Positive Hysterectomy Experiences-2

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AND MAY NOT BE REPRODUCED WITHOUT THE AUTHOR'S PERMISSION

Many thanks to those sharing their positive hysterectomy experiences!

09/13/02

1.)What was the reason for your hysterectomy?(endo,fibroids,etc.)

**I am a 47 year old woman that was diagnosed with endometriosis,
huge fibriod, polyps on ovaries

2.)Do you feel like you were informed about what to expect after
surgery and what the long term effects might be on your health by your doctor?

**Yes...My Gyn was very informative...lots of pamphlets, plus
I did a lot of reading on my own.

3.)If not your doctor, where did you get your
information on hysterectomy?

**Pubmed...other medical journals.

4.)Did you use birth control pills in your lifetime?

**Yes

If yes for how long total?

**From 17 until current hysterectomy at 46.

5.)Did you use tampons or pads during menstruation?

**Both, but usually tampons.

6.)Do you have female blood relatives with reproductive diseases?

**No.

7.) Are you a DES daughter?

**Yes

8.)How long has it been since your surgery?

**Approx 1 Year

9.)Did you have uterus, and both ovaries removed?

Yes

10.)What problems, if any, are you experiencing?

**Some 'phantom' cramping...not unlike ovulation. Mild.

11.)What if anything has made them better?

**Don't really notice it that much...going to have it checked out today.

12.)Have you ever encountered a doctor or nurse that did
not treat you with respect in regard to your difficulties?

**No

13.)Are you currently using any form of hormone
replacement therapy? Yes If so what?

**Cenestin 1.25mg

14.)How are you feeling currently?

**Good/Great...actually much better than before the surgery!
My energy level is much higher and I don't mind not having raging
PMS every month (and neither does my husband ;)

15.)Anything else you need or want to share?

**Women need to realize that when a major organ is removed from their
bodies there are going to be changes. Fortunately for me the process
was successful....most of my friends have had good experiences also.
I exercise daily, eat healthy, and am looking forward to old age.
It is sad that many women have problems after surgery...
knowledge is power! Take control of your life...for me the experience
was a good alternative to natural menopause (hot flashes/excessive
bleeding/memory loss/mood swings...etc., etc.) Remember Doctors are
not Gods...they are human beings that make mistakes...and
a lot of them in practice shouldn't be...check out their credentials.

1.)What was the reason for your hysterectomy?(endo,fibroids,etc.)

**When I was 15, I was diagnosed with PCOS. Was off and on BCP's a lot. Sometimes I would
go without a period for 6 months and sometimes I would bleed as long as 3 weeks at a time.
My periods were very irregular and very painful, with lots of heavy bleeding and large clots.
At 18, I was diagnosed with endometriosis and took 4 months of Lupron injections with no
help, then went to BCP therapy for about 6 months with no help. I then switched Drs.,
he did laser surgery when I was 19 to remove the endometriosis. They told me my
chances of getting pregnant were very slim, but I continued on BCP's for while.

I decided to stop since they told me I probably wouldn't get preg. anyway. I was
pregnant right away without even getting a period. I did lose the baby at 4.5 months.
The Dr. I ended up having was not very good, he took US to make sure the placenta was out
and said it was. 2 weeks later I was back in in pain and bleeding every other day.
He then examined me and the placenta was still in there, so I underwent a D&C.
I now wonder if having that in there was a cause to my later problems.

Four years later I did get pregnant again and carried this one full term and had a big
healthy baby boy. But right after all the problems started again. I saw Drs over the
next 10 years that told me it was either in my head or the endo was gone so I couldn't
be having that much pain. They all say the PCOS is not painful, I even saw an
endocrinologist and he said he couldn't help me. I finally found a wonderful OB/GYN
to help me, we did continuous BCP so I wouldn't get a period. I let that go for about
8 months, but I was still getting lots of pelvic pain. He finally agreed that the
only was I was going to be pain free was to have a hysterectomy. When he did that he
found out that I had adneomyosis and that was the cause of my pain. I had my
hysterectomy 2 years ago and I have never felt better. I have much better
bladder control after the surgery also, my uterus
must have been pressing on my bladder.

2.)Do you feel like you were informed about what to expect after surgery and
what the long term effects might be on your health by your doctor?

**Yes, my Dr was very helpful and so was my family Dr.

3.)If not your doctor, where did you get your information on hysterectomy?

**I talked to other people I knew that had one and read about it on the internet.

4.)Did you use birth control pills in your lifetime? If yes for how long total?
At what age did you start using them?

**I started using them at 15. I used them off and on for about 12 years.

5.)Did you use tampons or pads during menstruation?

**both

6.)Do you have female blood relatives with reproductive diseases?

**Yes, my grandmother had ovarian cancer and my other one had endometriosis and ovarian
cysts. How my mother escaped having any problems is beyond me.

7.) Are you a DES daughter?

**no

8.)How long has it been since your surgery?

**2 years

9.)Did you have uterus, and both ovaries removed?

**yes

10.)What problems, if any, are you experiencing?

**Just loss of sex drive. But that is ok, since my current boyfriend has health
problems and we can't have much of a sex life anyway.

11.)What if anything has made them better?

**Haven't tried anything.

12.)Have you ever encountered a doctor or nurse that did not treat you with
respect in regard to your difficulties?

**Everyone has treated me just fine.

13.)Are you currently using any form of hormone replacement therapy? If so what?

**none

14.)How are you feeling currently?

**Absolutely wonderful! I waited a long time to pain free.

15.)Anything else you need or want to share?

**Hysterectomy is not only the other option, but in some cases, I think they wait too long.
I suffered for 15 years and age was always my factor, but I am glad I did it.

If you'd like to leave your email address for other women
to be able to contact you, please add it here:

1.)What was the reason for your hysterectomy?(endo,fibroids,etc.)

**My grandmother had ovarian cancer.....my oldest sister of 6 girls had ovarian
cancer and then we all got checked on the advice of the doctor who was the head
of oncology. I had a cyst on my left ovary and it continued to grow....
had a lap done....it still grew. I was experiencing abdominal pain, excruciating
pain during ovulation and the lap results....endometriosis. Three
of my sisters had full hysterectomies before me.(i am 37 now)

2.)Do you feel like you were informed about what to expect after surgery and
what the long term effects might be on your health by your doctor?

**I was more informed by my sisters than anyone else

3.)If not your doctor, where did you get your information on hysterectomy?

**Books, family, friends

4.)Did you use birth control pills in your lifetime?

**NO

5.)Did you use tampons or pads during menstruation?

**No

6.)Do you have female blood relatives with reproductive diseases?

**Grandmother, 3 sisters so far

7.) Are you a DES daughter?

**No

8.)How long has it been since your surgery?

**14 months

9.)Did you have uterus, and both ovaries removed?

**Ovaries, uterus, tubes, cervix

10.)What problems, if any, are you experiencing?

**Occasional hot flashes

11.)What if anything has made them better?

**I walk 5 km a day and exercise a lot....yoga,
aerobics.....eat very healthy

12.)Have you ever encountered a doctor or nurse that did not treat you with
respect in regard to your difficulties?

**No

13.)Are you currently using any form of hormone replacement therapy?

**Estrace

14.)How are you feeling currently?

**I feel good....I just worry about the effects of the estrace down the road
and am looking for something more natural.....i have heard of bioidentical
hormones and would like to know more about them

15.)Anything else you need or want to share??

For me it seems like a good decision, i feel
much better, physically and mentally

If you'd like to leave your email address for other women
to be able to contact you, please add it here:

11/21/04

1.)What was the reason for your hysterectomy?(endo,fibroids,etc.)

**I had problems with PCOS including weight gain, facial hair, bad acne,
high blood pressure, headaches, backaches, depression, and a general feeling
of nausea that seldom went away. My doctor discovered an ovarian cyst
(about the size of a tennis ball) and also a prolapsed uterus.
I had a laparoscopic/vaginal type of surgery.

2.)Do you feel like you were informed about what to expect after surgery and
what the long term effects might be on your health by your doctor?

**My doctor is Dr. Barbara Nylander. She is the best. She will actually listen to you!
I cannot say enough great things about her. She was very supportive
and gave me all the information and options available.

3.)If not your doctor, where did you get your information on hysterectomy?

**I initially researched the internet to discover a reason for the adult acne.
This research eventually led to the PCOS diagnosis.

4.)Did you use birth control pills in your lifetime?

**Yes, for just a few months about 20 years ago.

5.)Did you use tampons or pads during menstruation?

**Yes

6.)Do you have female blood relatives with reproductive disease?

**My Grandmother had ovarian cancer.

7.) Are you a DES daughter?

**No

8.)How long has it been since your surgery?

**About 3 weeks ago.

9.)Did you have uterus, and both ovaries removed?

**Yes

10.)What problems, if any, are you experiencing?

**Constipation. The anesthesia also made me light headed for several days.

11.)What if anything has made them better?

**Extra fiber for the constipation. Had to just wait for
the light headedness to go away on its own.

12.)Have you ever encountered a doctor or nurse that did not treat you
with respect in regard to your difficulties?

**I had my surgery at the Baptist Hospital North Tower. Everyone there
was wonderful. I just wish everyone who has to
face surgery could have the same team to work with.

13.)Are you currently using any form of hormone replacement therapy? If so what?

**Hormonal patch

14.)How are you feeling currently?

**Having this surgery was the best thing that has happened to me in years.
I feel at least ten years younger. The high blood pressure is gone. The depression
is gone. The acne is gone. No more backaches. It is like a new lease on life!
There was a real strange feeling for the first week or so after surgery.
I felt so much better, it felt sorta funny. I did not realize how sickly I was
until after the surgery.

Things like getting out of bed in the morning without having to stretch first is
amazing. Standing up for longer than a few minutes used to cause terrible
backaches. Now the pain is gone! I am so happy that things turned out this way!

15.)Anything else you need or want to share?

**I worry about the many women that read about bad hysterectomy experiences
before facing surgery. I talked to about twenty different women who have
had hysterectomies. All but one said that they feel so much better now.
It was a real positive experience and a choice they were glad to have made.
The only one that did not feel a lot better was the only one who had a
partial hysterectomy. She kept her ovaries and said she is still waiting to feel better.

(as always I caution my readers, take it all with a grain of salt, the good
and the bad! Some women feel good immediately after hysterectomy and continue,
others feel good for several months until the bodies store of it's own hormones
are used up, just be aware and be proactive!)

04/24/2005

I did not see a link on your website to express my experience so am sending this
to you. Please feel free to use this experience if you wish.

I had a complete hysterectomy and oophorectomy after 15 years of increasingly painful and often
debilitating periods. At age 27 I was told I had cysts on my ovaries and prescribed 600 mg.
of Motrin for pain. Three years later a laparoscopy revealed endometriosis and adhesions and
I underwent surgery to clear up these conditions.

Several years later I experienced a ruptured tubal pregnancy. After recovering from that,
continued pain and unusually heavy bleeding prompted me to think about hysterectomy.
My ovaries were now producing a minute amount of hormones and my state of mind had
steadily evolved into negativity (what I would call "pissy") where I had always enjoyed
a great outlook. I was fortunate in that my husband's father was
an OB/GYN and I had my surgery at his hospital.

In 1986 I underwent a hysterectomy and oophorectomy; surgery revealed l had pelvic inflammatory
disease and scar tissue was "gluing" my organs together. During the hysterectomy they
dropped in my first dose of estradiol pellets. That was in 1986 and I have them implanted
every 6 months. I did gain 10 pounds after the first implants, but over time was able to
control any weight gain that may have been associated with hormones. My outlook improved almost
immediately and I have enjoyed 25 years of joyful bliss with a wonderful husband.

I honestly feel the hormones play a huge part in my attitude and quality of life.
I have never experienced any side effect that I am aware of. I do have difficulty finding
a physician to do the implants and my insurance company elects not to pay for the procedure.

I wanted to address some of the questions you have posted to other participants in
the experience section of your website:

My mother had six children with no problems; out of four daughters, two of us had
reproduction problems, but I am the only one who had any surgical procedure.
I don't know of any other relatives who had difficulties in this area.

I used tampons and pads and took one of the lowest
doses of birth control pills for 12 years.

I received detailed information on my condition, received the best of care and
encountered only one doctor in the beginning who did not take my complaints seriously.

Thanks for providing your website. I enjoyed reading others' experiences, though I truly
feel sorry for those whose quality of life is affected
by pain and suffering from reproductive disfunction.

05/16/05

I am 37 years old and just had a Laparoscopic Assisted Vaginal Hysterectomy (kept the ovaries).
I simultaneously had a hernia repair. I got the pathology report on my removed uterus
today and my doctor confirmed my problem was Adnomyosis. I had no idea I could feel so good.

I have found very little information on the web regarding the condition that caused
me to seek a hysterectomy. I would like to share my experience with other women so they may have
additional info to discuss with their health care providers. Especially women like myself
who sought answers for many years, from many doctors, and tried every suggestion to no avail.

I would like to note for all readers that my problem is two-fold:
1) I had Adnomyosis which caused the debilitating periods
2) I had a Hernia (Enterocele) which caused the pain in-between periods

Regarding Adnomyosis:
Adnomyosis is where the uterine lining actually burrows into the uterine/muscle wall.
It has a similar cellular structure to Fibroids, but is somewhat evenly distributed throughout
the uterine lining instead of becoming a mass like a Fibroid tumor. In essence, every time I
shed the lining of my uterus (had a period) tiny parts of my uterine lining
were being ripped out with it.

My periods were absolutely disabling. I have been offered narcotics by many health care
providers but chose to stick with LARGE, ill-advised amounts of Ibuprofen (Advil, Motrin)
because it's hard to take care of your kids, go to work and meet general responsibility
when you're loaded on painkillers. I would sometimes supplement with Tylenol 3. I always wore
a ThermaCare pad in my undies (like a portable heating pad). The pain still did not go
away. It only became manageable enough to go to work.
It's a miracle my kidneys are still functioning properly.

My last health care provider had me on The Pill "continuously" (no one-week break for periods)
to suppress menstruation but I found it's not a good long-term solution. She also had me on Prozac.
She wouldn't discuss surgical options with me because she "...didn't think it was a good idea".
She would not give me a medical reason for her objection. She simply didn't agree with
surgical options. When I broke down crying in her office because I couldn't take the pain
anymore, she just asked, "Are you still taking the Prozac?" I changed providers that day.

Adnomyosis is not that easy to diagnose and is not as "popular" as Endometriosis. It does not
usually show up on an X-Ray or an Ultrasound. Also, a biopsy will often miss this condition
as the sample usually comes from the uterine lining and does not include the muscle wall
itself (which is where Adnomyosis resides).

What is most amazing to me is during all these years, doctor after doctor, test after test,
I had never even heard of Adnomyosis until I met with this gynecologist for the
first time about two months ago. I even had a Laparoscopy two years ago to check
for Endometriosis but neither that nor the Adnomyosis were found.

Regarding Hernia
The type of hernia I had repaired is called an Enterocele. Basically, part of my intestine
bulged out through the muscle wall behind the lower uterus and protruded into the vaginal
wall. I always described it as a feeling that I had a bowling ball in my uterus...
often a sharp bowling ball. I felt this way most of the time in between periods.
This also aggravated my periods. This type of hernia is common in women who have given
birth and is often caused by childbirth. Unfortunately for me... that was 17 years ago.
The hernia was found and repaired during my hysterectomy.

The pain of recovering from surgery is no where near the pain I have carried for years
during and in between my periods. I knew by the morning after surgery that I had
made the right decision. I feel grateful to finally have a name for my pain.
I feel absolutely amazing compared to before surgery.

The key for me was in being persistent with my health care providers and not settling for
the usual pat on the head ("so you've got cramps, quit whining"). I also found that seeing
a specialist was enormously helpful in getting answers and choosing treatment.
It also helps that this type of hysterectomy is minimally invasive and the recovery is fast.

A word to the wise about recovery:
After surgery, you feel so great that it's hard not to overdo it. The hernia repair is
a much bigger deal recovery-wise than the hysterectomy. I cannot lift, push, pull
or maneuver anything over ten pounds for three months. I am my own worst enemy there
and have already caused a minor set-back or two in pushing the repair to its limits.
So if you are going to have one or more of these surgeries, do yourself a favor and
follow doctor's orders despite your pride and responsibilities.

I'm sure I could write more... but I won't. If you have any questions about my
experience please feel free to contact me via the email address provided below.

Jeanne Milliren
Seattle, WA

**Update from Jeanne on 04/10/08
"It has 3 years and I am still doing GREAT."
**(thanks for the update Jeanne!)

1.)What was the reason for your hysterectomy?

**Endometriosis , cysts

2.)Do you feel like you were informed about what to expect after surgery and what the long
term effects might be on your health by your doctor?

**Yes, My (male) Dr is great.

3.)If not your doctor, where did you get your information on hysterectomy?

**Dr. and Internet

4.)Did you use birth control pills in your lifetime?

**Age 16. Too many types to name.

5.)Did you use tampons or pads during menstruation?

**Both Ė mostly tampons

6.)Do you have female blood relatives with reproductive diseases?

**Not sure. My mom had heavy periods but no diseases

7.) Are you a DES daughter?

**no

8.)How long has it been since your surgery?

**12/31/04

9.)Did you have uterus, and both ovaries removed?

**everything

10.)What problems, if any, are you experiencing?

**No problems. Have never felt better.

12.)Have you ever encountered a doctor or nurse that did not treat you
with respect in regard to your difficulties?

**no

13.)Are you currently using any form of hormone replacement therapy?

**Estrogel

14.)How are you feeling currently?

**Feel great

15.)Anything else you need or want to share?

**I had no sex drive before (mostly b/c of pain) now I enjoy sex. I can wear
whatever/whenever with no worries of a tidal wave of unexpected blood.

If you'd like to leave your email address for other women
to be able to contact you, please add it here:

My name is Mary & I am 31 years old. 1/2006

1.)What was the reason for your hysterectomy?(endo,fibroids,etc.)

**Severe, debilitating pelvic pain and abnormal periods (one every 21days) - I had
adenomyosis and my left ovary and fallopian tube had become twisted up and adhered to my colon.

2.)Do you feel like you were informed about what to expect after surgery
and what the long term effects might be on your health by your doctor?

**In some ways, but he didn't cover all the possibilities.

3.)If not your doctor, where did you get your information on hysterectomy?

**Internet sites and postings of other women's experiences.

4.)Did you use birth control pills in your lifetime?

**Only for a few months to try to stop my periods, as prescribed by my dr.

5.)Did you use tampons or pads during menstruation?

**Pads.

6.)Do you have female blood relatives with reproductive diseases?

**No.

7.) Are you a DES daughter?

**No.

8.)How long has it been since your surgery?

**Almost 2 1/2 years.

9.)Did you have uterus, and both ovaries removed?

**Uterus, one ovary.

10.)What problems, if any, are you experiencing?

**At first, a weird, radiating heat and numbness in left thigh that was sometimes painful
(if I was on my feet too long without moving around). It's actually back just recently -
but I've just started doing major abdominal exercises in the gym. After a little research
I think it might be femoral nerve damage, but I'm going to have to be sure.

11.)What if anything has made them better?

**Not much besides rest.

12.)Have you ever encountered a doctor or nurse that did not
treat you with respect in regard to your difficulties?

**I'm a big girl with a big belly, many doctors blamed the pain on my girth, refusing
to believe it had anything to do with my reproductive system. One doctor insisted I had
colitis, even when a colonoscopy came out clear. One doctor saw my clearly red and
inflamed cervix and heard my SCREAM when he tried to do a pap smear and still insisted
there was some other underlying cause. It was hard to persuade anyone to do anything
for me for a long time - I spent more than 2 years in constant pain only able to work
1-2 hours a day before it became unbearable. I went to
several doctors in town before one treated me with respect.

13.)Are you currently using any form of hormone replacement therapy? If so what?

**No.

14.)How are you feeling currently?

**Aside from the weird leg thing, I feel great. A mere 2 weeks after surgery I was
back at work part-time. A month later I was back in school. I've not had any pelvic
pain since then, and I feel as if I've been given my
life back. I can do all the things I used to do.

15.)Anything else you need or want to share?

**I don't have any children, so this was not only a major decision for me, it was
the end of one possibility. Having said that, I know that in my prior condition
children wouldn't have been a possibility for me - even if I could have had one,
I couldn't have raised one. There are still plenty of possibilities open to me, but
I do know that each one of us has to make this difficult,
life-changing decision, in some way, on our own.

1.)What was the reason for your hysterectomy?(endo,fibroids,etc.)

**Fibroids, Heavy, painful and frequent periods

2.)Do you feel like you were informed about what to expect after surgery
and what the long term effects might be on your health by your doctor?

**I sort of had an idea since I had a c-section 15 years prior. Didn't discuss long
term effects, all I cared about was that I would feel better after wards.

3.)If not your doctor, where did you get your information on hysterectomy?

From my doctor and various websites.

4.)Did you use birth control pills in your lifetime?

**From the time I was 16 to 24, then again at 25 to 32

5.)Did you use tampons or pads during menstruation?

**Both

6.)Do you have female blood relatives with reproductive diseases?

**no

7.) Are you a DES daughter?

**no

8.)How long has it been since your surgery?

**3 weeks

9.)Did you have uterus, and both ovaries removed?

**Just the uterus

10.)What problems, if any, are you experiencing?

**Only problem is the pain from the incision. Doctor used surgical glue, I don't
recommend it. Glue was inside the incision and the skin wasn't healing properly.
Took an hour hot bath to loosen it up and get it out and then put on butterfly
bandages so the incision could continue healing.

11.)What if anything has made them better?

**Read #10

12.)Have you ever encountered a doctor or nurse that did not treat you
with respect in regard to your difficulties?

**Only one doctor, he was too concerned about a minute bacterial infection
that barely registered. I wasn't having any symptoms.

13.)Are you currently using any form of hormone replacement therapy?

**No

14.)How are you feeling currently?

**Feeling better and better everyday. Went back to
work 1 week after wards and everyone thought I was nuts.

15.)Anything else you need or want to share?

**Before they wheeled me into the operating room, I was laughing and smiling, the
nurses were baffled. All I told them was yes, I'm having surgery, but the final
result will be well worth it. :) That night, the catheter came out, the next morning
the IV cam out and I took a shower, and the next day I went home. I was expected to be
in the hospital for 3-5 days. No way. I wanted out of there and home where I would be
more comfortable. So as soon as I was able to get up and walk around, I did it.
Cringing with pain undercover, but sometimes you just have to grin and bare it and
get back to normal as soon as you can. The recovery process will go much faster.
6 weeks??? I don't think so :)

Vonnie

1.)What was the reason for your hysterectomy?(endo,fibroids,etc.)

**I had endometriosis, cysts, and severe pelvic congestion.

2.)Do you feel like you were informed about what to expect after surgery and what
the long term effects might be on your health by your doctor?

**I researched a lot on the internet, which scared me and I put it off for 3 years.
My Dr. was very informative.

3.)If not your doctor, where did you get your information on hysterectomy?

**Internet, friends.

4.)Did you use birth control pills in your lifetime? If yes for how long total?
At what age did you start using them?

**Yes, for a total of 3 years maybe less. I started them at 15.

5.)Did you use tampons or pads during menstruation?

**Tampons 98% of the time.

6.)Do you have female blood relatives with reproductive diseases?

**Not that I'm aware.

7.) Are you a DES daughter?

**No.

8.)How long has it been since your surgery?

**2 weeks

9.)Did you have uterus, and both ovaries removed?

**Uterus and right ovary.

10.)What problems, if any, are you experiencing?

**None. I was supposed to start and it was great, I had NO pain. I am tired of laying in bed.

11.)What if anything has made them better?

**No problems. Food Network.

12.)Have you ever encountered a doctor or nurse that did not treat
you with respect in regard to your difficulties?

**No.

13.)Are you currently using any form of hormone replacement therapy? If so what?

**No, I kept my left ovary.

14.)How are you feeling currently?

**Bored.

15.)Anything else you need or want to share?

I researched for 3 years about pelvic congestion ( varicose veins on the uterus)
and hardly found what I needed to know. I had severe pain in my right leg during
my period and it got worse, it started hurting before my period. I finally decided
to have the hysterectomy and I don't regret it at all. I have had endo since I was 15.
That was not a factor in the hysterectomy. I thank God everyday I was able to have children.

If you'd like to leave your email address for other women to be able to
contact you, please add it here:

1.)What was the reason for your hysterectomy?(endo,fibroids,etc.)

**I had fibroids that kept getting bigger. My uterus was actually 3-4 time larger than normal.
I also had pre-cancer cells that kept coming back.

2.)Do you feel like you were informed about what to expect after surgery
and what the long term effects might be on your health by your doctor?

**yes, I had a wonderful Dr. I of course did lots of research before deciding on
my surgery. My Dr. answered all my questions before and after surgery.

4.)Did you use birth control pills in your lifetime?

**Yes, I used them since I was 16 and up until my surgery.

5.)Did you use tampons or pads during menstruation?

**Yes I used tampons early on. I started at a very young age. I started when
I was only 10. When I got older I started using tampons.

6.)Do you have female blood relatives with reproductive diseases?

**I have an aunt that had cervical cancer and my sister had pre-cancer cells.

7.) Are you a DES daughter?

**No

8.)How long has it been since your surgery?

**I had surgery on Oct. 16, 2006. So its been 3 months.

9.)Did you have uterus, and both ovaries removed?

**I had my uterus and cervix removed. I still have both ovaries.

10.)What problems, if any, are you experiencing?

**The Dr. had to perform a C-section incision because my fibroids were so large.
I'm still have some soreness from that because of the incision
and extent of surgery but I'm doing better.

12.)Have you ever encountered a doctor or nurse that did not treat you
with respect in regard to your difficulties?

**yes, when I first started having my pre-cancer problems
but the Dr. who did my surgery has been nothing but wonderful.

13.)Are you currently using any form of hormone replacement therapy? If so what?

**NO

14.)How are you feeling currently?

**I'm actually feeling great. Sex is better and my back and
hip pains have stopped. No more painful periods.

15.)Anything else you need or want to share?

**Having a hysterectomy is not only a physical thing but an emotional one.
My husband has been wonderful. We don't have children and it was very hard on me
when I had to have the surgery. Without the support of him, I couldn't have made it.
It's so important to have support. Not only for the physical
aspects but also for the emotional part of it too.

My name is Missy from Alabama and I am 34 years old.
Thank you for having this website. I hope it helps lots of woman.

If you'd like to leave your email address for other women to be able
to contact you, please add it here:

1.)What was the reason for your hysterectomy?

**(endo,fibroids,etc.)

I had 2 fibroids on either side of the uterus. They were big enough to collide in the center.
These were extremely painful and caused very long very painful periods (generally 9-12 days)

2.)Do you feel like you were informed about what to expect after surgery
and what the long term effects might be on your health by your doctor?

**Extremely! My Doc is Great...we had, had this conversation approximately 2 years
previously, at that time we had opted for an Endometrial ablation. That did help for about
6 months for other reasons, then I developed the fibroids.

3.)If not your doctor, where did you get your information on hysterectomy?

NA

4.)Did you use birth control pills in your lifetime?

**Yes, in the beginning when I was about 19. I didn't like them and didn't feel safe using them.
I could never remember to take them. I did opt for the Depo-Provera shot after my first child.
I took the shot for 6 years. I decided then I wanted another child.
It took me 2 years to get pregnant after that.

5.)Did you use tampons or pads during menstruation?

**Usually both at the same time due to them being so heavy.

6.)Do you have female blood relatives with reproductive diseases?

**I really wouldn't know. I don't know any of my real family. I was adopted.

8.)How long has it been since your surgery?

**My surgery was 2 weeks ago and except for the low grade
fever all day every day I feel GREAT!!!

9.)Did you have uterus, and both ovaries removed?

**Just the uterus.

10.)What problems, if any, are you experiencing?

**Just the low grade fever. In the beginning I was having issues from the catheter
and hurt a lot on the left side of where the uterus would have been but those have
even seemed to have disappeared. Just in case the doc sent me to have a vaginal ultrasound
and also an ultra sound to check the bladder and kidneys. All was fine.

11.)What if anything has made them better?

**I think the 2 rounds of meds and lots of rest. I only used the pain pills prescribed for
1 day. I didn't like the way they made me feel. I had, had enough of the morphine
in the hospital and ended up with an allergic reaction. I only took Tylenol.

12.)Have you ever encountered a doctor or nurse that did not treat
you with respect in regard to your difficulties?

**Yes, before this doc I had another one, a Man. He was awful. Every I would bring up a problem,
he would tell me it was in my head and that it would go away if I would stop worrying about it.
I got very frustrated!!! I decided to seek out a new doc because I knew my symptoms were real.

13.)Are you currently using any form of hormone replacement therapy?

**NO, no need.

14.)How are you feeling currently?

**I feel absolutely Great!!! I make sure not to over do it. I am really looking forward to
not having to worry about a period anymore. I can wear white
whenever I want!! No more painful periods!!! Whoo hoo!!!

15.)Anything else you need or want to share?

**I just want to stress that if you do decide to have a Hysterectomy, please be prepared.
Look up all of the information you can, ask lots of questions. I asked everyone I knew
that had, had a hysterectomy. I wanted all the information I could get. I knew a
hysterectomy was right for me, but still wanted to know other peoples experiences. And please,
please, please just relax. Don't over do it. You don't want to regret it later. I am married
with 2 children 12 and 4, in the beginning I felt so guilty for not
keeping the house up, but I quickly realized my health wasn't worth it.

1.)What was the reason for your hysterectomy?(endo,fibroids,etc.)

**Years of chronic pelvic pain, polyps, cysts and (unknown until after the surgery).
I had Adnomyosis. I had dealt with the pain and could manage it pretty much most of the
time, but after having my son, I never stopped bleeding. I bled constantly for 6
months and the pain worsened. One of the GYN's from my Dr's office diagnosed me with
menorrhagia. He gave me a prescription for Provera and it was supposed to stop the bleeding
while taking it for about 6 days then make my periods return to normal. Even the Provera
didn't completely stop the bleeding, but did reduce it considerably. Finally, a few weeks
after the Provera, I did stop bleeding, but then my periods never resumed, but the pain
was still ever present. My usual OB-GYN started discussing my options to resolve the
pain and bleeding issues. He was the doctor who delivered my son and I have been
going to the same practice for over 15 years!

Although, I do have my favorites (this particular doctor being one of them), all of the
doctors there are wonderful and were aware of ALL of my history with reproductive problems.
Ultimately we made the decision that hysterectomy was my best option.

2.)Do you feel like you were informed about what to expect after surgery and what the
long term effects might be on your health by your doctor?

**Yes, my Dr was very informative and addressed all of my concerns before and after surgery.

3.)If not your doctor, where did you get your information on hysterectomy?

**Mostly from my Dr and the pamphlets he provided, but other research
on the internet provided helpful information and influenced my decision.

4.)Did you use birth control pills in your lifetime?

**Yes, I used them off and on from age 18 until age 35.

5.)Did you use tampons or pads during menstruation?

**I have used both, but mainly pads (most of the time the tampons would
just come right back out because of the heavy bleeding and if they did stay,
I would have so much pain they would become uncomfortable)

6.)Do you have female blood relatives with reproductive diseases?

**None that I am aware of.

7.) Are you a DES daughter?

**No

8.)How long has it been since your surgery?

**The 27th of this month (May) will be 3 months.

9.)Did you have uterus, and both ovaries removed?

**No, still have my ovaries.

10.)What problems, if any, are you experiencing?

**No problems, I feel so much better.

11.)What if anything has made them better?

N/A

12.)Have you ever encountered a doctor or nurse that did not treat you
with respect in regard to your difficulties?

**I have been fortunate to have wonderful, very caring physicians.

13.)Are you currently using any form of hormone replacement therapy?

**No.

14.)How are you feeling currently?

**For the first time in a long time I have my energy back and feel more like a normal
person. I had such pain and PMS that my poor children would get snapped at for the
tiniest things. No more hormonal problems and I am so glad. I feel great. Still haven't
really gotten used to the idea of no more periods, although I love that part,
I still find myself checking just to make sure I haven't started.

15.)Anything else you need or want to share?

**I feel very fortunate to have been able to have children, despite all the fertility
problems I had. No one in my family except me has ever had any problem getting pregnant
or ever had any reproductive problems.. I had a problem even becoming pregnant and then once
I finally did, I miscarried, after years of trying again, we conceived again and at
18 weeks gestation I nearly lost my daughter due to an incompetent cervix. I was rushed
to emergency surgery to place a cerclage (a stitch in the cervix to prevent dilating and
premature labor). I have been pregnant 4 times, but only went full term twice
(Cerclages with both) and I have 2 beautiful children, a
daughter almost 4 and a son who will be 9 mos in 2 days.

If you'd like to leave your email address for other women
to be able to contact you, please add it here:

1.) What was the reason for your hysterectomy?

**Diagnosed with Poly Cystic Ovarian Syndrome in 2003. Explained a lot about my lack of getting pregnant
and all the problems that go with that. In 2009 I was diagnosed with Menorrhagia, which is lots of heavy,
prolonged bleeding/cramping/clots. I have been in this hell for, well, all my
life with a period. So, after diagnosis, a hysterectomy was proposed.

2.)Do you feel like you were informed about what to expect after surgery
and what the long term effects might be by your doctor?

**For the most part yes.

3.)If not your doctor, where did you get your information on hysterectomy?

**I did a lot of research online. I also asked women around me that had
hysterectomies and the impacts it made on their lives.

4.)Did you use birth control pills in your lifetime?

**yes

If yes for how long total?

I would say 5-6 years, at the age of 22 then again around 25 and at 32. For birth control at first,
then the drís wanted me on them to help me with my horrendous periods. My previous gyno's pretty much said
I was exaggerating about the pain and severity of my cycles.

5.)Did you use tampons or pads during menstruation?

**both

6.)Do you have female blood relatives with reproductive diseases?

**no

7.)How long has it been since your surgery?

**2 years(jan 2010)

8.)What problems are you experiencing?

**none.. which is FABULOUS

9.)What if anything has made them better? **na

10.)Have you ever encountered a doctor or nurse that did not treat you with respect in regard to your difficulties?

**no, I was blessed with a fantastic gynecologist who was also my surgeon
and a great support staff

11. Anything else you need or want to share??

**I had been putting up with my reproductive system for years, so much pain, trying to get pregnant, etc.
After my PCOS diagnosis, I had given up that dream. When the surgery was performed my doc wanted to leave
an ovary to keep me from having to take hormones, when she went in both of them were so scarred and covered in cysts,
they were both taken. Making the decision for surgery was easy, a fix to a physical problem. What I didnít expect was
the emotions, the depression that followed. Because having my uterus removed was an absolute that I would never be pregnant,
never have my own children. That was the biggest loss of my entire life. I really canít even describe
how devastating it was. The hormones have been a big challenge, my moods and my weight keep changing.
we will see. Otherwise, I'm 40 and doing fine!

© Jeannah McElroy. 2002

UPDATED: 03/25/12

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