count the number of times someone in my class or a friend who meant well
would say, 'Oh, it's nothing, I was in and out in two days and I've never
regretted it". There are risks--and I don't know that a transfusion and
second operation were truly worth it, just yet. I'll keep you posted in that
regard, since it's been less than 2 weeks since the second surgery
and my second admission to the hospital.

*****I found some research that said that with menorrhagia,
a vitamin-K def. may lead to heavy bleeding and internal bleeding
post-surgery. I know there is no way to know what the reason behind my
bleeding was, but I also know that I was never informed of the
risks. The only time I was informed of the risk of
bleeding was when I did my own research.

1.) What was the reason for your hysterectomy? (endo, fibroids, cancer, etc.)

**I had heavy bleeding with clots, low back pain and painful cramps

2.)Do you feel like you were informed about what to expect after
surgery and what the long term effects might be by your doctor?

**I felt pretty much informed about what to expect
about the operation and recovery time.

4.)Did you use birth control pills in your lifetime?

**Yes and they did not seem to work for me other then to make my periods
a little more regular, but as far as helping with bleeding or cramps, NO

5.)Did you use tampons or pads during menstruation?

**both because my periods were so heavy.

6.)Do you have female blood relatives with reproductive diseases?

**yes many people on my mothers side of the family have the same problems

7.)How long has it been since your surgery?

**it has been almost 1 year come May 9th 2004

8.)What problems are you experiencing?

**I am having the same pain,cramps, low back and pelvic pain,
I was having when I had my periods. At first it was every once in
awhile but, the past 3 month has been really bad I have pain
24 hours a day. I began to have night sweats, I am more tired
during the day and need to rest, also had bowel problems and at
first we did not know it was part of this problem I am having now.

9.)What if anything has made them better?

**Nothing really, Morton 800 will dull the pain,
but pain killers do nothing for me.

10.)Have you ever encountered a doctor or nurse that did not
treat you with respect in regard to your difficulties?

**Yes, the same doctor that did the hysterectomy, when I first started
having pain I called him, but he said that was normal. Then my
back was hurting really bad, I had 4 bulging disc's in my low back,
then his answer was take Vioxx and Darvacet for the pain, then I began
having problem with my bowel movement, so then I was sent for a Colonoscopy,
which was fine. I was then told to eat more fiber. Well I had enough.
I was in the ER almost 2 times a week for the pain
and I finally have a new doctor.

11.)Anything else you need or want to share??

**Yes when I had my Hysterectomy, my uterus was 2 times the size it
should have been, I had a cyst on my left ovary the size of a plum,
and smaller ones on my right, my doctor left my ovaries in for
hormone reasons, so he says, all he did about my ovaries is drain the cysts.

I now have 1 cyst on my right ovary 1.5 cm with fluid around the area,
that we know of and on May 20th 2004 my new doctor is going to do lapo
surgery to see if he can locate why I am in so much pain now.
Thanks for letting me share my story with you.
Traci Foster, San Diego, CA

**Thanks for sharing your story Traci! Wish you
all the best and resolution to these issues.

1.)What was the reason for your hysterectomy?(endo,fibroids,etc.)

**I had always had problems with heavy bleeding & pain. I had also experienced
3 bouts & removal of pre-cancerous cells in the cervix. When it became
crippling, a hysterectomy was the only alternative. After my op., I woke to
abdominal surgery (it was to be a vaginal hysterectomy), supra catheter,
machines that went ‘ping” & a frightened family. And terrible pain. I asked
the doctor what happened, as it was a much more serious operation than first
discussed. He replied, “you're uterus was rotten” That was it. I later found
out from the assistant surgeon (my GP’s wife), that my uterus had to be
scraped off my bladder, I was full of scar tissue, & had prolapsed.
I also had fibroids. Lots.

2.)Do you feel like you were informed about what to expect after surgery and
what the long-term effects might be on your health by your doctor?

**Absolutely NO WAY. I was young & naïve. My doctor told me of a lady who
had climbed Ayers Rock (Uluru, Australia, as it is now) 3 months after
surgery. I was a strong healthy woman of 34, I could deal with it, recover
well. I’d had 2 children, so no big deal. I was so desperate to be done
with the bi-weekly bleeding, pain, & PMT, that I was hoping for the best.

3.)If not your doctor, where did you get your information on hysterectomy?

**I read a few books, but I was told it was very
straightforward, so didn’t research at all.

4.)Did you use birth control pills in your lifetime?

**Yes

If yes for how long total? At what age did you start using them?

**For around 4 to 5 years only. We didn’t agree. Then I fell pregnant. I started
at 18 years old. I resisted taking them for
menstruation problems as a young girl. Didn’t trust them.

5.)Did you use tampons or pads during menstruation?

**Pads for 1st 3 days. I had to, as I would bleed through 2 Super pads at a
time on the 1st 3 days. then tampons. Unless doing sport.

6.)Do you have female blood relatives with reproductive diseases?

**No, not that I’m aware.

7.) Are you a DES daughter?

**Not sure what this is

8.)How long has it been since your surgery?

**I had a hysterectomy nearly 9 years ago, bladder reconstruction as well
(that was a surprise)

9.)Did you have uterus, and both ovaries removed?

**I had hysterectomy 9 years ago, 1996, & ovaries removed in late January
2004. I also had a prolapse repair in 2000 & again in 2004, as well as repair
to perineum (destroyed after birth naturally of a breech baby 16 years ago),
reconstruction & repair of bowel/vagina, scar tissue removed. Yep, I’m a mess.
The ovaries were removed, as I developed Residual Ovarian Syndrome,
3% women develop this after hysterectomy, however, it took a new doctor to
diagnose me. The symptoms are very hard to detect. The best is that it
follows a cycle. Id develop pain, nausea, dizziness, cramps, constipation
or diarrhea. I would be bed ridden for 3 – 4 days then wake up fine.
Bruised & battered but fine. They started talking psychological at one
stage, they all thought I was going nuts & making all this up.

10.)What problems, if any, are you experiencing?

**I never recovered from the hysterectomy. Afterwards I was given a supra catheter
which caused me agonizing pain, for 12 days. I begged my doctor to remove it,
but my bladder didn’t kick-start again after the operation. I believe now,
that it didn’t, because of the catheter being either in too far, or expanded
too big in the bladder. Found that one out, after talking to nurse friends
much later on. They said it could have been easily remedied. My nurses at
the time laughed at me, told me I’m crazy. Couldn’t be that painful? I cried
for 12 days, then made the doctor let me go home with the bladder bag,
where I promptly lied the next day & told the nurses that everything was fine,
so can I get the catheter removed. So I did, to instant relief of pain.
They also took me off morphine 2 days after the operation onto panadeine,
which gave me constipation, & did nothing to relieve the excruciating
pain. So I was hoping for a relief. Then the lower back pain started,
again, excruciating. I would collapse on the floor, cry driving my kids to
school, lay in bed all day. I tried massage, acupuncture, chiropractors,
and physiotherapists. No relief. I also had a lot of bladder problems, cystitis.
I would be fine for a few weeks then knocked flat for a week, then wake up fine.
I had the prolapse operation, to some relief for my back. It was amazing.

Still do not know why. I was good for a while, and then it slowly started
again. Symptoms were all over the place until we noticed the pattern,
exactly like my cycle. We then went to a new, & I believe much more
knowledgeable doctor, who did the latest surgery. The list of procedures they
did was enormous, , over 4 hours. The worst was my rectum & vagina were joined
by scar tissue, & a hole was made while repairing. So I was sick for a while.
It was a much bigger operation than the hysterectomy.

Now, that the ovaries are gone, I thought I had hope again, now 42 years old,
ready to begin my life again. Boy, was I wrong. I have had a major hormonal
crash, resulting in my bowels & bladder grinding to a halt, pain, night sweats
that last most of the day, depression, memory loss - BIG TIME, eye vision
blurriness (crashed the car as a result) bloating, loss of libido (to my
very patient but toey husband’s disgust), fatigue, bladder pain, bowel
problems, lower back pain, weakness, ‘loss of me’ (can’t even remember what
it looked like). And I love to cry. I also am still extremely sore around my
rectum/ vagina where the repair was done. Very painful to sit, & stand
really. I’m suspecting, even though it’s only been
4-5 months, I may be prolapsing again.

11.)What if anything has made them better?

**On HRT now, to some relief but not much. Going to see a Gyno that
specializes in Hormone replacement in 2 weeks. As a Gyno, my other doctor is
a fabulous surgeon, but lousy with the information. I LOVE salt baths. That
helps with the external discomfort, but really, only painkillers help me now
for this. My warm wheat bag is my best friend. I
carry it tucked in my undies sometimes.

12.)Have you ever encountered a doctor or nurse that did not treat you with
respect in regard to your difficulties?

**Well, from the doctor & nurses who didn’t take me seriously when I complained
about my catheter; to the nurse, who, when removing my supra catheter, stood
me in a doorway in the corridor, emptied the bag & pulled it out while I
stood there shocked. Urine spilled from the hole in my body, all over my
pants, & I sat outside in the cold crying & wet while waiting for my ride home.
It was shocking, horrifying, humiliating. That was the worst. The lack of
understanding demonstrated by my male doctors has been frustrating too.
My current GP, a young female, is marvelous.

13.)Are you currently using any form of hormone
replacement therapy? If so what?

**Premarin 1.25mg a day. Not enough, & I’m not happy taking
it. I wanted to go natural.

14.)How are you feeling currently?

**Shocking. I have almost given up hope.

15.)Anything else you need or want to share??

**My husband laughs sometimes & says, “you’ve lost your mojo”. I’ve lost my
spark, my energy, and my will, pounded down over years of suffering. When I
found this web site & read the first few paragraphs I sat & cried & cried.

It said exactly what I was feeling. No body understands how miserable I am,
how it’s so hard to explain your symptoms. It’s not a lump you can point to,
or a visible injury that your friends may relate to. I’ve had no support, as
I appear well. I’ve had so many tests come back negative, I believe that I
am the wellest sick person I know. I have also been told that women who have
experienced sexual abuse as a child suffer with a lot of these sorts of
problems. As I have been a victim, I wonder.

1.)What was the reason for your hysterectomy?(endo,fibroids,etc.)

**Ovarian cysts were found on ultrasound, then a cat scan and I was 44 years
old at the time so the Doctor scared me with the big C word, said I wouldn't
have a choice that I would have to be operated on. I went for a second opinion
and didn't find out till afterward the 2 Doctors were friends.

2.)Do you feel like you were informed about what to expect after surgery and
what the long term effects might be on your health by your doctor?

**Absolutely not! if I would have been told of the bad outcomes such as adhesions,
loss of libido, a life time of costly estrogen replacement which added to
many other health problems, severe joint pain, not to mention the bladder pain I
have had since surgery which has been 8 years now.

All the Doctor said to me was, "you wont have to worry about bleeding any more,
"you have had your child your 44 you don't need your female organs now"

3.)If not your doctor, where did you get your information on hysterectomy?

**I went to the library and got books but then my family told me not to read
the stuff cause it would only scare me so like a fool I didn't. I found that in
general women would tell me that it was a piece of cake till after I had it
done and had complications then they spoke up and said they had problems too,
I felt betrayed even by my sisters. I have found over the course of 8 long years
that women don't want to talk about this subject and if they did have a hysterectomy
they don't want other women
to know what horrible things occur, I guess the old saying
misery loves company is so true for allot of people.

4.)Did you use birth control pills in your lifetime? If yes for how long total?
At what age did you start using them?

**yes I took the birth control for 8 months after
having a abortion and I was 28 at the time

5.)Did you use tampons or pads during menstruation?

**both

6.)Do you have female blood relatives with reproductive diseases?

**Both my Sisters had hysterectomies, my mother also for
fibroids, I have no knowledge of other women in the family

7.) Are you a DES daughter?

**no

8.)How long has it been since your surgery?

**8 long years

9.)Did you have uterus, and both ovaries removed?

**yes complete

10.)What problems, if any, are you experiencing?

**I developed pain right after surgery in my bladder area that was horrible,
a pulling burning constant pain. I went to another Doctor and had a second
surgery at 6 months after my hysterectomy and the Doctor removed my omentum
from my vaginal cuff and also my bladder had been cut and adhered to my bowel.
The surgery did not help the pain. I have been through extensive physical
therapy which has included Electro stim vaginally, tens unit, heat therapy,
myofascial release. I have been on every kind of pain medicine, I have had thyroid
nodules 1 year after surgery, A liver lesion was also found last year with
ultrasound and I had to lower the estrogen because they felt it might make it
grow so I have never felt good with any HRT replacement. I had
swallowing difficulty and dropped down from 115 pounds to 95, since then
though I have gained it back and can't lose any more even if you starve yourself.

I have taken many different antidepressants, no help, been to a psychiatrist,
had numerous tests done and still am paying for a medical bill that now
exceeds over 50,000 dollars, all for Ovarian cysts that were gone, yes I said
gone at the time the Doctor did my surgery, but because I was 44 he decided
I didn't need those useless organs, how wrong he was. I also would like to add
that sexual intercourse has been out due to the pain involved. I was married for
1 year before I had this surgery and to date I have had sex maybe
5 times in 8 years I have no idea how I am still married.

11.)What if anything has made them better?

**My bladder pain will ease up if I lay down and use the
tens unit, which I have done every night for 8 years

12.)Have you ever encountered a doctor or nurse that did not treat you
with respect in regard to your difficulties?

**I have been to over 20 Doctors since surgery, from urologist to neurologist
and the majority of them all told me there was nothing they could do for me.
A surgeon told me to go home and put it behind me. Most nurses I encountered
had no idea what hysterectomy was all about let alone have compassion for your problems.

13.)Are you currently using any form of hormone replacement therapy? If so what?

**I am using the vivelle dot 0.025 twice weekly

14.)How are you feeling currently?

**as I type my pain today is bad, I haven't done much of anything

15.)Anything else you need or want to share??

**I would like to tell women, that we are our best friends, it is so sad when
women turn their backs or not talk about things that could help other women.
I am sure there are true sisterhoods out there but I live
in a location that doesn't know what that means.

1.)What was the reason for your hysterectomy? (endo,fibroids,etc.)

**Fibroids. But...I had no symptoms whatsoever. I went for a routine pap smear/internal
exam. This was the first time I had been to this gynecologist. He did the exam,
then told me that I had a fibroid "TUMOR" and that I needed surgery urgently.
He told me it was very large, and that it would grow
and might damage the organs surrounding it.

2.)Do you feel like you were informed about what to expect after surgery and
what the long term effects might be on your health by your doctor?

**I absolutely was NOT informed about any long term effects. He told me I'd have
more energy than I've ever had, and that sex would be even better than before.
(Boy, was I gullible!) He didn't mention even one possible adverse effect.

3.)If not your doctor, where did you get your information on hysterectomy?

**It was that doctor. I can't bring myself to refer to him as "my" anything, or
to even honor him with the distinguished title of "doctor". I trusted him.
He seemed so gentle, nurturing, kind. At that point, I would have trusted him with
my DAUGHTER'S life! He gave me a lot of information--all positive. He answered
my husband's and my concerns reassuringly, presenting himself as an experienced
doctor, skilled surgeon, benevolent human being. I remember thinking to myself
how fortunate I was to be in such good hands. One of the reasons I agreed to go
along with the surgery, is because I had heard of so many women that had had a
hysterectomy, and they all seemed fine to me. I realize now that I could only
see what was visible on the outside--just like I probably seem "fine" to
other women. But on the inside, I'm not.

4.)Did you use birth control pills in your lifetime?

**No, I've never used them.

5.)Did you use tampons or pads during menstruation?

**Mostly tampons, but at night I used pads.

6.)Do you have female blood relatives with reproductive diseases?

**No.

7.) Are you a DES daughter?

**No.

8.)How long has it been since your surgery?

**2 years, 7 months, 4 days...but who's counting?

9.)Did you have uterus, and both ovaries removed?

**Uterus, both ovaries, cervix (All healthy and necessary organs,
cut from my body and tossed into the trash.)

10.)What problems, if any, are you experiencing?

**I gained 50 pounds since the surgery! Couldn't get out of bed for the first two
years. Extreme fatigue and depression. High blood pressure, high cholesterol.
Also, my whole body aches, just about all the time. I didn't have a clue that
this could be from the hysterectomy. I feel "old". My cognitive abilities have
sharply declined. I don't feel like "me" anymore. My personality changed.
I am reclusive and don't want to socialize. Just yesterday, I blew off going
to my nephew's wedding. I was always so close to him, but not only did I
lack the physical and emotional stamina, I am also very uncomfortable around
people. Sex is now just a memory. I've had to accept that I will not have sex
for the rest of my life. That unnecessary surgery has ruined my health, my mind,
my spirit, my relationships, my job, my financial situation, my future, my hope.

11.)What if anything has made them better?

**The gynecologist told me my symptoms were all in my head. THAT certainly didn't
make me feel better! I just recently started working with an endocrinologist
to try to find some kind of balance with hormones. Although I know I can never
return to my healthy state. Every second, of every minute, of every hour, of
every day, of every week...I have only one thing on my mind. That hysterectomy
has ruined every facet of my being. And it can't be undone.

12.)Have you ever encountered a doctor or nurse that did not treat you with
respect in regard to your difficulties?

**I could write a BOOK about the atrocious treatment I received from that criminal
and his cohorts. When I tried to discuss the sexual difficulties I was having,
his nurse remarked, "Well, maybe the men you're sleeping with aren't any
good." When I first realized I was suffering from a lot of difficulties that
presented after the hysterectomy, I actually looked forward to my next appointment
with the gynecologist, thinking that when he hears of my troubles, he'll help
me out. Well, he got defensive and angry at me, told me it was all in my head,
suggested I check into a psychiatric facility. After that one appointment, he would
never again return my phone calls or allow me to make an appointment with him.
Essentially, he "fired" me as his patient. He didn't even have the decency to
tell me! He just never talked to me again, then one day, I received a phone
call from my primary care physician who told me from now on, I would be
contacting him for my gynecological health needs. (The primary care physician
works in the same health center as the gynecologist. This health center is
actually an affiliate of a very large, prestigious hospital here in Massachusetts.)

13.)Are you currently using any form of hormone replacement therapy?

**Vivelle-dot .1 mg and methyltestosterone .5 These are
prescribed by a reproductive endocrinologist.

14.)How are you feeling currently?

**Angry. Sad. Distressed. Obsessed. Regretful. Scared. Lonely. Ashamed.
Embarrassed. Without hope. I say I am ashamed because I am so overweight
now. I don't want anybody to see me. I am scared because of all that I've
read concerning long-term health consequences of oophorectomies (osteoporosis,
heart disease), And, I'm scared about all the contradictory information about
hrt's. I recently read that methyltestosterone
(which I take) causes liver damage!

15.)Anything else you need or want to share??

**I'm sorry if my negative attitude offends anyone. That's not my intention.
I realize that my experience does not reflect that of all women. We are each in
a unique situation, with a combination of varying factors--age, reason for
surgery, family health history, pre-existing medical conditions, emotional
support systems, bodily chemical structures, spiritual faith, etc...

I am especially angry because I was lied to and exploited by my doctor.
I didn't need that surgery. I was always health-conscious; physically
active, non-smoker, non-drinker, etc... Now I feel like I may as well have
partied it up! My health was taken from me for
the financial and professional gain of a greedy doctor.

16.)Do you have a Web Site/Home Page?
If so, leave me the url I'd love to visit!

**I don't at this time. I am planning on putting
one up when I am feeling better.

If you'd like to leave your email address for other
women to be able to contact you, please add it here:

1.)What was the reason for your hysterectomy?(endo,fibroids,etc.)

***Huge fibriods, and a mass on my uterus, Heavy painful LONG periods.

2.)Do you feel like you were informed about what to expect after surgery
and what the long term effects might be on your health by your doctor?

***No I wasn't. I was told, it would take
the pain away and I'd feel like a new woman.

3.)If not your doctor, where did you get your information on hysterectomy?

***Internet, family members who have had it.

4.)Did you use birth control pills in your lifetime?

***Some.

If yes for how long total?

***I think in total 2 yrs.

At what age did you start using them?

***Gonna sound like i was not smart, but i didn't start taking them until
I had my first child. I couldn't handle them, sickness, headaches and
they couldn't find the right level for me.

5.)Did you use tampons or pads during menstruation?

*** Both

6.)Do you have female blood relatives with reproductive diseases?

***Yes. Mother, Aunt, Sister, Grandmother.

7.)How long has it been since your surgery?

*** I had it done on April 2004. One year after my daughter was born.

8..)Did you have uterus, and both ovaries removed?

***No just my uterus

9.)What problems, if any, are you experiencing?

***Moodiness, A LOT of weight gain (usual weight 105, now weight 145),
some hot flashes, night sweats, insomnia, i think some depression.

10.)What if anything has made them better?

***Nothing really. Kept my ovaries, dr said I didn't need any HRT.

11.)Have you ever encountered a doctor or nurse that did not treat you
with respect in regard to your difficulties?

***Yes, that is why I found the dr that finally decided my symptoms were
severe enough to do something about it. My first ob/gyn didn't do anything
for me. I had all the symptoms during my pregnancy and would never check for
anything.(which by the way, my daughter was born 4 weeks premature, labor
wouldn't stop, and then had complications of her being stuck in the birth
canal, supposedly blocked by something, later to be the fibriod that was
under my uterus blocking her) Just made a comment that I had a lesion on
my uterus and that was it. I kept pushing for things to be checked and they
refused, told me I just had a irritable uterus and stop whining. I fired
him and found an ob/gyn who within a month ran tests, and did blood work and
finally figured out what was wrong with me. After
months of pain and bleeding he helped me.

12.)Are you currently using any form of hormone replacement therapy?

***NO

13.)How are you feeling currently?

***I feel depressed. I want to so badly feel like a woman again. I don't
feel feminine, I don't feel sexy. I so badly want to loose the weight,
I just don't feel healthy with all the extra weight gain. I have 3 children,
I need to feel like I can be around them without blowing up. I wanna
have sex again, I haven't had it since the surgery. I cry all the time,
I feel like I cant relate anymore to anyone. I
used to be outgoing, and I stay in the house all cooped up.

14.)Anything else you need or want to share??

***PLEASE, know what your options are before going thru this. It might
help with the problems, but there are many more
problems afterwards that no one tells you about.

© Copyright. Jeannah McElroy. 2004

UPDATED: 08/31/04

Backgrounds by:Elegant Backgrounds

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Hysterectomy Awareness